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Lecanemab 3 year data
We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanemab or who may be interested in getting it. Open Label Extension Data Shows Lecanemab’s Continued Effect on Alzheimer Disease…
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Just got pet results
I’m freaking out because it appears to me that it’s saying I have ad. Now to wait for my appointment to go over my bloodwork and pet results in two weeks. Unfortunately my family has a strong history of early onset dementia, but still, 42 is the youngest in my family if it’s true. I’m hoping doing some research will help…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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Should I share my own surgery recovery with my LO that is in assisted living?
I have been caregiving for my mom for 4 years, moved her to assisted-living two months ago. I was consistently visiting her 4 to 5 times a week to assure her she is still loved and we are not abandoning her. She has vascular dementia and is resistant to much care so she doesn’t let the assisted-living staff do hardly…
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Donepezil and Memantine-Extreme Side Effects
Hello Everyone! This is time on the site. My DH was officially diagnosed with VD about eight months ago. But because my mom also had dementia, I knew three years ago that something was wrong. His doctor didn't listen to me, and not until he had three mini strokes, and carotid artery operated on did anyone start listening…
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I’m new to this forum, and to Alzheimer’s.
My question is, have any of you seen Alzheimer’s symptoms (in particular, alertness) improve? My relative is apparently in mid-late stages and I haven’t seen this person for almost a year. She has recently been assigned a new caregiver and I just learned she is doing so well she was taken off hospice after being on it for…
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Support group
My 76 year old wife was diagnosed in September with moderate Alzheimer's just 10 months after an initial MCI diagnosis. Luckily I have lots of local family support. I've just registered for an in-person support group. What can I expect from the meeting?
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Is It Dementia or Aphasia
my husband has Frontotemporal Alzheimer’s Dementia and Primary Progressive Aphasia. It seems to me his symptoms are the PPA more than the dementia. Is that possible? How do I tell the difference?
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I am very sick with covid DW also infected. Help with ER visit
my DW has rapid Demetia, she is in late stage. Which is challenging enough, trying desperately to get some respite relief which I have been granted 12 hours a mont( which are now cancelled due to the Fact, we both now have Covid… DW doesn’t have the severity of symptoms as I do. I am trying to get to the hospital ASAP for…
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Memory Care - Last Option
My 89 year old mother absolutely refuses to accept anything is wrong with her. I live on the West Coast she lives on the East Coast. I have spent the last 4 months taking care of her. Her doctor agrees she can no longer be left alone without some outside support. She refused a home health aid or live in because she says…
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New diagnosis, new to group. Having a rough ugly cry day.
I have been very emotional, ugly crying today. Today is hard, others are not- those days I am "numb". I am 41, married for 19 years, I have 5 kids ages 8, 10, 17, 18, 20. I have tested positive for PSEN1 which is one of 3 variants known to cause young onset Alzheimer’s. I have had cognitive symptoms since August 2023. I…
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Feeling defeated
I am new to this forum and after reading through other's posts, I finally feel validated and not alone. I am the caregiver for my Mom who was diagnosed with dementia 2 years ago. She has been living with me for approximately a year after needing more care than could be provided at the ALF she was living in. She has become…
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Memory Care to Skilled nursing journey
My DH had a fall 3 weeks ago at his MCF and they transported him to the hospital. I didn't want him to go because I knew most likely he wouldn't be able to return to the memory care unit. I know how these things work. Well, they've said he is not going to be able to come back there. So I'm looking at skilled nursing now. I…
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My Mom and Lifelong best friend Dx with Alzheimer’s
My mom was recently diagnosed with Alzheimer’s. She has been my best friend and person my whole life. This disease has changed her personality, morals and values. I am only 50 and I miss my Mom and my person every day. I am so angry at her for having this disease, which I recognize is ridiculous. But I’m already grieving…
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FTD Meet and Greet
I’m hosting Meet and Greet on behalf of the Association for Frontotemporal Degeneration in Middletown, DE on Saturday, October 26. I’ll post again as we get closer but save the date if you live in the Delaware/Philly/Eastern Shore area. It will be a great chance to meet and make friends with others on this journey.…
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Father with early-onset now in late stages
Hello, I was made aware of these discussion boards through resources at my university and thought I'd give it a shot. I live in Orange Country, CA. I'm a 26 year old Female and my father got diagnosed with early-onset Alzheimer's when I was 13. He was in his early 50's. He has progressed extensively in the last six years.…
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1st night in MC tonight!
The move went well from her AL which was 20 minutes away to MC only 6 minutes from me. She seemed okay. Until I had to leave and she realized I was leaving. Rookie mistake - she has her cell phone. Right after I got home the director called me to inform me that everything is ok and it’s normal but she is upset that my…
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How to deal with NEW personality traits
I am new to the site. There is 15 years difference in my husband and I. He is 75. In late May, I noticed some disturbing habits he was beginning. DH is fully functioning except for the urges and impulses he can't control. It is disturbing and I feel like I got on an apology tour a few times a week. I love my DH but he is…
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I didn't plan for this:
I am a fairly good planner. I was a project manager, so I know planning for things that can go wrong is wise. I have not planned for the case where I die before my DW. We have wills, POAs, and family members assigned to take over health care and financial matters. However, I have not planned for someone to take over the…
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@PRC regarding Grief
(This has been reposted from the "Supporting Those who have Lost Someone" section for more exposure) Please include "@PRC" in your reply so responses go to PRC Well, here goes. I lost my DW in March after 5-6 years as her caretaker and I still feel completely lost and overwhelmed by grief. As many times as I read from…
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Support for LGBT spouses
hello, my wife has recently been diagnosed with EO. Anyone know of any support sites for LGBT spouses? Thank you.
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what is my aim? I still feel like I'm missing something
Hello dear community, I did take a break from visiting Dad. Mainly because it seemed to be upsetting for him. I've applied your advice (shorter visits, take someone with me, bring a treat to eat, stay in common area spaces) and it helped a lot. I do not go as often and I apply the wise advice given here when I do go. I…
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National Academies’ Forum GLP-1R agonists
This discussion is open to the public and there is an option for attending virtually This is the class of meds that are being used for diabetes and weight loss. They are exploring their affect on neurodegenerative diseases…
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resources for re-homing a rescue dog in Middle Tennessee
Hi folks, Thanks for all your support and wisdom. I've been lurking for months, reading and gaining support, but this is my first post. My sis and I are remotely supporting a father with ES dementia and a mother who is highly functional but recovering from a serious TBI herself, requiring massive caregiver support for…
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I'm on the autism spectrum and Mom has dementia
So, hello, I'm new here. I've been feeling very isolated, alone, confused, frustrated. My mom is a drinker. She got a dwi in January. She's almost 75. She's almost died. She was almost 3 times the legal limit after being found in a field face down next to a church near her home in 2023. She laid there all night in the…
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AL to MC - need help!
I’ll try to make this brief. I need help deciding on a MC. Mom is 72 with AZ Lives in a corporate AL for the past 3 months Now needs MC MC unit at AL is full Have to make a choice between having her at the more expensive MC unit in mine and my sister’s town OR having her 25 minutes away for 30k less a year. My sister and I…
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New Here: Looking for support/community for "secondary" caregivers, extended family
Hi Everyone. My first time here. My sister in law was diagnosed with early on-set Alz about 16 months ago (after about 4 years of misunderstood difficulties) and seems to be progressing very quickly. I'm with her at least two days a week as a secondary caregiver to 1) spend time with her and 2) help take some of the…
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Dad is closer to me now and in a memory care community - we are new to this
Hello dear community, I know that I am not alone. I think hearing from others on this journey will help me cope and understand that some of what I am going through with Dad is part of the disease process. My heart is breaking. So here I am seeking camaradarie and support. My Dad was living independently with an Alzheimer's…
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Searching for Millennial Elder Care Support Group in the DMV
Hi, looking for a point in the right direction for a support group either in-person or virtual in the DMV that is based on the experiences of other millennial care givers and their parents with Dementia/Alzheimers.