Early Stage (Mild)

My mother is 78 with ES and lives alone. Until recently, she has managed around the house- she's lived there 50 yrs and only recently been alone (my dad passed 2023, my younger live-in brother passed in 2025). While I am not working (online college fulltime, however), I have become my mom's assistant, scheduler, IT tech,…

My husband is 70 and was recently diagnosed with “MCI due to Alzheimer’s” after going to the doctor after experiencing memory issues. He had an MRI, then PET scan, which led the neurologist to his diagnosis and starting Aricept. (This is our first week on it.) (The dr also suggested he think about infusion therapy, which…

Has anyone heard about or tried Kisunla infusions? It’s supposed to halt dementia symptoms (I don’t know for how long) but not reverse it. I’ve read that the success rate is high. It is FDA approved since 2024. There is a process you go through before knowing if you’re a good candidate. Would love to hear experiences. TIA

Hello, it's been a year or so since my Mom passed away from Alzheimer's. Now a family member is insinuating that my Dad might have Alzheimer's. He wakes up with a humming sound, is that a indication of Alzheimer's? Please respond.

I'm new to this discussion board and just joined this as a way for support. My family just recently told me that my grandmother has been recently diagnosed with Early on set Alzheimers and this weekend me and my mom are going to tell her the news that its becoming a reality that she will be starting to live with us most of…

First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…

Hi, I am looking for support on finding in home care for my dad once or twice a week and how to navigate it financially. He is not on Medicare and early onset. My parents also most likely would not qualify for free services but cannot afford most private pay places. I am trying to find something in the middle near bucks…

So my older sister (long-distance caregiver who visits every 1-2 months) just took my Asian mom to her first therapy session to work out the grief from my Dad's death (He died 13 years ago) and other emotional issues that fuel my mom's dementia flashbacks. We are going to do more sessions (virtually since I don't drive)…

My last post disappeared, so I'll try to keep this one brief. Betty is a sweet friend of mine. An ex-school teacher, she is very smart, very kind and upbeat. I've been providing paid "companion care" for her this past year or so, 2 to 4 days a week. Her memory has been getting progressively worse for the last year or two,…

I am a friend and part-time paid caregiver to 80 year old Betty, who is very newly diagnosed with early stage Alzheimer's, primarily manifesting now in short-term memory losses. Betty is financially secure, but has few family members; she's outlived those closest to her, yet there are a few extended family members, most of…

My DW has mild symptoms and will begin infusions soon. We are both anxious and would appreciate any information from others who may be able to tell us about their experiences with this treatment or where we may be able to find personal stories. Many thanks!

My 87 y/o mother is in the early stages of Alzheimer's and lives in an apartment building that has stairs to get to her apartment. We have been looking at a smaller apartment that she could purchase that has no stairs for entry. At this point she is still able to do everything except more executive function type things…

Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…

As the title states, I’m wanting to know the wheres, whats, whens, whos, hows, and whys do you utilize the most? Not getting much help from my dad’s (newly diagnosed early onset Alzheimer’s) doctor. When I asked for some recommendations (medicine management, in home care, support groups, etc.), all I got was checkout the…

My oldest sister told me she was diagnosed with Alzheimer's a month ago. I know she's had mild memory loss for years, but she hid it well. It still seems mild to me, but I've never known anyone with this disease. She calls me to tell me that I never call her, although we speak frequently. When the conversation starts, she…

Hi, My mom's dr confirmed that she has Alzheimer's. She had some early memory problems on and off for about a year now. My parents are in their late 70's and my dad and I will be her primary caregivers for now. But I'm a wife and parent of two children, 7 and 15...I also work full time. I'm just exploring support for all…

I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…

My Dad was originally diagnosed with MCI Stage 3 and then the doctor upgraded him to Stage 4. He just had his MRI & blood work done. No proteins found in his blood and the MRI was not bad at all. He had Mild changes consistent with his age & Hypertension history. The doctor wants to give him another cognitive test to…

I’m 63 and have had phantom smells for almost 2 years. My primary care doc dismissed them 1+ years ago as Covid-related. Since then I’ve begun having memory problems, definitely a personality change (much crying/depression), and difficulty problem-solving. My mom had EO and my dad some form of dementia. I had a PET scan…

Hi everyone. I’m new here. My wife and I are trying to get my mother in law moved from LA out to PHX but it seems impossible to re-establish care in a new state while trying to create as smooth of a transition as possible. Hoping to get her started on Kisunla asap but insurance just denied it and now it feels like we are…

Hi Everyone, When I found this group, I knew it would be supportive. Just reading all of your responses has given me a little peace of mind. My mom is 93 and two years ago was diagnosed with possible early dementia after leaving her home at 11PM and walking to the hairdresser's. Nothing like this has ever happened again,…

Hi all - so glad I found this site. My dad is 66 years old, and I am 27. He is still living on his own. We only recently got the diagnosis (within the past two weeks), and he is in the mild/moderate range of dementia. I live two states away, but my brother is within an hour. I am having a hard time figuring out what to do,…

Hi, I'm new to the group and looking for support. I don't know this is the right place for me. My mother is in assisted living with mild-to-moderate dementia. She lives 1/2 mile down the road from me. I’m her primary care partner and decision-maker, but I’m not providing hands-on care. I'm mentally and emotionally…

Hello everyone, this is my first post. My DW was diagnosed with EOAD in the spring of 2025 at the age of 59. Symptoms started at least 5 years prior, but we really saw changes in late 2024. We went through a whirlwind of changes last year getting a diagnosis, retiring, ST & LT disability, SSDI approval, selling cars,…

My mom is early onset Alzheimers and is experiencing some cognitive decline but not to the extent that I can contact the agency on aging for a caregiver. She can still bathe herself, etc. However, she does not listen to or obey what I tell her no matter what the reasoning. Right now, I am the only one available to take…

Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…

Hi, Dad went for his first MRI after 1 month of being on Leqembi. The doctor's found internal bleeding and brain swelling. Dad will stop taking infusions. In June the doctors will give him another cat scan to check his brain. If he improves, they will put him back on leqembi. Honestly, I am against him doing this infusion…

I am now 57 and was diagnosed officially earlier this year. The doctors had an idea a few years ago, but after suffering the first Covid in 2020, they were unable to tell what cognitive impairment from the virus compared to dementia due to Alzheimer's disease. I had a 3-hour cognitive eval, the doctors agreed to wait to…

I suspect a dear friend of mine has early onset. This person's mother had Alzheimer's and passed away as a result. My friend is in their mid-60s and is dealing with the recent death of a spouse so for the past two or so years I've attributed recent behavior changes (verbal outbursts, mostly) to grief and having to navigate…