-
How do I answer the question, "Why can't I remember?"
I have been a caregiver to a lovely woman in MS of Alzheimer's since April 2023. One thing she's been doing more of here lately is asking me why she can't remember things. For example, just today, she was talking about her father and how she wasn't sure whether or not he was still alive. When I confirmed her suspicions of…
-
Trying to Manage
Since my FIL has been staying with us, he just seems to be getting more difficult to care for. We have received a referral to neurologist for my FIL so we will be making an appointment to hopefully get an official diagnosis, medications/treatment. We have reached out to attorney regarding POA. In the meantime, we’re…
-
Sudden worsening of symptoms
Hi all, I am new here. My dad was diagnosed with dementia in March of 2023. I still live at home with him and my mom. He had been living pretty normally since his diagnosis with a mild decline as to be expected. At his last doctor appointment on Monday 1/29/24 his doctor started him on Wellbutrin to aide in his depression…
-
Hello
Good afternoon. After reading my Alzheimer’s devotional this morning, I was led to connect with other caregivers. My mother has Alzheimer’s and vascular dementia. My sister and I care for her in her home along with two paid caregivers. It’s hard. Mom was officially diagnosed in 2020, and she is steadily regressing. I feel…
-
Sadness and acceptance of my grandmothers late stage dementia.
I’ve joined this support group in efforts to make peace with acceptance. I would like to share an experience I had today with a beloved family member of mine with Alzheimer’s disease. In hopes that sharing, communicating it with someone will help bring some peace. My beautiful grandmother, Peggy, has been going through the…
-
Searching for a at home caregiver (6 hrs a week) for Denver
Hi-My mother has early ALZ and is presently being taking care of my by my competent brother and father, but they need support! I am a long-distance helper trying to find a great caregiver to come support 3-6 hrs a week but having trouble navigating the millions of options and would love a referral. Does anyone have someone…
-
finally bringing in caregiver help
Hi everyone, back after a bit of an absence! My Mom is starting her new job, and I really ought to start going back into the office when I'm able to, so we've finally reached the point where we need to bring in outside help to keep an eye on my dad and be available to help when we're not able to. My parents' house is tiny,…
-
Am I expecting too much? Home health aides
We've had agency aides coming in for a couple of months now. We went through a few at the beginning because the aides sent really didn't know how to work with PWDs. We finally got a gentleman who was great with my husband. But he's become quite erratic. He often comes late and missed a few days mid-december (one where he…
-
It feels like there are no good choices
Hello, I'm new here. I originally posted in the caregiver group, but I don't think it's very active. I could use some support. My mother with Alzheimers lives with my 89 yr old father in an Assisted Living facility nearby. She is still full of life. She is the sweetest and most loving mother. We still have a wonderful time…
-
Getting overnight caregiver
We've been trying to take shifts watching mom overnight to make sure she doesn't slide out of bed or get stuck in the railings on the hospital bed. Thankfully she hasn't had any issue since being in the new bed and with us watching. We're still not getting enough sleep ourselves and it's starting to impact our job…
-
Need Ideas for duties/tasks an In-home care aid/companion can do
My mom and dad are finally open to having an in-home care aid come in a few times a week to help out around the house and most importantly, give my dad a rest from caregiving for my mom. Along with the normal apprehension to having a stranger come into their house, the big stressor for my dad right now is that he doesn't…
-
seeking advice, updates, met with private duty nursing/caregiving
Hi everyone. I'm back in my dad's "good graces" -- I know he gets jealous/upset when he thinks my mom is spending time with anyone, so I was eventually going to be the target of his ire. I gave him some space and have slowly been getting back into the usual swing of things. I've had a contact with a homecare/private duty…
-
some updates - meds, guardianship, new behavioral patterns
Hi everyone, hope the holidays were smooth and enjoyable for everyone. I attended my family's Thanksgiving without my Mom which was strange. I really, really like our hospice nurse and the entire staff. Through all of this experience they've been the most supportive and like... comprehensively attentive out of all the…
-
Caring for Grandma
Good morning. I'm new here. My wife's grandmother is in mid stages of Alzheimer's and is at home. Grandpa is her primary caretaker and does not want to move her to a memory care facility. He also doesn't allow much help. My wife and I go over every couple of weeks to wash grandma's hair and try to get her into a change of…
-
Adjusting to the decline & hospice
Hi everyone, we have a nurse practitioner coming to the house next Friday and then the week after that we'll be having a virtual visit with his new physician. I've also been in contact with a hospice/homecare group for about the entire time he's been home. She checks in on how he's doing, and she recommended this new…
-
Caring for LO when they're sick
Hi everyone, I've been absent for a bit -- we hit a semi-stable routine while we wait for our appointments with the new physician's group that was recommended to us. This post is one-part me venting/unloading about the Great Excitement of the past few days and one-part seeking wisdom. For those who don't want to read the…
-
Won’t Go to the Dr./won’t get an assessment
I am curious what ideas people have for facilitating an assessment for someone who probably understands that something is going on, but refuses to go to the doctor, and likely doesn’t want to do that because she is aware an assessment would happen. (the phrase - “you are trying to commit me has come up quite a bit…
-
Caring for two parents with Dementia
I am the sole caregiver for 2 parents each with dementia. I just moved from out of state to care for them. Any recommendations for in-home respite services in Greenville County?
-
How to Start Part Time Help
Hello, My mother has (undiagnosed) Alzheimers and lives at home with my father. I live about 4 hours away and visit once a month, but my father has been dealing with the day today and it's beginning to be too much for one person. We think it's time to hire a part time companion/health aid. The problem is how to present…
-
Refusing care
My mom lives with me, I’m 62 and she’s 84, I think she has dementia but I can’t get her to leave the house. She refuses to see a doctor stating there’s nothing wrong, says she’s dying and there’s nothing to be done. She’s been refusing solid food for many months only drinking ensure for sustenance and smoking. She really…
-
PWD & physical/occupational therapy
Hi everyone :-) How do you know when to stop PT/OT? Brief context: Dad fell, broke his hip, had hip surgery, was diagnosed with dementia while in ER, was transferred to subacute rehab for PT/OT. We made the decision to bring him home because his mental health and cognition were heavily declining in SAR and he was not…
-
airflow mattresses and pressure sore prevention
Hello everyone :-) Things with Dad are going reasonably well - all things considered. Mom and I are working to be preventative and have plans and ideas in place in case we need them: so, looking for a low pressure air loss prevention mattress. My dad did have a pressure sore before/when he fell, but that healed while in…
-
87 father is caretaker for 81 mom with severe Alzheimer's
Hi all, Have a situation where our mother is losing her ability to speak, extremely confused, has difficulty walking, is not showering or brushing her teeth and is incontinent at times. Our father is being difficult in that we had an aide for the summer who had to go back to her school job and now he is refusing another…
-
Fall on vacation, broken bones & worse dementia
So my mother owns a house where she and my father lived before he passed away. She insists on going there every summer since we convinced her winters are too harsh in lake effect snow, and until this year we had no problems because my sister is a school teacher and goes with her every year. Unfortunately this year mom had…
-
At Home Care- Language/Hearing Barrier
Hello! I am new here and hoping to find some recommendations in the Dallas area. My mom has early onset and some good days and some bad days lately. Her doctor said she needs companionship at all times, but that's very hard on me and my sister as we work full time jobs. She lives with my sister and because I work from…
-
recent fall, dementia diagnosis, close quarters
Hi everyone! I think this is going to be a spilling-my-guts sort of post and hoping to get some insight. Some brief context: we have suspected my dad (83) has had some cognitive decline for years, but he stopped going to the doctor in 2019 and has refused since (to the point of blow-up arguments when we pushed). He lives…
-
Are white boards with reminders, names dates etc helpful
What is the best way to setup a need help setting up a whiteboard or something to write date, events, names, specific details to remind client and orient to present? Advice, tips and suggestions much appreciated!
-
fixated and constant chatter
Good morning everyone! I want to make a separate discussion post about my Dad's most challenging behavioral symptom that's happening at the moment and I'm hoping y'all have some insight! My Dad (83) lives with my Mom (60) and my nephew. I've been coming over almost every day since we brought him home from subacute rehab.…
-
If I Had One Wish…
…it would be that all medical professionals dealing with caregiver’s listen to them and treat them with as much care and respect as was perhaps taught to them in medical school. I am my husband’s caregiver. His primary care doc referred us to a home health agency. After a brief period of service provision - I requested a…