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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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No treatment options (thanks, insurance & MediCAL /s)
So for months (since February 3, 2026) DW (61) has been without treatment due to losing our COBRA. It took Medi-cal five months to get us to UCLA's Rubin (Rudin?) Center for Alz & another month to get an appt with the Doc in the end of December. Now that she is going to receive SSDI in September, we're dropped from…
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What is Your Wife’s Name?
I’ve been dreading this day and it finally came - DH not knowing me! I thought I was prepared after reading what so many of you have already experienced, but that question hit me hard! I was speechless and caught by surprise. But I managed to take a deep breath, look DH in the eyes and stroke his cheek while I replied “My…
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Need advice about counseling
My DH is in Stage 5 and I am so exhausted all the time from the constant repeating things to him, supervising everything, being in charge of keeping the household running,etc. Everything that most people on this site write about. I have been going to a therapist and also have gone to some group meetings sponsored by the…
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Just need to talk to my friends (221)
Morning, it's August, my second least favorite month. It just sounds.hot but this morning the weather is wonderful. May get up to 90 today but right now it's 70 with a nice, North wind. Feels wonderful but the heat returns next week. Good morning, Ron. Hope things are well with you today. Waiting for Bryon and his cousin…
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Medication question
My DH is currently in Stage 5 moving into stage 6 I believe. Lately his anxiety seems to have increased dramatically. He is currently on 100 mg of Zoloft and 25 mg of Serequel twice daily. He has a neurology appointment coming up. I was going to ask for an increase in his Zoloft due to his increase in anxiety. Shadowing…
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Support from doctors
Hi everyone. I've been caring for my DW and her ALZ for the last 4 1/2 years. At first we saw her neurologist at least every 3months. He would perform a few tests to assess her lucidity and retention. Now we see him once every 6 months, he asks her a few questions about how she's feeling, if she has any questions, and then…
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Just want to write it down...
Everyone say's I'm "lucky". My DH doesn't wander or have delusions. He doesn't yell at me or is aggressive in any way. I cannot feel grateful. I feel frustrated and worried all the time. I can't make him drink water. I can't make him do anything that I think is good for him. People give me suggestions…oh give him Jello. Do…
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See you at the funeral… Cutting off relationships.
”See you at the funeral,” as of late is what I am constantly wanting to say to family and friends. Life is exhausting, both physically and mentally. I am aware of what I have in me and I choose to save this for my DH. As things change in the disease progression, it is disheartening and disappointing to observe the level of…
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Exhausted
Hello, New to this group. My husband of 29 years has dementia. Not sure what stage but after seeing symptoms for at least three years I made him get tested. He is in complete denial. Blames me and accuses me of poisoning the minds of family and friends and doctors against him. Although they all see the issue as well. He…
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The sundown capgras crisis
The past few days have been really the most difficult. And i am at wit's end. DW frequently thinks I am someone else in the late afternoon. During the last month she has had several falls requiring hospitalization, and surgery for a brain bleed. She has been home for 2 weeks and first week was ok, some confusion,…
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Today Is Another Day
So today is Monday morning I am working on the gentle discipline of our routine, with the help of some soft music with words of love to keep me on track. We shower, we breakfast with the birds in my garden outside. I have my regular phone call from our daughter. DH is now having trouble swallowing his pills but we get…
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New to this Journey & Overwhelmed
I am very new to this journey. In the past month, my DH has become so hateful, angry and strikes out at me saying the most hateful and hurtful things. We are going to see a neurologist this upcoming Friday. DH has been forgetful for a while but the latest behavior came on very quickly. DH has two children who could give a…
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car
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I am new here…struggling with DH
hello everyone I am new here. My DH is in the early stages and has been for the past few years. He is starting to change just remembering things like putting water in the coffee pot and forgetting those things to now having cognition issues of not understanding what is being said. I was so very upset a few days ago. My DH…
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Where do you live
I love this site. Great people suffering alongside with me giving the best experiences and helpful information. I would love to hear where all of you live. My DW and I live in Northern California.
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I’m new here.
Hello all. My hubby has not been diagnosed. I’ve tried but the drs just say his brain shrinking is just not that severe. But they don’t live with him. His memory is less than several minutes. But constantly reminiscing about his younger days. He’s 78. I’m 73. The strangest thing is that he can still drive. And enjoys it…
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Infusions - Worth the Risk?
The original neurologist that my DH was seeing was adamantly opposed to infusions, or at least it appeared that way (same with his PCP). We never really considered it, but recently changed to a different neurologist. She is wonderful and much more thorough, and asked if he wanted to get bloodwork done to determine if he is…
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Son of a B#(^$
I was just spooling through the TV channels and landed on a PBS show on Dolly Parton. The song? " I WILL ALWAYS LOVE YOU". Now I am sitting here silently with tears running down my checks, the first time in about six years, and DW has no clue. I have been used to shutting my emotions off through life experience, the…
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Is it Time
Took HWD to the doctor last week and they estimate he is in stage 6. I still work full time and he is home by himself from 7:30 to 5:30 M-F. I have cameras up in the home so I can check in but for the last several months I have been struggling to get him to eat when I am at work. He doesn't know who any of the…
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Capgrass Syndrome
Hey folks, Hope some of you are having a pleasant day. I shared on an earlier post that my DW was forgetting who I am, mostly in the afternoon/ evenings. Now she is waking up not knowing who I am. The memory social worker mentioned that my wife more than likely has Capgrass Syndrome. She has been diagnosed with alzheimers…
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Changing role as spouse with husband in full-time care
I am wrestling with how to be a spouse when my husband is in full-time care. He still recognizes me, though I know that one day he won't. I feel like I am in an odd space between married and widowed. After caring for him 24/7, I have time now for exercise class, impromptu dinner with friends, shopping without rushing, and…
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My sister diagnosed with Dementia 12 yrs ago...
Many of you know that I lost my husband to Alzheimer's August 12, 2024 and that I had to place him in memory care due to my cancer diagnosis. I just finished my 2nd round of chemo, 5 weeks of radiation and my 2nd major surgery. Due to my cancer treatment I haven't been able to visit my sister who was diagnosed with…
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Two weeks in MC
It has now been two weeks since my DW has entered a memory care facility. She seems to be adapting well, and I visit her every day. She has her own room and family members, and me have outfitted the room with many of her familiar items to make it more comfortable. As for myself a new life has begun, and I must say it is…
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Not knowing what the next moment brings-
Hello again, Ok. My DW's UTI test came back as negative. Wife seems to be getting worse by the day. 3 months ago she'd forget who I was for a hot second, then correct herself. This last week, she is waking up not knowing who I am and not liking me. Immediately jumping out of bed in a crisis. This morning it was she needed…
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Need advice on “Where is my Husband?”
Good morning. Since last November my wife now in stage 6 I believe has not known me as her husband. I’m a good friend. She is always asking where is My Mike. She will get rather agitated when she can’t find out where he is or when he is coming home. I comfort her and tell her I will certainly help. I make up a false text…
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Other illnesses
Over the last 2 1/2 my DW spent 6 days in the ER/hospital with severe GI issues. This is new and add to her A fib, vision, mobility and, naturally, Alzheimer's. When she was discharged yesterday she was placed on a low residue diet in anticipation of an endoscopy/colonoscopy procedure - no or extremely low fiber intake.…
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DH's cruel and angry outbursts
Today was so horrible. My DH has Alzheimer's. This morning began with him thinking that is Mom was still alive (she's been gone for 20 years) and that I was moving in and trying to take over her house. No matter how gently I tried to tell him that it was mine and his home, the angrier he became. I don't believe he would…
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Having a hard time adjusting
My SO was diagnosed last year with EOAD, after I noticed changes in him..he would get confused and frustrated when trying to complete difficult tasks, he was not remembering how to get to stores that he infrequently visited, and I could see forgetfulness and diminished desire to do much. He is receiving Kisunla treatments…
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mechanisms for coping with frustrating moments
How do people emotionally cope with periodic moments of frustration? Thanks so much
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First time home respite caretaker
This week was the first time that we had a respite caretaker here at the house. DH is somewhere around stage 4 and for the most part is "just fine", but I know for a fact that if there was an emergency he would not know what to do (he has already proven that to me). I was apprehensive that he would say something like "I…