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My DH was been diagnosed with Early onset

amyar2010
amyar2010 Member Posts: 1 Member
Just joining this group because I need friends that understand what I am going through - none of my friends in my community understand but they sure like to gossip about what I am experiencing. My husband is 62 and I am 60, I am crushed because we were supposed to be a team to retire together and now all those dreams are changing to me taking care of him.

Comments

  • gelbee
    gelbee Member Posts: 4
    First Comment
    Member

    hi, i'm in a similar boat. my husband is 60; i'm 48. My plan was for him to cut back on work while I continued while still having a nice bank of annual leave. And then we could do a lot of good traveling together until i would likely retire, and THEN likely be a caregiver as he grew older.

    We're still navigating this, and it does seem like it's hard for other people to understand. I foud an Alz Association-sponsored caregivers support group near me that meets one night a month, specfically for EOD. It's been a bit helpful.

    What have you been handling recently?

  • blacksparky
    blacksparky Member Posts: 51
    25 Likes 25 Care Reactions 10 Comments 5 Insightfuls Reactions
    Member

    My DW is 55 and was diagnosed with EOAD at the age of 53. I am 68. This is our 2nd marriage for both of us. We’ve been married for 13 years. Her Neurologist told us that the disease probably started 5-7 years before she was diagnosed. Looking back I now can see the clues but never realized it was Alzheimer’s. I used to joke to family and friends that I married my DW so I would have someone to push my wheelchair when I got older. I never even thought about me having to care for her, but here I am and killing it. 👍

  • mbald
    mbald Member Posts: 4
    First Comment
    Member

    my DH was diagnosed in January…he’s 57. We haven’t told our kids yet (20,19 and 17) but they suspect something. We are waiting for his treatment to start. We tell each other we need to keep laughing or we’ll cry. I can’t look at older couples out a restaurants or at airports. I own my own company and can’t focus on what will happen in a few years….

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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