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First time home respite caretaker
This week was the first time that we had a respite caretaker here at the house. DH is somewhere around stage 4 and for the most part is "just fine", but I know for a fact that if there was an emergency he would not know what to do (he has already proven that to me). I was apprehensive that he would say something like "I…
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Struggling with providing care for my very willful Mom
I'm new here, but desperate for help with handling these difficult things, and feeling like I'm really botching this pretty badly. A little over a year ago, I moved in to look after my Mom, who was diagnosed with Alzheimer's when she was still somewhere in the middle stages. My family was never good with communication or…
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I am new to all of this.
My wife has been suffering short term memory loss for a few years and though I tried she would not see a doctor. Earlier this month she had a massive delusion. Forgot who I was after 49 years of marriage or that we have lived in our home for over 20 years. We went to the ER and I am still waiting to get a neurologist…
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I did the best that I could
I get tired of hearing about the people who were able to care for their spouses at home until the spouse passed away. I cared for my DH for as long as I could. His doctor and much of my family tell me I took care of him a few months longer than I should have. My DH was mean and angry most of the time. He wouldn't let me…
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comfy chair recommendations?
Hello everyone! Not sure if this question is overly specific, but wanted to see if anyone had thoughts to share! A goal that my Mom and I have is to get a new armchair for my Dad (83, diagnosed with general dementia) to sit in in the living room. Before he fell, he was sitting and sleeping in a big, deep, cushy La-Z-Boy…
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What has changed in a year and a half
Greetings all. In September 2023, I moved both my parents into my home. My dear mom has Alzheimer's. My dear dad has mild cognitive impairment. They are 85 and 87 respectively. For more background, see the discussion at https://alzconnected.org/discussion/64542/moving-my-folks-into-my-house#latest btw - I copied and pasted…
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Tips for Caring From a Distance
I live in Oklahoma and my mother and stepdad live in Maryland. My stepdad is currently in a memory care facility with advanced Alzheimer's. My mother has a severe physical disability and has also recently been diagnosed with early stages of Alzheimer's. My sister and her husband moved into my mother's home to care for her,…
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Searching for Korean speaking caregivers in San Antonio
Are there PAS/Caregiver/Attendant in San Antonio who is fluent in Korean to assist my 82-year-old mother on an hourly basis at her home in San Antonio (78239). There are larger Korean communities in Dallas, Houston, and Austin that I am aware of, but moving there is not an option. My mother has progressive dementia and…
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Vascular Dementia
I would like to hear from anyone who is dealing with a spouse or LO who has this dx. My husband has been diagnosed with cerebral amyloid angiopathy—which seems to be the cause of this vascular dementia. We have been married since 1994. He is 79. This dx has turned him into basically a different person. He is 6'10" and has…
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Bible Verse to Lift You Up 5/15/26
GOOD FRUIT Galatians 5:22-23 New Living Translation 22 But the Holy Spirit produces this kind of fruit in our lives: love, joy, peace, patience, kindness, goodness, faithfulness, 23 gentleness, and self-control. There is no law against these things! When I was a caregiver, I wasn’t perfect but the Holy Spirit’s fruit…
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Is There Anything Else I Can Be Setting Up?
Hi everyone! I hope you and all of our loved ones are doing well. I (27 F) am one of three care givers for my mama (62 F). I have just recently felt as if I have a handle on her Alzheimer's, but am wondering if I'm missing anything that I can set up for her/us to support us some more as she continues to progress. So far I…
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Feeling Anxious
Not sure what stage of Dementia my mom is in but she needs care 24/7 but she still can eat without choking, She watches TV , smiles and still laughs, eats snacks sometimes will feed herself but I’m having a hard time just thinking she might pass sooner or later
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Recommendations on companion services
My mom has PCA, a form of Alzheimer's. She is only 59 but we have already seen a severe cognitive decline and she is unable to live on her own. She is in assisted living right now. They do offer activities throughout the day, but usually the ones in the afternoon are either too difficult for my mom to participate in or she…
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Having a hard time choosing between home care and memory care
A month ago my DH with mixed dementia ended up in the hospital. Nothing serious. From the hospital he went to a transitional care program where they adjust his medication because of his aggressive behavior and high anxiety. He has been there for a month and is much calmer and a lot less aggressive. He is also almost 100…
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
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Did you keep your LO home too long? Then what?
Fellow travelers: I recently learned that a PWD may have progressed beyond a point where Memory Care will take them. I've always assumed that at some point I might need to put my DH in Memory Care, but the idea was always to have him stay home as long as it was not too difficult and/or expensive to care for him. (I work…
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Medicaid's Home and Community-Based Services (HCBS) waivers.
Does anyone have experiences with Medicaid's Home and Community-Based Services (HCBS) waivers for at-home care? My elder law attorney said I should call and apply for an in-home care Medicaid waiver. I did so yesterday. They will call me to set up an in-home evaluation of my DW. From what I can gather, if approved they…
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Mom moved in
Hi , this is my first time on this site. My mom moved in with us in November because she stopped taking care of herself . I am wondering if anyone knows of a reputable service to use for someone to come into the house 2 days a week or so to help her so that my family and I can still maintain our own life .
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Tips for taking care mom has alzheimer
Hello, my name is Cindy. I and my sister live with my mom who is 84 years old and has alzheimer over 14 years now. Her behavior is changing every moment especially at night time. She was happy, and talking and certainly turned strange to us like saying we steal her stuff. She made up stories that never happened. We have to…
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Looking for Resources in Maryland
Hi there! I am seeking guidance to assit my MOL with my FOL's dementia diagnosis. He is going to adult day care three day per week, but still car tasks at home are getting overly challenging. Here are some of the main issues we are working with: -sundowning (lots of frustration throughout the day) -insomonia -inability to…
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How to find in-home care
In the last week, my mom's dementia has quickly advanced, and she's having many issues overnight. My dad wants to keep her at home but needs help. Do you have any advice for how to find overnight care, what to look for, etc? We're looking for care in Lake Norman area of NC near Charlotte.
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Waiting and waiting to finish last Dx test
I see so many here who have been newly diagnosed, and I truly hope you can all get the support you need. I have had all the medical Dx tests—MRIs, biomarker blood work, PET scan. They all point to early stage ALZ, but I still need to have the comprehensive neuropsyche evaluation, but I need to wait until late March to…
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New to Alzheimer's
Hello all thank you for providing a network of caregivers to help guide others through this horrible disease. My grandfather was officially diagnosed over a year ago with Alzheimer's. I am his MPOA and am new to all of this. I am just wondering if anyone has any advice on the following. He has UHC Medicare Advantage and I…
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Mom is about to be homeless, how do we decide what to do?
Hi, my mom was diagnosed with ALZ just about a year ago, but we had been noticing decline for about a year before that. She has progressed significantly and now I believe is in early Stage 5, but with some characteristics from the later stages. She has been living with her partner (long term relationship, not married, they…
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Elderly Aunt....Recent Diagnosis and Home Care Challenges
Hi All, I could use some perspective/guidance/support on our current situation. My sister and I have noticed for some time that our aunt has memory issues, plus a host of other challenges. She has no kids of her own. She was not caring for herself (skipping or cancelling dr apts, not taking or refilling meds, not…
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Fairly new to this dementia thing...
Just for some background, my DH's geriatrician recently diagnosed him with vascular dementia, based on the fact that he had a stroke 3-1/2 years ago. At the time we were told that the only outcome of the stroke was aphasia (word finding difficulty). Since that time he has become disabled due to a bad fall resulting in a…
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Update on bringing DH home from Memory Care
It has now been 6 days since I brought my husband home from memory care, and he has regained quite a bit of the ground he lost during the 2 weeks there. He is more able to walk since he is walking in the house without a walker so strengthening his leg muscles (can't fix the really bad knees). His initial confusion about…
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Thank You! And looking for ideas...
My siblings and I are caring for our mother. She has had Alzheimer's for a few years, but although I am learning so much in this forum (Thanks to all of you!!), I don't know what stage she is in. Recently our Dad has been hospitalized following a severe stroke and we see lots of rapid changes in our mom. We have home help…
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Becoming a personal care surrogate
Hi! I am brand new to this group and so appreciate the networking with others who are navigating the care of a parent with Alzheimer’s. I’ve been trying to be proactive about this. My brother and I hired an elder law attorney. We established power of attorney for my brother and Healthcare proxy for both. He and I work…