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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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How to deal with a mom that thinks you're stealing.
Hello, first time poster and just wanted to get some advice. My 87yr young mother is in early/mid stage dementia. Her short term memory is at maybe 30%. And unfortunately she's begun to confuse long term memories with recent ones. Example, she thinks my grandma who passed away 47 yrs ago just passed away a couple years ago…
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Questions about a new medication
My mom in in the moderate stage with Alzheimer’s. For several years she has been prescribed/taking Donepezil and at this weeks visite to her memory care specialist she was taken off the donepezil and prescribed Rivastigmine. Has anyone had any experience with this drug?
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How to Get a Diasgnois
Hello, I'm new here. Currently, I'm caring for my Dad (71) and he lives with me. Over the course of 2025 he has fallen several times as a result of heart pausing, heavy drinking, and most recently what we think are seizures. He has broken his back, his arm (requiring surgery and when they put in the pace-maker as well),…
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Mom in Indep. Living but not sure that's the right place...
WOW so much going on I'll try to keep this concise. First of all, I'm grateful to have a community like this and I'm really hoping I can get some ideas. My mom (82) was diagnosed with minor neuro decline two years ago and her annual followups went minor to medium to major this summer. It's now "suspected Alzheimer disease"…
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Safety concerns
I have been caring for my Mom who was last assessed at moderate stage Alzheimer’s. I moved in with her about two months ago due to the frequency of late night calls and confusion I was seeing. Last night a friend of mine raised his voice at my 19 year old son for something unrelated to my Mom. She began to spiral into…
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Hello- I am happy to have found this forum and I am in desperate need of advice
For over 2 years now I have been on what seems like a wild goose chase looking for proper professional guidance for my mother's increasing concerning behavior. She is 78 years old and I have been living in the house with her and dad for several years due to her having a previous illness that had her in the ICU and…
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New to the group!
Hello everyone! My name is Nicole and my Dad has recently been diagnosed with Alzheimer’s and Dementia. He has been in a cognitive decline for a couple of years but just went to the neurologist last week to confirm his diagnosis. I feel like since then it’s made me sad . I’m trying to do what I can to help . He lives at…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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struggling
Hi dear community, I know you all will get it. I'm having one of those days. I feel like I can't be all of the places that I need to be. My nerves feel fried. Just wanted to say that if this is also you, my hand is in yours. 💜 And you are not alone. A friend shared this (see pic) about emotional burnout and I felt it in my…
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Mom is still Transitioning
This means dieing and it's been two days and she hasn't passed away yet. What should I be doing, while waiting. I am sick, tired, exhausted, and emotionally drained. But can't sleep. I was thinking about calling my family but they are feeling the same. I went to church and prayed. I have my cross next to me just waiting…
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Grief while still caring for LO
I just need to vent to someone that understands. Mom is in MC so I know I am not dealing with as much as many here, but it is so hard. She is sad, angry, scared and confused and any one of those is hard to watch your Mom go through. I miss my Mom and all the good times. I had my doctor say “it must be easier now that she…
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Mom is transitioning
I never saw someone I loved so dearly suffer like my Mom. It's all in God's hands now. I am so tired.
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When or if or why to call ambulance if notable changes in bp and demeanor
hi all…my mom has late stage Alzheimer’s but lives at home with 24/7 care. My dad prob also has dementia but always thinks something is wrong. Yesterday she was much more dazed than usual and higher BP than usual. My dad wanted to call an ambulance. Mom just existing no expression of pain. I told him to let her be. I want…
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Taking care of my Mom
My Mom has Dementia, still living home with my dad, and I go to their home every day to help them. She accuses my dad that he is having sex with a 13 year old girl along with me and my 2 other sisters. Some days she is good then other days really off the wall. I get very upset because I protect my dad. I know I shouldn’t…
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home care vs assisted living
My mom has Alzheimers and my dad has dementia. I'm trying to decide whether to place them in an assisted living facility or hire 24/7 home health care in their home. They live in NY and I'm in MA. Does anyone have experience with either? I'm trying to think of a list of pros and cons. Thanks.
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Caregiver who is a nurse
Hi, This is my first post. My mom has dementia that has progressed to moderate. She is very stubborn and becomes belligerent if she does not get her way. She does not realize that she has memory issues and doesn’t understand why we are not allowing her to be alone. She is refusing to shower because she thinks she showers…
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Grief about the loss of relationship with mom
Hi everyone, this is my first post. I was wondering if anyone had been through something like this. My mother has Alzheimer's. I had a friendship with her over the years and now that's obviously changed and shrunk due to the disease. I understand that the disease has affected her brain and stolen her ability to manage…
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PWD calling police repeatedly
What can we do? PWD (Dad) keeps calling the police reporting his car stolen and they’ve had to come out repeatedly. His car is not stolen, though it is gone because he stopped being able to manage maintenance and repairs even with assistance, and should not be driving anyhow. What do we do? This is a huge waste of the PD’s…
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Saw Mom after three weeks
Hello, I basically write updates on here so I remember when I saw my Mom at the nursing home. I need to also vent somewhere that other people understand. I hope I can help others here as well. Mom has lost a lot of weight, I am afraid to feed her because she can choke from food. And I believe I am not qualified to feed…
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Break in the Fog
I wanted to share my recent experience. I visited my mother yesterday, and I wasn't expecting much because she has been showing late stage six behaviors for several weeks now. The last lucid moments I had with Mom were during Mother's Day and early June. The decline was at first rapid when she qualified for hospice care in…
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Guilt, Grief, and Memory Care
My mother and I always had a difficult relationship, but I know she loved me very much. She is in the moderate stages of Alzheimer’s and this disease has actually changed her into the sweetest person, partially due to her taking sertraline. So, in a turn of events I actually really like being around her now. She has enough…
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ALZ Caregiver Zoom
For anyone who may be interested, I created a Zoom meeting for next Tuesday, September 23 at 6 PM EST. I hope some of you see this and will join :) Elyse Caldwell is inviting you to a scheduled Zoom meeting. Join Zoom Meeting https://us02web.zoom.us/j/89572217820?pwd=eBt4xrqL3OB87URTZedzCr1ZZ0okPZ.1 Meeting ID: 895 7221…
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Medicare Question
Hi everyone, My mom was just diagnosed with Alzheimer's (mild) state. She currently has Medicare under an Advantage Plan - United Healthcare. Because of her new diagnosis, we are considering moving her back to Original Medicare in order to have more options for care. Does anyone have advice about this (i.e. having Original…
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Should I move my mom?
Hello, My mom is in a memory unit of an assisted living facility. She is nearly 98 years old, wheelchair bound, and can still have basic conversations. The details are below but to make a long story short, they sent my mom to the ER without an aid and without informing me. The details: The other morning I got a call from…
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How to help mom when dad has the disease
My mom and dad are living in a memory care facility. My dad has Alzheimers and my mom does not. My dad is in the later stages of the disease and has recently begun calling my mom his ex-wife AND has been seen holding hands with other female residents. My mom has been sobbing uncontrollably. She's feeling guilty when she…
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Feeling Guilty
Both my father and mother entered a nursing home a few months ago. I stop by each week to visit them. Its so clear they are unhappy there. They look at it as a huge loss to their freedom. The staff tell them what do - "sit here" "sit there". They are adults but treated like children sometimes. I feel terribly guilty and…
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Interview a doctor?
Hello, Nice to meet you all- I'm looking to pick a new primary or geriatric spanish speaking doc for my Mom (75) with early alzheimers when open enrollment happens for Medicare. But, I wish there was a way to interview them first before making them her doctor. Is that a thing? Is it weird to do that? Do people do that?…
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We need guidance 🙏
We moved my MIL (83alz) out of her state and into our home in a different state 9 months ago. She is mid-late stage and still physically capable. She obsesses over 2 specific things and we haven’t been able to redirect or stop it. 1- she thinks she needs to go to the bathroom constantly. She goes back and forth from one…
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Here's a new one I wasn't ready for
Dad was diagnosed with VD and onsight AZ almost 4 years ago. He has been in AL for the past 6 months awaiting "home renovations" and plans to move into the home when finished (depending on the day and time of course as it changes daily for him). He's doing really well and 99% of the time he absolutely loves it and the…
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Similar ?
I’m in my 40s, unemployed due to disability, and living with my 93-year-old adopted mother, who is in the late stages of vascular dementia. I don’t have children, friends, or a partner, so she is truly all I have. It’s painful and frightening to watch her decline, and I often feel crushed by the thought of what life will…