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To all caregivers Merry Christmas....
Oh how the holidays have changed. Blessed are the caregivers like me.
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Am I being overly concerned?
My husband is in the mid stage Alzheimer. He showers 3 times a week. On the days he doesn't, he will get dressed before he comes out of our room. I am usually up hours before him. He will put his clothes over his PJ's, won't change his underwear, socks or tee shirt. It drives me crazy. Should I just happy he does it 3…
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Neurologist Book on what he learned from his own AD
The December 7 edition of the Washington Post had an article by Daniel Gibbs. He practiced general neurology for 25 years, and treated some patients with dementia. He had two copies of the APOE4 gene. His PET scans showed elevated levels of tau. He was part of the phase 3 trial for Aducanumab, he developed ARIA and was in…
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Burnout
Today I want to rant, I’m tired and exhausted, I really thought I had a handle on all this, I love communicating and writing on this site, it balances me and helps me to understand that I am not alone but today I feel so despondent for the last few days all I want to do is cry. I don’t want this any more 7 years is enough…
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Today is our anniversary
DH doesn't remember that it is. I have not mentioned it. He was always the one to remember the dates of everything. Just makes me sad.
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New here, are there any books aimed at the person who has dementia?
Hello, I had the slum test and was found to me on the border of mci and dementia. Thyroid test and b12 test came back normal range. Waiting on diabetes and will have an MRI on Friday. I am wondering if there any books you can recommend that are directed towards the patient and not necessarily the caregiver. I found a lot…
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Following our Request
Mom moved in Sept 8th, she has moderate dementia, almost no short term memory, long term is pretty good, last 11 years or so are fuzzy. She was mild to moderate until she got a UTI and low sodium and was hospitalized for 3 weeks, now she's fully moderate. It's difficult because she can remember how to use the chair to get…
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I am a caregiver for my mother and brother I also have Alzheimer's
I took care of my Mother, Brother and myself . At time I was in a stage 2 of Alzheimer's My mother recently died , and I have my brother still to care for though it is getting harder and harder. As I am in stage 3 .I would like to see if I am eligible for trial but I have not heard any thing yet .Or perhaps I got lost in…
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sleeping 15 hour or more a night, falling asleep during the day.
Dear Alz-connected friends: I'm back because my DH is now sleeping well more that 12 hours at night and falling asleep in front of the TV. I thought he was in mid-stage VD, but this behavior is increasing now. He is MY Caretaker, so I am now caring for him. He fell backwards in the kitchen this afternoon after getting out…
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Will a distinct dementia diagnosis make a difference?
My mother is 88 years old and has been demonstrating mental decline for many years. She lives with my Stepfather who has been doing the heavy lifting almost exclusively for the years of this decline. 8 months ago, they asked to move closer to me because they knew they'd need more help as time progressed and they wanted to…
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If you are not convienced, let me share this...
Most caregivers know that you should plan as early as you can. And plan for contingencies. Murphy follows Alzheimer's around like a puppy dog. (Murphy's law that says if anything can go wrong, it will.) My 81-year-old DW was officially diagnosed two years ago. She is now in stage 4 or 5, depending… She needed hip…
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The End of Alzheimer's
Hello, i'm new here. Months ago, my husband asked if i'd research Alzheimer's for him. He's noticing some congnitive decline. i resisted but then this book came to me: "The End of Alzheimer's" by Dr. Dale E. Bredesen. i read it and am 1/2 through his next book: "The End of Alzheimer's Program". i'm wondered if anyone here…
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Asking for help( caring for a loved oned showing signs of dementia)
Hello everyone, Me & my mom would like some advice. We are currently caring for my grandma & she has been showing signs of dementia. We have been to multiple doctor appointments, just waiting to hear the results. Even though she hasn’t been diagnosed, we’re pretty sure it’s dementia being that in runs on her side of her…
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New to this forum. Diagnosed over 4 years ago
Not sure if this is the place to introduce myself; but I had Encephalitis twice - from West Nile Virus and Powassan Virus AND Lyme Disease 7 times. Dr. told me the viruses started this ball rolling. I was doing well, dealing with changes in my life, except not driving. I haven't accepted that well. I've been going between…
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Obsessions
Hey dear people, again, new to this and can't imagine this journey that I'm on and how long it will last without losing my mind... I'm not being disrespectful, it's just where else can I voice my frustrations and worries~ so my DH seems to find a topic (finances, an old worry, etc.) and fret for hours on end, going into…
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Seroquel
Anyone have experience with how long Seroquel will help with hallucinations and delusions? DH has been on it now for about 2 months and it has worked great with hallucinations but he is beginning to have them again. I’m almost at max dosage for him (can still add half a pill or 25mgs). I really don’t like how it makes him…
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A real conversation between MIL and DH
The movie Yours, Mine and Ours is blaring in the background. MIL is very hard of hearing so everything is always at 90% volume. ********** DH: I want you to try this cookie. It’s not too sweet. MIL: (suspiciously) What is it? DH: it’s a cookie. MIL: What? DH: A COO-KEY MIL: What’s a COO-KEY? DH: You know what a cookie is!…
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Decisions have to be made…
I finally got the official paperwork with the diagnosis with my father’s dementia being official. He has signed Medical POA, and Durable POA. He probably won’t remember any of it, despite it being notarized and all. Adult Protection Services along with the doctor says he is fully capable of making his own decisions. He…
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Unsure about my diagnosis
I had a brain scan that showed my hippocampus is at 5%, but no tau tangles so it’s not Alz. My speech is slower then it was, I forget things all the time, I have trouble with thinking things through. My emotions are ridiculous. How long before I’m lost?
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Overwhelmed and not sure what to do
Hello - I am sole caregiver for my husband with dementia / Alzheimer's. Things are changing fast for him lately. He will wander around the house and look at things like he's never seen them before. He will move things around, not remember about it, then get upset about who or why it was moved. He sometimes seems like he's…
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Sadness for my MIL
It’s been an emotionally tough day. Nothing out of the ordinary but it’s been close to two years MIL has lived with us. And I was particularly tired of not having any time alone; cooking, cleaning, entertaining and listening to her talk, talk, talk. But as I was sitting here mentally listing the 101 things I have to do…
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A life sentence
I feel so god-forsaken. My DH is in stage 6 (I think) and his constant combativeness and total confusion ruin every single waking day. Truth is I don't even like him anymore and we've been married for 50 years. When he was diagnosed the neurologist said "this isn't a death sentence" and I remember thinking "no, it is a…
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I am the wife of someone who is living with Alzheimers...
...And I am encouraging him to look at this forum in order to not feel so alone and disconnected in his this new way of living. He was diagnosed with dementia due to Alzheimer's (currently MCI) on May 31, 2023. His journey to the ultimate diagnosis was agonizing -- he knew 3 years ago something was going wrong and 4…
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Calming meds for anxiety?
Hi, when music, diversion, soft textures, fresh air•••golf kart ride etc won't comfort Mom's agitation, sundowners type intense anxiety. Are there any prescribed medications that work well in anyone out there's situations Thank you
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New diagnosis in middle of major life changes.
Hello all, my husband was diagnosed last week with Alzheimer’s …The signs have been there for about 2 years, I believe my husband is in the mild stage still. Our neurologist didn’t provide a lot of information. I am struggling with some major life changes we started making a year ago. We planned to move from Michigan to…
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To correct or not....?
I am new to the support community. My mother was diagnosed with Alzheimer's in 2022. She is now in an Assisted Living near me. She is always wanting to have these deep conversations with me about her living situation but never really comprehends what I tell her. She keeps referring to the Assisted living as "school" and…
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How do I answer the question, "Why can't I remember?"
I have been a caregiver to a lovely woman in MS of Alzheimer's since April 2023. One thing she's been doing more of here lately is asking me why she can't remember things. For example, just today, she was talking about her father and how she wasn't sure whether or not he was still alive. When I confirmed her suspicions of…
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Trying to Manage
Since my FIL has been staying with us, he just seems to be getting more difficult to care for. We have received a referral to neurologist for my FIL so we will be making an appointment to hopefully get an official diagnosis, medications/treatment. We have reached out to attorney regarding POA. In the meantime, we’re…
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What progress are you aware of in your day to day life?
I'm 3 years in from being told I have PPA FTD. Four maybe five since I noticed something was wrong. I am still awaresof most things, or at least I think I am. I lose things everyday. I drop things I've forgotten. i am holding in my hands. Time is nothing to me anymore I read my clocks backwards soiI hate the big and little…
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LO Refuses Care
Hi Everyone, My parent is in late stage dementia and we cannot find proper care for him. He can still physically speak, but nothing he says makes sense and he cannot respond in a logical way to even the simplest questions. We recently made the hard decision to move him to a memory care facility, but he was promptly removed…