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Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Risks of Anti-amyloid Antibody (IV) Infusion Therapy With Extreme Exercise?
I am trying to find some answers on the risks of taking an anti-amyloid antibody (IV) infusion therapy while being physically active. My 63 yo husband (stage 4, APOE3/4) was just diagnosed with Alzheimers and he is a candidate for Kinsula or Lequmbi but we are worried about the risk of ARIA. He wants to keep mountain…
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New diagnosis
I'm 72 years old. I was diagnosed with Alzheimer's in September 2025. My neurologist said I will be at this stage 2 1/2 to 3 years. Then I will progress to next stage. I'm not eligible for infusion because of brain bleed and APOE 4 type. I live alone. This is very scary. I don't know how long I should plan to be able to…
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Continuing ALZ Research
https://www.sciencedaily.com/releases/2025/11/251118220052.htm#google_vignette
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Life after diagnosis
I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.
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Kisunla
Good day to all. I'm looking for feedback on with Kisunla, how treatments went, results, etc. Thanks in advance
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Caregiver
My DH, has Alzheimer’s and I am the caregiver. My fear is that I won’t know when the best time will come for an outside care giver to come in and assist or even when it might be better if he were in a facility with more care than can do. My desire is to have him at home as long as possible. He’s 81 and I’m only 70. I’m…
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MCI diagnosis
Hello. I was diagnosed with MCI a few months ago. I'm mid 50's and have shown symptoms for the past year which I initially wrote off as normal aging. My PET scan showed structures in my brain that are interfering with my short term memory. A couple of weeks ago I had a lumbar injection of medication. It's been a long road…
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New to community with Alzheimers
Hi my name is Katie. I am 67 years old, from MS and diagnosed in 2018. I am moderate stage. Looking for support, coping skills and living with anxiety.
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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When Leqembi causes ARIA
I'm not out to discourage anyone getting treatment. I'd like to add my experience just to show there is another side of Leqembi. I am 69 years old, diagnosed about 18 months ago. I don't have APOE4 so I felt that was a a risk reduction as well. I was very excited to start my infusions. My first treatment went great. No…
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Just diagnosed
My name is Steve. I was just diagnosed with early onset dementia. I am 61 and have non idea what i will be in for. Any suggestions or info would be most welcome.
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Recently Diagnosed with Alzheimer's
If you were recently diagnosed with Alzheimer's disease and are interested in clinical trials or participating in research there is a site you can go to see if you might qualify to participate in a mild Alzheimer's study. www.MildAlzheimersStudy.com
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What do you wish your LO could know about you, do for you, or say to you?
I am a retired teacher. When I was teaching, one of my favorite books was I Wish My Teacher Knew, by Kyle Schwartz. I believe the book helped me to be a better teacher. Now, I am a caregiver for my husband (DH) who has dementia. To be a better caregiver, I want to know… What do you wish your spouse, loved one (LO), or…
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Considering Alzheimer's as a spiritual journey
Found this on Google, and thought it'd be a useful perspective: Alzheimer's is viewed as a potential spiritual journey for both the person with dementia and their caregiver, offering opportunities for growth, connection, and a deeper understanding of self and life's meaning, even amid loss and confusion. This perspective…
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ARIA - Do most medical professionals / EMTs know what this is???
I will soo start Leqembi and want to get a medical Id bracelet. I was thinking of putting "at risk for ARIA" but am not sure this is a well known term? Any insight?
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I am living with a mild form of Alzheimers
The mild form of Alzheimers I've been diagnosed with is not very noticable. I am able to answer questions which are readily posed to me
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Newly Diagnosed, starting Leqembi
I was just diagnosed with MCI AD at the age of 59. My mother (81) has AD although she does not have a definitive diagnosis since she lies to her doctors and cancels doctor appts. Because of her, I soke with my Neurologist who I see for a Benign Essential tremor (since age 16) and mentioned my mom. So we did the blood test…
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The morning after....
Good morning all. It is the morning after my first Leqembi infusion. I had worked myself into a tizzy of fear that by the time I got to the infusion center I was trembling so uncontrollably I was almost unable to speak. But... All went well. I had been told that since this was my first infusion that I would have to wait up…
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newly diagnosed.
New diagnosis, no treatment or medication started yet. I am 68 and have suspected this diagnosis for almost 18 months. Felt gaslit by my family when I mentioned it. They were in denial and basically told me it was just ADHD. Now that I am diagnosed, THEY are the ones that are like deer in the headlights. Husband says…
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Social support?
I just had confirmation of my suspicion and fear that I have an early stage of AD, and like so many others I decided to look for a support group, online or in person. I don't want to go through this alone as the symptoms evolve. At the age of 84, I am caregiver for both a life partner and a daughter with dementia; however,…
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1st Lequimbi Infusion..
Is finally on my calendar for Oct 30. YAY!! It's been a long slog but it is almost a reality. Very pleased. 😁
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Other Caregivers Dealing With Menopause?
Hello, Dad is in a care home, but I do all the $$, medical, have moved him 2x, sold his house, etc. I'm 54, menopause has drained so much of my energy and brain fog is real. Was on HRT which fixed these things, but had to go off bc of other side effects (inner ear problems- vertigo, dizzy, motion sick). The fatigue some…
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Newly Diagnosed with Mild Cognitive Impairment
Hi everyone..I am 58 year old School Counselor newly diagnosed with MCI, based on Montreal Assesment. I have a variety of risk factors--family hx on paternal side (Grandmother, Uncle, Father) plus I have Type II Diabetes, Sleep Apnia, Peripheral arterial disease, etc. I am scheduled for a workup--blood test, MRI, and…
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Recently diagnosed
I was diagnosed by a neurologist a few months ago The only testing I s were 2 EEG‘s one in office and a 2 day one at home and the psycologist with neurology which included variety of memory/skills testing. After that she said I had mild cognitive and she thought it was probably Lewy Body. Suggested driving test and sent me…
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Mom with dementia
My mom has dementia and she forget and can't remember things she does things that I don't know how to stop example she uses toilet water to clean herself with tp and she goes through alot if tp
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
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Moderate dementia
After years of falling, stuttering and memory problems I was diagnosed with moderate dementia My husband can't handle and/or accept my diagnosis. He is an alcoholic and he can't help but argue with me, yelling Has anyone else feel this way. I am n o with 70
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Thinking about infusions.... Leqembi or Kisunla??
I am looking into the two different infusions available for Alzheimer's where I live. I have like a thousand questions but here are a few.... Which "brand" is most effective? Which has least side effects? Are the infusions painful? If they do cause side effects... How long do they typically last? Can you "gut it out" or…