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Some research to share

Jeanne C.
Jeanne C. Member Posts: 799
500 Comments 250 Care Reactions 250 Likes 100 Insightfuls Reactions
Member

I had coffee with @GG06 today (it was so good to see her!). She shared some articles and a webinar that she thought I would find interesting. Sharing with you:

https://alz-journals.onlinelibrary.wiley.com/doi/pdfdirect/10.1002/dad2.12183

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7202045/

https://www.theaftd.org/posts/webinars/webinar-bvftd-subtypes-divergent-anatomy-divergent-behavior/

Comments

  • SheaRx
    SheaRx Member Posts: 6
    5 Care Reactions First Comment
    Member

    Good morning,

    This webinar was very insightful and reassuring about my DH diagnosis. Most of the time I feel very alone and isolated living with his behaviors. To hear about the distractions and not being able to come back in a conversation or task, the large amount of food being consumed, and the lack of not caring/worrying about anything really hit home for me. Protecting him and everyone he comes in contact with is exhausting. He feels like nothing is wrong with him and I need to relax. My DH ignores, plays down and just does not acknowledge inappropriate behavior and speech. My pleas go on deaf ears. I have to remember he is not processing things the way the average person does anymore. I needed to see this today.

    Thank you,

  • Jeanne C.
    Jeanne C. Member Posts: 799
    500 Comments 250 Care Reactions 250 Likes 100 Insightfuls Reactions
    Member

    So glad it was helpful. Like you, I wasn't quite convinced about the FTD diagnosis. It's awful but weirdly reassuring to realize that yes, this is what he has.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more