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Maybe I’m overreacting?
My husband is my concern. I’ve tried to talk to him about my concerns. Memory, irrational behavior, inappropriate decisions, he will not discuss or answer questions. His mom past of ALZ in 2022. He refused to help in any way with her care. His sister and I were there. HOw can I get him to see a doctor. I bring it up he…
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It’s finally happening. Placing hubby in MC
this week he gets TB screening required and I get medical forms filled out. Date can be as soon as next week. Telling him we are checking out a new building for brain fog care. He calls what he has brainfog. I’ll work out with place to take him somewhere and then I’ll get suitcase from car and leave with them. Any other…
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The Quiet Voice of Caregiving by Michael Whelan
I follow him on X. His wife has Parkinson’s Dementia. He writes so beautifully. TO ALL CAREGIVERS The Quiet Violence of Caregiving. by Michael Whelan There is a peculiar kind of heartbreak in being the one who stays. No one prepares you for how illness can rearrange the person you love. Parkinson’s is not just tremors and…
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Just need to talk to my friends (211)
Carl. I remember George Gobel but hadn't thought of him.in years. My sister had a fig tree in her back yard and she really enjoyed them At the VA Hospital there was a big fig tree between two.of the.buildings across from the main hospital. We called them the quarters where Doctors used to live. Eventually the doctors moved…
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Guacamole...
My husband was diagnosed with Alz. a year ago, though I had been taking notes on things I had been noticing for at least 3 years prior to that. He's still quite capable of caring for himself and still does small projects around the house. Most people only seem to notice that he can't think of certain words now and then.…
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Goodbye
My cancer has progressed to stage 4. I have stopped treatment. As this forum told me, I can’t care for my DW with the side effects of chemo. I’ve entered hospice. After an aborted attempt to move into an assisted living facility locally, I found an opening in memory care facility near where her daughter lives. I told my DW…
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Delirium vs night terrors, what's the difference?
My DH has VD and has interrupted sleep for over 7 yrs. I don't notice any afternoon or early evening agitation. He falls asleep within 5 min of hitting the pillow and is asleep for 60-90 min and then the up/down repeatedly going to the bathroom begins. 150 mg trazadone has helped decrease the uo/down frequency from 20+ to…
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Report to DMV
have any of you resorted to reporting your loved one to the DMV due to their diagnosis? How did that go? Was it really anonymous?
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Walk With Bill_2001: 10 Years as a Caregiver
Hi Friends, Three years ago, I posted the article entitled “The Cavalry Is Not Coming,” and I have been humbled by the fact that many of you have found it helpful. Thank you all for your kind words. If you have not stumbled upon it, search for it in this forum and it should come up. I wrote that post to share an epiphany…
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Just Sad
I think this is the saddest and lowest I have felt for a while. It has just struck me how quiet it is in the house if I’m not talking or prattling on or the radio isn’t turned on. My darling DH with Aphasia, VD, now bent over most of the time and creeping silently around the house, it’s quite awful. I’m getting tired, the…
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He won’t go to the bathroom
My DH is recently incontinent. Luckily I’ve been able to get him to wear depends. But lately he just will not go to the bathroom. He’ll go hours without urinating (or I guess urinating in the depends). When he acts like he needs to go, I ask him if he needs to use the bathroom and he says, yes where do I go? I take him to…
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Now in stage 8
My DH passed away at age 65 last Saturday, Sept. 27th. I was glad we all got to say our goodbyes before he passed. I now understand stage 8. My days feel like a roller coaster of emotions, but the nights are the hardest. We have been married almost 38 years.
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Stages
Who determines the stages and how are they determined? The most frustrating p pop art of this disease for me is not knowing exactly what my DH has Dementia or Alzheimer’s). And what stage? His primary referred to his disease as Dementia and the neurologist referred to it as Alzheimer’s. They have him on 29mg of Memantine…
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help!! constipation
DW has been battling constipation for sometime now. We've (me and hospice) been though the gauntlet of meds. Frist we've done the old faithful prunes and prune juice. Now we're at the point of meds and stool softeners from senna-s, to polyeth glyc powder and the list goes on. Over a period of 3days I finally will resort to…
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Trying to self stage DH
I have gotten some wonderful words of encouragement and great information on staging from you and I so appreciate it!!! I still have a question though. I read the stages and see some things in one category but only a couple in a later category. What could that mean? My Mr. Math has gone to someone who is struggling with…
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Heartfelt Gratitude
I’m overwhelmed at the kindness, concern, and helpful suggestions of books, online therapy, and other resources- especially the reminders of the importance of self-care. The latter is the one I have always had a difficult time with but I know and heed all your comments. That said, does anyone have any recommendations for…
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What Happened?
Hello. I am new to this resource and have greatly appreciated all the advice/stories/information I have read so far! The clinical suspicion for my DH is EO AD. Less than 2 years ago, dimentia hit my dad hard and fast. I spent 6 months supporting him and my mom through it all. My mom needed a high level of emotional support…
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Frustration and Delay getting ID
Yesterday was a day filled with frustration trying to arrange what I would think would be a simple procedure. I want to replace my DW's (now expired) real ID driver's license with a Massachusetts real ID. The procedure is handled by the RMV. I've now realized that my DW no longer has any kind of valid ID for government…
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The Good , the Bad , and the Ugly of late stage 7
I’m posting this mostly for Josey Wales, and for others who are now in 7 . I want to be fair and give an accurate picture of what it looks like for others. So just as a little review, my husband 59 has had Alzheimer’s for 7 years. He has never hit a plateau , but just crawls along at a glacial pace. He is at home on…
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Could incontinence be from medication?
My DH is on a low dose of risperidone 0.25 mg twice a day and 25 mg Zoloft once a day. A few weeks after starting them he became incontinent. From what I read it’s a rare side effect and at this low dose I thought it was just a coincidence and that it was just the inevitable progression of the disease. Has anyone else…
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Taking Away Driving Privileges
My DH (57) was diagnosed a little over a year ago with EOAD. He’s not quite in stage 4 yet, and still drives only to places in a 5 mile radius of home. And only to places that he goes regularly like the grocery store and they gym. I know that eventually he will have to stop driving but I dread that because he feels that’s…
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Feeling So Lost
Hello everyone, I’m thrilled to have found this site. I have been feeling so lost, confused, sad, and hopeless. my husband of 54 years was diagnosed with Alzheimer’s over year ago. He is progressing rapidly and as I continue to just try with all my strength to make it through another day, I’m thankful to have found this…
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Reminder: hospital induced delirium is real
My husband was released from 2.5 days in the hospital. I spent all day Sunday and Monday with him except to run home to feed the dogs and let them out to pee. I left the hospital at 10 both nights to sleep at home. First night he had sun downers, calling me multiple times until 2:20 am. The 2nd night was pure hell. We live…
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App for Medication Reminders
Is there an app you would recommend for medication reminders? Thanks in advance.
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Memory care
My DW is has progressed very quickly. She was diagnosed with mild cognitive impairment about 2 1/2 years ago and is now clearly in the moderate stages. I'm afraid she is moving into the need for memory care and I really don't want to do that. I don't think she's unsafe, but there are sanitary issues, e g. leaving dog feces…
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Neurophysiology test completed
I have been on this journey for over a year trying to find the diagnosis. My DH has severe sleep apnea (36 times per night) so we have had the cpac for 9 months now. Then they wanted his test done. Did all the blood work and MRI. Nothing noted. it’s been hard because it’s clear he is having trouble with organization and…
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I just had to ask how much time he has left
My husband's doctor has been strongly suggesting that I put my husband in memory care. There are days when that option seems attractive but it is unaffordable. I asked the doctor how long he thinks my DH will live. I was shocked when he said "about a year". DH has mixed dementia, Alzhiemer's and Vascular dementia. He is…
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Sharing a tip to get DW to change clothes
DW is early stage 6. For the past few months it has been a struggle / conflict to get her to change her clothes. I have found something that seems to work (for now) and would like to share. If I tell her to change right when she wakes from sleep, we are able to get into clean clothes with minimal to no resistance.…
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THC for caregiver
So this may not be for everyone. But I became so desperate for some relief I figured, why not. It had been over 40 years since I had my last puff so I went to one of these smoke shops and got some gummies. I go lightly, just using a half of one. My wife of 40 years is in her later stages and we go through all the stuff you…
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Just need to talk to my friends (210)
I started this months new thread, 210, but entitled it 110. I tried to delete or change it but didn't work. Maybe this will. The other one is saved somewhere. So sorry for the confusion.