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Questions
I don't even know where to start. How this awful disease progresses? What to expect in each stage. Where to get information.My DH sometimes seems perfectly okay, an hour later he ask the same questions over and over. I am very patient, it is so hard to see him go through this, he was always kind, loving, helpful, now I see…
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Lumipulse pTau-217/Beta Amyloid 42 Ratio
Has anyone here read anything about this dementia test? If I ever show cognitive decline, I think I would like to get this test. Then maybe have an exit plan.
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Out of Control
My first husband died of Alzheimer's at age 57 in 2011. I remarried in 2015 and now my 2nd husband has been diagnosed via brain scan with early Alzheimer's. I want so much to be a supportive partner, but I feel so angry and out of control. He does what he wants regardless of my feelings. He orders the wrong things from…
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No long term insurance
I know this is not the forum for this but this group may have some good advice and resources to look at, that we may all benefit from Thank you
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Advice on DH out in public
My DH is resisting sitting down when we go out to eat. He will just stand at the table without moving. After multiple efforts to ask him to sit he will finally cooperate. I would welcome any advice or perspective on how to help him.
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Just need to talk to my friends (209)
We just had a nice shower, just before my groceries were delivered. Still sprinkling a little and it's nice and cool. Wonderful weather for the first day of August. Another six weeks and our hot summer will be getting cooler. I'm ready. Need to finish putting away the groceries but wanted to get 209 started. Back later.
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Now the hospital has him in a cage?
Because he is so combative and aggressive they said they needed to put him in a Cage ( nylon netting). This was also done so he wouldn't fall. I think this is elder abuse but they said it was for his protection and the staff. Has anyone heard of this and isn't it elder abuse?
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I feel likeI have been mourning for the last two years
My sweet husband had to go to a nursing home two weeks ago. I didn't realize how much I cared for him physically. I feel lonely and lost. I just got a cancer diagnosis, and I have to travel for treatment, and I will be gone for weeks at a time. I don't know how to process this feeling of loss I am experiencing, as he was…
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Gas stove knob locks
Looking for recommendations for gas stove knob locks. I have a GE Cafe gas stove with the knobs on the front. My DH has attempted to cook for years but I want to be safe. There are alot on Amazon but mostly geared toward children. Any recommendations?
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Is Rexulti an Option?
Hello Friends, I'm so sorry you have need to be here but I am so very grateful for your input. I recently posted concerns regarding my DH's combativeness and aggressiveness with showers and getting undressed for bed. It's become a significant issue and Rexulti has been recommended. Wondering whether you may have thoughts…
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looking for hygiene video recommendations
The last couple of months it has gotten really hard to help DW with cleaning up after using toilet, and with bathing. I have tried different approaches, but they generally all end at the same place. At some point my patience ends. I just take over and do what needs to be done and she has her meltdown. I watched a few…
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Respite care for a vacation
As I waffle about MC placement, I know that what I really want is to take a vacation, by myself, preferably for 2 weeks. I have no family who would be free to care for DH. MC facilities in Tucson advertise respite care but they will say "only if we have a bed available" which makes it hard to plan. Has anyone successfully…
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Son in denial
My wife's son knows his mother has dementia. I tried to talk to him about what happens if I, the sole caregiver, cannot provide for her. He says not to worry, she'll go first. He doesn't understand that it is just me passing away that could cause her to need a new caregiver. I could become incapacitated and not be able to…
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Leaning how to adapt.
Hi, My wife has been diagnosed with dementia for over five years. I been taking care of her the whole time. Now things seem to get worse and I’m not sure when I should contact professional help. She was enrolled in the memory center for seven years. Just reaching out for the first time to learn what’s next for me to do.…
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Combativeness and Agitation Out of Control
My DH was diagnosed with dementia 15 years ago and his decline has been very gradual but very definite. He's been in memory care for a year, cannot communicate and doesn't understand when I ask him to stand up, sit down, take a sip, etc. He is also incontinent. He is extremely combative and agitated with memory care staff…
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Looking into Memory Care and Very Sad
My DH is currently in the hospital after he got out of the car when I was at a stop sign, refused to get back in, and crossed a busy 4 lane street during rush hour. Cars had to stop and change lanes to avoid hitting him. I called 911 while he crossed back over again and still kept walking and wouldn't get in the car.…
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New here... starting to feel lost...
Hello, all my new friends :) … My husband was officially diagnosed almost two years ago, but it's been apparent to those close to him for quite a few years that there were some issues with his memory. He's 75 and I'm 62 and still working full time a job that I LOVE and the insurance at this point is invaluable since he…
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Want to bring him home not nursing home
Husband probably need physical therapy to get his legs stronger after being hospitalized for falls and the rage of a dementia episode. and bed bound for a week so far. I am not sure of his cognition or aggression since he has been sedated to keep him calm and stay in bed for fear of falling. How can I request the hospital…
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New way of life
Hi I am new to the group and had many questions and the alz community has been most helpful. The person I'm caring for has always been a very quiet reserved man now all of a sudden he's become so talkative he mumbles and talks all day I'm just wondering if anybody else goes through this? Thank you all for being there and…
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Starting with hospice
at the primary care doctor he suggested it might time to involve palliative care and/or hospice. DH is still ambulatory but needs 100% help and care. Doctor said he would qualify because of weight loss and skin breakdown ( he has pressure sores on his rear). I’m wondering how early others have involved, and what your…
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Overwhelmed at times
I am caring for my wife of 46 years. Her moderate Alzheimer's is progressing every month. Her 2 medications may be working, bit I can't really tell. My emotional and physical albitites are taxed at times. I can continue this hectic pace but feel the need to reach out for help. Any suggestions? My cousin did offer respite…
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Dealing with DH depression.
My DH seems to do well until about 3 p.m. or so when he gets very depressed and confused. Sometimes he gets restless but it is the depression that worries me the most. I can't get him to do any of the things that he used to enjoy doing.
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He Cried
My DH took me by surprise today. He cried one time in our marriage and thst was just for a second. He came in the bathroom and just burst into tears….. over the school shooting today in MN. Lips quivering and sobs. Never saw anything like this from him. Just shocked me. Another part of this dreaded disease, I guess.
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New here
Hi all, I'm new here. I'm my husbands part time care giver. He is moving in to what I think is late stage alzheimers. I have a caregiver here with him while I'm at work. He has trouble speaking, finishing a thought, dressing himself, he can eat alone, but can't make his own food. He can't be left alone anymore. His…
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My husband is lucid much of the time
My husband is not so far gone that I could not leave him in memory care or nursing home but when he gets into a rage there is nothing I can do And he is still having trouble walking What should I do? Guilty ridden
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Treating NPH
Has anyone on this forum actually know, personally, if any one had a lumbar puncture to help diagnose NPH, and if so did it relieve some symptoms, such as cognitive and walking? And how did the person feel after the lumbar puncture? I've been reading that is a relatively rare condition
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Sleeping Issues: need advice
Hi everyone, I’m looking for some advice and to see if anyone else has experienced something similar. My dad has been living with Alzheimer’s for about 10 years. He’s still fairly active—he can ride his bike and we go on walks together—but recently we’ve been struggling with sleep. When it’s time for bed, he just can’t…
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Hair cut and shave while in hospital
If my spouse is in a facility or hospital how can he get a haircut or shave or nails cut if he cannot go out or it is not safe to take him, or should I just risk it and take him to get this done Also he needs a shower He can bathe himself but has trouble with turning it on and off (I have to do this for him and then the…
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Ugly Stepchildren Dilemma
I know some of you have written regarding problems with stepchildren, and I am hoping for some advice. My DH is in memory care in early Stage 6, and neither of his children think he should be. His son is the worst and blames all of his dad's problems on improper medication. His daughter realizes that dad is ill, but thinks…
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STAGE 8 - There is no other side of grief...
My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…