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Is this Alzheimer's or Personality?
My mom is extemely mean to me at times. She has Alzheimer's and I have been taking care of her for 8 years. When I suggest something like for example, "You can put on your pajamas since its night time" She'll respond, "Yeah I'm not stupid, I know what I'm doing" I try to give her as much autonomy as I can, but she is in…
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Suggestions about what to ask of a home health aid?
We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…
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Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
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Home health care
I'm 70 and in reasonably good health, some issues that are well managed. DW is 67, about 3 years or so in. I would say moderate stages. A fair amount of urinary incontinence, needs assistance with bathing and dressing. We have an adult daughter who's doing all she can to help us. I cook breakfast every day, and either our…
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Conservatorship Process
Father is diagnosed with Alzheimer’s and is prone to shopping sprees, scams, and donating money, but doesn’t pay his taxes, bills, and maxes out credit cards. He’s in debt $500k, but denies any problem with his actions or Alzheimer’s diagnosis from his neurologist. Would like first hand experience with establishing a…
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Seeking a Large Visual Memory System and Apple Watch for Safer Independent Living
Hi everyone, My name is Christopher. I want to be transparent that I have medically documented mild cognitive impairment and post-concussion symptoms following motor-vehicle accidents, rather than a diagnosis of Alzheimer’s or another form of dementia. I am posting here because many members have valuable lived experience…
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How to handle their distrust of doctors
I had a care meeting for my mom at her ALF last week, and they want to have her PCP (who is part of the ALF) evaluate a few things, including her debilitating back pain, her anxiety, and her evening depression, which is probably some form of sundowning. They also want to do some further cognitive screening. They let her…
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Prepared for so much EXECPT every new symptom my Dad has.
My DD stage 4 has been doing really well. He adapted to the lifestyle changes, the MIND diet. His MRI & bloodwork results are encouraging. He wanted to take a trip with me to see my daughter in Law School (it’s always been his dream to have an attorney in the family) we live in PA she is in IL. The plan was to fly out…
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I Need Help
Hello! My name is Aaliyah. I am 23. I was adopted by my grandparents when I was 2 months old. They've raised me without any help from my biological parents. In 2016, my freshmen year of highschool, I lost my grandfather to Alzheimer's. I took it insanely hard. I was one of the only ones he remembered in the end. I had…
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Searching for Korean speaking caregivers in San Antonio
Are there PAS/Caregiver/Attendant in San Antonio who is fluent in Korean to assist my 82-year-old mother on an hourly basis at her home in San Antonio (78239). There are larger Korean communities in Dallas, Houston, and Austin that I am aware of, but moving there is not an option. My mother has progressive dementia and…
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primary support person, not direct care-giver
Hi, I'm new to the group and looking for support. I don't know this is the right place for me. My mother is in assisted living with mild-to-moderate dementia. She lives 1/2 mile down the road from me. I’m her primary care partner and decision-maker, but I’m not providing hands-on care. I'm mentally and emotionally…
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How to inform your parent of major home maintenance plans
Does anyone have advice on how to inform a parent about major necessary home repairs? My siblings and I live out-of-state from my mom. While she still lives independently, she has trouble with executive function, particularly finding and hiring people to do home maintenance. Her roof is old and is in a state of total…
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Sabotaging everything - Caring for my Great Grandma after losing her daughter, my Grandmother
Hello there. I'm posting because I don't know what else to do, I guess I'm looking for guidance, someone to let me know that I'm not going crazy. My Great Grandma is 101 years old, lives alone in her house she's lived in her entire life. We've tried to get her into assisted living but she refuses and her doctor says at…
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Having a hard time about my dads diagnosis.
Preface: (DAD WAS VERY RECENTLY DIAGNOSED & PUT IN A HOME ABRUPTLY SO IM STILL IN SHOCK) Hey! My name is Blair and I’m 28, I have 4 beautiful boys, ages 1,3,5&7. My dad can’t remember their names or how many I have. I’m having a hard time. He was just out into a home in September. He hates it but it’s for his safety. We…
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Re: Respite
Everyone tells me I need to take advantage of the respite being offered by friends - I have complied several times, however the fact that nothing is going to change with regard to caring for my spouse, especially at night. It’s only going to get more difficult and having an afternoon to do whatever for myself is like…
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Caregiving from afar
Hi there, I am new to this group and new to the dementia journey with my mom. My father passed away right before Christmas, and now she is alone in their home. I live 2.5 hours away, and my only other sibling is 5 hours away from her. Mom has been showing signs of dementia for about 2 years, but has really declined over…
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Burn out
Hi, Lately, I feel so tired and burnt out physically, mentally, and emotionally. My dad was diagnosed with Alzheimers in August. He started his first treat with Leqembi on Tuesday. He was sicker than a dog. I am watching my mom struggle to take care of him. I feel like I don't know what to do. I give my mom good advice. I…
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Caring for mom at home
I’ve been caring for my mom pretty much full time since 2020 but my Dad helped until he passed in early 2024. She already had mobility issues from a stroke and a fall, but since he died she’s gone downhill with her dementia. She’s maybe a mid-stage 5 but it’s hard to assess since I’ve been helping her do her ADLS for years…
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Asking for Help
My dad is scheduled in February to start Leqembi. I am having a hard time wanting to try this experimental treatment. I love my dad. I am worrying about the negative side effects. My dad is at stage 3-4 of Alzheimers. He is coherent. My mom agrees with my dad. I have already let go of my father. He isn't the father, I once…
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Losing Weight, Looking for Advice
Hi there - New Here This is my first post so forgive me if there are any formatting errors and length. I am one of the caregivers for my great aunt, late 70s, who I believe has end middle to late stage. We placed her in MC back in August because she lived alone and it was just becoming too much for her. Since entering the…
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Caregiver - Therapy
I've been primary caregiver for my mom for nearly two years. She's still living at home but no longer driving. Moods are hard, depression is a thing. My SO and daughter help with check ins but it's still a lot. I've been considering looking into therapy for myself. Any suggestions? Tips? Things to consider when finding the…
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New
Hello, I am new to this site. I have just now felt the need to reach out for support. I have been telling my wife that the presents are not to be opened till Christmas. Well, she opened hers and her son's Christmas Eve. I was so disappointed. A few years ago, while we were in Michigan, my wife was given depression pills.…
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Feeling sad and drained.
Hi everyone. I am new to this group, as I am finally trying to better myself by seeking some sort of help. I am 20 years old, and my mom has just been officially diagnosed with Alzheimers. I am the youngest of 4 siblings by 10+ years and I am still living at home and going to school. My dad is still working and my siblings…
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Home for the Holidays
Hi to all, I ran across this video while checking to see if any new ones popped up on my YouTube channel. I found it to be quite helpful and relevant for this time of year. The title is “Caregiving and the Holidays: From Stress to Success” through the Wellmed Charitable Foundation. (If the link below doesn’t open for you,…
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Home health care
I am 70, in reasonably good health, with some managed issues. DW is 67 in moderate stages. She has frequent urinary incontinence and needs assistance with dressing and bathing. I cook breakfast every day. We have an adult daughter nearby who really helps out a lot, frequently bringing meal preps and assisting 2-3 days per…
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Help! Overwhelmed and Dad won't address things
My mom (79) has dementia. I don't think she'll ever have any diagnosis. She won't even take her temperature. My dad (78) still has POA but won't do what's necessary for taking care of himself let alone her (i.e. meds, driving, home safety, home help, future planning, etc.) He/they don't know what state to live in when they…
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New Caregiver Advice Needed
Hello - I'm new to this caregiving role and am navigating these responsibilities on top of raising 2 young kids, looking for a new job, and all the other things. Where are the best places to start in seeking help and locating resources? My mother currently has a pseudodementia diagnosis and I'm wondering if anyone else has…
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Elderly Aunt....Recent Diagnosis and Home Care Challenges
Hi All, I could use some perspective/guidance/support on our current situation. My sister and I have noticed for some time that our aunt has memory issues, plus a host of other challenges. She has no kids of her own. She was not caring for herself (skipping or cancelling dr apts, not taking or refilling meds, not…
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Mom lives in Independent Living Fac, needs to move to AL, hard 'No!'
I am new to this forum. I have found many discussions relevant to my situation. I received a lot of good information from these discussions, but I figured I'd post my question on the off chance some more information may come to light. I currently care for my Mother with the help of my wife. My mom moved from out of state…