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Refuses to be evaluated
I’m looking for some advice or to hear from anyone who has been through something similar with an aging parent or grandparent. My loved one is 80 and has been experiencing noticeable changes with her memory and behavior that have gotten progressively worse over the past year. It initially seemed like normal short-term…
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NEW HERE! Need advice for POA “overrides”
Hello all! I will try to keep this brief. My mom was taken out of one nursing home without my consent back in 2021, and is now in a rehabilitation center as of April ‘26. I have POA since June 2020, but somehow non-family members allegedly have POA for 2026. I am my moms only blood family here and I need advice on how to…
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Mom’s (61 w/Alzheimers) Sister Died Suddenly Due to Medical Malpractice
Hi everyone! I know the title is,,,a lot. My mom is the youngest of 4, adores her older siblings. One of them unfortunately has passed two days ago, a doctor caused more damage than repair. It was completely sudden, and I am struggling with how to tell my mama. She is extremely emotional, and I’m concerned that telling her…
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treatment
First, thank you to the responders to my first question. Anybody familiar with the claim that Cuba has a medication/treatment called Neural CIM that supposedly has clinically significant positive results for Alzheimers? My brother sent me link but I am highly skeptical. Supposedly our own NIH started trials but stopped as…
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Taking Away Drivers License
Hi, I am new to this forum and hoping to connect with others. My father was diagnosed with Mild Cognitive Disorder a few years ago which has now advanced to full blown Dementia. Per his neurologist and as evidenced by repeating fender benders, we have reached the stage where he can no longer drive. This is a huge blow to…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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any advice on hospital bed mattress causing/contributing to migration and delirium
Hello community, My father is at home and started with hospice about a month and a half ago. they immediately provided a hospital bed,which looks to be almost a hundred years old- like something out of an asylum. I only recently tried it out myself and it made me feel so sad and angry that my dad has been sleeping in it…
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How do I pull my godmother out of constantly wanting to go to her childhood which no longer exists?
It's been happening slowly, but in the past month my godmoms keeps wanting to go to her childhood home which doesn't exist anymore. She's not remembering or recognizing her home of 40 years. She's been like this everyday at least 1-2 times a day...but the last 2 days it's been all day. I need suggestions on how to reassure…
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So unsure what I’m supposed to do to help. It’s MCI right now, but what exactly does that mean?
My husband is 70 and was recently diagnosed with “MCI due to Alzheimer’s” after going to the doctor after experiencing memory issues. He had an MRI, then PET scan, which led the neurologist to his diagnosis and starting Aricept. (This is our first week on it.) (The dr also suggested he think about infusion therapy, which…
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New Here! Mum diagnosed 6 weeks ago. Struggling with evening sundowning/looping—any advice?
Hi everyone, This is my first post. Recently, my mum was diagnosed with early-to-mid-stage Alzheimer's. She is 67. This has hit our family pretty hard, especially my dad, who has taken on the mantle of primary caregiver. I still live at home, so I am exposed to the daily realities of the condition. Lately, she has been…
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not sure of next step
wife was diagnosed with frontal lobe 2.5 years ago. thought i could handle this myself today she said I wish *** this is the breaking point for me. absolutely overwhelmed where do i go?
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caring for an estranged grandmother with rapidly progressing alzheimers, no POA and....
Caring for an estranged grandmother with rapidly progressing Alzheimer’s, no POA, and an immediate need for 24/7 supervision I’m reaching out because my family has been thrown into a rapidly escalating situation, and we need advice from people familiar with the gap between realizing someone needs 24/7 care and actually…
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Saying she doesn't have it now
Hello! I am a full te caregiver to my husband grandparents, who i absolutely adore! She has Alz and he lost both legs the end of last year, beginning of this year. I started helping towards the end of last year. Gma was referred to a neuro to see if she's a candidate for for treatment that stops the progression of Alz.…
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Starting this journey
My 87 y/o mother is in the early stages of Alzheimer's and lives in an apartment building that has stairs to get to her apartment. We have been looking at a smaller apartment that she could purchase that has no stairs for entry. At this point she is still able to do everything except more executive function type things…
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Mom needs more help than assisted living memory care
My mom was living in an assisted living memory care facility up until she broke her hip and had surgery. The hospital she was at lied and told the rehab facility that my mom has ‘a little confusion’, so the rehab facility accepted her to be transferred there. The hospital did not tell the rehab facility the severity of her…
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Parents and husband
My mother lives with me and has early stage Alzheimer's. My dad lives close by on his own and is getting testing for dementia. My mom has been really depressed for the last few months. It's hard on everyone but my husband does not understand how to talk with and have patience for my mom. I am not sure what to do. Does…
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Excessive need to grocery shop??
My mom has EO and she insists that we need to go grocery shopping every single day. Not in the sense that she is aware it is daily and believes it to be a daily task, but that she asks constantly, for hours at a time. Daily. It doesn't matter how much food we have she just wants to go. She will open the fridge and say "we…
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What to do… Help!
Hello! I have been on here for about a month or so now and have found everyone so very helpful. I have some thoughts I’d like to share and hopefully someone can give some insight into whether or not it would help my situation. So my dad has VD, or so we have been told. He is in a NH that he hates and he “WANTS TO GO HOME”.…
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Brilliant Analogy
This really resonated with me. https://www.facebook.com/reel/1101251472572052 HB
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Cognitive Impairment Changes
Hi. This is my first post. It's been two years since I noticed significant changes with my DH. He is 79; I am 66. I am in great health. We've been together 37 years so I recognize what is normal with him. He has been diagnosed with MCI (Nov 2024 even though I noticed changes four years ago), but significant changes after…
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I'm new here, my first post - how can I best help my mom?
My mother is 77 years old, living independently, and diagnosed with dementia/mild cognitive impairment, along with anxiety and depression. My father passed 3 years ago, after they were married 50 years. This was followed by the passing of my brother (my mom's youngest son) at 32 just last August. She has lived in the same…
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Trying to help primary caregiver
Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…
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Struggling with providing care for my very willful Mom
I'm new here, but desperate for help with handling these difficult things, and feeling like I'm really botching this pretty badly. A little over a year ago, I moved in to look after my Mom, who was diagnosed with Alzheimer's when she was still somewhere in the middle stages. My family was never good with communication or…
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Switching from daughter to caregiver… resources, advice, anything?
As the title states, I’m wanting to know the wheres, whats, whens, whos, hows, and whys do you utilize the most? Not getting much help from my dad’s (newly diagnosed early onset Alzheimer’s) doctor. When I asked for some recommendations (medicine management, in home care, support groups, etc.), all I got was checkout the…
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Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
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Am 63 and have MCI - getting tested for ALZ
I am a 63 yo Psychotherapist getting tested for possible ALZ. I have been thru 2 different blood draws, a brain MRI, and a recent amyvid PET scan. The PET scan once again showed things that suggest ALZ. I have not seen the Neurologist yet to go over the results. I single, no kids and am attempting to figure out where I can…
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Caring for dad
I am one of 7 children. My mother just passes away 2 months ago, and my dad was just diagnosed with Alzheimer's. My siblings and I have been trying to care for him by taking turns, but it seems like it's not going to work this way. We all have full time jobs and families. I go back to work in a week and I am stressed that…