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Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Medication depression or anxiety
has your doctor prescribed medication for anxiety that is worth the side effects- I have been experiencing really bad anxiety particularly when it comes to bedtime was wondering if others have similar experiences and any solutions
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Questions about Lequmbi
I'm getting my 12th infusion in a couple of days. Everything is going ok- no side effects, feeling fine in general. With no advanced symptoms, I'm wondering if the Lequmbi is holding the progression of AD at the mild cognitive leveI. If and when I stop, I'm assuming that I'll be displaying more severe AD symptoms. Will…
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Kisunla
Good day to all. I'm looking for feedback on with Kisunla, how treatments went, results, etc. Thanks in advance
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Improving Services and Program for People with Dementia
Michael Ellenbogen sent me this excellent, concise article on how to improve services and programs for people with dementia (including his own recommendations for hospital care).
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POINTER Study to Modify Lifestyle to support Brain Health
Yesterday the Alzheimer's Association issued a press release about the results from the POINTER study. I happened to be in attendance at the Alzheimer's Association International Conference (AAIC) in Toronto, where a presenter shows the impressive results from the study. Also, a participant in the study spoke about her…
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Recent diagnosis of LBD
I am new to this disease and have fears and questions of what my reality will look like and a sense of urgency to get all my end of life plans and make sure I have all things including legal affairs in order. And I have fears as well. I have found many things that describe situations from the caregiver side. I appreciate…
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Feedback on Kisunla
Hi. I am 75 F newly diagnosed ES Alz and leaning to try Kisunla. I have Medicare and BSBC but having problems getting a breakout of what is covered and what I must pay $ monthly. Id be so appreciative regarding on what you pay for Kisunla out of pocket. And any feedback on your or your LO has on Kisunla.
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…
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Do any of you folks have early dementia yourselves and live alone?
Everywhere I look, I find support, even on Blogs for caregivers, but I have yet to find something to assist the person who has dementia.
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Looking for a regular online support meeting to attend
Hi, I am the life partner of someone with between mild to moderate dementia. He and I would like to attend something together so we can hear together what is ahead and what works to help with different aspects of the disease and its progression. Any links appreciated. Thank you
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Kinsula treatment
Is anyone in this group being treated with Kinsula? If yes what has been your experience. I would like to know more about it before making a decision to start treatment.
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Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know who have used it.
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Newly diagnosed with MCI
I have had the MoCA test and 2 Quest Diagnostics blood test: PTAU 217 @ 0.18 (normal < or = 0.15) and PTAU 181 @ 1.48 (normal < or = 1.07) After reading about these test it appears to me that I likely have early stages of AD. My personal Dr. has played this down and just says I have MCI and wants me to do red light therapy…
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AAIC For All; Alzheimer's Association International Conference
The banner for the Alz Connected website indicates this site is "a dedicated community where people with Alzheimer’s, their caregivers, and others affected by the disease can share answers, opinions, ideas, and support." Along those lines, one idea would be for those interested in Alzheimer's research is to attend the…
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How to cope and help?
My family believes my father is struggling with early onset of dementia. He is very stubborn and does not like anyone telling him nor suggesting on what he can or cannot do. Always has called the shots and at 84 he is still driving his tractor and trying to farm. My mother lives with him and all of his kids me included are…
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Diagnosis
Maybe someone has had this diagnosis information and can weigh in. I was diagnosed with Alzheimer's in early 2022. My MRI showed moderate shrinkage on the left side of my brain. I am wondering why shrinkage would only be on one side.
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Telling people
A couple years ago, had two cornea transplants due to Keratoconus and Fuchs Dystrophy. I have some vision, but it's abnormal. The vision loss was accompanied by hallucinations and a Cognitive decline. I could no longer read or listen to stories. I can listen to shows I watched pre-transplant. I can only read picture books…
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Life after diagnosis
I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.
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Hello Everyone - just diagnosed with AD
I am a retired engineer, 71 years old, born and raised in Ponce, Puerto Rico, but I have been living on the mainland since 1984. I am a widower living alone and was recently diagnosed with very early stage AD based on the results of my PET Scan, even though my PTAU 217 levels showed normal. I do not have the PTOE 4 (is…
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Another Newbie
Hi, I'm 66 and new to the group. I was diagnosed with AD in Jan. 2025 (MCI stage). Taking Lequmbi infusions every 2 weeks. AD is really a shock to the system. Overwhelmed wth stress & planning for the future (when should I start memory care?).Living with a partner in Florida whose done the caretaker thing twce before and…
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New Dementia diagnosis
I was diagnosed with Dementia several months ago (I can’t remember exactly) and am having trouble dealing with the memory problems. I am on Memantine and Galantamine with good response…..well at least in the beginning. I feel like I am getting worse. I plan on taking to my doctor. I am wondering if I need to see a…
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New, Scared and Confused...
I'm obviously a newbie to this site, as well as the amazing and mysterious world of Alzheimer’s. I began seeing a neurologist last summer because of an inability to think as clearly as I once did. Memory didn't seem like much of a problem since as far as I can remember, I always had a bad memory. Other issues that I…
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Dementia discussion
Hi All, I am new to this site and wondered if my experience resembles anyone else's. So far, I have had the following tests, which all came out ok. CT Angiogram, EEG Brainwave, Echo Cardiogram, PET Scan, Ankle Brachial, and Heart Monitor. The initial discussion with the doctor is Dementia. Also, what are the common…
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Genetic Testing
Is an order for genetic testing routine for those diagnosed with AZ?
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What were your first symptoms?
I am curious what the early symptoms those here experienced? Long-term or short-term memory loss? decrease in ability to focus? Any other mental symptoms? Any physical symptoms? Were the symptoms constant? or episodic/occasional? I have had episodes of extreme foggy-brainess over the past 5 years along with a loss of…
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Revealing diagnosis
How and when does one begin the process of revealing the diagnosis?
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Recent Alz dx -not coping well
Hello, Last year both of my parents passed from Alzheimer's. One month after my father's passing I was dx with Alz. My neuro believes I've had it for aprox 2 yrs. Brain shrinkage of both sides of my brain and amaloyd plaques in the frontal areas. All confirmed with MRI and PET scan. Issues are not too troubling nor are…
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Warning: Avoid Brain Injury in mAb Clinical Trials.
In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted into the study in January. After taking 5 doses, one injection each week for five weeks, I started getting side effects. I…