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Young diagnosis of early onset ALZwgat to do first?
I’m a new member. My husband (48) was diagnosed Ed last week with Early AZ via blood test and pet scan. What do I do now?? I’m lost. Sad. Angry and need a path.
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Delivering Bad News
Looking for some advice on how to have difficult conversations with someone with dementia. My mom was diagnosed with frontotemporal dementia in January. We recently moved her into an assisted living facility as she is not able to live alone safely anymore. She is relatively young, 63, and while she definitely has some…
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New Here - Suggestions for Getting Spouse To Give Up Driving?
To be clear - I have joined this group on behalf of my niece who is the caregiver of her 62 year old husband with ALZ. She still works full time (so has little time to do this kind of online research herself) and he is home alone all day. He is now at the point where he shouldn't drive anymore, both because of his current…
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Need resources & ideas
Hi, My dad was diagnosed with Dementia in October of 2025 but it has progressed rapidly and he is living in an unsafe situation at home. He falls frequently at night, has hallucinations and can be very agitated and aggressive. My mom is is caretaker and is with him 24/7. I’m extremely worried about her health and well…
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How or if to tell my parents they are moving to memory care
I am about to move my parents into memory care in a few weeks. They are both 95 with stage 4/5 dementia. They have been living in assisted living for the past 4 years so the move would just be across the courtyard to a more secure facility with more support. My question for this group is when, how, or if to tell them they…
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Hospital stay for medication adjustment?
Hello, all. My DW has been in skilled nursing care for several months. She has later-stage Alzheimers but also physical limitations — needs help with eating, toileting, walking on 24/7 basis. She became more agitated and combative in recent weeks so SNC staff said she needed to go to hospital psych unit for medication…
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Mom doesnt listen
My mom is early onset Alzheimers and is experiencing some cognitive decline but not to the extent that I can contact the agency on aging for a caregiver. She can still bathe herself, etc. However, she does not listen to or obey what I tell her no matter what the reasoning. Right now, I am the only one available to take…
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Bathroom accidents
Hi everyone. My mother is the primary caregiver for my father, who has Alzheimer’s that has been progressing quickly. We need some advice. Over the past few months, he has started having significant difficulties with toileting hygiene. He’ll use the bathroom but is no longer able to complete the wiping process — usually…
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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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My mom has EOAD… need advice/support
Hi People, I have never had the courage to ask this question of the health professionals, I feel disloyal even asking it, and every time I have to verbalise my family’s situation, I burst into tears, but here goes. My mom was diagnosed almost 4 years ago at 46 years old during my freshman year of college, she still lives…
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Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.
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Mom Might Get Evicted from Memory Care
This may sound harsh, but it's our reality right now. We moved our 84-y.o. mother with dementia into a lovely memory care facility last week. The dementia symptoms advanced quickly - she was driving and socializing mid-February, and a month later she's getting lost in her own neighborhood, forgetting where she is, and…
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Need Advice
Hello, My dad is being discharged from a hospital soon after treatment for a blood clot and heart failure. We aren't sure what is primary right now, the heart disease or the memory loss, but he's very immobile so we're afraid he'll get a clot again. He lives with my mother and my disabled sister (my mom has her hands very…
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Caring for my mom from afar
It was suggested that I post over here as the "Caring Long Distance" forum doesn't get as many views. I edited this from the original post with some more detail ... My mom has Alzheimer's which appears to be at stage 4. She lives with my Dad out of state and I'm about an hour away while my brother is closer to 2 hours. My…
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New member, helping my parents
My mom has Alzheimer's - stage 4 or possibly stage 5 (somewhere in between?) - clearly at the stage where she needs extra help but is incredibly resistant to accepting any help outside of family. She will basically scream about how accepting help will make her decline faster… etc (she was an RN for years and has experience…
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Nursing facility. Does anyone have advice on mom’s boyfriend who constantly stirs the pot.
I am my mom’s HPOA/DPOA. She has a boyfriend she lived with for 28 years. Since she was placed in a nursing facility 6 months ago after a fall he is constantly stirring the pot. Today she told me she’s getting a petition signed to say she doesn’t have dementia and “it’s a secret”. She has Parkinson’s and related dementia.…
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Concerned newcomer
Hi, I just created an account for this group,hoping to find support and helpful information. I am a loving partner to a 76-year-old woman who has been exhibiting memory lapses, delusions, and paranoia. I care deeply for her and am trying to figure out how best to help her, beginning with that first awkward, sensitive…
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Leqembi
Hi, Dad went for his first MRI after 1 month of being on Leqembi. The doctor's found internal bleeding and brain swelling. Dad will stop taking infusions. In June the doctors will give him another cat scan to check his brain. If he improves, they will put him back on leqembi. Honestly, I am against him doing this infusion…
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Watching Alzheimer’s Take My Grandmother Changed Me! Now I Want to Build Something That Helps
After losing my grandmother to Alzheimer’s, I’ve been thinking a lot about how difficult this journey is for families and caregivers. I’m an engineer and want to use technology to make people’s lives more comfortable and better in this space, but I know I need to understand the real problems first. If you’ve worked in…
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Care from out of state
Hello. I am in Atlanta and my parents are in Cincinnati. My mother has Alzheimer's and my father is her primary caregiver. I am feeling more and more that my dad needs more help than he is asking for and maybe even a respite care partner to come to the house for my mom so he can have a break. My godmother currently comes…
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Need tips to help mom taking medicine
Hello, my mom, who has alzheimer needs to take medicine daily. She is good with most medicine except the calcium supplements. She couldn't swallow it. I crushed the pill and mixed with food. She spilled it out, thinking they are rocks. I don't want she to feel someone put rocks in her meal since she has been lately…
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Recommendations on companion services
My mom has PCA, a form of Alzheimer's. She is only 59 but we have already seen a severe cognitive decline and she is unable to live on her own. She is in assisted living right now. They do offer activities throughout the day, but usually the ones in the afternoon are either too difficult for my mom to participate in or she…
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Fear and refusal of standing/transfers?
Prefacing with my mom seems to be in the later stages. She recently does not want to get up or stand up. In the morning, she will not want to sit up in bed. Once we get her in a sitting position, she is refusing to stand up. She would rather just sit there. When we get her up with a gait belt, she gets very angry and…
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
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We can’t afford care for my mom
Hello, My mom was recently diagnosed with Alzheimer’s. She’s only 63, so we are highly unprepared for this. To make matters worse, she has very little money saved and my family is not a position to help financially. She also lives in CA while I’m in WA state adding more hurdles to finding her adequate help. We’ve set up…
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I’m worried
Hello, I’m here because my dad recently got diagnosed with early onset Alzheimer’s. Everyone says “at least it’s early and there’s awhile”.. but we never really know how quickly this disease can progress. I’m worried, I’m going to lose my dad at some point. And I feel guilty too for feeling like my life is going to be…
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Any advice on severe emotional hysteria?
My mom was diagnosed with early onset Posterior Cortical Atrophy (a form of Alzheimer's) around 2 years ago. She is only 59. She has been going through a pretty rapid decline and we ended up moving her into assisted living last year. Obviously this has been tough on her and it's been an emotional roller coaster, but she…
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Finally Got POA! Now What?
Hi everyone! So today is the day that I finally focused on getting POA over my mom, and thank god I did. Poor thing could barely do her signature she kept getting so anxious :( But regardless, yay we got it done! Now who do I need to send it to?? Do I just give it to all of her doctors, her bank, her landlord?? Should I be…