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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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one of those self critical days
Hello dear community, I am having one of those days when I question my decisions and see faults and what's lacking. I know that's silly because over these 2+ years I've done several things that needed doing to keep dad safe. Ugh. The reality, though, is that even when I remind myself of the positives I still feel critical.…
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How to handle repeated requests to buy a new car
Hello All, It's me again, with the ongoing car dilemma. We sold my husband's car in late May. He had not driven it in over a year. Now that it is gone, he is insistent that he needs a new car. He talks about it every day, to anyone who will listen. Every time we drive somewhere, he is pointing out how everyone has a new…
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Mixed Signals
Hi. A few weeks ago my mom was having issues communicating, seemingly out of nowhere. She would just stop talking and looking to me as if she wanted me to answer for her and shrugging. After lots of doctor’s appointments, they think it was TIA. Since starting Plavix, she’s had no more episodes, but during the barrage of…
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No purpose
I am struggling with helping my Mom feel she still has a purpose. After 2 1/2 years in AL, she was recently (3 weeks ago) moved to MC. Her anxiety was increasing and staff felt as though the smaller environment would be better for her. In between activities (she would go, but rarely actively participate) she didn't know…
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Does anyone else feel this way?
Both of my parents have memory issues. My mom has a diagnosis of Alzheimers- probably late stage 4, and my dad has dementia, non specified, because he refuses to see a doctor. I don't want to spend time with them anymore because it's hard—— for all the reasons. In an effort to keep this post short, they are safe, have…
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Caring for Mom full time
Hi. I am new to this forum. I have moved my mom in with me due to her Alzheimer's progression. This was a quick decision not giving much time to prepare my home. I have recently needed to secure my home due to her hallucinations & exiting. I am on a Family leave of absence without help to relieve me. I live in a different…
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Neurologist Visit for mom
Hi everyone- I am new to this. My mom has some kind of dementia. She is very difficult to get to the doctor, talks in circles and lies and makes up excuses why she can’t go. I need for her to see a physician so they can declare her incapacitated so her Medical POA will be invoked, so I can legally help her stay safe. She…
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Need to vent about my brother
Mom is diabetic and has edema in her legs. She refuses to wear support stockings and eats any sweet treat she is offered, yet asks me every time I bring her snacks if they are low calorie (not low carb), because she is worried about her diabetes. If I buy her low carb stuff she doesn’t like it, so I’m usually vague and…
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first visit to inpatient geri psych hospital to see Dad today
Hello dear community, This afternoon I get to see Dad for the 1st time at the geri psych hospital. I am glad to get to see him and much like going to MC I am wondering what might be awaiting me on the other side of that door. He went Thursday during the night by ems transport from his MC. I scheduled this appt by speaking…
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Do delusions end, go away, stop?
My wife has is now having delusions. Most are just odd. But now she has decided that I (a 78 year old) have married a wealthy 45 year old woman in Montana! Yes there is some humor to that, but she is intensely angry with me. My wife is in an MC facility here in AZ. I have no idea what triggered this delusion. Will this…
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Paranoia
My father is remembering that we used to have a kerosene heater in the home…like in the 1980’s. He keeps yelling at my sister because he feels she removed it from the home…now. She tries to reassure him that we had to get rid of it years and years ago due to my mom’s copd. Nevertheless, He keeps yelling at her because he…
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Move to be closer to mom? Or move her close to me?
Hi- these forums have been really helpful, thank you. I’m currently struggling with a new dilemma. I moved my mom into memory care this April, 2026. I see her monthly, and stay for 3 to 4 days at a time at my niece‘s house. I’m realizing I don’t even get to see her very much while I’m there because I’m running around…
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Sibling Disagreements
So after my mom's meltdown against having a caregiver on Sundays, she told my sister she wanted to go live in a home for seniors in Orlando. My sister is now insisting I send her to a home instead of keeping her at home with me. Have any of you had siblings that thought they knew what was best of your parent? How do you…
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a move needed after geri psych inpatient treatment
Hello dear community, Dad seems to be doing better thankfully. Discharge back to his MC is planned for Monday. His memory care has suggested that he may need a smaller environment now. Sounds like I need to add him to some waitlists. The constantly shifting sands of Alzheimer's. I think this may mean that they think it is…
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Advice Needed After Moving My YOA Mom from AL to MC
I posted here a while back when my mom was first diagnosed with ALZ and I was trying to move her from FL to GA to be closer to me. She’s 65, I’m 30, and I’ve been her POA for about a year. She’s divorced, so this has all been pretty overwhelming at times. After a really tough few months, my sister and I were able to get…
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Thoughts on taking Mom for hometown visit?
My mom moved into AL near me, 2.5 hours away from her house, in April. She has adjusted fairly well, only occasionally talking about the possibility of someday moving back to her house, but for the most part, accepting of her current situation (even if somewhat grudgingly). She was notified recently that my dad's headstone…
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What has changed in a year and a half
Greetings all. In September 2023, I moved both my parents into my home. My dear mom has Alzheimer's. My dear dad has mild cognitive impairment. They are 85 and 87 respectively. For more background, see the discussion at https://alzconnected.org/discussion/64542/moving-my-folks-into-my-house#latest btw - I copied and pasted…
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Prepared for so much EXECPT every new symptom my Dad has.
My DD stage 4 has been doing really well. He adapted to the lifestyle changes, the MIND diet. His MRI & bloodwork results are encouraging. He wanted to take a trip with me to see my daughter in Law School (it’s always been his dream to have an attorney in the family) we live in PA she is in IL. The plan was to fly out…
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Moving Caregivers Around in MC?
The MCF where my father lives has several discrete areas (“neighborhoods”), with a set of rooms, laundry, and dining room. These areas are not arranged by level of care; rooms are luck of the draw when moving in (whatever is open). Caregivers are assigned to one of the areas during a shift; nurses supervise two areas…
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How to introduce temporary care giver to my mom?
It has been two years that we brought mom to live with us who is diagnosed with Vasular Dementia and Alzheimer. I am her primary care giver who needs some break once a while. What is best way to introduce a temporary care giver? We tried once for only 2 hours but she got so upset that we regret the experience. Need…
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poignant question
We had a scare recently. Sometimes we don't know whether what is happening is mental or physical. She was feeling like her leg was underwater, her feet were cold. It was very disconcerting. I suspected it was mental because the symptoms were so odd. The doctor agreed with me. We just had to let it ride. Her voice is…
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Next steps
Hello, I am new to this group. My mother was recently diagnosed with Alzheimers. In the past month her condition has rapidly worsened. I have asked her neurologist about support and what steps to take next and she referred me to this website. Does anyone know what the next steps should be if my mom has become so paranoid…
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Anger and depression
My father has been declining rapidly mentally. His depression hasn't been able to be controlled with meds and he keeps getting meaner. He's in denial but sometimes I think what I say actually makes it to his thinking process sometimes but is often turned around on me and it's my fault or something I did or didn't do. I'm…
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What a hell-a-la-boo
My story has been shared over the past 2.5 years, so I will pick up from where I left off. Mom is recovering nicely from her Ablation. I thank God for that. I am thankful also that her UTI and URI are both in the past. Sadly, what is also in the past, is her memory of events that led to her hospitalization 2 weeks ago,…
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Mom is in MC but we are still questioning if it was too soon
Please help. We moved our mom from assisted living to memory care (within the same facility) a little over 2 weeks ago. She wasn't functioning great in AL in terms of her ability to engage in activities, go on the errand trips, etc. But she was happy. She would walk around the building, say hello and chat with people and…
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Sexual aggression in MC
First post here...my dad was diagnosed with vascular dementia last summer. We recently had to move him into MC. He was adjusting well, but then he began exposing himself to others and some touching between him and others. He was moved out of MC onto a regular nursing home floor. A few days ago, the night nurse found him…
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Aricept dose adjustments
When our LO was diagnosed with dementia in Dec 2024, he was started on aricept, continues to take it before bed and right now not at his house so unsure of his dose. I estimate given the symptoms we are seeing he is probably mid to late stage 5. At this point in time would asking for his dose to be adjusted up, help with…
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I Need Help
Hello! My name is Aaliyah. I am 23. I was adopted by my grandparents when I was 2 months old. They've raised me without any help from my biological parents. In 2016, my freshmen year of highschool, I lost my grandfather to Alzheimer's. I took it insanely hard. I was one of the only ones he remembered in the end. I had…
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cried through MC breakfast w dad... then tears in the parking lot
Some days I just wanna read posts here and benefit from the sense of community and of understanding. As dad declines and my heart breaks, sometimes I just don't want to be around people who can't understand the things we do and see with our LOs. Maybe I could write a song called tears in the parking lot for those of us who…
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Not sure what to do!
Back in February my mom wasn't answering her phone one morning. I went to her house and found her on the floor of her bedroom, presumably she had been there most of the night. Long story short, after a month in skilled care, she went to an assisted living facility and she will not be going home. She is not adjusting well…