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Brilliant Analogy
This really resonated with me. https://www.facebook.com/reel/1101251472572052 HB
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I'm new here, my first post - how can I best help my mom?
My mother is 77 years old, living independently, and diagnosed with dementia/mild cognitive impairment, along with anxiety and depression. My father passed 3 years ago, after they were married 50 years. This was followed by the passing of my brother (my mom's youngest son) at 32 just last August. She has lived in the same…
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New Here! Mum diagnosed 6 weeks ago. Struggling with evening sundowning/looping—any advice?
Hi everyone, This is my first post. Recently, my mum was diagnosed with early-to-mid-stage Alzheimer's. She is 67. This has hit our family pretty hard, especially my dad, who has taken on the mantle of primary caregiver. I still live at home, so I am exposed to the daily realities of the condition. Lately, she has been…
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Trying to help primary caregiver
Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…
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Struggling with providing care for my very willful Mom
I'm new here, but desperate for help with handling these difficult things, and feeling like I'm really botching this pretty badly. A little over a year ago, I moved in to look after my Mom, who was diagnosed with Alzheimer's when she was still somewhere in the middle stages. My family was never good with communication or…
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Switching from daughter to caregiver… resources, advice, anything?
As the title states, I’m wanting to know the wheres, whats, whens, whos, hows, and whys do you utilize the most? Not getting much help from my dad’s (newly diagnosed early onset Alzheimer’s) doctor. When I asked for some recommendations (medicine management, in home care, support groups, etc.), all I got was checkout the…
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Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
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Am 63 and have MCI - getting tested for ALZ
I am a 63 yo Psychotherapist getting tested for possible ALZ. I have been thru 2 different blood draws, a brain MRI, and a recent amyvid PET scan. The PET scan once again showed things that suggest ALZ. I have not seen the Neurologist yet to go over the results. I single, no kids and am attempting to figure out where I can…
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Caring for dad
I am one of 7 children. My mother just passes away 2 months ago, and my dad was just diagnosed with Alzheimer's. My siblings and I have been trying to care for him by taking turns, but it seems like it's not going to work this way. We all have full time jobs and families. I go back to work in a week and I am stressed that…
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Taking Mom Out
New here - Mom has been in MC for a year (this week actually), she still asks when she is going home and her anger and agitation has increased. We did not take her out of the facility for several months following her admission but have done so more recently (breakfast, shops, etc.) but the last two visits she seems to be…
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Can Sundowning happen in the morning
My husband is in late stage dementia and the regressive changes are happening quickly. Sundowning at around 5 pm is a familiar pattern, and we have come up with some steps that reduce the effects. A new problem — In the morning, we're seeing something like sundowning. He might withdraw, he might get angry, it's a new thing…
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Sad, stressed, and need to talk to others
I am new to this site. My significant other (SO), is battling Alzheimer's. I just need to know what I am able to do to make both our lives easier. I feel like I have already lost a lot of the man I married. He has good days and bad days. But, it has taken a toll on us. I am having to do the things he use to do along with…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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Paranoia
My father is remembering that we used to have a kerosene heater in the home…like in the 1980’s. He keeps yelling at my sister because he feels she removed it from the home…now. She tries to reassure him that we had to get rid of it years and years ago due to my mom’s copd. Nevertheless, He keeps yelling at her because he…
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I Need Help
Hello! My name is Aaliyah. I am 23. I was adopted by my grandparents when I was 2 months old. They've raised me without any help from my biological parents. In 2016, my freshmen year of highschool, I lost my grandfather to Alzheimer's. I took it insanely hard. I was one of the only ones he remembered in the end. I had…
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Looking for advice
My DH has ALZ, somewhere in Stage 3-4. Last night, we were having a conversation and he stopped mid-sentence with a blank look on his face. When he recovered a few seconds later, he realized that something was "off" and obviously very concerned about what had happened. He had forgotten what he was talking about. He was…
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Need advice
Hi all! I just joined needing support , advice, somewhere to vent. My mother has had several mini strokes (TIA) in the past few years. Since then she has rapidly declined with memory, decision making, daily functioning etc. She is now diagnosed with mixed dimentia (vascular dimentia and alzheimers). It explains her…
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I am new to this community
Hello, I am new to this community and looking for support and help. I am 78, and my husband is 5.5 years younger. I have spoken at length with my doctor about what's going on in my life, and she has been very supportive and suggested I come here for guidance. I have seen my husband's decline over the past several years,…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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Father Angry & Unhappy in SNF
My father(86 yo), who from what I’ve read has recently entered Stage 6, he has been in a SNF since April. Until recently he has been fairly happy there and hasn’t complained much. I’m not sure most days he really understands where he is, often times he calls it his apartment or thinks he is at work. Other than the dementia…
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Searching for Korean speaking caregivers in San Antonio
Are there PAS/Caregiver/Attendant in San Antonio who is fluent in Korean to assist my 82-year-old mother on an hourly basis at her home in San Antonio (78239). There are larger Korean communities in Dallas, Houston, and Austin that I am aware of, but moving there is not an option. My mother has progressive dementia and…
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How or if to tell my parents they are moving to memory care
I am about to move my parents into memory care in a few weeks. They are both 95 with stage 4/5 dementia. They have been living in assisted living for the past 4 years so the move would just be across the courtyard to a more secure facility with more support. My question for this group is when, how, or if to tell them they…
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How to manage putting a pet down
Over the past several months our beloved cat’s nasal tumor has grown larger and her quality of life and weight have deteriorated. DW is middle-stage dementia and can’t seem to remember our discussions of when to let the cat go. Last week we agreed that it was time and scheduled it with the vet for tomorrow. We’ve talked…
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Vascular Dementia
I would like to hear from anyone who is dealing with a spouse or LO who has this dx. My husband has been diagnosed with cerebral amyloid angiopathy—which seems to be the cause of this vascular dementia. We have been married since 1994. He is 79. This dx has turned him into basically a different person. He is 6'10" and has…
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Feels Like A Different Stage
Hi Everyone, When I found this group, I knew it would be supportive. Just reading all of your responses has given me a little peace of mind. My mom is 93 and two years ago was diagnosed with possible early dementia after leaving her home at 11PM and walking to the hairdresser's. Nothing like this has ever happened again,…
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Navigating mom's move to MC from six hours away
Hello, I'm really glad I found this resource and hope I can get some support from online. Brief history: I live about 6 hours from my family. About 10 years ago my mom had a TIA and was fine until about March last year, when she fell and hit her head--either another stroke or balance problems; no idea. My dad covered for…
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Dad recently diagnosed
Hello all. I’m so grateful for these groups. I’m just beginning my Dads journey and I’m alone and need guidance please !!! I am a paramedic for 35 years and have a lot of medical experience but I have ZERO experience with this disease. From what I’m learning this disease follows no normal patterns. I feel like a rookie…