-
Needing to vent - progression - sorry in advance for the length
Hi everyone, After a 2 1/2week trip to Japan with my stage 5 (I think) DH we're trying to get back into a routine. I've been reading other posts here since my return, but after finding that I've been sort of ignoring my old routine of documenting his behaviors and progression I felt coming here and venting might help reset…
-
Just need to talk to my friends (218)
Happy May Day!! Hard to believe the year is one- third gone already. Hopefully May will will be less stormy but with more rain. We're still in a drought in most of Oklahoma. Carl, I looked at pictures of your new car. I think it's pretty and looks roomy.. Hope you enjoy it.
-
Medicare question
We currently have a medicare advantage plan in CA, Kaiser Sr Advantage. We are moving to NC and need to select a different plan because Kaiser is not avail there. We like medicare advantage plans because they cover parts A, B and C but I have been following with interest the thread about tge GUIDE program through Medicare.…
-
New diagnosis/living with angry spouse
I am new here. Wife recently diagnosed with early dementia. How does a person cope with someone’s anger without throwing up your hands and running for the hills?
-
Showtiming Is Fascinating
My husband (56 with EOA) recently had a 4-week hospital stay due to Ulcerative Colitis, which led to blood clots and malnutrition. He is currently at home. He can barely walk. He eats maybe 500 calories a day. He argues with me about taking his medications every single morning. He did the same thing in the hospital and had…
-
Wants me near always
My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…
-
Rinse and Repeat
Every so often depression rears its ugly head, throwing me off course. While helping my husband out of bed today he tells me he’s tired of sleeping under an X-ray, it hurts his legs. I calmly tell him I will make sure it doesn’t happen again. He feels better, I feel sad. He won’t remember the conversation. Live in the…
-
What is happening?
This is just an observation and a feeling, but since my DH passed 4 months ago, I have heard from at least five people, all women, some of whom I know quite well, telling me their husbands are having cognitive issues or have dementia. It’s very unnerving and seems like it’s becoming all too common. What is going on? It’s…
-
If you have any plans to fly...
My DH and I went on a long weekend away. It was a great time. We flew to FL, enjoyed a weekend of beautiful weather, and shared some much needed time with our daughter, SIL, and grandkids (who met us there). I tell you this, because I learned about a sanity saving option when booking our airline tickets. I was able to…
-
TRAVEL CAUSES DISORIENTATION
My LO is 64 with a diagnosis of EOAD. He is progressing faster than anticipated. Everyone is saying 'travel / do things / take them places'. But what I have discovered is there is a huge price to pay. Halfway through the 'experience' I see him start declining mentally. I can see it in his eyes and the disorientation…
-
Young diagnosis of early onset ALZwgat to do first?
I’m a new member. My husband (48) was diagnosed Ed last week with Early AZ via blood test and pet scan. What do I do now?? I’m lost. Sad. Angry and need a path.
-
CG for Spouse with ADHD & early stage AD
I am SO losing it. I have been at the end of my rope for years living with a spouse with uncompensated ADHD. His early AD complicated by ADHD is driving me over the edge. I was able to have him seen for neuro-cognitive rehab, but that was futile because he refuses to acknowledge he has a problem either with ADHD or AD. I…
-
Resources
Just wanted to offer a couple resources I found afterwards. I wish resources for us were better promoted but if we all share what we find, it might help one person. The two I will mention are: Hilarity For Charity (commonly referred to as HFC) https://wearehfc.org/ CareYaYa https://www.careyaya.org/about I can personally…
-
Not Eligible For Infusion Treatments
My 75-year-old dad was diagnosed with vascular dementia and Alzheimer's three months ago. We were hoping he could do the infusions, but have learned he can't today. This feels almost as bad as when he was first diagnosed. He has APOE 4/4 and signs of one Superficial Siderosis on his ARIA MRI which makes it too dangerous to…
-
Joe is gone
Good morning. I joined this discussion board over five years ago. Y'all have been with me as I learned the importance of seeing a lawyer, as I hoped to keep Joe home, as I placed him in memory care, as I negotiated the girlfriend in MC, and throughout the journey. I appreciate the people here—those who were here when I…
-
How to stop POA from calling/answering scam numbers
DH did it again, he called a number that was on his Ipad . I am guessing that he keeps clicking on something on FB that triggers a lockdown of his Ipad. This has been going on for several months. Unbeknownst to me, accompanying the lockdown is a message to call a certain number as the account has been hacked. Without going…
-
LEQEMBI Testimonials
Hello, I would like to hear testimonials from people, who have already completed LEQEMBI infusions. Was the cost and risk worth the benefit?
-
Need a TV remote for dementia patients - any experience?
My DH is having great difficulty with the remote and then I have to try to figure out how to get it back to the stations we use. I have been looking online but haven't found what we need. Anyone have experience with either a simpler remote, voice remote or Alexa for controlling the TV? I feel so badly for my husband as he…
-
Have I missed something???
Had a Neurologist app't with my DW and all went well until he ask how her social life is going. My DW said "good' I talk with my family and neighbors often. He then said it would be even better if she would visit other social groups outside of that. I really didn't know what to make of that being my DW's conversations are…
-
Tipps and tricks needed
I have been caring for my DH for the last 13+ years with FTD. Hospices is on board and I have help from the VA. I am so grateful. My DH is beginning not to be able to walk even with assistance and is starting not to stand from bed to wheelchair. So staying in bed is becoming a reality for him. I am able to get him out of…
-
A New Level of Loneliness
I see that I had a post last year about the loneliness of living with a spouse with AL. Of course, the disease has progressed. I'm guessing that he is more stage 4 than 3. Really, who can tell for sure. We have a daughter who is not currently speaking to us as she works through some things. Exactly what things, she did not…
-
Alzheimer's Research at NIH
RFK Jr.: "We should have the cure for Alzheimer’s today. We don’t have it PURELY because of corruption at NIH. And we are going to have it quickly." He said that the scientists at the NIH focused on a single hypothesis and discounted multiple other hypotheses due to corruption. The NIH will now focus on finding a cure. I…
-
FTD then reassessed with Alzheimer's disease
DW was diagnosed with logopenic variant of Primary Progressive Aphasia in March 2022. In August 2024, it was recommend to have an amyloid PET Scan. The PET Scan showed and confirmed that Alzheimer's disease was causing the aphasia not frontotemporal lobe degeneration. I've seen it referred to as atypical Alzheimer’s. Also,…
-
Finances
Am encountering extreme difficulty removing my wife, diagnosed 3 years ago with Alzheimer’s, from financial access without being accused as controlling or treating her like a child.
-
DH asking “What’s wrong with me?”
DH is under hospice care, is bed bound, and I have been told he likely won’t last the summer. He asks me, “ what’s wrong with me.?… when can we leave?…why are we here?”…. I have not said “ You are dying”. I have mentioned Alzheimer’s is a difficult disease, that it is affecting how you feel…but he doesn’t remember or know…
-
Peeing pants.
Hello. I feel like I’m drowning. My husband was diagnosed 1/22 with Alzheimer’s. I feel like he is late 5 stage or going into 6. He has peed his pants 2 times now. Does this mean he’s incontinent? Today I tried to get him to put on men’s depends. He refused to put them on. How do I get him to wear them? I’ve been touring…
-
Activities for care receiver
I am new to the forum. I'm looking to find activities my wife can do. She really enjoyed reading both with physical books and articles on the web. The books have become hard to find she can enjoy, let alone follow. The computer has become too complicated for her to work of her. Any Ideas?
-
Coming to peace with Hospice
Last months I posted about ESBL and Hospice. I wrestled for quite awhile about deciding to place my DH on hospice. Many things became clear to me which made the decision more manageable for me. I struggled mightily with the thought I would be killing my husband if I didn’t continue to chase any and all treatments. I…
-
New behavior.. looking for dinner
Past few weeks DH has been coming into the kitchen every 10 minutes as I am cooking dinner to see if it was ready! He always has an excuse.. I want to see what you are doing. Wanted to tell you I’m going to the bathroom I want to get a drink ( he has one already) . I know he is looking for his food. So I prepare his give…
-
Loss of driving privileges
My DH was advised by his PCP not to drive. When he objected, he was referred to a rehab clinic for a driving evaluation by an occupational therapist who subsequently agreed with his doctor's assessment. Since he has anosognosia he does not remember any of this, and is convinced that I won't let him drive the car. Whenever…