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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Hello! New Here!
Hello to everyone. My name is Mary. I am in SC with my DH who was recently diagnosed with early Alzheimer's a month ago. He is 77. He is between stages 1-2 and having a hard time accepting all of this. He has good days and bad. Today is bad and the mood swings are hard to follow. He says and does things that are angry and…
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Emma Willis
I know everyone’s journey is different and some of us are at different stages but I read a quote yesterday by Emma Willis when asked how they’re coping. She said caring for someone with dementia is like “ living in a constant state of grief “ That statement is stuck in my head now cause it resonates so profoundly. I know…
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Neuropsych Assessment/role in diagnosis
Husband with recent diagnosis of mild cognitive impairment based on assessments given by PCP & neurologist. Definitely struggling with executive functioning, short term memory and word finding/communication. MRI showed nothing out of the ordinary for his age. Did make note of a gilial scar on frontal lobe but indicated it…
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Just need to talk to my friends (222)
Morning. Happy September! Dove season begins today and some big, brave men are out shooting little.birds. Noisy here with all the shooting east of us. No hunting on our place. Can't understand why Mike is allowing it because of his cattle. Maybe it's South of me - with my hearing deficit it's hard to tell directions. Sorry…
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Just a SCREAM day
Dh with mixed dementia didn't sleep well last night. Was incon of stool today, which is new, and is very confused Its just been one of those days. So I'm screaming internally to you guys Hope I didn't bust your eardrums Thank you
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Thankfull
It is the little things I am so thankful for these days. My Dh is non verbal and is total care and sleeps 16-20 hours a day. Last night my son and I were getting him off the sofa into the wheelchair. He started to slip. I reached out and grabbed his shirt pulling him onto the wheelchair. He stated in a very clear voice…
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To move or not to move... I don't know what to do
I don't know what to do… We looked at a house this evening that would fix a lot of issues. It is in a neighborhood with an HOA. They mow the yard and shovel the driveway and sidewalk. For me, the big deal is that the primary bedroom is on the main floor. I have osteoarthritis and it isn't going to get better. The house is…
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A Petulant Child
its me who feels like a petulant child not my DH who, I really adore. I am so tired of trying constantly and doing constantly, being creative where I can and trying to find solutions,It's so very frustrating and exhausting. I am still trying to have a life for us within the boundaries of dementia. I am trying various…
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Moved to NC, 2640 miles one driver, DH with VD and 2 dogs!
My son and his family live here and now so do we. I felt the window of opportunity closing rapidly. DH's mobity is declining rapidly. Difficult to walk with a walker or stand independently. He is still capable of understanding and thankfully was able to sign the papers for selling and buying the homes. I did underestimate…
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Update
I wrote on Sept. 9th about my DH breaking his left hip and wrist. At that time, the doctor did not think he was going to survive since his lungs were filling up. The hospital talked to us about hospice care and I was thinking that would be what would happen when he got back to his MC. After DH removed the cast on his wrist…
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DW constantly accusing…
Hello, would love some advice how to handle a situation. My wife is in AD Stage 4/5 and is constantly agitated and stuck with thoughts of infidelity. Its constant that I have a girlfriend, have numerous women in our bed, in the shower, on and on. Its exhausting, frustrating, and frankly feels like a dagger that she is…
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Where are all my men caregivers
Hi All, Decided to place another post. Been going through some things. Although my DW was officially diagnosed with Alzheimers a few months ago, she's been showing signs for years. Forgetfulness, repeating herself, trouble doing things that she used to do without second thought. She has also been having communication…
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Trying to reduce anxiety with DW's anxiety
Not sure if I should be asking this question on this forum, but has anyone had success with CBD or CBD/THC combo in reducing loved one w/ dementia anxiety levels? I'm from California where it's legal. Let me know-Thanks
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WHAT TO DO?
My precious wife has come to the stage where she either won't eat, or at best eats very little. Is there anything I can do? I have read the articles about eating issues, and know that I cannot force, cajole, or threaten her. Your help in this matter will be greatly appreciated. CWB
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in denial
My husband whom was diagnosed mild to moderate mixed dementia w/alzheimers isn't accepting his diagnosis well. I have explained it to him and even showed him the seven stages and he tells me it isn't going to happen then he goes on to tell me that he hates me deep in his heart and blames me for things that has happened in…
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Coping methods
most times i'm fine. sometimes i feed either angry, sad or frustrated. the following help me cope; walking away for several minutes when i'm getting angry. regular exercise both cardio and weights. some cardio gets endorphins flowing providing euphoria. living in the moment -enjoying the good times together and know the…
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who's place is this
my spouse wakes up in the morning inquiring as to who's place is this. (we are in our home of 50 years). How about all those other places that we have…(we have no other places) How should I respond to this. I am her caregiver…married 57 years this month.
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So much!
First, I am glad to have the connection with you all as it does help to read others' posts and ideas for dealing with this disease. Also, not sure why I am listed as a he/him - I am the wife and caretaker of my husband. My hubby really has left me with such anxiety and worry the past 36 hours. He keeps walking out the…
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I ran across this. Wanted to share it
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Sharing a travel story
We just returned from a long weekend in Chicago (from CA), with another couple. They are long time friends and my DH travels well with them. We stayed in a hotel, and during the night DH became confused because he did not recognize the toilet! When he would stir I would take him to the toilet and all was well. The second…
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Social Security Disability and Medicare
My husband has been diagnosed with Alzheimer's at the age of 61. He will be leaving his job and going on Social Security Disability before the year is over. If, I am understanding correctly, he will not be able to get Medicare for his medical expenses until after 24 months. Can someone tell me if this is indeed true.…
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Shoe issue
My DH has an old pair of shoes he loves and he doesn’t want to wear any others. They are totally worn out especially the backs and inter soles with holes. I bought him a new pair which is identical to the old ones but he refuses to wear them because he says the old ones are more comfortable. The issue is he spends some…
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It is national assisted living week
I have never understood why memory care is always in an assisted living setting but it is what it is. This week is national assisted living week to celebrate residents and care givers. Those of us who are spending our life savings and 401ks on our spouses assisted living are not being celebrated or recognized. Typical of…
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Capgrass Syndrome
Hey folks, Hope some of you are having a pleasant day. I shared on an earlier post that my DW was forgetting who I am, mostly in the afternoon/ evenings. Now she is waking up not knowing who I am. The memory social worker mentioned that my wife more than likely has Capgrass Syndrome. She has been diagnosed with alzheimers…
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How early should spouse assume all driving or financial matters?
I sometimes wonder if I took on my wife’s usual tasks (driving, finances, etc.) too soon in an effort to avoid seeing her have an accident or to keep finances becoming too complicated. If she’s comfortable with me doing both, should I just continue, or should I encourage her to return to these tasks with a limited role in…
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Looking for independent caregiver
Hello! I am looking for an independent caregiver (not with an agency) for my 80 year old father who has moderate stage Alzheimer's. I would appreciate any advice on good ways to go about finding someone, please. Thank you!
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So much truth in this post
I did not write this. Another woman wrote it on a dementia site elsewhere. She nailed. Stages: STAGE ONE: new diagnosis: “ I have to get everything right! I need to help him in all ways! I need to be on top of this! Line up drs appts. Read everything I can, buy notebooks to record each day etc etc STAGE TWO: realization.…
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What I Miss
As my DH continues to lose his ability to live in the world we used to live in, this is what I miss: Conversation that is without repetition and constant reminders of who or what we are talking about Living one minute without being vigilant Telling the one person (him) why I am sad, exhausted and hopeless Uninterrupted…
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What facilities should I look at.
If I have to look for a facilities for my wife, where should I look? This is all new to me.
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does anyone know if medicare will cover in house care for patient?