-
Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
-
Knowing doesn't change the losses
I am recently DX'd w/ early onset Alzheimer's (who I call Al, who is friends with my other guy ARThritis). I am a Former Alzheimer's specialist serving as the director of a local Alzheimer's association, Developer and creator of residential services and, in my youth, a personal care worker for those with Alzheimer's. None…
-
New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
-
Leqembi Infusions
I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.
-
Just moved mom in
Our mom was diagnosed with Alzheimer's at 65…it's been a long journey with several moves but today at 79 we moved her into my home for hospice care. She can't talk and is so frail and stiff, my only hope is I've done the right thing for her and my sister and I. I keep wondering if I did the right thing and will I be able…
-
ALZ?!? Now what??
I'm so glad I found this forum! I'm newly diagnosed and beginning this journey with a lot "what now" questions. I'm trying to process the emotional side of this while piecing together all the things that need to be done to prep me and my family for what is to come. I knew I was having trouble 2 years ago with cognative and…
-
stem cell therapy
Hello everyone: I'm considering stem cell therapy. I'm wondering if anyone has gone down this path or know anything about it. I've researched it, but I think its pretty new in Alz treatment. thanks Pam
-
Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
-
New Life
Hello. I’m 43 and was diagnosed with dementia two weeks ago. Still doing mri to test this word I don’t remember and that word I don’t remember. Just wondering if anyone else has had this problem start this early in life. At this point I feel alone with all this.
-
New dementia diagnosis and questions on surgery
My 72 yo DH was diagnosed last year with mild Alzheimer’s, moderate vascular dementia and Frontal lobe atrophy. In 2004, he had stage 4 lung cancer and 2005 brain tumor removed and whole brain radiation. He has CoPd. It took us 16 months to see a neurologist, she wanted to put him on Leqimbi for the AZ but his MRI showed…
-
Anger problems
do anger issues always come with dementia? I feel so bad- husband getting angry at the dog over nothing- this morning hes on the phone yelling at soliciters.- calling them back over and over to harass them . I cant say anything to him he will blow up at me
-
When friendship is impacted
I suspect a dear friend of mine has early onset. This person's mother had Alzheimer's and passed away as a result. My friend is in their mid-60s and is dealing with the recent death of a spouse so for the past two or so years I've attributed recent behavior changes (verbal outbursts, mostly) to grief and having to navigate…
-
It'd how to go ir alone?
I was diagnosed year ago this month. Ill be 60 and seems been losing focus sometimes uhm frustrated sometimes just saying things probably shouldn't. I do forget somethings like where i delivered a couple of days ago . Like names of city or towns . I know there is sites to turn to but .Just looking for conversation about…
-
CSVD and behavioral changes
I was diagnosed last year with CSVD, but for about the last 3 years, I’ve gotten angrier, losing my short term memory, so much to the point where I can’t even hold proper conversations, because I’m often getting in arguments with my adult children, and often can’t remember what it was about. Is this common with CSVD? Thank…
-
Christmas gifts for someone with Alz
My wife has advanced Alzheimer's. She cannot walk or talk. What do others suggest for Christmas gifts for her?
-
Alzheimer's communication tips
Found this in another group and thought it'd help here: If you're caring for someone with Alzheimer’s, adjusting how you communicate can ease frustrations and improve understanding. From visual cues to gentle tone changes, these strategies can help build connection. Learn more about how to communicate effectively with…
-
92 years young no longer able to live independently
I have recently moved to my daughter’s home in Alaska as my memory has (lack of) caused me many problems. Doctors here indicate there is no conclusive testing for Alzheimer’s/brain disease and I have been given no clue as to my brain health or diagnosis. Parkinson’s was suggested but I do not have 2 of the 3 required…
-
Newly diagnosed this week
67 yrs old and just diagnosed with Alzheimers. For the past 6 yrs I've been diagnosed with mild cognitive decline but it just started getting worse. The memory clinic I go to had me go through a spinal tap, mri, amyloid PET/CAT, and genetic testing. All tests revealed frequent Amyloid which is now in the gray matter of my…
-
Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.
-
Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
-
74 MCI/ALZ
Hello. I am grateful to be able to communicate with others in this forum. I received a confirmed diagnosis on Dec. 2, 2025. I am at an early stage, so I'm taking the time to do thorough research. My local neurologist has suggested Kisunla; I've been approved to start it. Kisunla was only recently approved in the EU and, as…
-
The Story of Ralph Carmona
The Alzheimer's Association (the sponsor of this forum) posted on their facebook page some "feel good" stories of people with AD in December. I'm finally getting around to sharing one of those posts with this group, the story of Ralph Carmona. Their version leaves out some interesting details. Ralph has a PhD in Political…
-
NEWLY DIAGNOSED VASCULAR DEMENTIA
Hi! I'm Matt, 21, 4th yr CpE student. My mother was diagnosed with Vascular Dementia literally a few minutes ago. During the doctor's assessment, I can see the massive decline in her cognitive function, which saddens me extremely. It breaks my heart to see my mother suffer from this. She is a pre-school teacher and she…
-
Quite shocked
Hi....my dr. was not expecting a diagnosis of Alzheimers. (neither was I!) He's a great neurologist and he could barely talk. We are going to move into an retirement community that has help with memory, etc. I just hate thinking about Az every moment. Thanks for listening.
-
She loves me and loathes me
My wife of 55 years has Alzheimer’s and I thought I could manage this problem. I watched my lovely mum disappear into the state of madness and in hindsight I think now I was too tough on my Dad for not being able to understand that my Mum (her original being) had left. He was arguing with her shell. It’s my turn now and…
-
Waiting and waiting to finish last Dx test
I see so many here who have been newly diagnosed, and I truly hope you can all get the support you need. I have had all the medical Dx tests—MRIs, biomarker blood work, PET scan. They all point to early stage ALZ, but I still need to have the comprehensive neuropsyche evaluation, but I need to wait until late March to…
-
Looking for Support Here
Hello all, I have some form of dementia that may be vascular or Alzheimers. I have had the ususal tests, MRIs, blood work for biomarkers, PET scan and consultation with well respected neurologists in Northern Virginia. I am looking more for support both emotionally and in terms of locating resources for support available…
-
What do you wish your LO could know about you, do for you, or say to you?
I am a retired teacher. When I was teaching, one of my favorite books was I Wish My Teacher Knew, by Kyle Schwartz. I believe the book helped me to be a better teacher. Now, I am a caregiver for my husband (DH) who has dementia. To be a better caregiver, I want to know… What do you wish your spouse, loved one (LO), or…
-
Caregiver
My DH, has Alzheimer’s and I am the caregiver. My fear is that I won’t know when the best time will come for an outside care giver to come in and assist or even when it might be better if he were in a facility with more care than can do. My desire is to have him at home as long as possible. He’s 81 and I’m only 70. I’m…
-
Newbie ES
Background and introduction. I am a retired environmental chemistry professor who has experienced memory changes for the past couple years. This included headaches, dizziness and an inability to focus. It took 5 months to get an appointment with a neurologist. I finally got in in March 2025. (The waiting room was empty!)…
-
Recently diagnosed
I was diagnosed by a neurologist a few months ago The only testing I s were 2 EEG‘s one in office and a 2 day one at home and the psycologist with neurology which included variety of memory/skills testing. After that she said I had mild cognitive and she thought it was probably Lewy Body. Suggested driving test and sent me…