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Hypnagogic hallucinations
My wife told me she's been having trouble when trying to fall asleep because she's seeing things like vivid scenes of people and something like static on an old TV. We did a Google search and it sounds like hypnagogic hallucinations. We haven't been able to find any connection with MCI or dementia. But this is something…
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Is Sundowning Real?
My grandmother has early stage Alzheimer's. I live a few hours away from her, but whenever I'm on the phone at night she seems much worse. I read an article about sundowning, which apparently is some sort of disorientation thing where after the sun sets, the patient becomes much more confused. Is it real? Can't tell if…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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Short term memory and spouse
I am 56 and started having memory issues this year and seems more prevalent recently. I dont have a diagnosis yet and see the neurologist in Nov. A recent example is my wife and I went on a hot air balloon ride in Africa. 8 days later she told friends we took the balloon ride and I interrupted her and said no we didnt. I…
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Conflicting Neuroquant MRI and Petscan
I am have started Kisunla infusions, and after my first treatment I had a “ neuroquant MRI” in order to detect if there has been any brain hemorrhages due to the medication. The results fortunately came back negative and the report also mentioned that I do not have brain atrophy. Other MRIs have said I have more brain…
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Building diet resources after my father's early-onset diagnosis - seeking your experiences
Hello everyone, My father was diagnosed with early-onset Alzheimer's earlier this year, and through our journey, we've found it challenging to find good dietary resources and support. I'm working on building an online resource to help others facing similar challenges. Before building it, I'd really value hearing about your…
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Early onset at age 60
Hello, my husband was recently diagnosed with Early Onset Alzheimer's at age 60. We live in the Erie, PA area. The support groups in the area don't seem to fit our demographic. Although we do enjoy the company of folks older than us, some of the challenges we are facing are a lot different than if we were in our later…
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Newly diagnosed with early onset Alzheimer's I'm 59
Im single and work fulltime. I live paycheck to paycheck. I'm in early/mild , kinda crossing over. I have no idea what to expect. Or any kind of timeline. I have debts and need some direction. There is no long/short term disability where I work. I expect a 2 week severance when they find out. How long will i be able to…
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Just got pet results
I’m freaking out because it appears to me that it’s saying I have ad. Now to wait for my appointment to go over my bloodwork and pet results in two weeks. Unfortunately my family has a strong history of early onset dementia, but still, 42 is the youngest in my family if it’s true. I’m hoping doing some research will help…
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long distance - Mom refuses to be evaluated & Dad isn't taking action
My parents live in a different city, and we are deeply concerned about my mom’s health. She is 78 and has been showing signs of memory loss for the last couple of years, which are progressively worsening. She refuses to acknowledge the issue, won’t allow herself to be formally diagnosed, and has made my dad promise not to…
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Mother with AD has Anxiety
I am new here. My mother was just diagnosed with Alzheimer's in August; but I think she has been struggling for longer than that. She is on Aricept and says that it helps her feel less in a fog. She is still living alone; but I am doing her bills for her. However, she is worrying about EVERYTHING. She makes lists in her…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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New to all this
My husband was officially diagnosed with alzheimer's 3 weeks ago, in the early stages of this. I have bounced back and forth between denial, anger, tears and fear for what our life will be and for how long. I'm not sure what to do, what the steps are to help him and myself manage this. He has problems finding the words to…
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Does speech therapy
I asked about occupational therapy, I should perhaps have asked about speech therapy. DH with ALZ most noticable problem is lost words.
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Legal and Financial Transition
MY DH is in early stages of dementia, but I can see it accelerating. We need to shift responsibilities to me and also to our adult son. Though we own our assets and make decisions jointly, and it was he who insisted we revisit (together) our wills recently (thank goodness) DH has held the legal/financial reins for over 40…
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Phantom smells
I’m 63 and have had phantom smells for almost 2 years. My primary care doc dismissed them 1+ years ago as Covid-related. Since then I’ve begun having memory problems, definitely a personality change (much crying/depression), and difficulty problem-solving. My mom had EO and my dad some form of dementia. I had a PET scan…
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Am I being written out of DH history?
DH is in ES stage ALZ, but most likely moving into MS. Married 65 years. This week DH has told two stories from our joint history where he has written me out of the story for the most part. What he did was to take credit for things that I had done. I don't care so much about that as I am wondering if this is a "thing" that…
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Lecanemab
Has anyone started or familiar with the latest drug approved last July 2023 - Lecanemab -- What would be the benefit?
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ALZ, a time to laugh or chuckle, a time to cry
Just sharing a weird thing… DH in ES ALZ…We went to church and sitting in our usual aisle seat. ( I am immuno defecient so always try not to be between people). Some people wanted to be seated down the pew, so I bent my knees to the side to let them pass and DH flopped his legs up on the pew to let them pass. Yes, it's a…
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Struggling Only Child
Hi ya'll, I've recently become a caregiver at the age of 29 as an only child for my father with dementia who is 74. He was diagnosed back in December 2023 with very little notice and had to be moved into a memory care close to my home - I work a full time job and am unable to stop working. It's just him and myself in our…
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memory loss
DH, diagnosed ES ALZ in June has been losing words for some time now, and that seems to be accelerating. This week he lost memory of two of his life events, one the wedding of our 2nd daughter some years ago. Yesterday, he asked me what I was listening to (bible in a year with Fr. Mike). His comment: "that sounds…
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Omaha area
Hello all! I am looking for people/groups in the Omaha area for those who have been diagnosed at an early age (50’s). I have called around but no results. Just thought I’d through it out here and see!
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Does occupational therapy help
DH in early to middle stage ALZ. There is another neurologist nearby that offers occupational therapy for dementia as part of their treatment. It is a hassle to change doctors, but if having DH do some kind of therapy that would slow the progression I would make the effort. At home, he plays Sudoku for several hours a day…
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How to deal with NEW personality traits
I am new to the site. There is 15 years difference in my husband and I. He is 75. In late May, I noticed some disturbing habits he was beginning. DH is fully functioning except for the urges and impulses he can't control. It is disturbing and I feel like I got on an apology tour a few times a week. I love my DH but he is…
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Recent Diagnosis
I was just diagnosed yesterday with early stage Alzheimer’s. I am overwhelmed with fear. I go from being hopeful to having very little hope at all. I’m afraid of who I will become and what my illness will do to my partner. I came here for emotional support and guidance regarding how to move forward.
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Support for LGBT spouses
hello, my wife has recently been diagnosed with EO. Anyone know of any support sites for LGBT spouses? Thank you.
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Mom With EOAD Lacks Motivation
Hi, I’m grateful to have come across this resource. Last year, my mother (60 years old at the time) was diagnosed with EOAD. While the diagnosis came as a shock for someone of her age, we were noticing a decline in her cognitive functions, particular with regards to time (not knowing what day it is, showing up to to…
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My DH was just diagnosed with Alz
My Dh was just diagnosed with early stages of Alzheimer’s. He’s doing well now but we are both overwhelmed with making decision s for the future. Do we stay in our home of 45 years or downsize to an adult community? If we stay put, how to prepare to make home safe? How and where do I get help when I need it? What legal…
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resources for re-homing a rescue dog in Middle Tennessee
Hi folks, Thanks for all your support and wisdom. I've been lurking for months, reading and gaining support, but this is my first post. My sis and I are remotely supporting a father with ES dementia and a mother who is highly functional but recovering from a serious TBI herself, requiring massive caregiver support for…