Living with Dementia

Has anything like this happened to anyone else? I am 54 and have been recently diagnosed with Mild Alzheimer's with Mood Disturbance. I've been struggling with cognitive impairment for a few years but it's always been contributed to long covid. I started seeing a new neurologist several months ago and at my first…

Hello everyone, my name is raffaella and I am caring for my 76 yr old grandma . Last two months have been very hard, she talks to all these ppl not present from the time she wakes up to the time the meds put her to sleep. In the beginning wasn’t so bad it was regular conversations, almost like telling stories, now she is…

Hello All, My Mom was diagnosed with Alzheimer's a few years back and has been getting worse. She was just diagnosed with lung cancer and we are looking into treatments/options to take. So my dilemma is, what is quality of life in the up coming few years? Any thoughts on how long till she is unable to care for herself, or…

Hi, I am new to this forum and hoping to connect with others. My father was diagnosed with Mild Cognitive Disorder a few years ago which has now advanced to full blown Dementia. Per his neurologist and as evidenced by repeating fender benders, we have reached the stage where he can no longer drive. This is a huge blow to…

My last post disappeared, so I'll try to keep this one brief. Betty is a sweet friend of mine. An ex-school teacher, she is very smart, very kind and upbeat. I've been providing paid "companion care" for her this past year or so, 2 to 4 days a week. Her memory has been getting progressively worse for the last year or two,…

Hello. I just found this group. My father has Alzheimer's, and my mother is his primary caregiver. My sister and I live close and are helping as much as we can. Mom is showing the wear-and-tear of the situation. We are looking for a place where we can benefit from the experiences of others who've already gone further down…

Hi everyone ,My name is Kerry. I’m living with dementia, and like many of you, I’m navigating a lot of feelings and emotions. I’ve reached a point where I’m really craving connection with others who understand this from the inside, not as caregivers, not as observers, but as people living it every day. I’ve noticed that…

We successfully took my mom on a mini-vacation to the beach this weekend! I certainly had my concerns about taking her out of her AL for that long and bringing her into a completely unfamiliar environment, but overall she did GREAT, and I'm so glad we were able to do this. She definitely had times of great confusion and…

I am struggling trying to keep up with my step-mother, who has been diagnosed with Dementia. In 2024 she went in for knee surgery and had a cardiac arrest. Since then it has been downhill. I feel like I'm living in the movie "Groundhog Day" living the same day over and over. I have three siblings who live closer to her,…

Was recently diagnosed as mci and dr put me on memantime. Further blood tests confirmed alz but I am still on memantime. Should I be getting infusions or is memantime enough???? Trying to get into a special clinic but not accepted yet.

Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…

My wife has been suffering short term memory loss for a few years and though I tried she would not see a doctor. Earlier this month she had a massive delusion. Forgot who I was after 49 years of marriage or that we have lived in our home for over 20 years. We went to the ER and I am still waiting to get a neurologist…

Hi, new to this community and have many questions, but the one that's top of mind today is that my DH, who was diagnosed with VD but also elevated levels of Alzheimer's last summer, seems to be slipping away faster all the time. He's now very weak and wants to sleep almost all the time. We've been letting him eat breakfast…

After 2 years in ALF my mother is in need of a higher level of care - primary because of her needs at night like toileting and her inability to call for assistance when she needs it. ALF is giving me some time to decide what I will do, but I am having a hard time with the options I am considering - and would love different…

hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…

In addition to the donezpril and memantine, has anyone added any cbd products for sleep and or calming? I would also like to recommend the digital publication " What About Me" that I found on womanandwell.com for wives dealing with husbands with dementia, but would also pertain to husbands with wives living with dementia.

Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…

When your wife is diagnosed with Alzheimer's and you dedicate your life staying with her at a nursing home. This song is written for both of us. Being a caregiver is not easy, this is my way of coping with the everyday stress. Hopefully, you enjoy the song as much as I did making it.…

My dad lived with Alzheimer’s for years before he passed six years ago, and it was heartbreaking to watch. This community helped me through that time. I recently lost my mom as well—she didn’t have Alzheimer’s, but caregiving and life without my dad took a heavy toll on her in her final years. Now my best friend, in her…

Hi, I'm new to the Alzheimer's world, as my mom was just diagnosed. The doctor wants her to have a brain MRI and she is giving me a hard time about scheduling the appointment. My dad and I took my mom to the doctor last week to be diagnosed and at that time, both of my parents were fine with the idea of the MRI. Now my mom…

Hello, my name is Cindy. I and my sister live with my mom who is 84 years old and has alzheimer over 14 years now. Her behavior is changing every moment especially at night time. She was happy, and talking and certainly turned strange to us like saying we steal her stuff. She made up stories that never happened. We have to…

Hi! I'm Matt, 21, 4th yr CpE student. My mother was diagnosed with Vascular Dementia literally a few minutes ago. During the doctor's assessment, I can see the massive decline in her cognitive function, which saddens me extremely. It breaks my heart to see my mother suffer from this. She is a pre-school teacher and she…

Hello, My 85-year-old mother-in-law with Alzheimer's lives with me and my husband. He works full-time and I am at home due to disability. We used to be able to remind her to take a shower every few days and she would grumble a little and do it. Then she started resisting more strongly. We tried asking her if there was…

My name is Vickie B. I turn 50 in 4 days, and I've been living with younger onset Alzheimer’s since 2021. Have I cried? Yep- a few short times. BUT I have made it my mission to not stay/live in my sadness. I choose daily to see and find beauty and joy around me. And if I have a bad day, I give myself some grace. Honestly,…

My parents live together in an independent living apartment that is part of a community that has multiple levels of care. My brother lives near by and helps them with urgent issues. I live about 2.5 hrs away. My father has been recently diagnosed with ALZ and is becoming stressed because he's having trouble finding things…

So, I'd like to find out why my Mom has to continously use the restroom. She will ask to go several times before we get ready to leave somewhere and she does the same thing constantly when we're just at home. I've heard that it's anxiety/fear or boredom and sitting on the toilet is "comforting" to her. I don't believe she…

I'm a caregiver for my dad, who has been on Donepezil for a while now for his Alzheimer's. He is doing well for now, but it is only a matter of time before the doctor prescribes him Memantine, too, if I understood correctly. I've seen side effects, dizziness, headaches, confusion, etc. But I'm wondering, what are some…

I am new to this forum. I have found many discussions relevant to my situation. I received a lot of good information from these discussions, but I figured I'd post my question on the off chance some more information may come to light. I currently care for my Mother with the help of my wife. My mom moved from out of state…