-
I Feel so Awful….
my DH is cognitively stage 6. He layers clothes, confuses hand cream for tooth paste, hasn’t known me for a long time, (though he likes me). When he is having a good day and 4 hour respite, it’s easy but he has to stay continuously busy which is hard. He loves the out doors, hasn’t wondered but daily gets cuts from picking…
-
At My Wits End
At 830 tonight, my DH called the paramedics on me. So I’m in my locked bedroom and I hear footsteps…. 2 paramedics and 2 policemen are banging on my bedroom door. I’m shaking so bad I can’t even type. He told them I’m not taking my medicine ( I only take one blood pressure pill and a Zyrtec for allergies ). They were…
-
Trying to think ahead
What type of documentation does the Police Dept need to show that a spouse has dementia? Does taking the med bottles as proof meet this requirement? Just thinking ahead …just in case.
-
Just need to talk to my friends (205) May 2025
Thanks, CaroLynn, I kept meaning to do this yesterday and never got around to it. Chilly and c!oudy here this morning. I checked and WM will deliver something so had to go out and open the gate so they can come through and turn around without backing all the way to the road. Then. fixed my cereal and hot tea, got back in…
-
Any spouse caregivers of Alz patient with teens in the house?
This is my first post. My DH was diagnosed with Alzheimer's in February with APOE3/APOE4 variant. He has had two Kisluna infusions. I am 56 and he is 70, and we are both still working, though he will not be as actively working now. We have a 10th grader at home. She knows about the diagnosis. I am so worried about her and…
-
Unusual Question
When moving to MC, should I take lots familiar photos in frames….or will this make DH realize people/dogs are not around and be a constant ‘where is everyone’ thought. Any advice of things to take/not take will be appreciated..
-
Gotta work, DH can't be alone but not ready to be placed, holy Cr. what do I do?
I work part-time because we can't make it without the extra income. Both of us are on SS. I've been able to leave my DH for 6-7 hour stretch for the last year an a half but that's coming to an end. He is good when I'm home and can take care of him and make sure he's safe, but in the past month I am realizing that he's not…
-
Sundowning now all day
My DW has been sundowning for quite a while but this past week it seems to start up each morning. She goes to bed crying and wakes up crying. I can calm her down most times and get her redirected but next thing I know she is crying again. When I ask her what’s going on, she says she doesn’t know anything and doesn’t want…
-
Broken bone
I have known two people with stage late 6 early 7 dementia that have died about a week after breaking a hip. I don't why, if it is the shock, or the mind just can't handle that much, or if it was just a coincidence, also is it just the hip or all fracturs. My wife broke her upper arm yesterday so I am just wanting to hear…
-
I need a safe space for me
please allow me to vent… I am so tired. My head constantly aches. I don’t sleep well. My DH has AZ and, I am beginning to think, another form of dementia as well. We see doc in two weeks to discuss. He is all over the place some days. Some days hallucinating. Some days body temp out of control. Then he sits down and reads…
-
What next when they can't swallow pills?
I know from experience that today's occasional problem is tomorrow's permanent limitation. In recent weeks, my DW has struggled with swallowing her pills. What comes after unable to swallow pills and how do I know it when it is time for that?
-
Boyfriend with early stage
Does anyone have a boyfriend with dementia, repeating questions and forgets conversations? I could use some support if anyone out there can relate. He is very easygoing and loving, but wonder what this will do to our relationship in the future.
-
Freedom feels so good!!
I’ve been the solo caretaker for my DW for almost three years. We moved back to California after her diagnosis to be closer to her family. Well to say the least it didn’t help me with her. Virtually no support except maybe a short visit every couple of months. Her best friend since the third grade lives about 900 miles…
-
10 Absolutes in Dementia Care
Shared by another member here - Thanks Chug! Here is one you can download or print:
-
Dementia, meds, alcohol
This has taken me a very long time to post and I'm not sure why. Perhaps because I'm disclosing the thing that my DH would most like to keep secret, but I need help. In addition to dementia, hubby has had multiple health problems, including numerous surgeries which have left him with chronic pain. As a result, his pain…
-
Buproprion vs. Seroquel
DW has been taking buproprion for many years for anxiety/depression. She has been in MC for three weeks now. She seems to be having some trouble adjusting, and sometimes she's very down. The facility's psychiatrist plans to wean her off the buproprion and start Seroquel. Does this sound like a good idea? (I realize I…
-
Is it necessary for Nurologist it ask same questions that upset patient everytime?
some of you know me as I always have lots of questions but for those of you who don’t know my situation it’s that my wife , I feel , is handling this nitemare much better then most that being said I know can change in a heartbeat . It’s 3 yrs and other then not driving or cooking anymore not doing too bad, her short memory…
-
Hospice care
Today I called hospice care and will be waiting to see if my DW is eligible for their care . This was a very hard decision but I feel that if I can't get my wife to eat and all the weight that she has lost it would be best for both of us .
-
How to arrange a week of respite
I know that all the facilities around that say they do respite care will only do it for assisted living, not memory care, and my DH needs lots of assistance with dressing and navigating. MC facilities don't do it because it's too much work (all the paperwork for placement) and because they are usually full. I have a…
-
Resources
Could someone recommend a book that you like that explains stages and symptoms of Alzheimer’s? Thanks
-
Title Co Trouble
My DH has vascular dementia, and he’s wheelchair bound since his stroke in July of last year. He lives with me at home and I move him around with a hoyer lift. I do my best to make his life as enjoyable as possible. One thing that would make his life more enjoyable is if I had a wheelchair van to take him on rides and go…
-
Period of inactivity
My DH sat down in a chair in our den the other night at 8:30 and sat there with his eyes open and didn’t move for 6 1/2 hours. I checked on him every hour and ask if he wanted to go to bed and I could tell what I was saying wasn’t registering with him. At 3:00 am he finally would get up and go to bed. Has anyone else…
-
Anger and anxiety
I am looking for ideas to help my DH deal with anger and anxiety. He is in the Moderate Stage. He seems to be jealous of me and our Grandchildren. He is taking Seroquel, but it might be making things worse.
-
Picking Skin
There is a big fancy word called Dermatillomanina which is a OCD thing of picking one's on skin. My spouse picks her arms over and over and over. They bleed. It is messy and it is frustrating. The Doc raised the antidepressant but it didn't help. Just curious if anyone else has had this issue and any luck of how to control…
-
Resentful and Losing patience
Truth, my DH and I had problems and about 10 years ago I asked him to leave and we moved to separate bedrooms. I became complacent, we shared the household expenses and eventually became friends and occasional travelling companions. I'd ask him to leave occasionally, he would say no, and that was it. No one with the…
-
Sleeping so much
My DH, age 75, is in stage 6 Alzheimer's. He is still physically in pretty good shape, just mentally compromised. In the last month he's been sleeping 18 - 20 hours per day. Is this common? Does this mark a step toward the end of this road? He always says he is tired. He eats well (often only one meal per day because he…
-
Betrayed
my lo knew he was having serious cognitive impairment. I knew long before he was willing to admit it and long before his law firm asked him to step down. He was aware enough to prepare legal action including DPOA of his finances. He named friends rather than me. I cannot even describe the nightmare that has ensued. He…
-
DW despondent and feels useless
DW used to be a college professor. She still thinks or hopes that faculty or students will come to the house (or, well, she's now in MC) for her advice and guidance. The fact that they don't (she's been retired for 13 years) makes her feel useless and despondent. She sometimes talks about death and doesn't see the point of…
-
Long overdue update
We hit the 3 year mark in MC a couple of months ago. It's been a 15 year trip with dementia so far. I know I posted here before about how I feel so "old" because this is typically a disease that hits older people. Managing end of life decisions and all that planning at 50 makes you feel old. Currently DH is 61, I'm 57. The…
-
My new tattoo
I’ve begun the process of touring memory care facilities and the costs are sometimes just ridiculous. Today I visited a nice place, not grand but nice. The price for a private room in MC was $12,245 with an additional fee of $600 per month for incontinence. So I’ve decided I should tattoo that total on my wrist so I can…