Early onset during working age
I’m new to this group. My DH is 59 and currently has the diagnosis of MCI. He is presenting atypical for Alzheimer’s and FTD however they feel it is one or the other. I am 53. We are both still working full time. I am looking to connect with others in a similar situation.
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Early Onset in My 50s
Like to be a part of or participate in a chat group for those dealing with early onset. -Chuck
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Diagnosed @ 50
I have early onset Alzheimer’s, done a year of lequimbi also on maintenance injections at home now every week. My plaque is under control. My wife is my caregiver, I have one son that is very helpful but my other son thinks I’m fine .
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55-Year-Old with Younger-Onset Dementia Seeking Friendships, Connections & Support Groups
Hi! My name is Samuel, and I'm reaching out on behalf of my aunt, who is 55 years old and was diagnosed with younger-onset dementia earlier this year. She lives in the Chicagoland suburbs, and we've been trying to help her connect with other people around her age who are also living with early-onset dementia. Since her…
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Seeking Young Onset ALZ Companion in Central Oregon
Hello All - I realize this is a longshot, but you never know… My wife and I are interested in finding a compatible 'earlier-stage' YOD friend and neighbor for her, who is in a similar situation in the Central Oregon area. We live in Bend. Through my Lorenzo's House community, she has met a great new friend to talk to on…
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Should I stop Kisunla if my Centeloid goes down to 6.5
Hi All, I'm 66 years old and was diagnosed with PCA (Alzheimer's that attacks the occipital cortex first) a little under 2 years ago, with a Centeloid score of 95.5. I started Kisunla around 9 months ago, but had to take a break for 2 months because I had an ARIA-E (Amyloid-related brain swelling). Today I had another MRI…
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My DH was been diagnosed with Early onset
Just joining this group because I need friends that understand what I am going through - none of my friends in my community understand but they sure like to gossip about what I am experiencing. My husband is 62 and I am 60, I am crushed because we were supposed to be a team to retire together and now all those dreams are…
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Groups for Early Onset
Hello, my best friend is looking for a group who has been diagnosed with Early Onset Alzheimer's. She has feelings of loneliness and her husband seems to be in early stages of denial. He's somewhat anti therapy. Is there a resource for her or a group that anyone knows of where she can log in and share her feelings? Thank…
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Working with posterior cortex atrophy - a kind of early-onset Alzheimer's
I have a form of AZ called PCA (posterior cortex atrophy) which initially affects the visual system. I can no longer read hand writing, or recognize faces, or find information on websites or on printed pages because my brain doesn't take in multiple images at a time. It's very hard for me to find my way in places I don't…
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Student Research Survey
Hello! My name is Grace and I am a high school senior. Over the past year and a half, I have done immense research on dementia and caregivers. My goal is to determine how playing music for dementia patients benefits the caregiver mentally. If you are a caregiver, please take a moment to fill this survey out. It will take…
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DH Aware of Changes, Emotional Due To Changes
My DH is 59, diagnosed with Aphasia, Mild Dementia, positive biomarker for alzheimers in 10/2023. Dr was not expecting alzheimers as he did not have clinical symptoms, and also has empathy so Dr stated not FTD. Question for this group does anyone have experience with someone that is aware of what is occurring and the…
