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Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know who have used it.
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Neurologist Book on what he learned from his own AD
The December 7 edition of the Washington Post had an article by Daniel Gibbs. He practiced general neurology for 25 years, and treated some patients with dementia. He had two copies of the APOE4 gene. His PET scans showed elevated levels of tau. He was part of the phase 3 trial for Aducanumab, he developed ARIA and was in…
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Warning: Avoid Brain Injury in mAb Clinical Trials.
In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted into the study in January. After taking 5 doses, one injection each week for five weeks, I started getting side effects. I…
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HIghly Recommend Citicoline For Early/Mid Stage
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Conflicting Neuroquant MRI and Petscan
I am have started Kisunla infusions, and after my first treatment I had a “ neuroquant MRI” in order to detect if there has been any brain hemorrhages due to the medication. The results fortunately came back negative and the report also mentioned that I do not have brain atrophy. Other MRIs have said I have more brain…
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Improving emergency care for people with dementia
Michael Ellenbogen has been working on this important project for quite some time. He sent me the linked article. He is one of the co-authors. https://outlook.live.com/mail/0/inbox/id/AQMkADAwATE0YTEwLTZkZWMtZWY4Ni0wMAItMDAKAEYAAAMe8X2mg8UKQKMXq%2BSo2HGuBwC6%2FjKngSETRo24yIoaaSzbAAACAQw
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Granddaughter to one suffering from Alzheimer's and Hospice professional
Hi everybody! I am new to this site, but wanted to sign up, to try to help others caring for/living with someone suffering from Alzheimer's/dementia. I have recently started working as an account executive/community liaison for a hospice company, where I have learned so much already. My grandmother also has dementia, so I…
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What does having a short memory loop feel like?
I wonder what a PWD with a short memory loop, unable to create new short-term memory, feels like? For example, when I wake up from sleeping, I may remember some dreams, or maybe having gone to sleep. Maybe a better example is awakening from anesthesia. In either case, you remember very little until you go about the process…
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New, Scared and Confused...
I'm obviously a newbie to this site, as well as the amazing and mysterious world of Alzheimer’s. I began seeing a neurologist last summer because of an inability to think as clearly as I once did. Memory didn't seem like much of a problem since as far as I can remember, I always had a bad memory. Other issues that I…
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Talking with others in early stage dementia
Talking with others in early stage dementia
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sundowning
My mother is 84 and has been sundowning for almost a year. It occurs when she asks about her husband (my father) who passed away 7 years ago. My brother and I started out with the approach of just telling her the truth which I know is considered a bad idea. But here it the problem, we have tried other approaches. It was…
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Formication
Is formication a symptom of Alzheimer’s, I have mixed dementia and I seem to get this sensation quite often.
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New here, are there any books aimed at the person who has dementia?
Hello, I had the slum test and was found to me on the border of mci and dementia. Thyroid test and b12 test came back normal range. Waiting on diabetes and will have an MRI on Friday. I am wondering if there any books you can recommend that are directed towards the patient and not necessarily the caregiver. I found a lot…
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Just looking for some support
For the past two years my partner and I have taken in his mother who has Alzheimer's and her partner who has dementia. He has since gone to a nursing home but my partner's mother is still at our house. She's in the late 6th stage of Alzheimer's. She has serious incontinence issues on a daily basis and is reliant on us for…
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Today
Good day but cooler today. Becoming Autumn. Doing fine with some gummy assistance Sat PM now but nothing is really happening now? Anyone around?
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I would like to speak with someone else who has Alzheimer's
People without Alzheimer's keep responding to my entries. I would love to join a forum where I can actually interact with people who have Alzheimer's, not mci and not caregivers. Thanks
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New here and need to talk to others
Hello. My name is Jacki and I am 68, diagnosed with moderate cognitive impairment that is not Alzheimer’s. Right now I’m having a heck of a time trying to convince my insurance to let me go to a huge brain and memory center run by the Universty of Washington. We have one neurologist in town who is doing a lot with…
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I am a caregiver for my mother and brother I also have Alzheimer's
I took care of my Mother, Brother and myself . At time I was in a stage 2 of Alzheimer's My mother recently died , and I have my brother still to care for though it is getting harder and harder. As I am in stage 3 .I would like to see if I am eligible for trial but I have not heard any thing yet .Or perhaps I got lost in…
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What were your first symptoms?
I am curious what the early symptoms those here experienced? Long-term or short-term memory loss? decrease in ability to focus? Any other mental symptoms? Any physical symptoms? Were the symptoms constant? or episodic/occasional? I have had episodes of extreme foggy-brainess over the past 5 years along with a loss of…
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Going out to eat/ shopping
How many go out eat? We go out at least once a week usually at lunch.( we don't get up early enough to go out for breakfast HA! HA!)i will go anywhere my wife. My wife prefers fish (usually haddock) Today she had she had shrimp as camping i had spaghetti and meatballs and minestrone soup. Since COVID we do all of our…
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Early onset Alzheimer’s
Does anybody get frustrated doing games on the I pad feels like I can’t even do a word search with out getting frustrated these days.
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Who’s Here ???
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Llooking for alternative treatment options
Hello, I am being evaluated for Vascular Dementia. MRI showed plaque build up, cognitive test showed difficulty in executive decision making. Live near Dallas. Looking for doctor/alternative treatment options .
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Just me
I’m an early AD individual. Each day is fine. I also take Lexapro for impulse control and cannabis to get by Good 9/11 so far off for coffee with Howard soon
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Newly diagnosed MCI
My husband and I were both just diagnosed with MCI. He is showing more cognitive issues, I’m having trouble naming things and short term memory. I’m reading that MCI doesn’t necessarily advance to AD. what is the experience here with that?
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Recent Diagnosis
I was just diagnosed yesterday with early stage Alzheimer’s. I am overwhelmed with fear. I go from being hopeful to having very little hope at all. I’m afraid of who I will become and what my illness will do to my partner. I came here for emotional support and guidance regarding how to move forward.
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New diagnosis - how to help our Dad understand it?
[Reposted to caregiver forum] Hi, our Dad was recently diagnosed with Alzheimer's and we're looking to help him understand what this means/how it will change some of what he needs. Is there someone—a clinician, a social worker, or a group that we can go to in order to have an open conversation, where he (and we) can ask…
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Trying to do what is best for everyone
My dad has alzheimers my mom and him have been married for 67 years. My mom was caring for him in their apartment. 2 weeks ago she said she just couldn't do it anymore. We set up an appointment to meet with a facility ( we did not want this but knew our mother needed more help) Also we had been staying my sister and I at…