Just starting infusions

martyd101

My husband has early stage Alz and is seeing a Dr. to hopefully begin the Kisunla™ (donanemab-azbt) infusions. Can anyone share their experiences with this treatment? side effects - anything we should know about the experience - etc.

dubiedeb

My husband also has early stage Alzheimer’s. We just started the insurance approval process for the infusion. He is having an MRI tomorrow and we’re waiting to be scheduled for the pet scan. His bloodwork shows that he has 2 copies of the gene that makes him at a higher risk of ARIA from the Kisunla™ (donanemab-azbt) infusions but he is willing to accept that risk. Does your husband have that gene? I will be following this thread looking for feedback from others currently getting the infusion as well. I wish you and your husband all the best, and best wishes to everyone in this group.

mbald

My husband has early onset (stage 3, 57 years old) and started donanemab infusions last spring. After two, we had to pause given MRI findings and then he started again. The monthly MRI’s stopped and he just had one after his 7th infusion and we are awaiting results. He too has double APOE4 gene so higher risk of ARIA. He no longer gets tired after infusions, sometimes a little dizzy but goes away within a few hours. Good luck!

HutchGS

My first post here. My DW age 73 has early onset ALZ, not sure about stages, have to research that. She's mostly functional but has short term memory issues, absent minded, and easily frustrated at tasks that used to be simple and commonplace like cooking. She has been taking oral meds (donepezil and memantine) and has been cleared to start Kisunla. We're anxious to see how this goes and would like to hear from others taking this drug.