Asking for Help

Hello all, I am new to the forum after getting in touch with the helpline today. I'm not sure the meaning of this post, but I think the tags are appropriate. I am looking for help in planning a transition and a bit of self care in the meantime. My wife is my father-in-law's primary (remote 4hr drive) caretaker. We are in…

We are in Illinois if that impacts anything. My mother was diagnosed about 6 months ago. There is so much information out there. Is there any guide that walks me through what I need to do, in what order? Or does anyone have any tips and tricks. We are in the process of selling her property and purchasing another smaller…

Hi, I am looking for support on finding in home care for my dad once or twice a week and how to navigate it financially. He is not on Medicare and early onset. My parents also most likely would not qualify for free services but cannot afford most private pay places. I am trying to find something in the middle near bucks…

Sorry for this long-winded posting, I welcome and appreciate any and all responses. My DW is 79, diagnosed with AD earlier this year but started showing signs 3-1/2 yrs ago, currently probably stage 4? She can still handle most of her basic ADL's but no longer drives, cooks, pays bills, etc.. Her anxiety/ agitation/…

My husband is 70 and was recently diagnosed with “MCI due to Alzheimer’s” after going to the doctor after experiencing memory issues. He had an MRI, then PET scan, which led the neurologist to his diagnosis and starting Aricept. (This is our first week on it.) (The dr also suggested he think about infusion therapy, which…

Has anyone had experience with the cloth incontinence underwear? My MIL is having some issues, and I was thinking it might be an easier transition to move to a more typical underwear rather than the paper kind. Right now, she is using a copious amount of Gold Bond powder which is a habit that must be broken, I know.

Hi everyone, I'm 21 and I'm caring for my dad. My dad has cerebral amyloid angiopathy, called CAA, which his team describes as a rare form of Alzheimer disease. They think he has had it for 5 to 10 years before diagnosis. He is starting to have memory loss and he is in the process of doing a driving test with his…

Hi all - my father is in late stage decline, and after 6 week hospital stay, we've decided to move him to hospice. My question is about medicating him for sleep/rest. He's had a few seizures, and is certainly experiencing hospital delirium. So as it goes, a lot of overlapping issues. But his sundowning is HORRIBLE and we…

Hello! I have been on here for about a month or so now and have found everyone so very helpful. I have some thoughts I’d like to share and hopefully someone can give some insight into whether or not it would help my situation. So my dad has VD, or so we have been told. He is in a NH that he hates and he “WANTS TO GO HOME”.…

My mother is 78 with ES and lives alone. Until recently, she has managed around the house- she's lived there 50 yrs and only recently been alone (my dad passed 2023, my younger live-in brother passed in 2025). While I am not working (online college fulltime, however), I have become my mom's assistant, scheduler, IT tech,…

Hi everyone, This is my first post. Recently, my mum was diagnosed with early-to-mid-stage Alzheimer's. She is 67. This has hit our family pretty hard, especially my dad, who has taken on the mantle of primary caregiver. I still live at home, so I am exposed to the daily realities of the condition. Lately, she has been…

Does anyone’s loved one keep their eyes closed a lot? My mom has entered a phase where she will “talk” to me with her eyes closed. I usually have to repeatedly ask her to try to open them. I’m not sure if this is common or just unique to her. Thanks in advance

Hi me again. From my previous post you all can see I am new to this. My Mom lived in Florida and my sister who is Guardian of the Person moved Mom up here. Here is Southern Ohio. Mom has only Florida clothing. Fall has commenced here in Southern Ohio and soon to be winter. Mom is living in Assisted Living. I tried buying…

Hi I am new. My Mom has memory loss. I am not the Guardian of the Person so I am not informed to what extent her memory loss is. My sister who is Guardian of the Person does not share that information with me. Communication between my sister and I is only through an attorney. I am my Mom's DPOA. My mom was placed into a…

My mom is the full time caregiver for my dad with Alzheimers. He been diagnosed with it for over a year. I have been trying to give Mom support. She wasn't ready to accept it. Now she is coming to me for help. We did a caregivers support group last night. I was able to call the Alzheimers hot line to give her resources.…

Hello everyone, I am relatively new to this forum and I'm hoping someone in this community might have advice or recommendations based on a similar experience. I do apologize if this is an inappropriate posting. I'm the primary caregiver for my elderly mother, who has Alzheimer's disease and leukemia. We live in Monmouth…

My dad has been diagnosed with Alzheimers over a year. Truthfully, I never knew how to deal with that sad news. Just recently he was diagnosed with bladder cancer. I was adopted and have abandonment issues from it. Now everyday slowly losing my dad. I feel these overwhelming emotions. I just want a good night sleep without…

Hello everyone!! I am currently in the process of finding assisted living care for my mother who has Alzheimer’s Disease (most likely full on dementia at this point). She is starting to have bathroom issues, and I am reaching my limit. It is now a risk to her physical health and my mental health from my burn out. I mean…

Hello everyone, I am new. Last year, my mother was diagnosed with early Alzheimer's dementia; then a PET scan was clear, and they said it was a mild cognitive disorder with a tendency to grow into dementia. A year later, the situation is worse, and it is clear that this is dementia. But my mother refuses to go to the…

hi it’s been a minute. I am voice texting this because I’m too exhausted to type it. Things have been pretty much status quo. I mean it’s still for me really hard to rationalize what’s happening. Some days for a bit she’ll seem quite OK and in those moments, I just see her as my old stubborn mother and then if something…

I’m looking for some advice or to hear from anyone who has been through something similar with an aging parent or grandparent. My loved one is 80 and has been experiencing noticeable changes with her memory and behavior that have gotten progressively worse over the past year. It initially seemed like normal short-term…

I'm new to this discussion board and just joined this as a way for support. My family just recently told me that my grandmother has been recently diagnosed with Early on set Alzheimers and this weekend me and my mom are going to tell her the news that its becoming a reality that she will be starting to live with us most of…

Hello everyone, my name is raffaella and I am caring for my 76 yr old grandma . Last two months have been very hard, she talks to all these ppl not present from the time she wakes up to the time the meds put her to sleep. In the beginning wasn’t so bad it was regular conversations, almost like telling stories, now she is…

Hi, I am new here. I hear because I know my mom has been having some congnitive decline. She has had afib (controlled) for maybe 9 years and sees a cardiologist yearly for a check up. He made an appointment with a doctor to establish her as a new patient and oddly enough she was willing to let me go with her. I wasn’t…

How are you guys keeping your parents engaged? I cannot watch my mother all the time and I find that she needs constant interaction.

First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…

Hi I'm on here. My partner of 20 years has was diagnosed with early onset alzheimers 18 months ago. We went awy on a short holiday to greece last week and it was a nightmare. My partner accused me of having sex with other men in the hotel toilet.

Hello all! I will try to keep this brief. My mom was taken out of one nursing home without my consent back in 2021, and is now in a rehabilitation center as of April ‘26. I have POA since June 2020, but somehow non-family members allegedly have POA for 2026. I am my moms only blood family here and I need advice on how to…

Hi everyone! I know the title is,,,a lot. My mom is the youngest of 4, adores her older siblings. One of them unfortunately has passed two days ago, a doctor caused more damage than repair. It was completely sudden, and I am struggling with how to tell my mama. She is extremely emotional, and I’m concerned that telling her…