Asking for Help
Discussion List
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Moving Mom Soon, but how?
My mother is 78 with ES and lives alone. Until recently, she has managed around the house- she's lived there 50 yrs and only recently been alone (my dad passed 2023, my younger live-in brother passed in 2025). While I am not working (online college fulltime, however), I have become my mom's assistant, scheduler, IT tech,…
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Need to help Mom Manage Stress and Give Support
My mom is the full time caregiver for my dad with Alzheimers. He been diagnosed with it for over a year. I have been trying to give Mom support. She wasn't ready to accept it. Now she is coming to me for help. We did a caregivers support group last night. I was able to call the Alzheimers hot line to give her resources.…
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Seeking Advice on Affordable Home Repairs to Help Support My Mother's Care
Hello everyone, I am relatively new to this forum and I'm hoping someone in this community might have advice or recommendations based on a similar experience. I do apologize if this is an inappropriate posting. I'm the primary caregiver for my elderly mother, who has Alzheimer's disease and leukemia. We live in Monmouth…
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Overwhelmed
My dad has been diagnosed with Alzheimers over a year. Truthfully, I never knew how to deal with that sad news. Just recently he was diagnosed with bladder cancer. I was adopted and have abandonment issues from it. Now everyday slowly losing my dad. I feel these overwhelming emotions. I just want a good night sleep without…
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Closing eyes
Does anyone’s loved one keep their eyes closed a lot? My mom has entered a phase where she will “talk” to me with her eyes closed. I usually have to repeatedly ask her to try to open them. I’m not sure if this is common or just unique to her. Thanks in advance
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Finding Home Care (NYS, Long Island Specifically!)
Hello everyone!! I am currently in the process of finding assisted living care for my mother who has Alzheimer’s Disease (most likely full on dementia at this point). She is starting to have bathroom issues, and I am reaching my limit. It is now a risk to her physical health and my mental health from my burn out. I mean…
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Difficulties navigating a parent whose MILD COGNITIVE DISORDER has grown into DEMENTIA
Hello everyone, I am new. Last year, my mother was diagnosed with early Alzheimer's dementia; then a PET scan was clear, and they said it was a mild cognitive disorder with a tendency to grow into dementia. A year later, the situation is worse, and it is clear that this is dementia. But my mother refuses to go to the…
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So unsure what I’m supposed to do to help. It’s MCI right now, but what exactly does that mean?
My husband is 70 and was recently diagnosed with “MCI due to Alzheimer’s” after going to the doctor after experiencing memory issues. He had an MRI, then PET scan, which led the neurologist to his diagnosis and starting Aricept. (This is our first week on it.) (The dr also suggested he think about infusion therapy, which…
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Caregiver burnout
hi it’s been a minute. I am voice texting this because I’m too exhausted to type it. Things have been pretty much status quo. I mean it’s still for me really hard to rationalize what’s happening. Some days for a bit she’ll seem quite OK and in those moments, I just see her as my old stubborn mother and then if something…
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Refuses to be evaluated
I’m looking for some advice or to hear from anyone who has been through something similar with an aging parent or grandparent. My loved one is 80 and has been experiencing noticeable changes with her memory and behavior that have gotten progressively worse over the past year. It initially seemed like normal short-term…
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new to this as me and my family found out my grandmother is recently been diagnosed
I'm new to this discussion board and just joined this as a way for support. My family just recently told me that my grandmother has been recently diagnosed with Early on set Alzheimers and this weekend me and my mom are going to tell her the news that its becoming a reality that she will be starting to live with us most of…
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Caring for Grandma / hallucinations
Hello everyone, my name is raffaella and I am caring for my 76 yr old grandma . Last two months have been very hard, she talks to all these ppl not present from the time she wakes up to the time the meds put her to sleep. In the beginning wasn’t so bad it was regular conversations, almost like telling stories, now she is…
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Dementia/Memory loss
Hi, I am new here. I hear because I know my mom has been having some congnitive decline. She has had afib (controlled) for maybe 9 years and sees a cardiologist yearly for a check up. He made an appointment with a doctor to establish her as a new patient and oddly enough she was willing to let me go with her. I wasn’t…
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Finding engagement for mom
How are you guys keeping your parents engaged? I cannot watch my mother all the time and I find that she needs constant interaction.
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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Paranoia
Hi I'm on here. My partner of 20 years has was diagnosed with early onset alzheimers 18 months ago. We went awy on a short holiday to greece last week and it was a nightmare. My partner accused me of having sex with other men in the hotel toilet.
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In home support
Hi, I am looking for support on finding in home care for my dad once or twice a week and how to navigate it financially. He is not on Medicare and early onset. My parents also most likely would not qualify for free services but cannot afford most private pay places. I am trying to find something in the middle near bucks…
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NEW HERE! Need advice for POA “overrides”
Hello all! I will try to keep this brief. My mom was taken out of one nursing home without my consent back in 2021, and is now in a rehabilitation center as of April ‘26. I have POA since June 2020, but somehow non-family members allegedly have POA for 2026. I am my moms only blood family here and I need advice on how to…
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Mom’s (61 w/Alzheimers) Sister Died Suddenly Due to Medical Malpractice
Hi everyone! I know the title is,,,a lot. My mom is the youngest of 4, adores her older siblings. One of them unfortunately has passed two days ago, a doctor caused more damage than repair. It was completely sudden, and I am struggling with how to tell my mama. She is extremely emotional, and I’m concerned that telling her…
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treatment
First, thank you to the responders to my first question. Anybody familiar with the claim that Cuba has a medication/treatment called Neural CIM that supposedly has clinically significant positive results for Alzheimers? My brother sent me link but I am highly skeptical. Supposedly our own NIH started trials but stopped as…
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Taking Away Drivers License
Hi, I am new to this forum and hoping to connect with others. My father was diagnosed with Mild Cognitive Disorder a few years ago which has now advanced to full blown Dementia. Per his neurologist and as evidenced by repeating fender benders, we have reached the stage where he can no longer drive. This is a huge blow to…
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any advice on hospital bed mattress causing/contributing to migration and delirium
Hello community, My father is at home and started with hospice about a month and a half ago. they immediately provided a hospital bed,which looks to be almost a hundred years old- like something out of an asylum. I only recently tried it out myself and it made me feel so sad and angry that my dad has been sleeping in it…
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How do I pull my godmother out of constantly wanting to go to her childhood which no longer exists?
It's been happening slowly, but in the past month my godmoms keeps wanting to go to her childhood home which doesn't exist anymore. She's not remembering or recognizing her home of 40 years. She's been like this everyday at least 1-2 times a day...but the last 2 days it's been all day. I need suggestions on how to reassure…
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New Here! Mum diagnosed 6 weeks ago. Struggling with evening sundowning/looping—any advice?
Hi everyone, This is my first post. Recently, my mum was diagnosed with early-to-mid-stage Alzheimer's. She is 67. This has hit our family pretty hard, especially my dad, who has taken on the mantle of primary caregiver. I still live at home, so I am exposed to the daily realities of the condition. Lately, she has been…
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not sure of next step
wife was diagnosed with frontal lobe 2.5 years ago. thought i could handle this myself today she said I wish *** this is the breaking point for me. absolutely overwhelmed where do i go?
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caring for an estranged grandmother with rapidly progressing alzheimers, no POA and....
Caring for an estranged grandmother with rapidly progressing Alzheimer’s, no POA, and an immediate need for 24/7 supervision I’m reaching out because my family has been thrown into a rapidly escalating situation, and we need advice from people familiar with the gap between realizing someone needs 24/7 care and actually…
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Saying she doesn't have it now
Hello! I am a full te caregiver to my husband grandparents, who i absolutely adore! She has Alz and he lost both legs the end of last year, beginning of this year. I started helping towards the end of last year. Gma was referred to a neuro to see if she's a candidate for for treatment that stops the progression of Alz.…
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Starting this journey
My 87 y/o mother is in the early stages of Alzheimer's and lives in an apartment building that has stairs to get to her apartment. We have been looking at a smaller apartment that she could purchase that has no stairs for entry. At this point she is still able to do everything except more executive function type things…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
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