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anger at my wife, my sister, my doctor(s), my brain, my "friends"
I'm sitting here in my basement home office (aka "the dungeon", adjacent to the washing machine and dryer) at 5:30 am central time…shaking with anger and grief at all of the above. I guess I brought it on myself, being the go-to person for planning vacations, running errands, loaning money to my spendthrift sister, and…
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I think I've got it..scared and sad
Almost Everyone on my mother's side of the family has had Alzheimer's but I always thought of myself as being more like my dad, so maybe it wouldn't happen to me. I'm 72 and was hoping some of the forgetfulness was just old-age related. I'm going to see my doctor soon, with my husband, and ask for tests or whatever and…
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introduction
Hi! My name is Richard. I'm 74, married, retired from remunerative employment as a lawyer. I was diagnosed with Centiloid middle-level Alzheimer's in early March. I had suspected as much, given prior diagnoses based on word-finding and certain other memory categories, but I am determined to live as independently as I can.…
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A lot of tests and Q about Aricept
My letter was just eaten by the app. Dang. I haven’t written in ages, but I have taken tons of tests. Finished and have results of P tau and Pet Scan. Counting disclaimers so far AlZ is what I have. Friday was the neuropsych test which truly upset me. I take generic Aricept which is working until it stops. I am on 5mg.…
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New Alzheimer’s diagnosis
Found out today I have early stage Alzheimer’s today. I’m been having symptoms for 2 years and went to 3 different neurologists before I found one who went forward with tests. When I was introduced to Alzheimer’s I was 10 with my grandmother. Ever since I have been afraid of having the same thing. I am scared and worried…
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so how long does it take to get into care!!!
Seems to be extremely difficult to get treatment for my ALZ. Have contacted 4 treatment centers and had medical records and referals submitted as well. The first one simply said it can take some time to get in. ?? they have no idea even?? hmmmm. The second one said I could get an initial appointment next April, as in 2027!…
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Partner not handling my deterioration well
I'm in Early Stage Alzheimer's and receiving Leqembi infusions. My friends say I don't exhibit much in the way of symptoms. My partner is not one to discuss the situation other than for passing on medical information and does not discuss feelings. He notices every slip and gets angry when I forget, make a mistake, get…
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Disability denial - finding legal support
Hello, I am age 64, diagnosed with early onset Alzheimers. I did go on regular Social Security recently. We were encouraged to apply for the SSDI - as I am no longer able to work in my field - and also am declining in my ability to remember complex details and instructions. SSDI denied the claim, which we want to appeal -…
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Well, what did I expect?
My dad was diagnosed with Alz when he was 73...It came as a shock. Little did I know at the time that 5 or 6 (of 11) siblings of his had/would also go through this. Should have guessed it would be passed down. At the time, I went to classes offered by UC Berkeley and found out everything I could about it (this was about…
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Bathing
Our family member living with Dementia refuses to shower or bathe and this has been an on going struggle thw past 16 months. However, if and when she is going to see her siblings in their 80s too or needs to go out of the house, she will shower. The problem is mom refuses to leave the house unless its to see her sisters or…
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Recent Diagnosis
I am 64 years old and was recently diagnosed with Early onset Alzeimers. I've got some memory issues and some cognitive deficits. I am still trying to wrap my head around this. I thought this was probably just aging and this diagnosis hit me like a ton of bricks. I'd love to talk to some of you about this.
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I'm new!
I'm new to this. I have noticed decline in my memory for probably a year or so but all of a sudden it seems to be amplified…my short-term memory is awful. My mother's side of the family is riddled with dementia…don't know why I thought it wouldn't happen to me but it has and I am struggling. Had a MRI and that showed…
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Do I stop treatment if my Centeloid score goes down??
Hi helpful friends, I'm 66, was diagnosed a year ago and have had monthly Kisunla injections for 7 months. When I was diagnosed, my Centeloid score was 95.5, but a PET scan yesterday showed a Centeloid of 6.7! Should I stop treatment? That scares me - what if the Amyloid plaques return? Liqembi has maintenance doses, but I…
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Seeking volunteers to serve on Alzheimer's Association Early-Stage Advisory Group
I'm a member of the Alzheimer's Association Early-Stage Advisory Group (ESAG). This year's diverse group includes 10 others besides myself, with a variety of education and work experiences. I've learned they are all much better communicators than I am. :) ESAG members serveone year terms, the new group will start on July…
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From mci to alz
Was recently diagnosed as mci and dr put me on memantime. Further blood tests confirmed alz but I am still on memantime. Should I be getting infusions or is memantime enough???? Trying to get into a special clinic but not accepted yet.
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ApoE4 homozygote
Hello everyone, I'm 72 years old, was diagnosed with ALZ in Oct 2025 and started Leqembi infusions in Dec. I am still asymptomatic, but as an APoE4 homozygote I find myself waiting for the other shoe to drop. I have not met anyone else with two copies of the APoE4 allele (I understand we make up only 2% of the general…
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Noticing changes
I'm only a month into my diagnosis. I had a conversation with my granddaughter today and mentioned to her that I feel like I will notice when changes happen. She thought that might be a good conversation here. Have any of you noticed changes in yourself as the disease progressed?
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Alzheimer's dimensia COURSES
Hi Are there any courses within my area? Please let me know via email Thank you Zip code 46947 Marta Curtean Kelly
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Living in Germany with Alzheimers
Hi, This is my first time of posting. I went looking for a support group for people living in Berlin who were English speakers living with AD and clicked up the discussion tab and ended here -- but I am feeling perhaps I am not in Germany anymore? I would love to find someone else who I could talk to about dealing with AD…
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UNCP Neuroscientist Receives Award for Alzheimer’s Research
This is from “The Pilot” Southern Pines NC Alas I can’t remember how to footnote or put in MLA. This is a local paper which gets numerous awards and I thought you would find interesting. Dr. Ben Bahr, the William C. Friday Distinguished Professor at UNC Pembroke, has been named the recipient of the 2026 Dr. Philip J. Wyatt…
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Recently diagnosed
I wanted to introduce myself and get involved. I am recently diagnosed with "mild cognitive decline" related to Alzheimers. I am a recently retired pastor and have cared for many Alzheimer patients and their family so I know what is ahead of me. I have a million questions and don't know where to begin. Thank you.
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Video baby monitor with receiver
Any recommendations for a video baby monitor with a receiver? I do not want something that requires an app or wifi. I want something with a wide angle lens that can be placed in the corner of the bedroom and see most of the small room.
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Plan to improve care for dementia patients in hospitals
Michael Ellenbogen, who is a strong advocate for people with dementia and who has dementia himself, has been working with dementia experts to develop a plan to improve care for dementia patients in hospitals. Here is a link with more information.…
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My Second Appt after initial Alz Test
Note, I expect I will go to a funny farm after this and I will need to rob a bank as I need to pay someone to get me to these tests I met with my neurologist today about Alz and the next few weeks. I am basically just listing what will happen and will fill it in as time goes on. My writing represents both ALZ but also my…
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New To All of This
Hello. I was diagnosed with mild cognitive decline 2 years ago. I'm 66, disabled due to a bad back and I'm venturing into new territory. My family pushed me into getting another brain scan, which I will do. My question is, what is the simplest way diagnose alzheimer's? Thanks!
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how to tell others of my diagnosis
I was diagnosed with mild Alzheimers last month. I told my immediate family members (none of them were surprised). They are incredibly supportive. But I feel like I'm in a pressure cooker. I want to tell others and did tell two lifelong friends. Their responses were not helpful—one said tough diagnosis. She clearly didn't…
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Just diagnosed
I’m scared. Every time I think about it. My mom had dementia and later it turned into Alzheimer’s. Her last 3 years of life was the worse way of living. She cried. Her tears ran down her face but we never heard what was in her mind, even though we all knew she was going through torture. I hate myself for always having…
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P Tau 217 Score Variability
I had a P Tau 217 test score of .2 in November 2025. Anything over .18 was considered positive. I then had a PET scan with a centiloid score of 46. In late May 2026 I participated in a research trial with Care Access and received a P Tau 217 score of .47, with anything over .18 considered positive. I am very concerned…
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Hyperbaric Oxygen Therapy
I need your input, please. Hyperbaric oxygen therapy has been recommended for my MCI/Alz. I was diagnosed on 12/01/2025. It is mild at the moment. Please let me know if you or a loved one has tried this and whether or not it was helpful. Many thanks!
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Newly dignosed
I am 68, was just diagnosed with early AD….im scared. How does everyone feel about the infusions? Im leaning toward going ahead with them, would just like input from those who have.