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how to tell others of my diagnosis
I was diagnosed with mild Alzheimers last month. I told my immediate family members (none of them were surprised). They are incredibly supportive. But I feel like I'm in a pressure cooker. I want to tell others and did tell two lifelong friends. Their responses were not helpful—one said tough diagnosis. She clearly didn't…
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Just diagnosed
I’m scared. Every time I think about it. My mom had dementia and later it turned into Alzheimer’s. Her last 3 years of life was the worse way of living. She cried. Her tears ran down her face but we never heard what was in her mind, even though we all knew she was going through torture. I hate myself for always having…
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New To All of This
Hello. I was diagnosed with mild cognitive decline 2 years ago. I'm 66, disabled due to a bad back and I'm venturing into new territory. My family pushed me into getting another brain scan, which I will do. My question is, what is the simplest way diagnose alzheimer's? Thanks!
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Noticing changes
I'm only a month into my diagnosis. I had a conversation with my granddaughter today and mentioned to her that I feel like I will notice when changes happen. She thought that might be a good conversation here. Have any of you noticed changes in yourself as the disease progressed?
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P Tau 217 Score Variability
I had a P Tau 217 test score of .2 in November 2025. Anything over .18 was considered positive. I then had a PET scan with a centiloid score of 46. In late May 2026 I participated in a research trial with Care Access and received a P Tau 217 score of .47, with anything over .18 considered positive. I am very concerned…
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Do I stop treatment if my Centeloid score goes down??
Hi helpful friends, I'm 66, was diagnosed a year ago and have had monthly Kisunla injections for 7 months. When I was diagnosed, my Centeloid score was 95.5, but a PET scan yesterday showed a Centeloid of 6.7! Should I stop treatment? That scares me - what if the Amyloid plaques return? Liqembi has maintenance doses, but I…
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Hyperbaric Oxygen Therapy
I need your input, please. Hyperbaric oxygen therapy has been recommended for my MCI/Alz. I was diagnosed on 12/01/2025. It is mild at the moment. Please let me know if you or a loved one has tried this and whether or not it was helpful. Many thanks!
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Newly dignosed
I am 68, was just diagnosed with early AD….im scared. How does everyone feel about the infusions? Im leaning toward going ahead with them, would just like input from those who have.
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Small Study at Cornell University
Hey Guys, if you are in the New York area there is a free new small study of 20 patients with early Alzheimer’s disease symptoms utilizing a monoclonal antibody that blocks ccr5 receptors called Leronlimab that theoretically decreases inflammation in the brain. This study will measure neuro inflammation pre and post…
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Alzheimer's & Dementia Research Made Accessible - For ALL
AAIC For All: July 16, 2026Registration is still open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top AD experts about the latest research/news. There are two key sessions: AAIC 2026 Highlights A Lived Experience…
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Recently diagnosed
I wanted to introduce myself and get involved. I am recently diagnosed with "mild cognitive decline" related to Alzheimers. I am a recently retired pastor and have cared for many Alzheimer patients and their family so I know what is ahead of me. I have a million questions and don't know where to begin. Thank you.
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Early onset Alzheimer's
This diagnosis is so difficult. How do you go on from this? And how do you do it alone? My heart goes out to anyone with this disease. I knew it from many years ago that there was a problem, But doctors always told me, it's just stress, Take this, you'll feel better. So many doctors, so many years later. I am so happy that…
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Confused and scared!
I was diagnosed with Dementia 2024. So much has happened since then. I don't know how to manage all this. My hubby and I are in our 60s it's hard on both of us in so many ways. Just would like to find others going thru all this. Thank you
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Just moved mom in
Our mom was diagnosed with Alzheimer's at 65…it's been a long journey with several moves but today at 79 we moved her into my home for hospice care. She can't talk and is so frail and stiff, my only hope is I've done the right thing for her and my sister and I. I keep wondering if I did the right thing and will I be able…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Leqembi Infusions
I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.
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Jewlery
Any recommendations on jewlery tracker I can get my mom to wear that can’t come off?
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Starting LEQEMBI next week need some advice
Just was diagnosd 4 weeks ago and start my Leqembi next weeek ….I hate needles and I would like some information on what to expect…Thank you so much.. I have had 2 TIA's and am a little worried about this whole Leqembi thing. Is the first time really bad or is it doable? thank you so much for this web site I had no idea…
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introduction
Hi! My name is Richard. I'm 74, married, retired from remunerative employment as a lawyer. I was diagnosed with Centiloid middle-level Alzheimer's in early March. I had suspected as much, given prior diagnoses based on word-finding and certain other memory categories, but I am determined to live as independently as I can.…
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I'm newly diagnosed with Alzheimer's and considering one of the new drugs
Hi. My name is Shank. I’m a 79-year old retired company medical director, and I was diagnosed with early stage Alzheimer’s about 6 months ago. It followed a year of an increasing number of senior moments, then neuropsychiatric testing, an amyloid PET scan, and an elevated p-tau217 level. I’m on here to learn from others…
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Where Do I Start and Where Do I End
Hello all I am 72 year old male and retired at age 66 after serving in the US Navy, working for Siemens Automated Process Control Systems as an Engineer for about 11 years,, and lastly as an Engineer for the Department of the Navy for 33 years traveling all over the world. In 1988 I got the Ebstein Barr Virus and one year…
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Glucosamine
Important news about taking glucosamine: https://www.sciencedaily.com/releases/2026/06/260610003044.htm
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
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ApoE4 homozygote
Hello everyone, I'm 72 years old, was diagnosed with ALZ in Oct 2025 and started Leqembi infusions in Dec. I am still asymptomatic, but as an APoE4 homozygote I find myself waiting for the other shoe to drop. I have not met anyone else with two copies of the APoE4 allele (I understand we make up only 2% of the general…
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Long Covid coexisting with Alzheimer’s
Hello. I have MCI/Alz confirmed by pTau217 and PetScan on December 1, 2025. I have not started either of the antiamyloid treatments yet. In researching both treatments, the side effects were concerning especially since I have Long Covid which causes neuro inflammation. Has anyone had antiamyloid treatment while they have…
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Communitating with others
Hi All, My name is Vicki and I am new to this group. I am having difficulty communicating with "friends" who no longer want to listen to what I have to say! Also does anyone know of a support group on Zoom that has a ongoing discussion? Vicki
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Living with Alzheimer's
I was diagnosed with Alzheimer's two years ago. To others living with it - keep busy! I have joined a book club at the local library (which also offers activities), walk at the local park daily, church actiivities, senior citizen club, etc. Keep engaged! The Neurologist who diagnosed my illness was cold and offered no…
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PTau 217
Hi everyone… my name is Jason and I am new to this group. Just a little background… My mother was diagnosed with Alzheimer’s a few years ago. So partially due to that fact, coupled with the feeling that I am struggling with recently learned tasks and names, I decided to have a pTau 217 blood test done. I got the results…
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Alzheimer's & Dementia Research Made Accessible - For *All*
Registration is now open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top Alzheimer's & Dementia experts about the latest research/news. There are three key sessions: - AAIC 2026 General Conference Highlights - AAIC 2026 in…