Have any questions about how to use the community? Check out the
Help Discussion .
Discussion List
No treatment options (thanks, insurance & MediCAL /s)
So for months (since February 3, 2026) DW (61) has been without treatment due to losing our COBRA. It took Medi-cal five months to get us to UCLA's Rubin (Rudin?) Center for Alz & another month to get an appt with the Doc in the end of December. Now that she is going to receive SSDI in September, we're dropped from…
How long it too long to be untreated (YOA)
We're rolling on 7 months now since Dx & probably two more months out from getting actual treatment. How long is too long for a 60 yo YOA patient to go without treatment? Are the infusions going to be too late to be effective? I feel like I can't press providers and health plans harder than I have been. I didn't sleep last…
P Tau 217 Score Variability
I had a P Tau 217 test score of .2 in November 2025. Anything over .18 was considered positive. I then had a PET scan with a centiloid score of 46. In late May 2026 I participated in a research trial with Care Access and received a P Tau 217 score of .47, with anything over .18 considered positive. I am very concerned…
40Hz Light & Sound Brain Stimulation
I have been doing a lot of reading on how 40Hz Light/Sound Brain Stimulation can help Alzheimer (and other dementia) patients. This approach was hatched at MIT by a pair of MIT professors so there is science behind it. Two start-up companies are doing significant trials with their 40Hz products. The most prominent, is…
LEQEMBI Testimonials
Hello, I would like to hear testimonials from people, who have already completed LEQEMBI infusions. Was the cost and risk worth the benefit?
leqembi question
My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀
Kisunla infusions- treatment side effects
Hello, My dad is about to start his Kisunla infusions. I am hoping to hear from people whose loved ones or they themselves have experienced some of the infusions what the possible side effects have been. I am familiar with the listed side effects, but would like to hear from individuals who have experienced the infusions…
Just starting infusions
My husband has early stage Alz and is seeing a Dr. to hopefully begin the Kisunla™ (donanemab-azbt) infusions. Can anyone share their experiences with this treatment? side effects - anything we should know about the experience - etc.
Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know who have used it.
Homeopathic Care for Dementia
Good morning all Just discussing with a coworker and he mentioned having a pretty life-altering appointment with a homeopathic practitioner for an ailment and suggested maybe reaching out for help regarding my father and dementia. Maybe something diet related, or supplement wise could help with the day to day struggles. I…
New Drug Treatment , Sarasota Fl
I am looking for the new drug treatment in Sarasota Florida for early onset Alzheimers for my wife when we arrive in Florida in October
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more