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Advice for Going Back to Work
I took FMLA for a year to assist with the new diagnosis of Alzheimers for my mom. It was intermittent FMLA so while I still worked, I was able to take off for appointments, my own mental health, and days that seemed like my mom just needed someone to be with her. I was averaging about 20 hours a week rather than my full 40…
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Frustrated That My Mom Won't Acknowledge Health Problems
I've been my mom's caregiver from 2013 (age 22) to now (age 34) . Right now, she has multiple health conditions colliding with each other: early dementia symptoms (currently trying to get a formal diagnosis), depression, dehydration, kidney problems. The depression isn't new to me or my siblings, but the other health…
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New to group - brother closing in on his dx
It’s been a tough few weeks as I’ve watch my 64 yr old brother (I’m 62) get the dx work up for Alzheimer’s. He had a neuro consult today to review blood and he’s definitely starting treatment for Alzheimer’s asap. He’s like a twin to me and I’ve just felt so sad all day. I haven’t had this sense of grief since our dad…
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Took part in Alzheimers Research study
My father clearly had some form of dementia but didn't get an actual diagnosis, it was just described as senile dementia. I have never had a great memory, but it was getting worse. I recently participated in a research study looking for the biomarker for Alzheimers. Blood tests showed I have the biomarker for Alzheimers.…
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Mother Passed Away/Car Keys
My mother passed away 3-4-25. Father was diagnosed with Alzheimer’s January 2023. He has been is early stage to date. Still takes care of himself, but can’t manage bills laundry or cook. I have 2 sisters. One lives right beside him & helps a lot, but works FT. One lives within 5 blocks, helps after work. I live 2 hrs away,…
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Comparing Clinical Care in Boston
Hello, I'm from the Boston area and new to the discussion. I am wondering if anyone has gotten recent care for a loved one at either Boston Center for Memory (BCM) or Mass General Hospital's Memory Disorders Division? My 82-year old mother has mild ALZ but will probably NOT choose to pursue anti-amyloid treatments…
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New to Alz
J & L are new to Alz. We have one support group in 52241 and we are the only active members. Our diagnosis is "Early-Stage" and we are in the upper 80s but otherwise in good health. We have freely shared our diagnosis. We are reading all we can about proper nutrition for dementia. We are active in National Senior Games…
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Living with Alzheimer's - A Caregiver's Journey
My wife was diagnosed with early onset Alzheimer's eight years ago when she was just 60 years old. I have been her primary caregiver every day since then until her death last month. As a means to help me cope with this terrible disease I wrote a detailed journal of my experience over that entire time. The writing is in two…
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Not sure what to do.
Im taking care of my grandma who has been diagnosed with dementia, i started taking care of her since i turned 18, this really wasn’t a choice for me but im here and im trying my best everyday however there are things that are popping up making it difficult for me to care for her and i need help, she argues all the time i…
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Social security disability claim denied
UPDATE JUNE 2025: after we turned in allour paperwork, we were contacted by a SS representative and he asked Beth a lot of questions about her health and ability to work including stuff like how much weight she can lift. We were beginning to think they were going to expect her to take a job doing manual labor. It wasn’t…
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Leqembi?
Hi I'm new to this group and looking for some advice. My mom is diagnosed AD last month. Her MMSE score is 14. Would Leqembi be effective for her? Does anyone have recommendation for resources we can talk to (researchers, medical experts, etc.)? Thanks in advance.
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Conflicting Neuroquant MRI and Petscan
I am have started Kisunla infusions, and after my first treatment I had a “ neuroquant MRI” in order to detect if there has been any brain hemorrhages due to the medication. The results fortunately came back negative and the report also mentioned that I do not have brain atrophy. Other MRIs have said I have more brain…
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Hypnagogic hallucinations
My wife told me she's been having trouble when trying to fall asleep because she's seeing things like vivid scenes of people and something like static on an old TV. We did a Google search and it sounds like hypnagogic hallucinations. We haven't been able to find any connection with MCI or dementia. But this is something…
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Bredesen randomized controlled trial
I recently listened to an interview on People’s Pharmacy with Dale Bredesen. He mentioned that he is the study chair for a randomized controlled trial for his approach to addressing a treatment approach for MCI or early stage dementia. Here’s a link to the page with more info about the trial…
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Wife won't let others know
My wife tells me not to tell anyone that she has Alzheimer's. Her mother had it for decades and told everyone. They were very sympathetic. How do I deal with this?
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Is Sundowning Real?
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Building diet resources after my father's early-onset diagnosis - seeking your experiences
Hello everyone, My father was diagnosed with early-onset Alzheimer's earlier this year, and through our journey, we've found it challenging to find good dietary resources and support. I'm working on building an online resource to help others facing similar challenges. Before building it, I'd really value hearing about your…
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Newly diagnosed with early onset Alzheimer's I'm 59
Im single and work fulltime. I live paycheck to paycheck. I'm in early/mild , kinda crossing over. I have no idea what to expect. Or any kind of timeline. I have debts and need some direction. There is no long/short term disability where I work. I expect a 2 week severance when they find out. How long will i be able to…
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Just got pet results
I’m freaking out because it appears to me that it’s saying I have ad. Now to wait for my appointment to go over my bloodwork and pet results in two weeks. Unfortunately my family has a strong history of early onset dementia, but still, 42 is the youngest in my family if it’s true. I’m hoping doing some research will help…
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long distance - Mom refuses to be evaluated & Dad isn't taking action
My parents live in a different city, and we are deeply concerned about my mom’s health. She is 78 and has been showing signs of memory loss for the last couple of years, which are progressively worsening. She refuses to acknowledge the issue, won’t allow herself to be formally diagnosed, and has made my dad promise not to…
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Mother with AD has Anxiety
I am new here. My mother was just diagnosed with Alzheimer's in August; but I think she has been struggling for longer than that. She is on Aricept and says that it helps her feel less in a fog. She is still living alone; but I am doing her bills for her. However, she is worrying about EVERYTHING. She makes lists in her…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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New to all this
My husband was officially diagnosed with alzheimer's 3 weeks ago, in the early stages of this. I have bounced back and forth between denial, anger, tears and fear for what our life will be and for how long. I'm not sure what to do, what the steps are to help him and myself manage this. He has problems finding the words to…
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Does speech therapy
I asked about occupational therapy, I should perhaps have asked about speech therapy. DH with ALZ most noticable problem is lost words.
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Legal and Financial Transition
MY DH is in early stages of dementia, but I can see it accelerating. We need to shift responsibilities to me and also to our adult son. Though we own our assets and make decisions jointly, and it was he who insisted we revisit (together) our wills recently (thank goodness) DH has held the legal/financial reins for over 40…
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Am I being written out of DH history?
DH is in ES stage ALZ, but most likely moving into MS. Married 65 years. This week DH has told two stories from our joint history where he has written me out of the story for the most part. What he did was to take credit for things that I had done. I don't care so much about that as I am wondering if this is a "thing" that…
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Lecanemab
Has anyone started or familiar with the latest drug approved last July 2023 - Lecanemab -- What would be the benefit?
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ALZ, a time to laugh or chuckle, a time to cry
Just sharing a weird thing… DH in ES ALZ…We went to church and sitting in our usual aisle seat. ( I am immuno defecient so always try not to be between people). Some people wanted to be seated down the pew, so I bent my knees to the side to let them pass and DH flopped his legs up on the pew to let them pass. Yes, it's a…