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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Geriatrician vs. Geriatic Psychiatrist?
My DH is in stage 4, possibly early stage 5. The amount of meds that he takes has increased over time and were individually prescribed by different doctors. He is currently at the maximum recommended dose for each of them, but it's clear that he needs more/different meds to manage increasing delusions, insomnia and…
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Coping methods
most times i'm fine. sometimes i feed either angry, sad or frustrated. the following help me cope; walking away for several minutes when i'm getting angry. regular exercise both cardio and weights. some cardio gets endorphins flowing providing euphoria. living in the moment -enjoying the good times together and know the…
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Moving DW home from MC
i’m writing this for my father. He’s 86 and my mother is 84 and has Alzheimer’s. In mid April we moved my mom into MC. My dad really was against it for a long time but beginning in February things made a sharp turn for the worse. Her delusions were much much worse. There no sleep through the night, she was often thinking…
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Labor Day - nada
Well, it’s a 3 day weekend. My son, who lives on the west coast decided to go visit friends in Texas. And my one daughter who lives 300 miles away decided to go on a cruise. And the other daughter who lives there, well, I have no idea, she never bothers to call. And my sister in law, who lives 4 doors up, well, it hasn’t…
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Moved to NC, 2640 miles one driver, DH with VD and 2 dogs!
My son and his family live here and now so do we. I felt the window of opportunity closing rapidly. DH's mobity is declining rapidly. Difficult to walk with a walker or stand independently. He is still capable of understanding and thankfully was able to sign the papers for selling and buying the homes. I did underestimate…
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Stage8
My DW passed on Saturday August 29. Our journey began in2017. I found this site VERY helpful! I read so much about what we had gone through and what we were about to go through. It was an incredible tool for help. I was the sole caregiver for my DW for 8+years. I now need to get through all the paperwork that is necessary.…
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New MCI diagnosis/Upcoming travel
Hello, I’m grateful for this community! I’ve been learning so much from your experiences with this horrible disease. My 68 LO has recently been diagnosed with mild cognitive disorder. He has a brain mri coming up along with neurological appointments. I’m relieved that I have a diagnosis this far — it explains what I have…
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Just need to talk to my friends (222)
Morning. Happy September! Dove season begins today and some big, brave men are out shooting little.birds. Noisy here with all the shooting east of us. No hunting on our place. Can't understand why Mike is allowing it because of his cattle. Maybe it's South of me - with my hearing deficit it's hard to tell directions. Sorry…
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Medical Care for LS ALZ in a MC Facility?
Hello, My DW is an LS ALZ patient now living in an MC Facility near me. The facility has onsite nurses and a PCP who comes by periodically. I'm assuming that the meds she gets are now under the PCP. Before she was in this facility, she'd see specialists such as a cardiologist, neurologist, ophthalmologist, and…
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treatment
First, thank you to the responders to my first question. Anybody familiar with the claim that Cuba has a medication/treatment called Neural CIM that supposedly has clinically significant positive results for Alzheimers? My brother sent me link but I am highly skeptical. Supposedly our own NIH started trials but stopped as…
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Spinal Tap/Lumbar Puncture
Has anyone done a spinal tap/lumbar puncture recently to help diagnose (rule in/out) which neurodegenerative disease is affecting the patient? Our neurologist says the more advanced techniques are much safer, guided by x-ray during the procedure. I'd like to hear real life experiences. Reason for asking is that DH is…
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Jealous ?
My 25 yo granddaughter moved in two weeks ago; remaining with us until her temporary position turns into full time in January. She's mine, not my DHs granddaughter. Shes a lovely young woman, responsible, keeps her room clean, does her own laundry, is quiet and respectful around DH. DH is not acting dear, whatsoever. He…
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Dietary Changes
Hello! I have found this site very helpful thus far, and am hopeful for any advice regarding meals. My DH is late Stage 5 and moving into Stage 6 (DBAT). Before AD, he had a vast palate and would eat anything I cooked. From simple to complex flavors, textures, tastes, etc….and I have always enjoyed experimenting with…
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How to deal with 1) lost items, ie sunglasses, credit card, water bottle.
He gets frustrated and snaps at me. Accuses me of things I didn't say or do.
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So much truth in this post
I did not write this. Another woman wrote it on a dementia site elsewhere. She nailed. Stages: STAGE ONE: new diagnosis: “ I have to get everything right! I need to help him in all ways! I need to be on top of this! Line up drs appts. Read everything I can, buy notebooks to record each day etc etc STAGE TWO: realization.…
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Memory Care Facility and Volunteers
My So is in a memory care facility and spends the majority of time in their room. They keep telling me the want something to do. Ive told the staff what my SO likes to do and what board games and subject matters will keep them actively engaged. They say they will spend some time with them but after doing it once nothing…
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Manage stairs or move?
We live a in lovely condo community in a detached three story condo. My DH is in late stage 5 moving into stage 6. He is still physically fine. He walks slower but otherwise is ok. He had one fall about a year ago. Seems to handle the stairs ok in our home. Our primary bedroom is on the second floor. We do not have any way…
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Hopeless
My wife of 50 years has Alzheimer's. I am and have been caring for her. This past year has been unbearable. First a little context. Our daughter is 44 and lives with us. She is mentally and physically challenged and basically stays in her room. My wife has digressed so much this past year and I have tried everything…
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Can’t take it
My DH with dementia is driving me stark raving mad. Every single day, multiple times a day, I am looking for a dish towel or the sponge I use to wash dishes. DH takes them outside to dry. I have asked so many times for him to stop it, but it continues. That may sound petty, but add that to all the other things he puts in a…
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Walk With Bill_2001: Before & After Respite Care
Hi Friends, I posted earlier about my experience with a 4-day respite care stay for my dear wife. My wife is currently receiving hospice services at home, and I am still caring for her on my own while working full time. Hospice recommended respite care for my wife so that I could get some relief and rest. Respite is a…
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Does anyone have suggestions about which home products to get for home safety?
I will be looking for medical bracelet, home camera, door chimes, stove knob covers, plug in devices, etc. I am the wife and caregiver and it is time to safeguard. Thanks... Feel a bit overwhelmed
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does anyone know if medicare will cover in house care for patient?
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The Long Quiet
Dear Friends, I am quickly approaching ten years as a caregiver for my dear wife with late Stage 6 dementia. Alzheimer’s and dementia have long been known as The Long Goodbye because of the painfully long duration of the disease. No one knows how long their journey as a caregiver will go on, but I never imagined myself…
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How do you know the right time for memory care?
My wife is stage 6+ Alzheimer's. Over the last few months my DW's bowel incontinence has become troublesome. She no longer understands that she has soiled her underwear. It's hard for me to keep up with it. After my DW soils her underwear, she then refuses to have them removed. She just wants to pull them back up! It's so…
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Dementia is more than memory loss…
Dementia is not just memory loss. It’s cognitive decline. It affects the brain, and the brain controls everything. Movement. Sensation. Perception. Judgment. Sure, memory is part of that, but it’s not the whole picture. People can have dementia without obvious memory problems, and we are very bad at recognizing that.…
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Inpatient
My DH is so impatient. Going through the drive thru for food is crazy. He can't make up his mind and get aggravated if I ask him how he wants it. Then they take to long, can be at a restaurant too. Its getting to be frustrating. Just needed to vent for a min.. thanks.
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Just one of those nights
Some evenings the depression hits me a bit more than usual. I’m usually pretty positive, but for some reason tonight was different. I know my DH is progressing, nothing new there. But tonight an overwhelming sadness hit me. His fear when he calls my name not knowing where I am, him thanking me when I get him dressed and…
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How to handle delusions
I know the advice for handling delusions - don't argue, sympathize, redirect… But, what happens when that no longer works, because eventually it won't. My husband is moderate to severe and I know it is only going to get worse. Please don't suggest a memory care facility, that's not an option.
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iPhone "Assistive Access" - Enables simple phone use!
Hi Friends, My DW and I are normally home or shopping together, so I wasn’t concerned when using her iPhone became too complicated and she stopped using it. However, I’d like to sometimes visit the gym or have coffee with a friend, but I'm concerned she couldn’t contact me if I was away. I came across the “Assistive…
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Divorce
Happy September! My DH who is older than I am, was diagnosed with dementia about 2 years ago. I'm wondering if anyone out there has done/tried the 'divorce on paper only' to get DH on Medicaid?