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Is It Dementia or Aphasia
my husband has Frontotemporal Alzheimer’s Dementia and Primary Progressive Aphasia. It seems to me his symptoms are the PPA more than the dementia. Is that possible? How do I tell the difference?
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I am very sick with covid DW also infected. Help with ER visit
my DW has rapid Demetia, she is in late stage. Which is challenging enough, trying desperately to get some respite relief which I have been granted 12 hours a mont( which are now cancelled due to the Fact, we both now have Covid… DW doesn’t have the severity of symptoms as I do. I am trying to get to the hospital ASAP for…
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Memory Care - Last Option
My 89 year old mother absolutely refuses to accept anything is wrong with her. I live on the West Coast she lives on the East Coast. I have spent the last 4 months taking care of her. Her doctor agrees she can no longer be left alone without some outside support. She refused a home health aid or live in because she says…
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Feeling defeated
I am new to this forum and after reading through other's posts, I finally feel validated and not alone. I am the caregiver for my Mom who was diagnosed with dementia 2 years ago. She has been living with me for approximately a year after needing more care than could be provided at the ALF she was living in. She has become…
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Memory Care to Skilled nursing journey
My DH had a fall 3 weeks ago at his MCF and they transported him to the hospital. I didn't want him to go because I knew most likely he wouldn't be able to return to the memory care unit. I know how these things work. Well, they've said he is not going to be able to come back there. So I'm looking at skilled nursing now. I…
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My Mom and Lifelong best friend Dx with Alzheimer’s
My mom was recently diagnosed with Alzheimer’s. She has been my best friend and person my whole life. This disease has changed her personality, morals and values. I am only 50 and I miss my Mom and my person every day. I am so angry at her for having this disease, which I recognize is ridiculous. But I’m already grieving…
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FTD Meet and Greet
I’m hosting Meet and Greet on behalf of the Association for Frontotemporal Degeneration in Middletown, DE on Saturday, October 26. I’ll post again as we get closer but save the date if you live in the Delaware/Philly/Eastern Shore area. It will be a great chance to meet and make friends with others on this journey.…
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Father with early-onset now in late stages
Hello, I was made aware of these discussion boards through resources at my university and thought I'd give it a shot. I live in Orange Country, CA. I'm a 26 year old Female and my father got diagnosed with early-onset Alzheimer's when I was 13. He was in his early 50's. He has progressed extensively in the last six years.…
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1st night in MC tonight!
The move went well from her AL which was 20 minutes away to MC only 6 minutes from me. She seemed okay. Until I had to leave and she realized I was leaving. Rookie mistake - she has her cell phone. Right after I got home the director called me to inform me that everything is ok and it’s normal but she is upset that my…
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How to deal with NEW personality traits
I am new to the site. There is 15 years difference in my husband and I. He is 75. In late May, I noticed some disturbing habits he was beginning. DH is fully functioning except for the urges and impulses he can't control. It is disturbing and I feel like I got on an apology tour a few times a week. I love my DH but he is…
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@PRC regarding Grief
(This has been reposted from the "Supporting Those who have Lost Someone" section for more exposure) Please include "@PRC" in your reply so responses go to PRC Well, here goes. I lost my DW in March after 5-6 years as her caretaker and I still feel completely lost and overwhelmed by grief. As many times as I read from…
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Support for LGBT spouses
hello, my wife has recently been diagnosed with EO. Anyone know of any support sites for LGBT spouses? Thank you.
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what is my aim? I still feel like I'm missing something
Hello dear community, I did take a break from visiting Dad. Mainly because it seemed to be upsetting for him. I've applied your advice (shorter visits, take someone with me, bring a treat to eat, stay in common area spaces) and it helped a lot. I do not go as often and I apply the wise advice given here when I do go. I…
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National Academies’ Forum GLP-1R agonists
This discussion is open to the public and there is an option for attending virtually This is the class of meds that are being used for diabetes and weight loss. They are exploring their affect on neurodegenerative diseases…
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resources for re-homing a rescue dog in Middle Tennessee
Hi folks, Thanks for all your support and wisdom. I've been lurking for months, reading and gaining support, but this is my first post. My sis and I are remotely supporting a father with ES dementia and a mother who is highly functional but recovering from a serious TBI herself, requiring massive caregiver support for…
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I'm on the autism spectrum and Mom has dementia
So, hello, I'm new here. I've been feeling very isolated, alone, confused, frustrated. My mom is a drinker. She got a dwi in January. She's almost 75. She's almost died. She was almost 3 times the legal limit after being found in a field face down next to a church near her home in 2023. She laid there all night in the…
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AL to MC - need help!
I’ll try to make this brief. I need help deciding on a MC. Mom is 72 with AZ Lives in a corporate AL for the past 3 months Now needs MC MC unit at AL is full Have to make a choice between having her at the more expensive MC unit in mine and my sister’s town OR having her 25 minutes away for 30k less a year. My sister and I…
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New Here: Looking for support/community for "secondary" caregivers, extended family
Hi Everyone. My first time here. My sister in law was diagnosed with early on-set Alz about 16 months ago (after about 4 years of misunderstood difficulties) and seems to be progressing very quickly. I'm with her at least two days a week as a secondary caregiver to 1) spend time with her and 2) help take some of the…
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Dad is closer to me now and in a memory care community - we are new to this
Hello dear community, I know that I am not alone. I think hearing from others on this journey will help me cope and understand that some of what I am going through with Dad is part of the disease process. My heart is breaking. So here I am seeking camaradarie and support. My Dad was living independently with an Alzheimer's…
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Searching for Millennial Elder Care Support Group in the DMV
Hi, looking for a point in the right direction for a support group either in-person or virtual in the DMV that is based on the experiences of other millennial care givers and their parents with Dementia/Alzheimers.
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Looking for my Care-Giver Peers with Spouses with Early-Onset ALZ Denver Area
I am a 60 year old man living in the Denver area. My wife was diagnosed with early onset at age 53 in 2020. I have attended our local monthly group but it gets so crowded and rarely is there enough time for serious discussion. It is emotionally draining and hard to find coverage so I can attend the meetings at the time…
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Therapeutic Lie #2
Hi everyone! This is kind of a continuation of my last post. I am trying to get my mom (60 with ALZ) in to an adult day care program, and it did not go well. Well, we didn't even get to the day care place. I took all of your guys' advice about saying it's a place where I volunteer at and have some friends I want her to…
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New to this forum and wanting advice
Hi all. My dad has has been suffering from Parkinson’s Dementia about 5 years now. From my understanding (and anyone can correct me if you have better knowledge than me) it is a little bit different from regular Dementia in the sense that it won’t cause him to pass but his mind has deteriorated in much the same way. Over…
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Being trans and caring for someone with Alzheimer's
Hey all, I am new here and looking for some type of support, but am unsure if this is the right place? I am a transgender person early-ish in my transition and my grandmother/best friend has been diagnosed with alzheimer's for around 2 years now. As my transition has progressed, so have her symptoms. Some of my family has…
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Resources for Early-Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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Grandmothers recent diagnosis - guidance
Hi everyone! My grandmother, and very best friend, was formally diagnosed with Alzheimer’s yesterday. We knew this was coming, as her mother had it and she began showing signs about a year ago. However, I feel so completely lost and heartbroken. I was hoping for a bit of guidance on how to handle the utter darkness I feel.…
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Mom had dementia, now dad has it.
Hi, my mom passed on about 6 years ago after dealing with early onset Alzheimer's. Now my dad has been diagnosed with it, and I just came here for some support because, although he's not in the advanced stages yet, I'm starting to see changes in his memory. It reminds me of what my mom went through and how I felt when she…
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Never Dealt With Alzheimer's Before and Need Some Guidance
Hello. I have never been close to someone who had Alzheimer's before (I'm 54) and I need some guidance, please. My father (Jamie) passed away in 1988 at age 50 from brain cancer. His best friend, Charlie, has been close to me ever since. He gave me away at our wedding. He's now 87 and has been in good health his entire…