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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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I need to tell my story of how I am here and how it has affected me
I am struggling, and have been masking for what seems like too long. I am burned out. I need someone to talk to about this, it's been a wild ride. I am in need of a listening ear. My husband has been diagnosed and I am really struggling to cope.
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Just need to talk to my friends (220)
Welcome to July!! One of my least favorite months because it is so hot. You all be careful In the heat. Not really sure.how long it will.be before I get the test results. One place I read said 72 hours and another said up to 14 days. My doctor did say it might be that I'm.not far enough along in the incubation period to…
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DBAT Scale; FAST Scale; and others?
Which of these scales have you folks found to be helpful? I am the sole caregiver for my 72 yo DH with dementia/Alz. We live in a rural mountain area. (We have all 4 seasons here).
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I just need to vent
It’s been said that no good deed goes unpunished…how true this idiom is. My husband had been wanting a dog since we lost our last one. I wasn’t sure we were ready but in a weaker moment I saw a dog on the county shelter site that looked like she would be perfect. She is 8 years old so no longer a puppy, was supposedly…
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FTD Complications
Yesterday morning, around 2:00 am I awoke to a crash sound coming from our kitchen. My 76 year old DW who has FTD and has an inverted sleep cycle, meaning she sleeps most of the day and gets up during the night, had fallen in the kitchen while getting a drink without turning on the lights. I rushed to the source of the…
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Negative Nellie here
My therapist wants me to journal something positive or a good thing that happens to me each day. I’m finding that difficult. Today I went to the dentist to have my teeth cleaned & checked. The dentist found a cavity. It’s the story of my life anymore. I really cannot find the good. My husband’s memory lapses are…
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My First Visit
I placed my DW into MC last Wednesday. At the suggestion of the facility we agreed that I would give my DW about a week to get her accustomed to her new surroundings. I’m planning on my first visit this coming Wednesday. I’m curious to see from you folks that have a LO in MC, how your first visit went.
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Defining "self-care" as a caregiver?
I thought I knew what it meant… I mean, generally, yeah. But for a caregiver of a spouse with YOA, I'm realizing I kinda don't know what that actually looks like. I'm going 110mph all the time and my brain hurts (nto to mention my eyes from all the reading, forms, etc.). I'm looking for hacks & visualization re: what…
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Question Re; The Dementia Behavioral Assessment Tool?
I didn't see the DBAT form on the Dementia Resources page here or on the Alzheimer's Assoc site. I'm wondering if this tool is outside the scope of AlzConnected? If it's cool for AlzConnected, does anyone have enough experience with it's use to answer some questions about some of the terminology, who fills out such a…
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Screaming into the Abyss
I am pretty new to this site so I hope if this post is not appropriate a moderator or one of you guys will let me know and I will delete it or have it taken down. So… A while ago when this journey was newer, to relieve pressure I would go into my shop, shove my face into a folded up hoodie sweatshirt and scream until I was…
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Sleep issues
My DH is 66 and was diagnosed last year with AD. The dr. said staging wasn't important and different with everyone, so I don't know where he really is right now. We are seeing a new neurologist Aug 7. Lately, his moods are up and down and his sleep is really off. He may sleep 3 or 4 hours and then want to nap all…
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How to respond when they are confused over reality and what they believe
Sorry this post is so long. Guess I really needed to vent in addition to asking this question. Here I am again after a while away. Seems life with my DH has consumed me a bit. I realize I need to come out from that and get back into reading posts here and asking for help. My DH is mid stage 5, but still able to care for…
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Ideas for things dh could “repair”
or take apart. My husband fiddled with taking apart an old garage door opener the other day (why he thought it needed taking apart is a mystery) and I thought more things like this would be good to have around to keep him occupied both here and at the day program he attends. They are having trouble with him being anxious…
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His journey is over
Dear friends, I wanted to let you know that my beloved husband, Alan, has completed his journey with vascular dementia and is now safely home with the Lord. Over these past months, I came here countless times looking for wisdom, reassurance, and practical advice as each new symptom and challenge appeared. So many of you…
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Medigap F, G and N, also high deductible
It's real now, we are moving from CA to NC. New house closes Friday, getting our home here ready for listing. We are leaving Kaiser Medicare Advantage and i am thinking of original medicare for my husband, since we are moving out of state and keeping Kaiser is not an option. We have the rare opportunity to select Original…
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Will a psychiatrist help?
i wonder if a psychiatrist will help my DW with her delusions? My DW has had a noticeable increase in delusions of someone trying to kill her and also of my imagined infidelity. These delusions occurring day and night are causing her to express ongoing anger, anxiety and sometimes depression. What has been the experience…
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NEWBIE too
Hello Everyone, I’ve been reading posts since I found alzconnected last week. Before that I think I was in denial about my DH; lately I can only read small doses of all of your helpful posts without feeling really down. But I am getting braver. My DH is diagnosed with late onset Alzheimer’s mild with anxiety. He doesn’t…
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My Husband Just Diagnosed with Early Onset Alzheimer's
Hello everyone, this is my first message, and I can use any advice you can spare. My 59-year-old husband was just diagnosed with EOA. We're both devastated. He was told he had ADHD a few years ago, plus he wears hearing aids (he's lost 90% of hearing due to being a former construction worker) so we thought his…
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New here. Not sure of help we need.
I am new here. My Dw and I have been on this journey for 6+ years. There were signs before that but they didn’t register until later. We have been going along since. I have looked for advice on how to do specific tasks, activities, appointments, etc. from our Primary DR, Neurologist DR, Senior Center, Alzheimer's…
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Delirium or progression
My DH is in his 12th year since Alzheimer diagnosis. Last Monday we went grocery shopping and he pushed the cart around with me, helped me put the groceries on the belt, and then in the trunk. Tuesday he got up and took a shower and we had coffee and talked. He had an episode where he lost consciousness during lunch. He…
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Rough Day
On the night of the 3rd my DW started emptying out her drawers and packing up her clothes. I ask what are you doing and she said I am going home as soon as my sister comes(her sister has been dead for years). I did everything I could to convince her that she is home and no need to pack up her things, but she wasn't hearing…
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The Last Two Years
Two years ago I thought I knew what love required. I thought it was anniversaries, vacations, inside jokes, holding hands in church, dreaming about the future. Then a thief named dementia walked through our front door and rewrote every definition. Love became lifting instead of leading, briefs instead of bouquets,…
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In-home healthcare advice for spouse
My father placed my mother in a memory care facility after her delusions became so extreme, and the agitation and physical aggression toward my father became a worry. We encouraged this out of fear for them both and the toll it was taking on my fathers health. It seemed our only option. Since then I’ve read so much more…
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Game playing
My DH, who is in stage 4-5 likes to play Rummicube and we play weekly with some others. He is surprisingly quite good and wins about 50% of the time. Lately he can’t remember the rules of the game and it is giving my an anxiety attack, trying to convince him to follow the rules. Our fellow players are very patient and…
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New to the group
Hey There My spouse has mild late onset AD and polyneropathy. We're in what I call the Dr Jekyll and MS Hyde stage. She can shower when I get her too, go to the bathroom though I question the paperwork, and she can walk within the house. I do all the finance and meals. I started having some folks come over to help…
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How to help with guilt
My husband has had slight (?) dementia for the past few years with a bit of difficulty walking, always shuffled, and balance issues. He is also an alcoholic. He has fallen 4 times in less than 2 years and could not get up each time. He fell 2 months ago which caused him to have a minor heart attack. He was hospitalized and…
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Choosing In Home Care
I am needing someone to come to our home just a few hours (3-4) a week to start with to be a companion to my husband. Maybe take him to hit golf balls or get a cup of coffee. Or just visit at home. I want to make the days more interesting for him and I need some time to regroup. There are hundreds of agencies and other…
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Closer to the End: Firmly in Stage 7
It is sobering to come to the certain conclusion that my dear wife is in Stage 7 of vascular dementia. The Cavalry never showed up, but I do have Hospice here regularly to check on her progression, offer medications and supplies, and provide practical planning. Hospice admission – whether at home or in a facility – has…
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Friend recently diagnosed - I'm seeking tips for interacting
Friend has consistent memory lapses. They often can't remember what day of the week it is. I meet them at the gym on Tuesdays and Thursdays. I send them a reminder text the night before and send one again the next morning about 45 minutes before we meet. They are unable to operate the locker combination at the gym without…
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Diagnosis restarts, conflicting medpro views, I'm burning out
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…