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Research

Discussion List

• 60 minutes interview

  This was posted by a neighbor. Can you imagine being worried about retaliation for speaking about Alzheimer’s research?

  Planning for the Future

  Helping Family/Friends

  Living with Dementia

  Started by allit

  Most recent by ARIL

  I Am a Caregiver (General Topics)

  256

  Apr 10, 2025

  2

  9
• Filing for Long Term Care Insurance too early?

  Hi, I am posting for the first time regarding my 83 year old Grandma. She has had cognitive and memory issues for years, but in the past month she was properly diagnosed with dementia. I had previousl…

  Cost of Care

  Long Term Care

  Planning for the Future

  Started by pokefan6016

  Most recent by pokefan6016

  I Am a Caregiver (General Topics)

  166

  Apr 9, 2025

  0

  4
• Took part in Alzheimers Research study

  My father clearly had some form of dementia but didn't get an actual diagnosis, it was just described as senile dementia. I have never had a great memory, but it was getting worse. I recently particip…

  Early Stage (Mild)

  Research

  Started by BrittinGA

  Most recent by Bridge4

  I Am a Caregiver (General Topics)

  44

  Apr 3, 2025

  0

  2
• Warning: Avoid Brain Injury in mAb Clinical Trials.

  In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted…

  Safety

  Hallucinations

  Medication Safety

  Started by PHDoc

  Most recent by LBC83

  I Am Living With Alzheimer's or Other Dementia

  243

  Feb 10, 2025

  0

  14
• Doctored: Fraud, Arrogance, and Tragedy in the Quest to Cure Alzheimer's

  Been hearing a lot about this book recently through podcasts and interviews with the author. Very important to know about this misconduct in the Alzheimer's research field. It's so discouraging to kno…

  Safety

  Medication Safety

  Planning for the Future

  Started by allit

  Most recent by Russinator

  I Am a Caregiver (General Topics)

  127

  Feb 5, 2025

  1

  1
• Bredesen randomized controlled trial

  I recently listened to an interview on People’s Pharmacy with Dale Bredesen. He mentioned that he is the study chair for a randomized controlled trial for his approach to addressing a treatment approa…

  Early Stage (Mild)

  Dementia

  Mild Cognitive Impairment

  Started by allit

  Most recent by allit

  I Am a Caregiver (General Topics)

  89

  Dec 29, 2024

  0

  2
• Compassionate Use or Expanded Access options

  Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Bin…

  Mild Cognitive Impairment

  Support

  Newly Diagnosed

  Started by allit

  I Am a Caregiver (General Topics)

  77

  Dec 13, 2024

  0
• Lecanemab 3 year data

  We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanem…

  Mild Cognitive Impairment

  Support

  Planning for the Future

  Started by allit

  I Am a Caregiver (General Topics)

  79

  Nov 20, 2024

  0
• New research on the timeline of Alzheimer's

  Research is being called "ground breaking" Alzheimer’s May Progress in Two Phases, Transforming Understanding of Brain Damage - CogniFit Blog: Brain Health News

  Memory Loss

  Mild Cognitive Impairment

  Newly Diagnosed

  Started by allit

  Most recent by allit

  I Am a Caregiver (General Topics)

  131

  Nov 7, 2024

  0

  2
• Moderate Sedation with MCI

  I’m 51 and scored in the MCI range on a recent cognitive screening when I told a neurologist I felt like I had memory issues. The cause is still being determined. Initial blood tests show it’s likely …

  Mild Cognitive Impairment

  Research

  Started by keep_hope_alive

  Most recent by keep_hope_alive

  I Am Living With Younger Onset Alzheimer's

  106

  Oct 19, 2024

  0

  4
• Zunveyl new med on the horizon

  I came across some info about this medication today. It just received FDA approval in July 2024 and is predicted to be on the market in early 2025. I'm very curious about it because my wife has been t…

  Medication Safety

  Research

  Started by allit

  Most recent by allit

  I Am a Caregiver (General Topics)

  187

  Sep 17, 2024

  0

  6
• Participated in a study

  We participated in this study today. My wife, who has MCI with Azlheimer's pathology, is very interested in participating in research and signed up for a couple of non-drug related opportunities. We b…

  Research

  Technology

  Started by allit

  Most recent by jfkoc

  I Am a Caregiver (General Topics)

  186

  Aug 23, 2024

  0

  12
• Good review article M1 receptor targeting

  I came across this good review article from 2022 when I was looking for things to help my wife who is experiencing adverse effects from donepezil and rivastigmine. It’s a good review article of the pr…

  Research

  Technology

  Started by allit

  Most recent by allit

  I Am a Caregiver (General Topics)

  41

  Aug 22, 2024

  0

  2
• National Academies’ Forum GLP-1R agonists

  This discussion is open to the public and there is an option for attending virtually This is the class of meds that are being used for diabetes and weight loss. They are exploring their affect on neur…

  Support

  Research

  Technology

  Started by allit

  I Am a Caregiver (General Topics)

  46

  Aug 16, 2024

  1
• Intelgenx shows cognitive improvement

  In April I posted here about the Emory University montelukast Alzheimer's trial. The trial results showed that one group of participants showed cognitive improvement. However the results were suspect …

  Research

  Started by Larrytherunner

  Most recent by Iris L.

  Caring For a Spouse or Partner

  333

  Aug 11, 2024

  3

  11
• Electroconvulsive therapy (ECT)

  I’ve recently discovered that some patients with dementia may be treated with ECT in the hopes that it will improve symptoms of depression. Does anyone have experience with this that you can share? He…

  Depression

  Research

  Started by allit

  Most recent by sandwichone123

  I Am a Caregiver (General Topics)

  144

  Aug 9, 2024

  0

  6
• NY Times: How Hearing and Vision Loss Increase the Risk of Dementia

  Gifted article for 30 days https://www.nytimes.com/2024/08/08/well/mind/hearing-vision-dementia-risk.html?unlocked_article_code=1.Bk4.olZa.vDIdaqXHJqa1&smid=url-share

  Dementia

  Research

  Started by dancsfo

  Most recent by sandwichone123

  I Am a Caregiver (General Topics)

  58

  Aug 9, 2024

  0

  2
• Virtual Reality Experience

  has anyone had any positive experiences using VR headsets with their loved ones?

  Communication

  Dementia

  Care Options

  Started by Jez975

  Most recent by M1

  Caring For a Spouse or Partner

  202

  Apr 21, 2024

  0

  9
• lost

  Hi I am new to ALZCONNECTED im not sure where to start. my mom has been diagnose with AlZ. she currently lives with my dad, but my dad is having a really difficult time accepting her diagnosis. he is …

  Anger

  Daily Care

  Newly Diagnosed

  Started by Patyh75

  Most recent by Patyh75

  Caring for a Parent

  290

  Mar 26, 2024

  1

  13
• Early Stages: assessment, support, education

  Hello, I am in the early stages of needing to get my LO a neurological assessment and get educated as their child on the best ways to support them moving forward. It's hard to know if they are in earl…

  Communication

  Dementia

  Home Safety

  Started by ellenmw

  Most recent by harshedbuzz

  Caring for a Parent

  182

  Mar 21, 2024

  0

  3
• Feeling frustrated

  I am new to the community. My mom is 77 years old. She has not been diagnosed with dementia but definitely can tell her cognitive skills are not up to par. She thinks things around house are turning b…

  Asking for Help

  Stress

  Support

  Started by Godisgood72

  Most recent by M1

  Caring for a Parent

  87

  Feb 25, 2024

  0

  1
• Nanny Cam vs. Security Cam

  Hi all, so the topic of installing cameras has come up many times as a means to keep an eye on my folks and the certified aides. Dad vocalized not wanting them on grounds of his privacy being invaded …

  Caregiving

  Research

  Community Resources

  Started by river0fstars

  Most recent by Bebobra

  Caring for a Parent

  90

  Feb 20, 2024

  0

  1
• Caregivers Support by Participating in a New Study

  Hello! I am new to all of this, only have had experience with dementia and Alzheimer's when both my Grandmother and my husband's Grandmother were diagnosed many years ago. We just learned my Mom's res…

  Support

  Research

  Started by tebarr27

  Most recent by towhee

  Caring for a Parent

  80

  Sep 15, 2023

  0

  1
• 

  From Vox: A new era for Alzheimer’s treatment begins

  Another perspective on Leqembi.

  Dementia

  Medication Safety

  Research

  Started by harshedbuzz

  Most recent by BadMoonRising

  I Am a Caregiver (General Topics)

  133

  Jul 21, 2023

  0

  3
• Brain donation / autopsy

  My dad is in the final stages of Alzheimer’s. My siblings and I would like to get an autopsy done to learn more about his specific diagnosis. The Brain Donor Project rejected us. Have others gotten pr…

  Hospice Care

  Late Stage (Severe)

  Research

  Started by jbra

  Most recent by harshedbuzz

  I Am a Caregiver (General Topics)

  92

  Jul 7, 2023

  0

  2
• Locking down medication

  Hi all. I’m interested in learning about any kind of locked medication boxes you use to keep your loved ones safe. My mom is on a number of medications including insulin, so I need something that’s ve…

  Asking for Help

  Safety

  Medication Safety

  Started by Thewriteanne

  Most recent by harshedbuzz

  Caring for a Parent

  52

  Jun 19, 2023

  0

  2