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Drastic Change in Posture
Hi all! My mom is 70 and I am her 27 yo daughter/caregiver. Over the summer we placed her in a memory care unit due to her FTD getting worse. Last month, within a week her posture drastically changed. She is hunched over and she is unable to move her head up (her chin is touching her chest). She was just evaluated by a…
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2 Parents with Dementia - HELP
Hello, I’m new here. I’m 31 and over the last two weeks, both of my parents have been diagnosed with Alzheimer’s/Dementia. My dad is only 56 and has ben diagnosed with mixed dementia - doctors are still trying to figure out his “unique situation” as he has no previous health conditions. He hasn’t been has a cavity before.…
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What to do after the diagnosis
My dad was recently diagnosed with Alzheimer’s. However, his neurologist said he’s been on the cognitive decline for about 3 years already. Unfortunately, I only started noticing changes in his personality and memory at the beginning of this year. The things that were most noticeable were problems with his short term…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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Caregivers Support by Participating in a New Study
Hello! I am new to all of this, only have had experience with dementia and Alzheimer's when both my Grandmother and my husband's Grandmother were diagnosed many years ago. We just learned my Mom's results of recent neurology tests, and all of this is overwhelming. I feel helpless, especially living 3+ hours from the rest…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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Managing Paranoia from LO
Hi all, I'm new here and just needing support. My step-dad started experiencing some memory loss a few years ago. Things like forgetting details of conversations or that the conversations even took place, forgetting the words for things, or needing to hear things repeated. He had pretty good self-awareness about it too. We…
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Young Adults Dementia Relatives
This is something that often goes unheard when it comes to young adults in the world who loving as they are, when it comes to many of the concerns on how to care for a relative(s) that have Dementia, they don't have the full training in being a caregiver. People around them know they're the best family member, so they're…
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Should I let estranged granddaughter visit?
My dad is 85 and has moderate dementia. He is currently in a SNF. My niece (his granddaughter) has asked to go see him and bring her 2 kids. She hasn't had any contact with him for several years and he has never met his great-grandchildren (they're both teenagers). Am I wrong to not let her visit him? When he is asked if…
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A Group for My Husband to Feel Comfortable In...
Are there groups for patients with Alzheimers and if so are those groups aligned with the different stages of the disease? I ask because I think my husband would benefit from being a part of a group where he can identify with others and share experiences and learn. But, what I hesitate to do is have him in a group where…
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My stepmom and I are just beginning to deal with my dad's dementia care.
I am new here, and I need some help. We have known about my dad's dementia for about 7 years. It has been a slow decline in memory with a huge uptick in anxiety. The primary doctor ruled out Alzeimer's, but we aren't sure if that was done correctly. He has all the signs of being in the middle-stage. Now, his decline seems…
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DH has MCI - Support Appreciated
A little background. I am 65 and EA is 72. Married 15 years. EA is a liver transplant recipient 14 years ago, Vietnam vet who contracted Hep C while serving, diagnosed with MCI September 2022 and deals with chronic pain. EA is still able to perform daily living skills, working remodeling projects around house and will…
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Resources for scheduling respite
Hello! I am new to this group but look forward to getting to know you all! I personally feel that one of the hardest parts of caregiving is making/finding time for respite. Does anyone have any suggestions for resources they like to use to schedule respite?
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Strong maternal genetics to Alzheimer’s
I am 29 and recently lost my mom to Alzheimer’s. She had early onset around 50-52yo. I was the one who got her diagnosed but was not around for the worst/later stages. She didn’t make it to 60yo. As a baby, I remember my maternal great grandmother had late onset Alzheimer’s as well. And within the past couple years my…
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Support Groups - Virtual
Newbie here. I'm looking for virtual support groups for long distance caregivers. My mom was recently diagnosed with MCI and is resistant (or just flat out isn't doing) to any of the coping recommendations the doctor/social worker have made. She's a 6 hour drive away and on her own (father passed away in 2022). Although I…
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Mama
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
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MC for my mom soon. Anticipating the guilt, worry, fears, & overwhelm will increase.
Haven't posted or read for a while. No excuses, but a lot of reasons. Honestly, life has just gotten really hard. My mom ( early - mod dementia) will likely be moving to MC soon and i need to share my fears. (She is in rehab community now.) Ive been told that it's the right move, AND that the responsibilities, feelings of…
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My mama passed
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
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Next steps for outdoorsy/active and healthy stage 4/5 Alzheimers
Hello there, I've been lurking on this forum for a little while as I determine if and how I engage in this community. What incredible outpouring of support and advice I've witnessed as I seek the silver bullet I don't think I'll find. I live slightly remotely from my parents. My dad is 79, an introvert and slightly…
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Looking for advice on my situation with my mother who has dementia
Hi everyone. I am very new here, but I am desperate for any advice that can be given regarding my mother with middle stage dementia and my father who is in denial.this is a very long story. My mom has suffered a number of illnesses dating back to her teenage years. She has had myasthenia gravis, then lymphoma, and now…
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Need volunteers and Adult Day Care in Seymour area
I am caring for a spouse and have no relief at all. I cannot seem to find any volunteers to come and stay with him for a few hours or an adult day care in the area to give me some time that is not costly. Does anyone know of any services in my area that might help, we don't qualify for Medicaid or Veteran aid unless we…
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Supporting my mum who is caring for my grandad with dementia.
My grandad (94) has dementia and recently has been aggressive and showing a lot of anger towards my mum. He is in a dementia nursing home and a few weeks ago was moved from one room in the home to another room right next to the nurses desk as he was falling over regularly (this was recommended by the doctor for his…
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Another Shoe Dropped - May need to start working in the office
Hello Again. Thanks to everyone who offered support and assistance on my recent transportation conundrum. Today, another shoe dropped as we were informed that, starting in September, anyone living within 50 miles of one of our corporate offices must start working in the office 3 days/week. This is after being told many…
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My 61 year old dad has been diagnosed with early onset dementia and I'm only 19
Growing up, I was such a daddy's girl; I absolutely adored my dad and looked up to him so much. He introduced me to my love of sports and I got most of my humor and definitely my competitiveness from him. I had such an amazing relationship and I always think of him as my hero. About 5 years ago, I started to notice a…
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Bible Verse to Lift You Up 4/7/23
CURTAIN TORN WE NOW HAVE ACCESS TO GOD THE FATHER Luke 23:44-46 New International Version The Death of Jesus It was now about noon, and darkness came over the whole land until three in the afternoon, for the sun stopped shining. And the curtain of the temple was torn in two. Jesus called out with a loud voice, “Father,…
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This time is different
Hello everyone this is my first time on any type of support forum. My dad passed in November due to Amyloidosis in his heart. I hated seeing my dad deteriorate with his mind intact until he closed his eyes. And now my mom. She is physically capable, but her mind is going quickly. She knows her condition because she cared…