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What Is Looking After Yourself
This might seem a bit silly but it’s said to me often by medical staff “look after yourself” Could I ask what does everyone do to look after themselves. Apart from getting enough sleep which is hard, is it a frame of mind, time out on your own once or twice a week and then where do you go. When you have a baby you never…
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Social Scientists, We Are Here
As I read through the threads on here and, like all of you, find great value and comfort from this forum, I am struck by the discrepancies between our real life and what is described by most (I am sure there are exceptions) articles or studies. As I began our journey, the medical community could offer little, if any,…
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Our journey together.
We are in year 3 of my wife’s battle with Early Onset Alzheimer’s Disease but I still feel this way with her. To My Beautiful Wife Each time I look at you, I just smile to myself and think, You are perfect just the way you are, my one in a million. You are my special kind of love that makes me realize that life gave me the…
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Just need to talk to my friends (210)
I started this months new thread, 210, but entitled it 110. I tried to delete or change it but didn't work. Maybe this will. The other one is saved somewhere. So sorry for the confusion.
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Help with restless, sleepless nights
At bedtime, my wife will sleep for about an hour then will become restless and repeatedly get up and down, then roam around the bedroom and upstairs all night like a zombie. She has moderate/late stage Alzheimers and takes risperidone (Risperdal) but doc is weaning her off and will replace with Geodon soon. She also takes…
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Qualities I Need to Work On
Yesterday, DH wanted to go to the grocery store with me. I should have been pleased about this since he hasn’t had any appetite or energy lately. As he slowly pushed the grocery cart around using it as a walker, I gathered some items we needed; and he filled the cart with items that we don’t need, or he should not be…
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Refusing to take meds
This is a new problem for us. My DH is pitching a FIT when it’s time to take his meds. He absolutely refuses to do so. I’m probably not doing this right, but I beg him to take them for his dr’s sake. Last night I begged him to take them for Cody, that’s the dog. He did. He started chewing them a few weeks back, so I…
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Considering move into Assisted Living for both of us
DH has AL, probably stage 4. He is 90 and I am a couple of years younger with my own health issues but still an active senior. Our children are concerned about 2 things: firstly what will they do with their father if I am suddenly incompacitated or die, and secondly they see the strain this is putting on me. In all…
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Long Naps
Can I just say…I love it so dang much when my DW takes a long nap. She's at about 3-4 hours a nap every day now. I know that means she's moving along, but I do enjoy these moments of quiet. I'm happy she gets them too.
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DH always wants to leave the house
All day long, DH is constantly wanting to “get going”. He is fixated on walking a specific route in the neighborhood. We walk the route, stopping to talk to anyone we see (which is another challenge), we come home, change out of our sweaty clothes, then he says “are you ready to go?” This goes on ALL DAY LONG. He doesn’t…
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Sundowning
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Questions About Elder Care Attorneys
I'm exhausted from not sleeping at night because I contacted an elder care attorney and they now want almost $9,000.00 to arrange things like Medicaid application, getting the house/cars/etc. into only my name. We already both had our Power of Attorneys, Wills and Five Wishes taken care of. My question is this - is this a…
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Trying to keep my sanity
Hi. I'm relatively new here. My DH was diagnosed a year ago with Alz., but I noticed changes about 3 years prior to diagnosis. I'm not totally unfamiliar with Alz. as I was my Mom's advocate in her last few years with it. She has passed, but I thank her for the practice I received ... not that anyone wants practice or any…
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The Cavalry Is Not Coming
Reposting for the new platform. I have not posted here for quite a while, and I want to let you know that I am still here. I hope you all are doing well, and I also have a thought process to share with you. October 1, 2022 will mark seven years since my wife’s dementia became obvious, and that I knew for certain that this…
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Photograph and Memories
Photograph And Memories By Miles Woolley My beautiful wife has an interesting history of high achievement in her education and intellectual advancement. She started her adult life with a bachelor’s degree in nursing and served in the Army Nurse Corps earning the rank of First Lieutenant. Following that, she returned to…
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How long can show timing last?
I was purposefully eavesdropping on my DH's phone conversation with his Mom because that's the kind of person I am now. And I was thinking how good he sounded with her. But then I heard him tell her about an argument he had with his sibling that did not really happen. He did this about six months ago before his diagnosis,…
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Sleep
Briefly, my DW was diagnosed in 2019 and is well on her way into the journey. Non verbal (except jabbering all day long, assistance with everything, etc.). So we entered a new phase a few months ago of my DW not sleeping through the night. She has been on lexapro almost from the beginning and risperidone shortly…
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Increased appetite?
Recently DH has had an increase in his appetite. He will get up during the night and eat. I find the evidence of this when I wake up. I don't always wake up during the night when he gets up because I have a cochlear implant which has to be removed at bedtime, and that leaves me completely deaf. So when I do wake up, I find…
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In hospital and medicine
In the hospital they have him on serquel in day and Ativan at night he is on Ativan, at night He keeps trying to get out of bed but is too groggy. He is very upset and keeps saying he wants to come home. But more aware, sort of. How can I calm him or should I leave him alone for now?
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New to this whole thing
My husband, my best friend, was just diagnosed with AD. He is 65. He's had a amyloid/tau protein blood test, MRI, PET scan, neuropsych testing and it was determined that was the diagnosis. The neurologist was very scientific about what AD is but wouldn't tell us anything about progression or what to expect or what stage he…
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Says he doesn’t have Alzheimer’s
Background: My DH is 56 and was diagnosed with Early Onset Alzheimer’s after an MRI, Neuropsychological Evaluation, and CT PET Scan. The doctor told him he has Alzheimer’s, and he and I talk about it every once in a while. He has been out of work for nearly a year because he accepted an Early Retirement Severance Package…
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Tracking watches
I am looking for a watch with gps tracking. What would you recommend? We have Tile gps trackers on phones, keys, wallets. Anything else you would recommend? Thank you in advance for your suggestions.
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So over this...
I hate my husband. I've been thinking this way for a long time and just felt like I needed to say it. I hate everything about him and this disease. I have no help, so the last 7 years have been very difficult. I have some in home help starting soon. Sorry to burden everyone with such a negative post.
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Having a time coping with Husband
I have noticed big changes in behavior and took him to Dr. and have finally got appointment Oct 1 for neurologist. He has been throwing things away, good things, loosing thing, not knowing what day it is, I ask him all day to make his bed and he say he will get to it and it doesn't happen. I had to start checking on him…
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CHERISH THOSE POSITIVE PEOPLE AROUND YOU
If there is anything I have learned…only in the very beginning of this incredibly difficult and challenging disease process is that you truly learn who loves & cares for you.. and spouse (DH) be it family or friends. As much as you will or have gone out on a limb for others in their difficult or challenging times.. it most…
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My husband isn’t diagnosed yet
his memory is worse every day. So frustrating with all the repeated questions, plus he cat hear wear and has a cochlear implant, so lots of yelling answers to him. Good thing I have the patience of a saint!
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PWD refusing to pee with aide, instead ends up going on floor, help!
Looking for tips to improve a situation! My husband is not incontinent but sometimes needs help in the bathroom, either verbal cueing, or sometimes a bit of physical guidance, to either stand close enough to the bowl to aim or to sit down and pee that way. The problem is that now I'm back at work, the aide (who's in her…
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Anosognosia Is Overwhelming Me
I know my DH cannot help having Anosognosia as part of his Alzheimers but WOW is it taking a toll on me. I JUST NEED TO VENT. NO ADVICE PLEASE. I have always been a person who is grounded in facts and science. Now I must try to shift my core personality to accommodate my DH’s lack of understanding of either of these as it…
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pre loss grief
Interesting Article Understanding family members’ grief for a living loved one Study looks at factors that influence pre-loss grief May 10th, 2021 The symptoms of grief people feel for a loved one facing a life-limiting illness fluctuate over time, a new study found – suggesting that individuals can adjust to their…
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i am so confused
My DH has been diagnosed with early stage dementia. He has been tested and it is not Alzheimer's. His short term memory is getting worse every day. He cant remember where we are going at all. I do the driving now. As an example I will ask him over and over to put is partial plate in. By the time he gets up the stairs he…