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Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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how to tell others of my diagnosis
I was diagnosed with mild Alzheimers last month. I told my immediate family members (none of them were surprised). They are incredibly supportive. But I feel like I'm in a pressure cooker. I want to tell others and did tell two lifelong friends. Their responses were not helpful—one said tough diagnosis. She clearly didn't…
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Watching Alzheimer’s Take My Grandmother Changed Me! Now I Want to Build Something That Helps
After losing my grandmother to Alzheimer’s, I’ve been thinking a lot about how difficult this journey is for families and caregivers. I’m an engineer and want to use technology to make people’s lives more comfortable and better in this space, but I know I need to understand the real problems first. If you’ve worked in…
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end-of-life decisions
What are the options for a dignified death if your state has not legalized medical-aid-in dying (MAID)?
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When friendship is impacted
I suspect a dear friend of mine has early onset. This person's mother had Alzheimer's and passed away as a result. My friend is in their mid-60s and is dealing with the recent death of a spouse so for the past two or so years I've attributed recent behavior changes (verbal outbursts, mostly) to grief and having to navigate…
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Seeking volunteers to serve on Alzheimer's Association Early-Stage Advisory Group
I'm a member of the Alzheimer's Association Early-Stage Advisory Group (ESAG). This year's diverse group includes 10 others besides myself, with a variety of education and work experiences. I've learned they are all much better communicators than I am. :) ESAG members serveone year terms, the new group will start on July…
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Leqembi Infusions
I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.
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Starting LEQEMBI next week need some advice
Just was diagnosd 4 weeks ago and start my Leqembi next weeek ….I hate needles and I would like some information on what to expect…Thank you so much.. I have had 2 TIA's and am a little worried about this whole Leqembi thing. Is the first time really bad or is it doable? thank you so much for this web site I had no idea…
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Newbie here trying to navigate this
Hello, Not formally diagnosed yet, but my pTau-217 LabCorp test showed a .37 result. I was already diagnosed with MCI last March. My pTau test last year resulted in a .18 which is right at the cutoff, thus the retest. So somehow my levels doubled in a year. This shocked my doctor who seemed to poo poo my concerns up until…
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Spousal Imposter
Posting for my elderly stepfather but does anyone know how to best manage a DW with who does not recognize her husband or her home every single night? She is fine during the day but around 7:00 gets incredibly mean, accusatory, and fearful?
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In person weekly meeting
I am 75 and was diagnosed with Alzhiemer's in August 2025. I am currently taking Kisunla infusions. I'm in the early stage. My wife and I are interested in starting a weekly in person meeting for sharing and mutual support. We live in Houston, near downtown. Please respond if you are in Houston and interested in an in…
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Alz w/brain bleed complication.
I have been diagnosed with Alz with the complication of excessive existing iron deposits. My neurologist is reluctant to prescribe either of the two infusions due to the risk of hemorrhaging. I have two questions/requests. Is there anyone out there that has this complication and has been prescribed a medication other than…
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Just moved mom in
Our mom was diagnosed with Alzheimer's at 65…it's been a long journey with several moves but today at 79 we moved her into my home for hospice care. She can't talk and is so frail and stiff, my only hope is I've done the right thing for her and my sister and I. I keep wondering if I did the right thing and will I be able…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Newbie ES
Background and introduction. I am a retired environmental chemistry professor who has experienced memory changes for the past couple years. This included headaches, dizziness and an inability to focus. It took 5 months to get an appointment with a neurologist. I finally got in in March 2025. (The waiting room was empty!)…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Not want to go out
What is the best way to get your Alz’s aunt to go to the doctor when she doesn’t like him and says she isn’t going but you have an appointment?
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stem cell therapy
Hello everyone: I'm considering stem cell therapy. I'm wondering if anyone has gone down this path or know anything about it. I've researched it, but I think its pretty new in Alz treatment. thanks Pam
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Knowing doesn't change the losses
I am recently DX'd w/ early onset Alzheimer's (who I call Al, who is friends with my other guy ARThritis). I am a Former Alzheimer's specialist serving as the director of a local Alzheimer's association, Developer and creator of residential services and, in my youth, a personal care worker for those with Alzheimer's. None…
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New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
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ALZ?!? Now what??
I'm so glad I found this forum! I'm newly diagnosed and beginning this journey with a lot "what now" questions. I'm trying to process the emotional side of this while piecing together all the things that need to be done to prep me and my family for what is to come. I knew I was having trouble 2 years ago with cognative and…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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New Life
Hello. I’m 43 and was diagnosed with dementia two weeks ago. Still doing mri to test this word I don’t remember and that word I don’t remember. Just wondering if anyone else has had this problem start this early in life. At this point I feel alone with all this.
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New dementia diagnosis and questions on surgery
My 72 yo DH was diagnosed last year with mild Alzheimer’s, moderate vascular dementia and Frontal lobe atrophy. In 2004, he had stage 4 lung cancer and 2005 brain tumor removed and whole brain radiation. He has CoPd. It took us 16 months to see a neurologist, she wanted to put him on Leqimbi for the AZ but his MRI showed…
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Anger problems
do anger issues always come with dementia? I feel so bad- husband getting angry at the dog over nothing- this morning hes on the phone yelling at soliciters.- calling them back over and over to harass them . I cant say anything to him he will blow up at me
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It'd how to go ir alone?
I was diagnosed year ago this month. Ill be 60 and seems been losing focus sometimes uhm frustrated sometimes just saying things probably shouldn't. I do forget somethings like where i delivered a couple of days ago . Like names of city or towns . I know there is sites to turn to but .Just looking for conversation about…
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CSVD and behavioral changes
I was diagnosed last year with CSVD, but for about the last 3 years, I’ve gotten angrier, losing my short term memory, so much to the point where I can’t even hold proper conversations, because I’m often getting in arguments with my adult children, and often can’t remember what it was about. Is this common with CSVD? Thank…
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Christmas gifts for someone with Alz
My wife has advanced Alzheimer's. She cannot walk or talk. What do others suggest for Christmas gifts for her?
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Alzheimer's communication tips
Found this in another group and thought it'd help here: If you're caring for someone with Alzheimer’s, adjusting how you communicate can ease frustrations and improve understanding. From visual cues to gentle tone changes, these strategies can help build connection. Learn more about how to communicate effectively with…
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92 years young no longer able to live independently
I have recently moved to my daughter’s home in Alaska as my memory has (lack of) caused me many problems. Doctors here indicate there is no conclusive testing for Alzheimer’s/brain disease and I have been given no clue as to my brain health or diagnosis. Parkinson’s was suggested but I do not have 2 of the 3 required…
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Newly diagnosed this week
67 yrs old and just diagnosed with Alzheimers. For the past 6 yrs I've been diagnosed with mild cognitive decline but it just started getting worse. The memory clinic I go to had me go through a spinal tap, mri, amyloid PET/CAT, and genetic testing. All tests revealed frequent Amyloid which is now in the gray matter of my…