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I Am Living With Alzheimer's or Other Dementia

Share Your Story with the Alzheimer's Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout …
Closed
Announcement
Started by [Deleted User]
I Am Living With Alzheimer's or Other Dementia
282
Jun 4, 2024
2
helping my brother with short term memory loss as his guardian
I am at a loss. My brother lost his wife and continued to drink heavily. Became real sick and ended up with dementia/short term memory loss. He was able to gain a little back but I don't know what to …
Started by helpless65
Most recent by Iris L.
I Am Living With Alzheimer's or Other Dementia
23
Mar 27, 2025
1
2
What were your first symptoms?
I am curious what the early symptoms those here experienced? Long-term or short-term memory loss? decrease in ability to focus? Any other mental symptoms? Any physical symptoms? Were the symptoms cons…
Started by Lauralynn59
Most recent by terianne_s
I Am Living With Alzheimer's or Other Dementia
367
Mar 26, 2025
3
13
67 and diagnosed with ALZ 2 years ago
Would like to find others to converse with in the Del Mar area. I retired 2 years ago due to ALZ. Finding it lonely since husband works and I no longer drive. Either in person or online. Thank you.
Started by dhminard
Most recent by Watson1
I Am Living With Alzheimer's or Other Dementia
73
Mar 13, 2025
0
1
AAIC For All; Alzheimer's Association International Conference
The banner for the Alz Connected website indicates this site is "a dedicated community where people with Alzheimer’s, their caregivers, and others affected by the disease can share answers, opinions, …
Started by LBC83
I Am Living With Alzheimer's or Other Dementia
31
Mar 11, 2025
1
New to Alz
J & L are new to Alz. We have one support group in 52241 and we are the only active members. Our diagnosis is "Early-Stage" and we are in the upper 80s but otherwise in good health. We have freely sha…
Early Stage (Mild)
Asking for Help
Support
Started by Jarol
Most recent by LBC83
I Am Living With Alzheimer's or Other Dementia
52
Mar 10, 2025
0
1
Hello I'm back
I've been in the hospital almost the entire month of February withe the flu I'm almost back to normal. My main problem is I have hard time standing up without help. I hope pt will help me get better.
Started by David1946
Most recent by Iris L.
I Am Living With Alzheimer's or Other Dementia
68
Mar 9, 2025
0
4
Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know…
Treatments
Started by gsergenian
Most recent by LBC83
I Am Living With Alzheimer's or Other Dementia
426
Mar 8, 2025
0
20
New Here…
Hello all, I joined this page on behalf of my husband he was diagnosed with Alzheimer’s at the age of 54. I am currently his caregiver and plan on being by his side through this entire process. We are…
Started by S&J1994
Most recent by David1946
I Am Living With Alzheimer's or Other Dementia
91
Mar 8, 2025
2
4
Revealing diagnosis
How and when does one begin the process of revealing the diagnosis?
ALZConnected How-To
Early Stage (Mild)
Mild Cognitive Impairment
Started by didihamrick
Most recent by eaglemom
I Am Living With Alzheimer's or Other Dementia
496
Mar 8, 2025
1
36
Kisunla
I am interested in hearing from someone who has experience with Kisunla infusions. Thanks! Didi
Started by didihamrick
Most recent by BadMoonRising
I Am Living With Alzheimer's or Other Dementia
87
Feb 25, 2025
1
7
Genetic Testing
Is an order for genetic testing routine for those diagnosed with AZ?
Started by didihamrick
Most recent by LBC83
I Am Living With Alzheimer's or Other Dementia
44
Feb 24, 2025
0
2
Not eating food
Hello I am from India My grandmother has dementia she forget daily tasks but remember family members. Now she is not able to eat food Md difficulty in walking while standing she rejects to walk.She pr…
Started by tabasum
Most recent by TT019
I Am Living With Alzheimer's or Other Dementia
120
Feb 22, 2025
1
4
Dementia discussion
Hi All, I am new to this site and wondered if my experience resembles anyone else's. So far, I have had the following tests, which all came out ok. CT Angiogram, EEG Brainwave, Echo Cardiogram, PET Sc…
Started by vpball1325
Most recent by allit
I Am Living With Alzheimer's or Other Dementia
79
Feb 21, 2025
0
2
Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. S…
Asking for Help
Care Options
Anxiety
Started by Mia0126
Most recent by Mia0126
I Am Living With Alzheimer's or Other Dementia
194
Feb 15, 2025
0
7
Warning: Avoid Brain Injury in mAb Clinical Trials.
In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted…
Safety
Hallucinations
Medication Safety
Started by PHDoc
Most recent by LBC83
I Am Living With Alzheimer's or Other Dementia
236
Feb 10, 2025
0
14
Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my proce…
Started by averyfam
Most recent by BadMoonRising
I Am Living With Alzheimer's or Other Dementia
543
Feb 10, 2025
0
26
Hi I am new here and have questions
My mom has had dementia now since 2014. She is in a Dementia group home. I am struggling with the dementia and not sure how to handle it. She just lays in her bed all the time and never walks. She is …
Started by Hisbeauty4ashes
Most recent by marionwilhelm
I Am Living With Alzheimer's or Other Dementia
49
Feb 8, 2025
1
1
Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophr…
Caregiver Health
Dementia
Care Options
Started by meme
Most recent by Watson1
I Am Living With Alzheimer's or Other Dementia
74
Feb 4, 2025
0
1
Conflicting Neuroquant MRI and Petscan
I am have started Kisunla infusions, and after my first treatment I had a “ neuroquant MRI” in order to detect if there has been any brain hemorrhages due to the medication. The results fortunately ca…
Early Stage (Mild)
Asking for Help
Mild Cognitive Impairment
Started by Jack16
Most recent by gsergenian
I Am Living With Alzheimer's or Other Dementia
273
Jan 24, 2025
1
9
New, Scared and Confused...
I'm obviously a newbie to this site, as well as the amazing and mysterious world of Alzheimer’s. I began seeing a neurologist last summer because of an inability to think as clearly as I once did. Mem…
Asking for Help
Cost of Care
Depression
Started by Tim Landers
Most recent by LBC83
I Am Living With Alzheimer's or Other Dementia
1336
Jan 23, 2025
11
53
Talking with others in early stage dementia
Talking with others in early stage dementia
Started by nanetteshapiro
Most recent by LBC83
I Am Living With Alzheimer's or Other Dementia
522
Jan 21, 2025
0
25
How to handle angry people?
I am 74 and have been married for 52 years. I have been slowly declining since 2020. I was happy that I maintained an abiliity to craft a sentence. I have a husband, 74, and two sons, 50 and 48. THe 5…
Asking for Help
Stress
Memory Loss
Started by Doulton
Most recent by smarie
I Am Living With Alzheimer's or Other Dementia
153
Jan 17, 2025
0
3
New to site & need support
Over the last several months, my HCP’s have diagnosed me with Mild Cognitive Impairment, Parkinson’s Disease, and/or Vascular Dementia/AD. I’m cognizant all these overlap within the domain of neurodeg…
Started by GabbyB
Most recent by GabbyB
I Am Living With Alzheimer's or Other Dementia
121
Jan 13, 2025
2
11
HIghly Recommend Citicoline For Early/Mid Stage
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two yea…
Started by allendswell
Most recent by paperrockscissors
I Am Living With Alzheimer's or Other Dementia
243
Dec 29, 2024
1
7
Neurologist Book on what he learned from his own AD
The December 7 edition of the Washington Post had an article by Daniel Gibbs. He practiced general neurology for 25 years, and treated some patients with dementia. He had two copies of the APOE4 gene.…
Living with Dementia
Started by LBC83
Most recent by Larrytherunner
I Am Living With Alzheimer's or Other Dementia
130
Dec 12, 2024
0
2
Improving emergency care for people with dementia
Michael Ellenbogen has been working on this important project for quite some time. He sent me the linked article. He is one of the co-authors. https://outlook.live.com/mail/0/inbox/id/AQMkADAwATE0YTEw…
Started by Lane Simonian
Most recent by LBC83
I Am Living With Alzheimer's or Other Dementia
71
Dec 2, 2024
1
3
New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood…
Early Stage (Mild)
Asking for Help
Mild Cognitive Impairment
Started by Jack16
Most recent by Jack16
I Am Living With Alzheimer's or Other Dementia
201
Nov 26, 2024
1
4
Granddaughter to one suffering from Alzheimer's and Hospice professional
Hi everybody! I am new to this site, but wanted to sign up, to try to help others caring for/living with someone suffering from Alzheimer's/dementia. I have recently started working as an account exec…
Started by Kgrove
I Am Living With Alzheimer's or Other Dementia
79
Nov 20, 2024
0
What does having a short memory loop feel like?
I wonder what a PWD with a short memory loop, unable to create new short-term memory, feels like? For example, when I wake up from sleeping, I may remember some dreams, or maybe having gone to sleep. …
Started by dancsfo
Most recent by r_geloni
I Am Living With Alzheimer's or Other Dementia
150
Nov 19, 2024
0
4
sundowning
My mother is 84 and has been sundowning for almost a year. It occurs when she asks about her husband (my father) who passed away 7 years ago. My brother and I started out with the approach of just tel…
Asking for Help
Started by Brent Craig
Most recent by AlzWife2023
I Am Living With Alzheimer's or Other Dementia
132
Nov 15, 2024
0
3

Commonly Used Abbreviations

DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

Community Guidelines

Click here to review the ALZConnected Community Guidelines

Dementia Resources

Looking for information and support for Alzheimer's disease or other dementias? Click here to view our Dementia Resources

I Am Living With Alzheimer's or Other Dementia

I Am Living With Alzheimer's or Other Dementia

Share Your Story with the Alzheimer's Association

helping my brother with short term memory loss as his guardian

What were your first symptoms?

67 and diagnosed with ALZ 2 years ago

AAIC For All; Alzheimer's Association International Conference

New to Alz

Hello I'm back

Treatment with Lecanemab (Leqembi®)?

New Here…

Revealing diagnosis

Kisunla

Genetic Testing

Not eating food

Dementia discussion

Is there any other way to relieve agitation besides medication?

Warning: Avoid Brain Injury in mAb Clinical Trials.

Questions about taking Donepezil Brand names: Aricept

Hi I am new here and have questions

Dementia

Conflicting Neuroquant MRI and Petscan

New, Scared and Confused...

Talking with others in early stage dementia

How to handle angry people?

New to site & need support

HIghly Recommend Citicoline For Early/Mid Stage

Neurologist Book on what he learned from his own AD

Improving emergency care for people with dementia

New to forum just diagnosed with Amnestic MCI due to Alzheimers

Granddaughter to one suffering from Alzheimer's and Hospice professional

What does having a short memory loop feel like?

sundowning

Welcome!

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I Am Living With Alzheimer's or Other Dementia

I Am Living With Alzheimer's or Other Dementia

Discussion List

Welcome!

Quick Links

Commonly Used Abbreviations

Community Guidelines

Dementia Resources

Categories

Popular Tags