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Day by day
I am the caregiver for my mother (75y) with dementia. I began caring for both parents since the spring of 2024 after father (80y) experienced a heart attack. He survived but became wheelchair dependent. This summer 2025 he had another heart attack and did not survive. I have been caring for my mom but it’s getting harder…
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New to the discussion and terrified
My DH was diagnosed in March 2024 with mild cognitive impairment. We looked at the diagnosis with horror and a gift that we could try and slow the progression. Two weeks ago he had a sudden incident of bizarre walking and falling. He said he felt like he had no control of his movements. We saw our family doctor had an MRI…
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clearing mucus from the chest in late dementia
Alzheimer's has taken my 83yo wife into its late stage, and she recently caught a cold or pneumonia. She improved in the hospital, appears not to have an infection now, but three weeks later at home she still has a wet cough, usually when lying in bed, which is most of her time. The cough interrupts her badly-needed sleep.…
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Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
Hi! I was on the boards here 7+ years ago for my dad, and now I'm back for my cousin. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth.…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
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Really Need Help With My Mom and Dad, Could This be Dementia? Dad’s Behavior
Hi, I’m 49 and living with both of my aging parents. My dad is almost 80 and has been obsessively bringing up my mom’s past—accusing, interrogating, then apologizing and repeating it again. It started suddenly in early May. He has also: Forgotten recent events or where he placed items Told the same old stories repeatedly…
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Travel With Alzheimer’s
My wife has Alzheimer’s, and she really wants to move back to her hometown, which is 2500 miles from where we live now. We can either fly or drive (money is not a concern), but I can see potential problems for either. Driving will mean many hours in the car each day, and she doesn’t like that idea. Flying presents other…
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Kisunla vs Liqembi
I was recently diagnosed with AD after having MCI for the past 5 years. My neurologist is recommending that I start a monoclonal antibody treatment regimen and has suggested Liqembi. As I do my own research, it looks like Kisunla is considerably more effective. It more aggressively removes existing plaque while preventing…
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I want to offer help to my partner but I don't know what to do.
Hello, my partner's uncle has started to show the signs of early stage Alzheimer's and while I have had family members experience this in the past never someone as close as they are with their uncle. He lives in a different city and while they are trying to spend as much time there as they can I want to help however I can…
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Mom in Indep. Living but not sure that's the right place...
WOW so much going on I'll try to keep this concise. First of all, I'm grateful to have a community like this and I'm really hoping I can get some ideas. My mom (82) was diagnosed with minor neuro decline two years ago and her annual followups went minor to medium to major this summer. It's now "suspected Alzheimer disease"…
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destructive treatment from my wife's daughter
My wife is afflicted with ALZ. she still loves me but we have had difficulties over the last month or so. We always had arguments over our 46 year marriage. So she asked for help from her daughters and they have offered it. Fine. Now she is 400 miles away. But now the oldest one has taken another step. She has blocked all…
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How to help mom when dad has the disease
My mom and dad are living in a memory care facility. My dad has Alzheimers and my mom does not. My dad is in the later stages of the disease and has recently begun calling my mom his ex-wife AND has been seen holding hands with other female residents. My mom has been sobbing uncontrollably. She's feeling guilty when she…
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Interview a doctor?
Hello, Nice to meet you all- I'm looking to pick a new primary or geriatric spanish speaking doc for my Mom (75) with early alzheimers when open enrollment happens for Medicare. But, I wish there was a way to interview them first before making them her doctor. Is that a thing? Is it weird to do that? Do people do that?…
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Here's a new one I wasn't ready for
Dad was diagnosed with VD and onsight AZ almost 4 years ago. He has been in AL for the past 6 months awaiting "home renovations" and plans to move into the home when finished (depending on the day and time of course as it changes daily for him). He's doing really well and 99% of the time he absolutely loves it and the…
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Advice for getting help for cousin
My cousin, with no immediate family, has been showing signs of dementia for over a year. I live in another state and cannot travel due to husband's health issue. I've talked to her friends and asked for their help,but no one wants to be the one to tell my cousin, or take her to doctor. Is there a good way for me to tell…
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CCRC forcing LO move from independent to MC
My LO with VD lives in a CCRC in an independent home with 24 hour care. On waitlist for MC. My sister and I took her for “lunch” when opening came up. We decided not to place her in MC and continue with 24 hr care. CCRC has called us in for meeting saying they are concerned with LO’s safety. CCRC says she has to move to MC…
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Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
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Ready to throw the towel in
Brief update: Dad was diagnosed 3+ years ago with VD and onset Alz. He has now been in ASL for 6 months and discussions are being made for the move toward MC. I'm his POA. I've posted about his 2 sisters resisting any directives made by me and they have been sent a cease and desist letter 3 months ago but, still manage to…
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Repercussions from shunt surgery.
My husband had a shunt put in for NPH (Normal pressure hydrocephalus) in July. Before that he had early Alzheimer’s dementia. After surgery, its a lot worse. We had to put door handle locks on the doors, shower & bathroom bars in the bathroom. He doesn’t remember anything. He makes things up, hallucinates. He’s losing his…
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Help with restless, sleepless nights
At bedtime, my wife will sleep for about an hour then will become restless and repeatedly get up and down, then roam around the bedroom and upstairs all night like a zombie. She has moderate/late stage Alzheimers and takes risperidone (Risperdal) but doc is weaning her off and will replace with Geodon soon. She also takes…
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Ordering Supplements
Hello, this is my first post here, though I have read through many discussions and found them insightful and therapeutic. My DH was diagnosed with AD last year, had been showing symptoms of dementia for several years, and had a previous diagnosis of MCI. For several years, he's been ordering various supplements that claim…
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Equipment for dementia or ALZ patients
Dad is a fall risk due to frequent UTI issues. Having ALZ adds to the difficulty. We have part-time caregivers and my sister and I are there often but there are times he is alone and is generally ok. When he suddenly get a UTI he falls and is weak. We have went through a few devices with fall detection to no avail:…
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Help with moving unwilling mom to senior living
Hi, I'm new here. My 82 yo mom has mid stage alz, and is currently living with my dad in the home they've been in for 45 years. My dad 83 yo is very ready to move to a senior living community and is finally reaching the top of the wait list for his desired community that has assisted living and memory care available when…
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Moving Mom
Hello all. We are in the process of moving my mom in with my niece; however she doesn't want to go because she can't take her 2 cats and 3 dogs with her. The critters will be staying with my dad and will be cared for, but my mom has to move (and I would rather not go into the backstory of why she can't stay with my dad)…
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Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
I will try to keep this shortish. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth. Since May she has been manic, paranoid, delusional,…
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I See and Feel her slipping away
My DW is living with undiagnosed ALZ. DW of our 36-year marriage had a cerebral hemorrhage about 1 year ago and I have seen her gradually slip away mentally at times. She was also left visually impaired by the operation which adds another challenge to overcome. She can see some things but not well enough to read. I…
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Feeds cat 4-8 times a day
My mother has one cat. Sometimes she thinks there are more that pop by. But when prompted, she catches herself and realizes there is only one cat. Regardless of the number of cats that she perceives, she overfeed them. She sets out 4-8 bowls filled with wet food per day. This creates a bad situation as most of it rots, or…
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New Here & Just Trying To Keep Up
I’ve been feeling really overwhelmed and alone, and I’m so thankful to have found this group. I’m 29 and live in Georgia. My mom is 65, lives alone in Florida, and was recently diagnosed with Alzheimer’s. My parents are divorced, and my sister isn’t able to help due to her own challenges. My mom’s brother offered support…