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Just need to talk to my friends (209)
We just had a nice shower, just before my groceries were delivered. Still sprinkling a little and it's nice and cool. Wonderful weather for the first day of August. Another six weeks and our hot summer will be getting cooler. I'm ready. Need to finish putting away the groceries but wanted to get 209 started. Back later.
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Unsure
I think things are progressing or is it me thinking they are. I didn’t know what to do this morning after a volatile night so I had his son come over and take him. I won’t make it until his Dr appointment on Monday. He is starting down the physical abuse path. It’s only been 3 pokes and grabbing my arm but I’m afraid it…
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Caring for an 8 year old
My wife is 84 and is in ALZ Stage 5 with a few Stage 6 symptoms. This past year has been a steep decline. It's amazing what she can no longer do. It's not just memory (which is a serious issue), but she can no longer understand simple instructions and can no longer do most anything without close supervision. She doesn't…
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Husband Proofing my home.
I childproofed my home when my kids were little and never in a million years did I think that I would have to do this to protect my lo. I just padlocked the ladder so he can’t climb up on the roof. He’s 73 and too old to be on the roof and his dementia has been costing me thousands of dollars in repairs after he “fixes”…
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The state investigated last week's incident and says my DH has to move...help
In my last post I told how DH had groped a female resident at his MC. Now the state has stepped in and says he can no longer stay there. The social said she told them they were willing to keep him and wanted to keep him but the state is adament. When I asked her how long we had to find another facility, she said she was…
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I can’t help this pain I feel
I miss my husband and he’s laying right next to me. About 6 months ago, my husband started forgetting we were married about once a week. Then about 3 months ago he started telling me he doesn’t want to be involved with anyone about once every 1-2 weeks. It doesn’t usually last long but every time I wonder if it will last…
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I am forgetting, too
I usually am very organized, but with the stress of a DH with dementia, I am forgetting appts, lose things, and run around and getting nothing done. I know it is because of the caretaking, and am the ONLY caretaker because family has turned away from us because they just don't want to deal with this private hell
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Refuses to see DR
My DH refuses to go to next DR appt and I can't force him DR wants to do lumbar puncture but he is too agitated to go thru with procedure as they want him there for four hours. This procedure may not shed any light on his condition, his cognition has been steadily worse and this is supposed to diagnose NPH. I asked DR to…
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Need advice/support on next steps
DH is Stage 5 moving to 6. He is pretty good in the morning but gets confused and has sun downing in the afternoon/evening along with some delusions and hallucinations. He can be agitated and angry at times but that is not frequent at this time. I still work full time and had a companion with him who abruptly quit a few…
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Possessed Look
Hi all, Lately, as my DW drifts deeper into her dementia, I've seen a kind of wild look in her eyes and she definitely does not look like she's seeing me at all in those moments. It's a bit disconcerting when it happens and I can only imagine what's bringing her to that space. The poor thing. Anyone else have this with…
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She is gone
My lovely, wonderful, brilliant, public spirited wife died yesterday. She was 73. and had had Alzheimer's for 15 years. I described our journey in these pages and the end was peaceful. I held her hand as her breathing went shallower and shallower and finally stopped . Our two daughters were with us. She was as lovely as…
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Stage 7a- need to know if possible to keep them home
My 78 DH has Aliz and dx 2017 MC, he is progressing has anyone kept their LO home until the end. He is still going to day care 3 days a week ,will be 2 years in Oct. When is Hospice available ? I have been doing everything myself, he has had no showers since Jan but he lets me wash him . Bladder incontinent some BM ,…
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Having one disaster after another with my LW
I’m m new at all this since February ‘25. I read the wrong week on my calendar this morning and went took her to her hip doctor and missed a very important EMG test at Mayo Clinic. I’m having trouble keeping up my own health. The diet is suffering too. My LW broke her hip a month ago after developing Foot Drop. So, now I’m…
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My own irritability as a caregiver
my DH has Alz, early to mid stage. My mood is so up and down in this caregiver role. I can feel very irritable, and angry with his responses. Other days I’m able to cope. I don’t like myself when I get so negative and can’t seem to let it go. I don’t take it out on him but I’m sure it shows. Any suggestions how to stop…
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Fall Detection Devices?(1)
Hi all. Now I'm looking into fall detection devices. Some of them seem to have all these services I don't need. IF I am running to the store for 45 minutes (which I can still do), I want him to be wearing a device to monitor falls. I do not need a GPS for location (he's not that mobile, doesn't wander, and I'm usually…
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How to motivate your AD spouse to do things that will help her.
My AD spouse isn’t self-motivated. I have made dot papers for her to complete with her name, address, phone number… I am continually helping her navigate her phone and texting… I am helping everyday to work the tv remote… she was a music director so I have enlarged music for her to sing with(words only)… I write our day’s…
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New to the group
Hi everyone. I’m new to this group and have been reading so many heartbreaking stories. My husband is 71 and was diagnosed 2 years ago with FTD. We moved him to a memory care facility a month ago. He’s very restless at night and rearranges furniture in the commons area, removes artwork from walls, takes things from other…
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Eating stuff
My DW is in stage 5/6 of Alzheimer's. Lately she has been eating all kinds of things. She ate all of her toothpaste from the tube, orange and lemon peels and whole tomatoes like an apple. Has anyone else seen this?
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APS
Today a very nice lady showed up at our door, Adult Protective Services 🙄I knew they were called because my LO drove the car . He took the DMV test, they passed him, much to my dismay, and I sold his car but he wants to drive if it’s just down the street! I’m a hard No, he took her test and got 25 out of 30. Mild cognitive…
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Stepping in on finances
Hello, My DH was diagnosed about 1 1/2 year ago. With meds (Donepezil), he seemed to be on an even keel for about six months, we upped the dosage some, but he is now declining again. We mostly keep our finances separate. I have begun to worry that he will spend on extraneous things (he recently placed an order for a new…
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Service dog
UPDATE 8/1/25: it’s been about 15 months since my post about looking into getting a service dog for my wife. Today, we received an invitation offering us a trained service dog from EENP! My wife is at a stage in her diagnosis where she can still drive and has just mild cognitive impairment. So now is the best time for her…
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I've been away for a while and need to talk
Since I was last on this site, we moved to a smaller townhouse 1 1/2 away from that awful town. He did ok with the move. I'll just skip to now. he had 2 seizures a month ago in which the hospital labeled as "fainting" yet put him on antiseizure meds. he is going to get an ultrasound on his carotid artery, then and EEG. he…
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Great News on Treatment Advance
This made my day! This will not cure my DH, but it gives me great hope for my children and grandchildren. Medical research matters! Thank you to the devoted scientists at Harvard who have been working on this for ten years. Hopefully, tes5ing will commence very shortly.…
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How do you assess your spouse
My Dh is c/o light headless and chest discomfort. Im retired nurse so I've done all the steps. BP is fine heartrate is fine no further symptoms. Up walking around like nothing wrong. Was at er last week for back pain. Found nothing that would cause it. Given his meds for BP baby aspirin. Will cont to monitor him,but it…
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Dealing with my feelings of resentment
I'm married to a man who was verbally abusive to me during the first 10-15 years of our marriage. When I tried to leave, he begged me to stay. I regret staying, expecially because of my children. We've now been married 40 years and we really don't have what I would call a close relationship. I had to pull away when he was…
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Need to leave right now
I cannot do this anymore Suicidal must take care of myself Any insight
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Seroquel / Quetiapine Dr. prescribed
In reading the posts here about this drug, it appears that it is given for those that are not sleeping at night. It was prescribed to my DH for hallucinations. The man does not have trouble sleeping at all. Just a few episodes when he had too much coffee or has had long naps during the day. Is this something that will work…
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Have no support
Once I reached out to family and friends about DH , they avoid me like a disease. Now I am fully isolated and am constantly apologizing for him or arguing with him.
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Hello
I am new on this site and excited to have found a place where I can learn from those that have already gone through much of what we are dealing with. My DH is in the early stages of Alzheimer's. He was first diagnosed with MCI in early 2022, but I did not learn about the diagnosis until June 2023. He misunderstood the…
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Mother won't stop walking
Hi, a week ago my mother began walking non stop. She sits or gets in bed and is up in a minute. One day she walked for 22 hours straight, no sleep. She is 101! I am exhausted. Has anyone experienced this and any ideas on what to do? p.s. the drs. prescribed Haldol, Lorazepam, Seroquel, Doxepin and nothing worked