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Feeling frustrated
I am new to the community. My mom is 77 years old. She has not been diagnosed with dementia but definitely can tell her cognitive skills are not up to par. She thinks things around house are turning black,blames my Dad for all of it(inside & outdoor plants,floors,cabinets,etc),wipes floors and cabinets with olive oil. She…
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Resistant to testing and willing to see a Neurologist
My DW had some serious medial issues in 2019-2022 timeframe. At the time, we thought it was related to multiple UTIs and Duloxitine that had be prescribed for her. She got lost driving a couple of times, forgot what day it was, and peridocially who I was. We saw a doctor who started treating her UTIs and a Neurologist who…
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New to this site and Alz/Dementia info
My husband was just diagnosed with Mild Late Onset Alzheimer's w/Dementia with Mood Disturbance (depression/anxiety). I've been a mess, exhausted, frustrated, angry, then sad, isolate, alone... I'm in Los Angeles, CA and just hoping to reach out to anyone who could talk with me about all of this. Thank you!
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Caregiving Burnout
Hello everyone. I’m new here. I could really use some advice. Can anyone recommend someone to talk to about how to handle severe dementia and sundowners? I’m single and live with my parents…only one is suffering from dementia. But it just feels like everything is in my shoulders. Clean the house. Do the laundry. Take care…
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Early onset
Hello, this is my second post. My DW has been dx with alzheimer's at the age of 53. Her mom died of this at 59. She is a candidate for Leqembi and we are waiting on insurance approval. I have DPA and going to have her make a Will and I will be getting healthcare PA soon. Does anyone have advice on what we can do with her…
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Patient will not shower
My LO is in memory care. He will not shower. It's been 3 months, and no shower. He won't leave his room. If he gets rattled, he mutters over and over, "God, please let me die."
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Sadness and acceptance of my grandmothers late stage dementia.
I’ve joined this support group in efforts to make peace with acceptance. I would like to share an experience I had today with a beloved family member of mine with Alzheimer’s disease. In hopes that sharing, communicating it with someone will help bring some peace. My beautiful grandmother, Peggy, has been going through the…
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Dreading today
Hi All- New to this forum. Thanks everyone for being open and offered support. Makes you realize there are so many of us in the same boat. Caring for my homebound/immobile Mother for the past two years. Diagnosis of Dementia/AlzD/Lewy........even the experts can't figure this thing out. Mom took a turn Saturday morning and…
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New adult child caring for parent. My long intro.
Hi everyone, I'm new here and relatively new to being a caregiver. I myself am disabled and have had several family members with disabling conditions. Along with working in social work, this has given me a bit of an advantage at least in understanding some of the resources available (and not so available). I noticed some…
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Feeling lost
I’m new here. My wife is at the early stages, she is 67 and I am 60. I still have to work so our lives have a lot of moving pieces. Slowly I have been watching my wife deteriorate. The past 6 months it seems like even the easier tasks are getting harder for her & take her a lot more time. It’s like her problem solving…
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Ending Medication
My mom was taking 5mg of donepezil- a very small dose. 10mg gave her terrible hallucinations and 5 mg just gave her various stages of bad dreams. (That's why she was in 5mg) She absolutely hates taking medicine and I hated her taking it unnecessarily. The doctor, actually 2 doctors, suggested that 5 mg probably wasn't…
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Administering my moms meds by a non-medical caregiver
My mom has been dealing with Alzheimer’s/Dementia for the last 6 years. She is now end stage and has 24/7 care. I have her medication made up in little pouches and the caregiver were crushing and mixing with apple sauce. I just learned that the agency does not allow the caregivers to crush or mix with food. I do t know…
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Early onset of Alzheimer’s and the cost of long term care
Hello All, My mother was diagnosed with early onset of Alzheimer’s in 2015 at the age of 51. She just turned 59, and the disease has progressed significantly. My father had to move her into a memory care unit housed in a nursing facility. She has been unable to take care of herself for years and needs additional one on one…
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Reaching Out!
Hello, I am a new member and reaching out to help relieve my stress that I'm going through! My DH has had Alzheimer's for 6 years now, us being married 54 years and retired 20 years and within the last couple of months he is not recognizing me all the time. It starts late afternoons lasting until bedtime, which I found out…
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LO Actively Refuses to Socialize
Hi everyone! I hope you all had very happy holidays, and a happy new year! My mama (diagnosed with early stage Alzheimer's) has always been a social butterfly. However, due to Covid-19 and her diagnosis, has become quite sheltered. I've been told multiple times how socializing is key for a person with Alzheimer's/Dementia…
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Surgery and possible progression
I already suspected that my mom was progressing from mild to moderate, but after a surgery, things have become even more noticeable, but it's also unknown whether the surgery was a factor. But now I'm also worried she might be going even further than moderate. Her sleeping got a little screwed up due to meds making her…
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Starting diagnosis process
Hello, my 91 year old dad has been showing signs of confusion and memory loss for about a year now. A few months ago he fell and had to be in the hospital and rehab. The fall has caused issues with his kidneys and heart. We elected to move him to an assisted living facility. He is completely wheelchair bound and a major…
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Caregiving Apps
Hi there, I just downloaded the free app, Carely, to see if we can organize care and visits for my aunt. Her husband is her full-time caregiver and we are trying to make it easy for him to let us know when he would like a break or help. Have any of you used Carely or other app? Any good tips? Thank you.
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New Here & Need to vent - Mom has Alzheimer's and Dad is stubborn...
Hi Everyone - I am so happy to find this community as I am definitely struggling with many things! I mostly just need to share and vent and I appreciate the space to do so. Here goes. My parents (married 60 years) live together in a 55+ community (independent - no outside help except family) about 30 minutes from me. My…
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New to mothers ALZ
Hello - I'm Erik and I have been holding so much emotion inside since my mom's formal diagnosis of ALZ. My family lived a very tumultuous life as a child leading to my parents always living a part. My mom went onto 3 ex-husbands in search of love, while raising 3 boys on her own. She found her prince of 20 years who is a…
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Drastic Change in Posture
Hi all! My mom is 70 and I am her 27 yo daughter/caregiver. Over the summer we placed her in a memory care unit due to her FTD getting worse. Last month, within a week her posture drastically changed. She is hunched over and she is unable to move her head up (her chin is touching her chest). She was just evaluated by a…
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2 Parents with Dementia - HELP
Hello, I’m new here. I’m 31 and over the last two weeks, both of my parents have been diagnosed with Alzheimer’s/Dementia. My dad is only 56 and has ben diagnosed with mixed dementia - doctors are still trying to figure out his “unique situation” as he has no previous health conditions. He hasn’t been has a cavity before.…
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What to do after the diagnosis
My dad was recently diagnosed with Alzheimer’s. However, his neurologist said he’s been on the cognitive decline for about 3 years already. Unfortunately, I only started noticing changes in his personality and memory at the beginning of this year. The things that were most noticeable were problems with his short term…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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Caregivers Support by Participating in a New Study
Hello! I am new to all of this, only have had experience with dementia and Alzheimer's when both my Grandmother and my husband's Grandmother were diagnosed many years ago. We just learned my Mom's results of recent neurology tests, and all of this is overwhelming. I feel helpless, especially living 3+ hours from the rest…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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Managing Paranoia from LO
Hi all, I'm new here and just needing support. My step-dad started experiencing some memory loss a few years ago. Things like forgetting details of conversations or that the conversations even took place, forgetting the words for things, or needing to hear things repeated. He had pretty good self-awareness about it too. We…
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Young Adults Dementia Relatives
This is something that often goes unheard when it comes to young adults in the world who loving as they are, when it comes to many of the concerns on how to care for a relative(s) that have Dementia, they don't have the full training in being a caregiver. People around them know they're the best family member, so they're…