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So Frustrated with Dr
DH with VD from several strokes has had interrupted sleep for 7+ yrs. Dr has him on trazadone 150 and now he is only up 5x night instead of 15-20. He now has nightmare episodes at night. We had a video appt with Dr today to discuss changing or adjusting meds to help us BOTH sleep, my idea.. I emailed Dr a heads up with the…
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Just need to talk to my friends (211)
Carl. I remember George Gobel but hadn't thought of him.in years. My sister had a fig tree in her back yard and she really enjoyed them At the VA Hospital there was a big fig tree between two.of the.buildings across from the main hospital. We called them the quarters where Doctors used to live. Eventually the doctors moved…
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Support group
I came looking for help, understanding, support. Husband newly diagnosed. Without offense, I must say it’s scarier being here than being lost and alone in my real life. No. I didn’t come here for the fantasy of “it will be ok” but it’s all so hopeless. I see major failings in my husband every week. Something new every day…
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Alzheimer's quick progression after an illness?
My LO has been experiencing a Colitis flare-up and is really having a hard time. He was seen by a doctor, and we have a follow-up appointment scheduled. But it seems like his Alzheimer's has progressed a lot within just a week. I did see a video that mentions that people may "take a step" down after experiencing an…
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early onset dementia and memory care
My wife is 69 years old and has early onset (56 years old) vascular dementia. I placed her in memory care early last month. Her biggest complaint is that all the residents are older and more impaired than she is. Most of the other residents are late 70s and early 80s. Some are in the very late stages but many are not. My…
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How to have patience and not start resenting your spouse.
Hi: My DW has had VD for 3 years and I'm the sole care giver. It's 24/7 year-round. Today she woke me screaming to come wipe her bottom. Yes, I have had to do many times, but to get woke up out of a deep sleep to her screaming clean my bottom. I almost lost my temper; how does someone not get up start resenting your…
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Husband
Hi all, My husband has Lewy bodies and was saying last night he’s dying, he said it again in the early hours of this morning, can anyone give advice please.
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Combative and Unreachable
I'm reaching out to the most knowledgeable group of individuals who never wanted to be here, hoping someone may have some insight and guidance as I have reached my wall. My DH, love of my life, married 56 years, has been in memory care since last July - he has mixed Dementia - alzheimers and vascular. Diagnosed 15 yrs ago…
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risperidone
My HWD is currently taking Donepezil and Sertraline. He has been so agitated and verbally abusive lately that his PCP has written a prescription for risperidone 5 mg. The listed side effects are pretty scary, but maybe at this low dosage they are not a big risk. I was wondering if anyone has experience with it that they…
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Update: Mood swings and anger issues
I want to think everyone who responded to my last post. That night I got a call from hospice to discuss my wife’s condition. I mentioned her anger and was told that the memory care staff had Lorazepam on hand that they could give her with my permission. I said that was alright with me and was told it would be passed on. On…
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Wow, I underestimated the loneliness
My husband went to memory care this week. It's going fine. He's settling in fairly well. I feel like a jerk for even saying this. I'm lost and lonely. I've never lived alone before (family, college, roommates, then my husband). I'm trying to keep busy. Dishes are done. Laundry is caught up (for the first time in 2 years).…
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A different stage
Hello my friends, all day I have beencalled a bitch, move out, pay bills with my small paycheck and my DH needs his SSI $1000 income. I am feeling like scared,, he will lash out. Also I cant be around him
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The Weight of Waiting
There’s a lot of weight on my shoulders. My DH is stage 6 of Alzheimers and I find myself weighed down, emotionally stuck in the waiting room of his life, our life, my life. Time is timeless. Its a surreal world of melting clocks and drooping watches and living in a dream-like nightmare that did come true. The…
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First Post
This is my first post, although I have been reading conversations on this forum for months. You are all so knowledgeable and compassionate and I have gained more knowledge here than with all the doctors or well meaning friends and family combined. Here's our story: I've known my DH for 30 years. We have been incredible…
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Unhappy Anniversary
Today is our 13th wedding anniversary. Last year DW jumped out of bed and gave me a big kiss and wished me a happy anniversary. This morning I told her happy anniversary and she had no reaction just continued to talk about something that made no sense. I guess this year is the beginning of unhappy anniversaries for me.…
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Leqembi Infusions
My husband is in early stage Alzheimers and our Neurologist recommended Leqembi. After much discussion my husband decided he wanted to try it even withe the serious side effects. After 3 infusions they did an MRI to look for side effects (brain bleeds). All was good. After the 5th infusion they repeated the MRI and it…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
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Any point to Namenda at this point?
I'm so tired. DH was diagnosed with dementia 16 years ago and was placed on Namenda and Galantamine. It appears they did slow progression but at age 78 he is now in a memory care facility. The Galantamine was discontinued a year ago but the Namenda was continued. . At this time his dementia has progressed mentally- he is…
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A Trip
I have to make a confession. I've been telling people here how difficult taking trips with my DW in Stage 5/6 have been and recommending not to do them. Then, the glutton for punishment I am, I decided I'd try again to bring my DW to our old hometown. She went to college here and has wonderful friends and family here that…
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A little tip about door locks
The first time DH locked himself in the bathroom I realized that I don’t have keys to those locks or to the bedroom doors. I bought emergency key pins to open the push button locks. These worked for me, but maybe even a little screwdriver would work. Just make sure you have a way to open all locks so you can get in if they…
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Venting: I'm married to a teenager
My husband had been having colon issues for a couple weeks. He finally called his doctor, and they said to go to the ER. I took him to the ER, and I realized he can't manage his own health anymore. He went back for testing and samples while I waited in the lobby. He came back, and we were to wait for the results—thankfully…
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DH's reaction to memory book for my kids
M6 DH was diagnosed a year ago with Alz, he's 72. I noticed symptoms years before the diagnosis. I'd say he's mid stage, still pretty capable. With that said ... I had been working on a memory book for my children (from a previou marriages) for several years. Now that I'm retired I was finally able to finish it. It's via…
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Obsession with his cat
My DH was diagnosed with Alz a year ago, but I was seeing symptoms for at least 3 years prior. He still comes across "ok" to others. Just not able to come up with words alot of the time, but I see much more than this of course. We have two cats and DH is particularly attached to one. He now seems rather obsessed with it.…
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Insomnia
hello…me again..so my mother has been tried on Mirtazipine and Celexa and Melatonin and she is not sleeping at night with anything given to her. Her doctor is trying to find a medication that will work, I really would like to keep my mother at home because she always told us that she did not want to be put in a nursing…
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bedtime ritual
Anytime we lay down on the bed, whether for a nap, but especially at bedtime my DW is constantly up and down. She's at that stage where she continually paces and jabbers so I suppose this is an extension. But the bed thing - I can tell she's exhausted but she will spend an hour up and down up and down, in and out. Very…
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in a dilemna re ALZ/divorce...any lawyers or people having had this experience?
My wife and I amicably separated at 65 years with no intention or desire to reconcile. It should have no bearing but to avoid judgement from y'all I will share that I tried FOR YEARS everything I could to address the lack of intimacy (emotional, physical - not talking just sex) and SHE refused and gave me an ultimatum:…
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DW not urinating enough
Lately, my DW is down to one urination in the morning and that's it. I don't believe her fluid intake is any less than usual. I have always known her to have a pretty strong bladder (i.e. not needing to go very often) but this has me worried. I have antibiotics that I give her from time to time but I really don't think…
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I just cried
Today was the first day for my DW to be in daycare. We’ve been together 24/7 since her diagnoses of EOAD in 2023. I dropped her off and went back to my car and broke down in tears missing her and feeling guilty of abandoning her, I know this is good for both of us and it is only 1 day a week. I can’t even imagine my…
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🤯😠😩😤🤬 Lost it today 😢
oh boy! Never thought I'd not recognize myself but today after my rant and I mean all day rant I had no idea who I was! He crossed the line, broke my back, went beyond what I could handle. Not just today but building for days maybe weeks and I just lost it! Patience, understanding, etc etc. just done today! Yelling at me…