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Alzheimer’s
My beautiful sweet wife (70) has just be diagnosed with Alzheimer’s. My heart is breaking. I feel numb, lost, disoriented, scared, anxious…etc. My mind races to far ahead and I think of what will be rather then what is for today. It’s early, we just found out last week. it’s raw. Any words of wisdom and/or next steps I can…
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DH gets frustrated so easiy
It's really hard to see my DH struggle so with simple daily tasks. Today he struggled getting his seat belt buckled in the car, swearing and calling it a POS. He then complained about how uncomfortable seatbelts are for the rest of the drive. He cussed out the POS TV remote control when it was clearly operator error....He…
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Just need to talk to my: friends (216)
Sorry, just forgot, crept up on me. Not doing a very good job of concentrating. Couldn't find my bread knife anywhere so thought I would have to go through the trash. Thought I would give Stormy a milk.bone and it was in the box. I use it to open those big boxes. Thanks for reminding me.
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Am I expecting too much from family?
I’m pretty certain my DH aspirated some fluid night before last. I gave him some medication in the night 2 nights ago, and he immediately began with violent coughing episodes with very wet sounding coughs…which continued all night long. He said he was having trouble breathing and his oxygen level dropped to 86-88. The on…
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Boyfriend with early stage
Does anyone have a boyfriend with dementia, repeating questions and forgets conversations? I could use some support if anyone out there can relate. He is very easygoing and loving, but wonder what this will do to our relationship in the future.
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DH hallucinating that he's going to have an affair
I am going to post this, because I haven't seen anything quite like our story. My husband is in Stage 5-6 of This Crappy Disease, and he is now telling me that he would like to start a new relationship. The woman he's interested in is a neighbor whose name we don't know. He has been irritated with me because I am the…
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just an insurance company rant...
This year, my employer changed to the company providing prescription drug insurance coverage. Today I got a letter indicated DW extended release memantine 28mg is no longer a covered. We are instead expected to use the standard version of the pill. So instead of one extended release memantine pill per day we are expected…
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Imaginary People in Our House
My DW sees imaginary people in our house at all hours. Right now at 10 AM she is talking to them and telling them to get out. She asks me ifi they are my friends and why I let them in. I am at odds at how to deal with this every day and night occurrence. I welcome any input you may have to help me deal with this. how have…
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The next milestone on this horrid journey
It was a hard afternoon. DH had his license medically suspended in 9/2025 and today we made the trek into the DMV office to surrender the suspended license for a photo ID. It doesn’t change anything really but I can’t help but think it was a hard thing for him to do. He was so quiet on the drive. The staffer was very kind…
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activities to pass time
I thought I'd mention an activity I used to give my DH to do. I found some colored wire connectors, marettes, keys in his garage organizer. I would set these out and give him a few plastic bowls to sort them into by color. He took it very seriously, struggling to match the colors. It also exhausted him and he would often…
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TV show??
Is there a TV show a person with dementia can follow? Do you have any suggestions? We used to watch TV together a lot, but there doesn't seem to be a show DH can follow anymore.
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Medicaid's Home and Community-Based Services (HCBS) waivers.
Does anyone have experiences with Medicaid's Home and Community-Based Services (HCBS) waivers for at-home care? My elder law attorney said I should call and apply for an in-home care Medicaid waiver. I did so yesterday. They will call me to set up an in-home evaluation of my DW. From what I can gather, if approved they…
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My saddest day
Yesterday my wife admitted that she can't read a clock any longer. We just buried her mom last week at 95 years old. She had dementia for at least 15 years. Probably much longer. She lived alone so who knows . My wife was diagnosed last October but has been having problems much longer. She retired in 2021 because she could…
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Special Supplemental Benefits for the Chronically Ill (SSBCI)
Is anyone familiar with SSBCI? One of the eligible conditions is Dementia. What are the benefits? And how long does it take to process? I would appreciate hearing from anyone who has gone through the process. Thank you in advance for your comments.
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Can neuropsych test results be wrong?
Here is some background and the reason he was tested: My DH has been complaining for several years about memory problems. At first I brushed it off, but in the past 2 yrs I see it for myself. Other things that concern me are his difficulties in dealing with his phone and computer. He was always way ahead of me with…
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Bathroom troubles
Forgive me if this has been asked before. My DH no longer knows what the toilet is or what he needs to do when in front of it. I have been assisting with a urinal for him to pee into. (Also, i have a raised commode on the toilet as he resists sitting and I'm struggling getting him too sit down for a BM.) I am at my wits…
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Late middle stage dementia
I need some advice about my GF of 13years. My GF's dementia has been getting worse over the last 6 years. We live in Florida. She is at the point that she didn't recognize me when I drove up to her in my golf cart. She also didn't recognize my son last month. She has left at least 1 pot burning on the stove. She has gotten…
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Just Starting This Journey
This will be a short post. I read a few other posts and so far my situation is not as concerning as others. My husband REM has an early diagnosis of Mild Cognitive Impairment most likely caused by Alzheimer's. He has issues with short term memory and repeatedly asking me the same questions over and over. He has developed a…
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Slipping Away
My spouse, so long as I have known her (14 years) has always been somewhat reality-challenged, fabricating things in her brain (much about me) that just isn't true, and resisting all attempts to impart truth. It just made her very angry to threaten the fictional world view. It's been frustrating, but tolerable so long as…
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I am new to this forum
Hi Im taking care of my 72 years old wife who was diagnosed for the last 5 years. She's manageable and taking all prescribed meds. Did any one has an experience with recent new IV anti-amyloid infusions Donanemab or lecanemab? She was not qualified because she is in moderate stage. Even if we are willing to pay out of…
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This says it all…
I’ve been in Stage 8 now for almost 2 months. I read this today and this puts in words exactly how we feel through this journey. My thoughts are with those of you still struggling with your LO or with the final goodbye.
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How do you hold it together and respond kindly?
Hi there - I think i mostly need to vent ... again. <sigh> My 73 year old DH has Alz. My best guess is early to mid stage 5. He still does all of his self care and small projects around the house. Although some tasks he really seems to obsess over. Like where the cats are, or cleaning constantly. He has difficulty with…
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When did it start?
My DH is currently in stage four, early stage five. He was officially diagnosed three years ago. I really began to suspect something was wrong when he began having trouble with electronics, something he used to excel at. Looking back, I realize his personality had begun to change long before that. What was your first clue…
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Phantom items
For a couple of months or so my DH will believe he has something in his hand and will want to give it to me. At first it was occasionally, but now it is multiple times each day. I just pretend I take it from him. Today he was very careful with what he “had” in his hand and did hand it to me so I made sure to be very gentle…
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When I look back at what I WAS worried about…
I feel foolish. Our problems are slowly getting manageable as far as reigning in my DHs spending and not being able to manage our finances. The real troubles are here now and I just can’t do it. I “feel” so sick. I have amended my statement “I am so sick!” After trying to get help with my lupus and other health issues. I…
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cbd gummies for caregiver
My HWD is extremely difficult and I am with him 24/7 as a sole caregiver. My PCP (his also) is very concerned about my being depressed and has suggested cbd gummies. I don't take any prescription meds and don't want to start on zoloft, etc, but am considering the gummies on a need be basis…not daily. I was wondering if any…
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How to handle behaviors ….
Craving for sweets insatiable, insists on donuts or turnovers for breakfast and lunch! He’s on metformin for diabetes. DH is either really hungry or doesn’t remember he has eaten and will go thru fridge making a sandwich if he can’t find cookies after he has eaten his meal. Wears same stained urine soaked clothes day and…
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What stage is this.
I wonder if DH is further along in this journey than I suspect. He has had one episode of a delusion. He swore someone was knocking on our door in the middle of the night. We have a ring camera, so I knew this didn't happen. Could have been a vivid dream but he became angry with me when I said it didn't happen. I know in…
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Start of incontinence
I knew the day would come. DH is now urinary incontinent for about a week now. I’ve been lucky it held off for as long as it did. He’s always been very resistant to my helping him in the bathroom with cleaning himself, etc, and it’s worse now. I don’t know how I’m going to get him to wear pull-ups when it’s hard to even…
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DH won't go for testing
First time here - getting to the stage where I need caregiver support. My DH doesn't have a diagnosis, as he's in complete denial that he has any cognitive issues. Our PCP has given a standard test for age-related cognitive decline, which he has passed, technically. What we're living with: he can't manage finances at all,…