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Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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I'm newly diagnosed with Alzheimer's and considering one of the new drugs
Hi. My name is Shank. I’m a 79-year old retired company medical director, and I was diagnosed with early stage Alzheimer’s about 6 months ago. It followed a year of an increasing number of senior moments, then neuropsychiatric testing, an amyloid PET scan, and an elevated p-tau217 level. I’m on here to learn from others…
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Do I stop treatment if my Centeloid score goes down??
Hi helpful friends, I'm 66, was diagnosed a year ago and have had monthly Kisunla injections for 7 months. When I was diagnosed, my Centeloid score was 95.5, but a PET scan yesterday showed a Centeloid of 6.7! Should I stop treatment? That scares me - what if the Amyloid plaques return? Liqembi has maintenance doses, but I…
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Where Do I Start and Where Do I End
Hello all I am 72 year old male and retired at age 66 after serving in the US Navy, working for Siemens Automated Process Control Systems as an Engineer for about 11 years,, and lastly as an Engineer for the Department of the Navy for 33 years traveling all over the world. In 1988 I got the Ebstein Barr Virus and one year…
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introduction
Hi! My name is Richard. I'm 74, married, retired from remunerative employment as a lawyer. I was diagnosed with Centiloid middle-level Alzheimer's in early March. I had suspected as much, given prior diagnoses based on word-finding and certain other memory categories, but I am determined to live as independently as I can.…
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Starting LEQEMBI next week need some advice
Just was diagnosd 4 weeks ago and start my Leqembi next weeek ….I hate needles and I would like some information on what to expect…Thank you so much.. I have had 2 TIA's and am a little worried about this whole Leqembi thing. Is the first time really bad or is it doable? thank you so much for this web site I had no idea…
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Newly dignosed
I am 68, was just diagnosed with early AD….im scared. How does everyone feel about the infusions? Im leaning toward going ahead with them, would just like input from those who have.
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Glucosamine
Important news about taking glucosamine: https://www.sciencedaily.com/releases/2026/06/260610003044.htm
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how to tell others of my diagnosis
I was diagnosed with mild Alzheimers last month. I told my immediate family members (none of them were surprised). They are incredibly supportive. But I feel like I'm in a pressure cooker. I want to tell others and did tell two lifelong friends. Their responses were not helpful—one said tough diagnosis. She clearly didn't…
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Just diagnosed
I’m scared. Every time I think about it. My mom had dementia and later it turned into Alzheimer’s. Her last 3 years of life was the worse way of living. She cried. Her tears ran down her face but we never heard what was in her mind, even though we all knew she was going through torture. I hate myself for always having…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
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ApoE4 homozygote
Hello everyone, I'm 72 years old, was diagnosed with ALZ in Oct 2025 and started Leqembi infusions in Dec. I am still asymptomatic, but as an APoE4 homozygote I find myself waiting for the other shoe to drop. I have not met anyone else with two copies of the APoE4 allele (I understand we make up only 2% of the general…
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Long Covid coexisting with Alzheimer’s
Hello. I have MCI/Alz confirmed by pTau217 and PetScan on December 1, 2025. I have not started either of the antiamyloid treatments yet. In researching both treatments, the side effects were concerning especially since I have Long Covid which causes neuro inflammation. Has anyone had antiamyloid treatment while they have…
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Communitating with others
Hi All, My name is Vicki and I am new to this group. I am having difficulty communicating with "friends" who no longer want to listen to what I have to say! Also does anyone know of a support group on Zoom that has a ongoing discussion? Vicki
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Living with Alzheimer's
I was diagnosed with Alzheimer's two years ago. To others living with it - keep busy! I have joined a book club at the local library (which also offers activities), walk at the local park daily, church actiivities, senior citizen club, etc. Keep engaged! The Neurologist who diagnosed my illness was cold and offered no…
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PTau 217
Hi everyone… my name is Jason and I am new to this group. Just a little background… My mother was diagnosed with Alzheimer’s a few years ago. So partially due to that fact, coupled with the feeling that I am struggling with recently learned tasks and names, I decided to have a pTau 217 blood test done. I got the results…
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Alzheimer's & Dementia Research Made Accessible - For *All*
Registration is now open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top Alzheimer's & Dementia experts about the latest research/news. There are three key sessions: - AAIC 2026 General Conference Highlights - AAIC 2026 in…
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Just moved mom in
Our mom was diagnosed with Alzheimer's at 65…it's been a long journey with several moves but today at 79 we moved her into my home for hospice care. She can't talk and is so frail and stiff, my only hope is I've done the right thing for her and my sister and I. I keep wondering if I did the right thing and will I be able…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Help me please
I am so burned out and feeling alone. My husband is 86 yrs old and I am 73. Been married for 43 years. The regular doctor says he has dementia or Alzheimer’s . He now refuses to go to any doctor or to receive any help from hospice or anyone. He has mood swings very often which plays on me and my wellbeing. Not to get in…
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New diagnosis
Hello. I'm a 77 yo female newly diagnosed with very early Alzheimers. I told my doctor about a couple of experiences that I thought could be more than old age cognition and she offered me the p tau 217 blood test. The result was 0.28. She then ordered an MRI which was determined to be 'normal for age'. She started me on…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.
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Early onset Alzheimer's
This diagnosis is so difficult. How do you go on from this? And how do you do it alone? My heart goes out to anyone with this disease. I knew it from many years ago that there was a problem, But doctors always told me, it's just stress, Take this, you'll feel better. So many doctors, so many years later. I am so happy that…
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Early onset Alzheimer's 56 Female i need others to help navigate please
My Diagnoises was October 2025. My SSD was approved. Now that is completed and my career of 30 years is over, i sit here still in shock. I am not sure what to do now. Help I need others like me to talk to. I am a mother of 4 grown children and 4 bio grandchildren. I am also a wife to a loving husband who has taken on so…
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Just diagnosed with MCI and on Memantine 28mg - Need mental health help !
I am really struggling with this MCI diagnosis and what life is going to be like in 1, 2, 5 years ahead. My older sister died from ALZ and it was horrible. How do you live on day at a time with this diseases ?!?
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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ALZ Talk: Opening the Door to New Alzheimer's Treatments
On April 2, Elizabeth Edgerly, PhD, Senior Director of Care & Support Programs and Services interviewed Christopher Weber, PhD, Director of Global Sciences Initiatives. They are both with the Alzheimer's Association, and I have personally met both of them through my role as an Early-Stage Advisor. I've found Dr. Edgerly…
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Watching Alzheimer’s Take My Grandmother Changed Me! Now I Want to Build Something That Helps
After losing my grandmother to Alzheimer’s, I’ve been thinking a lot about how difficult this journey is for families and caregivers. I’m an engineer and want to use technology to make people’s lives more comfortable and better in this space, but I know I need to understand the real problems first. If you’ve worked in…
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end-of-life decisions
What are the options for a dignified death if your state has not legalized medical-aid-in dying (MAID)?