Diagnosed at 45

NeedToTalk

I was diagnosed with HIV associated dementia after having imaging done due to behavioral and cognitive issues and long term HIV infection. The last five years have been difficult alone, self isolating, now seeing problems completing everyday tasks or just takes a lot longer to get a task done. I cant even get into the bathroom to brush my teeth without getting distracted or getting to that task at hand. and so on. My keyboard typing and handwriting have gone hill. My relationship with people I communicate via text is difficult to manage or complete a conversation. I feel lost. Hoping to find a community I can get some information on services or support. Thank you. Be Kind.

birdsnplants

(((Hugs))) to you

You aren't alone.

I can relate to struggling hard in order to do a few simple things that I used to take for granted not too long ago. . . Reading. That was a huge love of mine. Now, I do best with simple sentences. And not more than a few.

Conversations. Very difficult~ especially in later afternoon til morning. Remembering what I'm doing. I often have to go back & forth a couple of times to complete my memory.

I don't know if you have this trouble.. but, I absolutely cannot have a conversation right next to another. Or listen to someone in a noisy area. I can't focus & hear what they're saying ~ everything is a very irritating, noisy garble to me.

I am here, if you'd like to talk (in short paragraphs) sometime. I often feel alone as well. But, I think that's my depression feeling.

🫂