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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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New to the group
Hi everyone, I am so relieved to have found this group. Mh (67) was diagnosed in January. Early stage of dementia. He is also a type 1 diabetic. I’m trying my best to cope and get through each day. It is hard to say the least. I say to myself, let’s have a good day! Some days are better than others. I have ordered the 36…
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Taking care of my Mom
My Mom has Dementia, still living home with my dad, and I go to their home every day to help them. She accuses my dad that he is having sex with a 13 year old girl along with me and my 2 other sisters. Some days she is good then other days really off the wall. I get very upset because I protect my dad. I know I shouldn’t…
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Spouse of Father In Denial about His Condition
My father has dementia that is progressing, currently mid-stage symptoms, and his wife is in denial about his condition. She does not believes he has dementia and insists he is improving. I live several states away. There are some family members nearby my parents and they have tried to reason with her regarding his…
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Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
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Having trouble crying? Then read this one: The Swimmers by Julie Otsuka
I haven't been on this site for a long time and was moved to post here by this book. Brilliantly written and tightly constructed, Julie takes us on the journey of her mom through her mom's decline. I think it was by chapter 3, I was sobbing, and then weeping at the description of the importance of trees. (I remember how my…
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How to respond when DH does this
We have been married 33 years. DH has anger attacks. There has been never any talk about leaving. We have been through even his helicopter accident. Saying this there has been some recent anger episodes where it is late at night or early morning, he comes in yelling “If you are so unhappy then leave. Just go! Do you want…
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Female spouse w/young kids looking for mom in similar situation?
I'd love to find a caregiver like myself to exchange texts with, like our own mini support group. This is likely too specific, but ideally it would be a woman whose partner is in the early stages of Alzheimer's (like, very very early stages where most people can't tell) and whose kids are still living at home (our kids are…
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Service dogs for people with Alzheimer’s article
https://www.nextavenue.org/canine-companions/ I came across this article on the website for the National Council of Dementia Minds My wife has an interview in June with a service dog organization and we’re hoping to get one soon. We’ve been volunteering with the organization and having a great time so far.
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How to help with dementia and sundowners
I am new to all this. I worked in a dementia care unit as a companion but it is nothing compared to feeling so helpless when it comes to my grandma. My dad wants to put her in a home and I gave her my word I would not let that happen. It breaks my heart seeing her decline and not know who I am. I had never even heard of…
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Going Home.
Mom is 87. I am her 60 year old son. She has been in our home since Thanksgiving. She is memory impaired. Family doctor refuses to be helpful. He tells her she has age related memory loss. Then tells her it happens to the best of us. Mom’s house is 180 miles away. She has ZERO support system. All the neighbors have home…
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Telling people
A couple years ago, had two cornea transplants due to Keratoconus and Fuchs Dystrophy. I have some vision, but it's abnormal. The vision loss was accompanied by hallucinations and a Cognitive decline. I could no longer read or listen to stories. I can listen to shows I watched pre-transplant. I can only read picture books…
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Therapist or counsellor
Hi there, my wife’s mother was diagnosed with early onset Alzheimer’s. She is understandably finding it emotionally tough. Could anyone recommend a therapist who specialises in this (for my wife)? Many thanks in advance
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…
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Getting support for my dad who is my mom's full-time caregiver
Hello, first post here, hoping to get some different perspectives. My mom was diagnosed with early onset alzheimer's nearly 8 years ago (I think) right around 60 years old, though she likely could have been diagnosed earlier, she had been showing symptoms for a few years at that point. My dad has always promised her he…
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New diagnosis, new to group. Having a rough ugly cry day.
I have been very emotional, ugly crying today. Today is hard, others are not- those days I am "numb". I am 41, married for 19 years, I have 5 kids ages 8, 10, 17, 18, 20. I have tested positive for PSEN1 which is one of 3 variants known to cause young onset Alzheimer’s. I have had cognitive symptoms since August 2023. I…
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Dementia Family Dog Workshop Webinar
I started following this group that’s based in Scotland because my wife who is in the early stage of Alzheimer’s expressed interest in getting a service dog. This free webinar is an “educational workshop to guide families affected by dementia who have, or would like to get, their own pet dog”
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A Reluctant Caregiver for Both My Parents for Nine Years
Hello friends here, Yes, I had help when I took care of both my elderly invalid parents, but it still was difficult. For those of you who don't know me, my mother progressed into severe dementia and could no longer do anything for herself. My stepdad, George, was legally blind, and eventually progressed into heart failure…
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Advice for Going Back to Work
I took FMLA for a year to assist with the new diagnosis of Alzheimers for my mom. It was intermittent FMLA so while I still worked, I was able to take off for appointments, my own mental health, and days that seemed like my mom just needed someone to be with her. I was averaging about 20 hours a week rather than my full 40…
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My First Community Post
In the words of the poet, "please allow me to introduce myself," although when it comes to "wealth and taste," I'm lacking on both counts. LOL. I was born and raised in the Chicago area, not far from Midway Airport, with spina bifida and hydrocephalus, which caused me to spend a lot of time with doctors. It has been…
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Coping with changing behaviors
My mom has alzheimers and has suddenly become agitated when viewing images of herself or others in a mirror. She is afraid that she's being watched by strangers (images in mirror) or people on tv. She also hides money, thinking others are coming to steal it. She also has no idea whether it's daytime or night. I'm at a loss…
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Struggling to Cope
Hi everyone. I'm 27 years old and two years ago my father was diagnosed with Alzheimer's. Things have been going really smooth. Up until the last few months. He's progressed somewhat quickly and I had a really jarring experience with him yesterday. He's been having conversations with himself which I just let him do, but…
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Bed bound & aggressive -looking for advice
I'm new here and looking for advice. A little background -I help care for my 84 year old father. He has late stage Alzheimer's, bed bound and completely dependent for care. Communication is difficult as his eyesight and hearing are poor and his ability to speak coherently is mostly gone. We are having a terrible time with…
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New to Alz
J & L are new to Alz. We have one support group in 52241 and we are the only active members. Our diagnosis is "Early-Stage" and we are in the upper 80s but otherwise in good health. We have freely shared our diagnosis. We are reading all we can about proper nutrition for dementia. We are active in National Senior Games…
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Guilt around visiting MCF
Hello, I’m a new member and I was referred by a Dr. to connect with some others going/gone through it. I am in my early 30s and I cared for my mom for ~4 years at our family home before it became too difficult for me to care for her. I didn’t have the skills to provide the care she needed nor the mental strength. I was in…
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Thank Your Past Self
Please take a moment and think about something you did in the past, that makes your present situation better. When I started caring for my parents, as I began each visit, I made a new note on my phone. It was always titled Thank You! Each time I benefited from one of my past actions, I put a hash tag on my note. For…
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Not sure what to do.
Im taking care of my grandma who has been diagnosed with dementia, i started taking care of her since i turned 18, this really wasn’t a choice for me but im here and im trying my best everyday however there are things that are popping up making it difficult for me to care for her and i need help, she argues all the time i…
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X2 now
My dad was diagnosed with Alzheimer’s the Monday after Thanksgiving in 2022. Luckily, it has been progressing very slowly. He lives with my mother and is watched by her full time. On Monday, my mom was also diagnosed with Alzheimer’s. It completely threw me for a loop and I am completely devastated. I’m their only son (I…
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Self-care (for the caregivers)
I'm helping to care for a parent (ALZ) with my sister. Mom even lives in a retirement community (still independent living) so day to day I do have my own life. It is still so hard. I went to visit for lunch today and now feel exhausted and can't refocus on work. I can't even imagine how much more difficult if I had her in…