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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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newly diagnosed.
New diagnosis, no treatment or medication started yet. I am 68 and have suspected this diagnosis for almost 18 months. Felt gaslit by my family when I mentioned it. They were in denial and basically told me it was just ADHD. Now that I am diagnosed, THEY are the ones that are like deer in the headlights. Husband says…
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My 55 yr old DH was recently diagnosed
Hello, I am loving these forums from just a little bit that I have seen so far. My DH had the PET scan in August and it confirmed signs of early on-set Alzheimer's. I noticed about 3 years ago that his personality started to change a little but the since 2024 his decline has been rather rapid (hindsight). I have looked up…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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Early onset support group in Illinois
My spouse has early onset Alzheimer's . We live in Elgin Illinois and I was wondering if there are any support groups that meet maybe weekly in the Northern Illinois area. I feel like it would help greatly if she could meet with others who have reduced memories in a small group setting. They have a memory cafe here that…
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I want to offer help to my partner but I don't know what to do.
Hello, my partner's uncle has started to show the signs of early stage Alzheimer's and while I have had family members experience this in the past never someone as close as they are with their uncle. He lives in a different city and while they are trying to spend as much time there as they can I want to help however I can…
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Interview a doctor?
Hello, Nice to meet you all- I'm looking to pick a new primary or geriatric spanish speaking doc for my Mom (75) with early alzheimers when open enrollment happens for Medicare. But, I wish there was a way to interview them first before making them her doctor. Is that a thing? Is it weird to do that? Do people do that?…
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I wonder if I am seeing things not there
My wonderful husband of 49 years was diagnosed 2 years ago with MCI, he is slipping more (forgetting conversations that just occurred, throwing out items we need, personality changes, etc.) and I anticipate at our appointment with his neurologist later this month, he will "upgrade" his diagnosis. All of this being said, my…
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How To Be More Empathetic Towards Mom's Dementia Flashbacks
So my older sister (long-distance caregiver who visits every 1-2 months) just took my Asian mom to her first therapy session to work out the grief from my Dad's death (He died 13 years ago) and other emotional issues that fuel my mom's dementia flashbacks. We are going to do more sessions (virtually since I don't drive)…
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Trusting the "Experts"
This is my first time posting on this website. I am almost 60 years old and my 90 year old mother was recently diagnosed with dementia. She and my father live in an RCAC 2 hours away from where my sister and I live. In the past few months my mom's memory has declined and has required more care. She and my dad have been…
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Cared For Grandparents and Now Mother
Hello! I helped my mom care for her parents as they suffered with dementia and Alzheimer's for several years before they passed. It was physically, mentally and emotionally difficult on both of us and traumatizing for my mom especially. Now, 4ish years since her dad passed, my 60 y/o mom is showing her own signs. She's…
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Recomendacion para un Geriatrico doctor que hable español en los angeles county?
Hola, mi mama (75) ayer fue diagnosticada con alzheimer's. Esta en las primeras etapas y el hipocampo apenas se esta agrandando. Tengo muchas preguntas pero no se ni donde empezar. Vivimos en los angeles, yo vivo con mi esposo y mi hermana mayor. Mi mama vive sola a 5min de nuestro apartamento y la visitamos diario. No…
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New Here – Caring for My Husband and Our Young Family
Hi everyone, I’m new to the community and just wanted to introduce myself. I’m 45, and I’ve been caring for my 51-year-old husband who has dementia caused by Primary Progressive Multiple Sclerosis (PPMS). We’ve been together for years, and it’s heartbreaking to see how much this disease has taken from him—and from us. He…
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New to the group
Hi everyone, I am so relieved to have found this group. Mh (67) was diagnosed in January. Early stage of dementia. He is also a type 1 diabetic. I’m trying my best to cope and get through each day. It is hard to say the least. I say to myself, let’s have a good day! Some days are better than others. I have ordered the 36…
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Using Transcranial Magnetic Stimulation (TMS) to slow AD progression
Has anyone used TMS for AD? I know it is off label, and that it is a cash expense not covered by insurance, but I am looking for a provider in the Northeast (CT/MA/NY/ NH) who could treat my wife. The studies have been small, but reasonably positive in being able to slow progression.
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Working Through This New Diagnosis
I am now 57 and was diagnosed officially earlier this year. The doctors had an idea a few years ago, but after suffering the first Covid in 2020, they were unable to tell what cognitive impairment from the virus compared to dementia due to Alzheimer's disease. I had a 3-hour cognitive eval, the doctors agreed to wait to…
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My husband has MCI and blind on rt side.
He’s has Mild Vascular Neuro Cognitive Dementia. I’m exhausted. And I Cry.
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Female spouse w/young kids looking for mom in similar situation?
I'd love to find a caregiver like myself to exchange texts with, like our own mini support group. This is likely too specific, but ideally it would be a woman whose partner is in the early stages of Alzheimer's (like, very very early stages where most people can't tell) and whose kids are still living at home (our kids are…
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Anyone taking N-acetylcysteine?
Our neighbor was talking with us about n-acetylcysteine benefits for Alzheimer’s. Is anyone taking it and seeing improvements? I’m looking for a reputable product in case my wife decides to take it.
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Service dogs for people with Alzheimer’s article
https://www.nextavenue.org/canine-companions/ https://dementiaminds.org/resources/ I came across this article on the website for the National Council of Dementia Minds My wife has an interview in June with a service dog organization and we’re hoping to get one soon. We’ve been volunteering with the organization and having…
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Diagnosed with EOD a year ago at 55 years old
Edit: Yesterday I was diagnosed with Lewy body dementia. It was upsetting, but now my family knows how to move forward and what to expect. We're moving back to Utah to be around my husband's family so he and our 11 and 13 year old kids can have a better support system. Hi. Last year I was diagnosed with EOD a day after my…
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Short term memory and spouse
I am 56 and started having memory issues this year and seems more prevalent recently. I dont have a diagnosis yet and see the neurologist in Nov. A recent example is my wife and I went on a hot air balloon ride in Africa. 8 days later she told friends we took the balloon ride and I interrupted her and said no we didnt. I…
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Revealing diagnosis
How and when does one begin the process of revealing the diagnosis?
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traveling with spouse with dementia- beginning stages
Husband has posterior cortical atrophy so forgets things easily, has no peripheral vision. But we love to travel. Considering the Caribbean to escape MN winter. We love to walk together. Plan to stay in one place from approx march 3-10. any ideas? thanks. Lois
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Maintaining independence during early stages
Hi, my mom (58 years old) was recently diagnosed with mild dementia. My siblings and I are trying to navigate this new reality and find a balance between keeping her safe and allowing her some independence. She’s on medical leave from her job because her performance had been declining. This means she’s home 24/7. Seeing…
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Dementia Family Dog Workshop Webinar
I started following this group that’s based in Scotland because my wife who is in the early stage of Alzheimer’s expressed interest in getting a service dog. This free webinar is an “educational workshop to guide families affected by dementia who have, or would like to get, their own pet dog”…
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Phantom smells
I’m 63 and have had phantom smells for almost 2 years. My primary care doc dismissed them 1+ years ago as Covid-related. Since then I’ve begun having memory problems, definitely a personality change (much crying/depression), and difficulty problem-solving. My mom had EO and my dad some form of dementia. I had a PET scan…
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Advice for Going Back to Work
I took FMLA for a year to assist with the new diagnosis of Alzheimers for my mom. It was intermittent FMLA so while I still worked, I was able to take off for appointments, my own mental health, and days that seemed like my mom just needed someone to be with her. I was averaging about 20 hours a week rather than my full 40…
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Frustrated That My Mom Won't Acknowledge Health Problems
I've been my mom's caregiver from 2013 (age 22) to now (age 34) . Right now, she has multiple health conditions colliding with each other: early dementia symptoms (currently trying to get a formal diagnosis), depression, dehydration, kidney problems. The depression isn't new to me or my siblings, but the other health…
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New to group - brother closing in on his dx
It’s been a tough few weeks as I’ve watch my 64 yr old brother (I’m 62) get the dx work up for Alzheimer’s. He had a neuro consult today to review blood and he’s definitely starting treatment for Alzheimer’s asap. He’s like a twin to me and I’ve just felt so sad all day. I haven’t had this sense of grief since our dad…