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Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Social support?
I just had confirmation of my suspicion and fear that I have an early stage of AD, and like so many others I decided to look for a support group, online or in person. I don't want to go through this alone as the symptoms evolve. At the age of 84, I am caregiver for both a life partner and a daughter with dementia; however,…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Newly Diagnosed with Mild Cognitive Impairment
Hi everyone..I am 58 year old School Counselor newly diagnosed with MCI, based on Montreal Assesment. I have a variety of risk factors--family hx on paternal side (Grandmother, Uncle, Father) plus I have Type II Diabetes, Sleep Apnia, Peripheral arterial disease, etc. I am scheduled for a workup--blood test, MRI, and…
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Mom with dementia
My mom has dementia and she forget and can't remember things she does things that I don't know how to stop example she uses toilet water to clean herself with tp and she goes through alot if tp
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
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Moderate dementia
After years of falling, stuttering and memory problems I was diagnosed with moderate dementia My husband can't handle and/or accept my diagnosis. He is an alcoholic and he can't help but argue with me, yelling Has anyone else feel this way. I am n o with 70
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Thinking about infusions.... Leqembi or Kisunla??
I am looking into the two different infusions available for Alzheimer's where I live. I have like a thousand questions but here are a few.... Which "brand" is most effective? Which has least side effects? Are the infusions painful? If they do cause side effects... How long do they typically last? Can you "gut it out" or…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Alzheimer’s
I was diagnosed with Alzheimer’s about 6 months ago. Is anyone being treated with Kisunla? I started infusions about four months ago. After each infusion I get terrible headaches for about two days.
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I am living with a mild form of Alzheimers
The mild form of Alzheimers I've been diagnosed with is not very noticable. I am able to answer questions which are readily posed to me
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New to group - in MCI stage of AD
Good morning! I’m recently diagnosed with MCI of AD. Prior to my diagnosis, my husband didn’t notice anything, but I knew something was wrong. I mentioned my memory difficulties to my internist and she did a test in her office that I passed with flying colors. When I continued to have difficulties a year later with…
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POINTER Study to Modify Lifestyle to support Brain Health
Yesterday the Alzheimer's Association issued a press release about the results from the POINTER study. I happened to be in attendance at the Alzheimer's Association International Conference (AAIC) in Toronto, where a presenter shows the impressive results from the study. Also, a participant in the study spoke about her…
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Read this- For MCI or early stage Alzheimer’s- slows progression
https://alzres.biomedcentral.com/articles/10.1186/s13195-024-01482-z
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Considering Alzheimer's as a spiritual journey
Found this on Google, and thought it'd be a useful perspective: Alzheimer's is viewed as a potential spiritual journey for both the person with dementia and their caregiver, offering opportunities for growth, connection, and a deeper understanding of self and life's meaning, even amid loss and confusion. This perspective…
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vitamin B12 abnormally High
Hello I recently had a diagnosis changed from early onset dementia to Mild cognitive Impairment after psychological testing. a few weeks ago I had a lumbar puncture test done and some blood work. In my cerebral spinal fluid I had abnormally very high vitamin b12 and abnormally high Red Blood cells in my CSF as well. my…
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New to community with Alzheimers
Hi my name is Katie. I am 67 years old, from MS and diagnosed in 2018. I am moderate stage. Looking for support, coping skills and living with anxiety.
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FDA Approved Leqembi Subcutaneous Maintenance Dosing
On August 30, 2025, Eisai (Japanese company leading the development of Leqembi) published a press release announcing FDA approval of Leqembi subcutaneous maintenance dosing. After the initial 18 months of treatment via infusions every two weeks, patients will have the option of continuing with infusions every four weeks or…
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Newly diagnosed with MCI
I have had the MoCA test and 2 Quest Diagnostics blood test: PTAU 217 @ 0.18 (normal < or = 0.15) and PTAU 181 @ 1.48 (normal < or = 1.07) After reading about these test it appears to me that I likely have early stages of AD. My personal Dr. has played this down and just says I have MCI and wants me to do red light therapy…
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Life after diagnosis
I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.
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Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know who have used it.
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AAIC For All; Alzheimer's Association International Conference
The banner for the Alz Connected website indicates this site is "a dedicated community where people with Alzheimer’s, their caregivers, and others affected by the disease can share answers, opinions, ideas, and support." Along those lines, one idea would be for those interested in Alzheimer's research is to attend the…
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Neuropsychological tests
I was diagnosed with Alzheimer's 5 months ago. I had been complaining on and off for 4 years that I was forgetful and having trouble with finding my words. I was given an MRI (2021) which shown a right lacuna infarction and mild chronic small vessel disease ( Neurologist said it was nothing to worry about). He then…
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Moved: Denial
This discussion has been moved.
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Promising News for New Anti-Amyloid Antibody Treatment
Sharing because I wish this was around when my mom was diagnosed with Alzheimer's... There's a new drug that seems like it has a good chance of becoming a game-changer for Alzheimer's, called Trontinemab. It was developed by Roche Alzforum.org posted an article today about this new antibody, the article summarizes the…
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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Medication depression or anxiety
has your doctor prescribed medication for anxiety that is worth the side effects- I have been experiencing really bad anxiety particularly when it comes to bedtime was wondering if others have similar experiences and any solutions
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Lithium to treat AD?
Today a front-page article in the Washington Post is titled "Lithium a potential for treating Alzheimers." The gist of the research with mice is that Lithium plays a key role in the brain function. Their research shows that amyloid plaques trap and remove Lithium, which is bad thing. They provided mice with Lithium orate…
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Questions about Lequmbi
I'm getting my 12th infusion in a couple of days. Everything is going ok- no side effects, feeling fine in general. With no advanced symptoms, I'm wondering if the Lequmbi is holding the progression of AD at the mild cognitive leveI. If and when I stop, I'm assuming that I'll be displaying more severe AD symptoms. Will…
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Kisunla
Good day to all. I'm looking for feedback on with Kisunla, how treatments went, results, etc. Thanks in advance