I Am Living With Alzheimer's or Other Dementia

I wanted to introduce myself and get involved. I am recently diagnosed with "mild cognitive decline" related to Alzheimers. I am a recently retired pastor and have cared for many Alzheimer patients and their family so I know what is ahead of me. I have a million questions and don't know where to begin. Thank you.

I'm sitting here in my basement home office (aka "the dungeon", adjacent to the washing machine and dryer) at 5:30 am central time…shaking with anger and grief at all of the above. I guess I brought it on myself, being the go-to person for planning vacations, running errands, loaning money to my spendthrift sister, and…

Am only seeing partial parts of the comments. I'm using an Android phone.

I have been diagnosed with early stage Alzheimer's Disease five days ago. I have been looking through this forum and don't see a lot of interaction from many people or things that are discussed and answered the same day. Does anyone know of a ZOOM or some kind of live forum that we can all get together and speak in real…

do anger issues always come with dementia? I feel so bad- husband getting angry at the dog over nothing- this morning hes on the phone yelling at soliciters.- calling them back over and over to harass them . I cant say anything to him he will blow up at me

i'm not sure I am doing this right or navigating this right there's a box to click for discussion living with Alzheimer's and there's a box to click for discuss discussion for caregivers…… but when I click my box living with Alzheimer's…. most of the post that I see are caregivers I'm confused.???

Hi everyone, I am brand new. Got my diagnosis of AD 2 days ago, and I am SCARED. I am 68 years old. I saw my neurologist yesterday after my PET scan and also had my blood work done yesterday now I'm in a holding pattern and he has recommended Kisunla... so I am hoping that someone can share with me how that journey is…

I would like to chat with those of us that have been diagnosed with Alzheimer’s between the age of 35-65 in the last few years.

Looking for other people who have very recently been diagnosed and are early in their Alz journey. In addition to first line therapies such as the new Anti Amyloid drugs, what else are people doing to stave off further cognitive decline aside from working out and challenging their brains. The two most promising things I…

Choosing the right memory care community is an important decision for families caring for a loved one with Alzheimer's disease or dementia. Families should consider the following factors: - Specialized Care: Look for trained caregivers who understand memory-related conditions. - Safety and Security: Choose a community that…

Hello, I’m new to the group. I was diagnosed with vascular dementia after suffering 7 small strokes two years ago. I was impacted cognitively, confusion, anxiety, short term and memory loss initially. Since then I feel like I’m falling apart. Over the last 6 months I began having intense dreams, loss of taste, lack of…

Hi, I saw my Neurologist yesterday to get the results of my second PET scan. My 1st PET, a year ago, showed I had 49% plaque in my brain due to Alzheimer's. Yesterday she told me the results of my second PET scan..... wait for it...(with a drumroll) 19% plaque!!!! Leqembi must be working!!! I am very pleased.🥰 Had to share.

Although given preliminary FDA approval in July, has anyone had experience getting insurance coverage for weekly home injections instead of infusions every two weeks?

Hi Are there any courses within my area? Please let me know via email Thank you Zip code 46947 Marta Curtean Kelly

For anyone who is bored, checkout the 40 minute program titled "Early-Stage Connection ALZ Talks: Answering Common Questions About New Alzheimer's Treatments". This program featured two experts from the Alzheimer's Association: Dr. Elizabeth Edgerly and Dr. Courtney Kloske, plus yours truly representing the patient…

It has been recommended that I start taking Leqembi. I am taking Eliquis for Atrial Fibrillation. I have been told that I cannot ever stop taking the Eliquis. In my research I have read that this combination could lead to a fatal brain bleed. Obviously, I am very concerned! Any input will be greatly appreciated.

Hello everyone, my name is raffaella and I am caring for my 76 yr old grandma . Last two months have been very hard, she talks to all these ppl not present from the time she wakes up to the time the meds put her to sleep. In the beginning wasn’t so bad it was regular conversations, almost like telling stories, now she is…

Seems to be extremely difficult to get treatment for my ALZ. Have contacted 4 treatment centers and had medical records and referals submitted as well. The first one simply said it can take some time to get in. ?? they have no idea even?? hmmmm. The second one said I could get an initial appointment next April, as in 2027!…

In the classic Whipple procedure (pancreaticoduodenectomy), the surgeon removes the head of the pancreas, the first part of the small intestine (duodenum), the gallbladder, part of the main bile duct, and a portion of the stomach. In a pylorus-preserving Whipple procedure, the pylorus and a small part of the proximal…

For those who enjoy watching podcats, the Alzheimer's Association has a YouTube channel devoted to shows about Alzheimer's, lasting about 45 minutes each. The latest podcast was uploaded 12 days ago, titled "I've Noticed Memory Changes in Someone I Know. What Can I Do?" The next previous podcast was referred to as an Early…

Hello everyone, I'm 72 years old, was diagnosed with ALZ in Oct 2025 and started Leqembi infusions in Dec. I am still asymptomatic, but as an APoE4 homozygote I find myself waiting for the other shoe to drop. I have not met anyone else with two copies of the APoE4 allele (I understand we make up only 2% of the general…

I was just diagnosed with MCI dementia. My doctor wants to start infusion therapy to breakup plaque on the brain. Has anyone been on this therapy, and did you have any side effects?

Almost Everyone on my mother's side of the family has had Alzheimer's but I always thought of myself as being more like my dad, so maybe it wouldn't happen to me. I'm 72 and was hoping some of the forgetfulness was just old-age related. I'm going to see my doctor soon, with my husband, and ask for tests or whatever and…

Hi! My name is Richard. I'm 74, married, retired from remunerative employment as a lawyer. I was diagnosed with Centiloid middle-level Alzheimer's in early March. I had suspected as much, given prior diagnoses based on word-finding and certain other memory categories, but I am determined to live as independently as I can.…

My letter was just eaten by the app. Dang. I haven’t written in ages, but I have taken tons of tests. Finished and have results of P tau and Pet Scan. Counting disclaimers so far AlZ is what I have. Friday was the neuropsych test which truly upset me. I take generic Aricept which is working until it stops. I am on 5mg.…

Found out today I have early stage Alzheimer’s today. I’m been having symptoms for 2 years and went to 3 different neurologists before I found one who went forward with tests. When I was introduced to Alzheimer’s I was 10 with my grandmother. Ever since I have been afraid of having the same thing. I am scared and worried…

I'm in Early Stage Alzheimer's and receiving Leqembi infusions. My friends say I don't exhibit much in the way of symptoms. My partner is not one to discuss the situation other than for passing on medical information and does not discuss feelings. He notices every slip and gets angry when I forget, make a mistake, get…

Hello, I am age 64, diagnosed with early onset Alzheimers. I did go on regular Social Security recently. We were encouraged to apply for the SSDI - as I am no longer able to work in my field - and also am declining in my ability to remember complex details and instructions. SSDI denied the claim, which we want to appeal -…

My dad was diagnosed with Alz when he was 73...It came as a shock. Little did I know at the time that 5 or 6 (of 11) siblings of his had/would also go through this. Should have guessed it would be passed down. At the time, I went to classes offered by UC Berkeley and found out everything I could about it (this was about…

Our family member living with Dementia refuses to shower or bathe and this has been an on going struggle thw past 16 months. However, if and when she is going to see her siblings in their 80s too or needs to go out of the house, she will shower. The problem is mom refuses to leave the house unless its to see her sisters or…