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Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
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Quite shocked
Hi....my dr. was not expecting a diagnosis of Alzheimers. (neither was I!) He's a great neurologist and he could barely talk. We are going to move into an retirement community that has help with memory, etc. I just hate thinking about Az every moment. Thanks for listening.
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NEWLY DIAGNOSED VASCULAR DEMENTIA
Hi! I'm Matt, 21, 4th yr CpE student. My mother was diagnosed with Vascular Dementia literally a few minutes ago. During the doctor's assessment, I can see the massive decline in her cognitive function, which saddens me extremely. It breaks my heart to see my mother suffer from this. She is a pre-school teacher and she…
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She loves me and loathes me
My wife of 55 years has Alzheimer’s and I thought I could manage this problem. I watched my lovely mum disappear into the state of madness and in hindsight I think now I was too tough on my Dad for not being able to understand that my Mum (her original being) had left. He was arguing with her shell. It’s my turn now and…
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Waiting and waiting to finish last Dx test
I see so many here who have been newly diagnosed, and I truly hope you can all get the support you need. I have had all the medical Dx tests—MRIs, biomarker blood work, PET scan. They all point to early stage ALZ, but I still need to have the comprehensive neuropsyche evaluation, but I need to wait until late March to…
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Looking for Support Here
Hello all, I have some form of dementia that may be vascular or Alzheimers. I have had the ususal tests, MRIs, blood work for biomarkers, PET scan and consultation with well respected neurologists in Northern Virginia. I am looking more for support both emotionally and in terms of locating resources for support available…
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What do you wish your LO could know about you, do for you, or say to you?
I am a retired teacher. When I was teaching, one of my favorite books was I Wish My Teacher Knew, by Kyle Schwartz. I believe the book helped me to be a better teacher. Now, I am a caregiver for my husband (DH) who has dementia. To be a better caregiver, I want to know… What do you wish your spouse, loved one (LO), or…
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Caregiver
My DH, has Alzheimer’s and I am the caregiver. My fear is that I won’t know when the best time will come for an outside care giver to come in and assist or even when it might be better if he were in a facility with more care than can do. My desire is to have him at home as long as possible. He’s 81 and I’m only 70. I’m…
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Newbie ES
Background and introduction. I am a retired environmental chemistry professor who has experienced memory changes for the past couple years. This included headaches, dizziness and an inability to focus. It took 5 months to get an appointment with a neurologist. I finally got in in March 2025. (The waiting room was empty!)…
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Recently diagnosed
I was diagnosed by a neurologist a few months ago The only testing I s were 2 EEG‘s one in office and a 2 day one at home and the psycologist with neurology which included variety of memory/skills testing. After that she said I had mild cognitive and she thought it was probably Lewy Body. Suggested driving test and sent me…
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Last Infusion and Encouraging PET Scan
Today I get my final Leqembi infusion, completing the course of 40. Last week, I saw my neurologist to go over my final PET scan. It was negative. No detectable Amyloid plaque. Amazing. <Bob gives a big exhale.> The doc offered options for maintenance. They were: Monthly infusions at the infusion center. Weekly self…
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New here~~~~
I am not currently experiencing symptoms of Alzheimer's but have been placed in a clinical trial for "pre-clinical" Alzheimer's. I'm APOE 2/4 and have experienced 2 incidences of ARIA E. I'm concerned about continuing in the trials. Any input???? and HELLO everyone!
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Knowing doesn't change the losses
I am recently DX'd w/ early onset Alzheimer's (who I call Al, who is friends with my other guy ARThritis). I am a Former Alzheimer's specialist serving as the director of a local Alzheimer's association, Developer and creator of residential services and, in my youth, a personal care worker for those with Alzheimer's. None…
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Any Heterozygotes on Donanemab?
Got my APOE results back and I am E3/E4. Waiting for my next appt with the NP to discuss next steps. I know that E4/E4 is pretty much a no go for Donanemab. E3/E4 is supposedly 50% less chance of ARIA, but still a risk. My Centiloid is 144. So, lots of existing plaques. Donanemab is for clearing those. Lecanemab is for…
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MCI diagnosis
Hello. I was diagnosed with MCI a few months ago. I'm mid 50's and have shown symptoms for the past year which I initially wrote off as normal aging. My PET scan showed structures in my brain that are interfering with my short term memory. A couple of weeks ago I had a lumbar injection of medication. It's been a long road…
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Risks of Anti-amyloid Antibody (IV) Infusion Therapy With Extreme Exercise?
I am trying to find some answers on the risks of taking an anti-amyloid antibody (IV) infusion therapy while being physically active. My 63 yo husband (stage 4, APOE3/4) was just diagnosed with Alzheimers and he is a candidate for Kinsula or Lequmbi but we are worried about the risk of ARIA. He wants to keep mountain…
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New diagnosis
I'm 72 years old. I was diagnosed with Alzheimer's in September 2025. My neurologist said I will be at this stage 2 1/2 to 3 years. Then I will progress to next stage. I'm not eligible for infusion because of brain bleed and APOE 4 type. I live alone. This is very scary. I don't know how long I should plan to be able to…
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Continuing ALZ Research
https://www.sciencedaily.com/releases/2025/11/251118220052.htm#google_vignette
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Life after diagnosis
I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.
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Kisunla
Good day to all. I'm looking for feedback on with Kisunla, how treatments went, results, etc. Thanks in advance
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New to community with Alzheimers
Hi my name is Katie. I am 67 years old, from MS and diagnosed in 2018. I am moderate stage. Looking for support, coping skills and living with anxiety.
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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When Leqembi causes ARIA
I'm not out to discourage anyone getting treatment. I'd like to add my experience just to show there is another side of Leqembi. I am 69 years old, diagnosed about 18 months ago. I don't have APOE4 so I felt that was a a risk reduction as well. I was very excited to start my infusions. My first treatment went great. No…
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Just diagnosed
My name is Steve. I was just diagnosed with early onset dementia. I am 61 and have non idea what i will be in for. Any suggestions or info would be most welcome.
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Recently Diagnosed with Alzheimer's
If you were recently diagnosed with Alzheimer's disease and are interested in clinical trials or participating in research there is a site you can go to see if you might qualify to participate in a mild Alzheimer's study. www.MildAlzheimersStudy.com
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Considering Alzheimer's as a spiritual journey
Found this on Google, and thought it'd be a useful perspective: Alzheimer's is viewed as a potential spiritual journey for both the person with dementia and their caregiver, offering opportunities for growth, connection, and a deeper understanding of self and life's meaning, even amid loss and confusion. This perspective…
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ARIA - Do most medical professionals / EMTs know what this is???
I will soo start Leqembi and want to get a medical Id bracelet. I was thinking of putting "at risk for ARIA" but am not sure this is a well known term? Any insight?