-
Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
-
Help with phone
My 83 year old dad is in the mid to late stages of dementia. Most days he has difficulty operating his iPhone. Are there any phones for seniors/dementia patients that would be easier for him to navigate?
-
Caregiving from afar
Hi there, I am new to this group and new to the dementia journey with my mom. My father passed away right before Christmas, and now she is alone in their home. I live 2.5 hours away, and my only other sibling is 5 hours away from her. Mom has been showing signs of dementia for about 2 years, but has really declined over…
-
Don’t want to be a caregiver
My mother is 72 and she moved away from us after we encouraged her to see a neurologist and psychiatrist for mental health problems, persecutory delusions, and hallucinations she was experiencing. My husband and I both work full time very demanding jobs, we have young kids and pets. It’s a 6-7 hour drive now to my mom, but…
-
Suggestions needed
My husband and I moved in with my mother in law (83) about a year ago to help her. She lives in a large home with an inground pool and the maintenance was becoming difficult for her to handle. We also noticed that she did not remember questions she had already asked us, or if she put food in the oven and would forget about…
-
Mom moved in
Hi , this is my first time on this site. My mom moved in with us in November because she stopped taking care of herself . I am wondering if anyone knows of a reputable service to use for someone to come into the house 2 days a week or so to help her so that my family and I can still maintain our own life .
-
How do I apply for FMLA in NY?
I’m working full time and a full time caregiver to my Mom who has the beginnings of dementia with full on sundowners. I’m an only child but I do have a family friend who comes to be with her for 3 hours during the day. Some days/nights are though and it’s taking a tool on me. Mentally, physically and emotionally, I feel…
-
I feel guilty/bad daughter
My mom is 90 with symptoms just beginning (she being in denial). I try verrry hard to remember it is the illness but have difficulty sometimes. How has anybody else dealt with feelings of guilt and/or being a bad child. I want the rest of her years to be peaceful, but she is like a child and makes it difficult to reason…
-
New… Dealing with Mom’s Hallucinations
My mom is in her 60s and her pcp says she is having brain slips and in stages of dementia. I am trying to get her seen by a neurologist and someone recently recommended a geriatric psychiatrist as an alternative for an assessment. It has been 3 months since the diagnosis and she was given an antidepressant. She is now…
-
My story, please read
hello. My father passed away in July 2023. We discussed before my father passed that my mom would have to come live with me. She was not to live alone. Mom had mild dementia at the time. The night my father passed. Mom came with me and stayed with me for 2.5 years. My first year with was cook or do the things she used to…
-
Fmla or mental health disability leave from work
has anyone taken a leave from work to help their loved one get situated into a care environment? I'm contemplating taking a leave from work to do this and it would either be fmla (partially paid by the state if I qualify) or mental health disability (paid through company disability insurance). I'm really overwhelmed trying…
-
Home care aggression
Hi! I’m looking for some advice - mom my was “approved” for 24/7 at home care but we’ve been struggling with her being aggressive to outside caregivers. She’s so sweet - until she’s not- which seems to take about a week then she wants them “out of her house”. She’s on all the typical Alzheimer’s medications & mood behavior…
-
Caring for my mom/ posterior cortical atrophy
Hello,new here and was just wondering if anyone has or have a lo with posterior cortical atrophy??
-
MOM IS WAKING FAMILY MEMBERS TO FIND CAT THROUGHOUT THE NIGHT … HELP !!
My mom lives in the same house as me and my family and has for the last 10 years. We have a family cat that over these years has decided, especially in the last six months to a year only have … meaning she is completely fixated and obsessed with all things cat related. All day she asks where the cat is if he’s not with…
-
Help With Checking for Dementia
Needing help with the beginning process of figuring out how to check for dementia. My mil just had a CT scan and is going to have an apt to check the results tomorrow. She has a lot of signs already, but more recently it's been forgetfulness more so plus incontinence (she doesn't try to go to the toilet anymore) and won't…
-
Rehab to Memory Care
Hello, my mom is 77 and has advanced dementia. She has been living in memory care since this past March. She had lived alone for 20 years but was getting progressively worse, then couldn't stand up, ended up in the hospital last Jan. Then rehab for 2 months where she got better physically. The Dr's there thought she needed…
-
When to know
I currently live with my mom and she was diagnosed with vascular dementia and Alzheimers six months ago or so. She is definitely starting to change but its hard for me to tell because I am around her all the time. She still drives, etc., and I am not sure when I will know i should take her keys away, etc.
-
My mother
My mom has dementia and extreme aphasia (trouble with speaking/words). I have a tough time dealing with active grief around certain things like forgetting it’s my birthday and other life events. Wha suggestions do you have?
-
Taking car from dad
We have been trying to take the keys from my dad, not happening. He lost his keys, but remembered that my mom had a set so he took hers. He carries them with him even at home and will not let us have them back. When we tried to hide them he became furious and very agitated, the anger in his eyes is real and he looks like…
-
Sundowners so bad/ wild women please help.
Hello, My mother came to live with me just a week and a half before Christmas. She was on a memory pill, but while she was in rehab they took her off of it. They said it wasn't know longer helping her. So when she was supposed to have her follow up with her Dr once she got out, she had to see a NP instead. So I wrote him a…
-
New To The Group
Hello All - I am taking care of my 80 year old mother who was officially diagnosed with Alzheimer's last year. She has lived with my wife and I since 2024. She has had noticeable behaviors since 2022 when our dad passed away. Mom has progressed to the point where it is not safe to leave her home alone for extended periods…
-
How to assume the "parent role" with your parent
Both my parent with dementia and I are having a hard time with me assuming a more caretaker role. My parent is on the younger side for midstage dementia—early 70s and was an independent successful woman who lived states away from family for the past two decades. She rarely asked anyone for anything and also didn't get very…
-
Sending someone in memory care to inpatient behavioral health
So my parent increasingly has been having delusions and consequently was aggressively exit seeking this morning. The memory care is on the ground floor and the hallway doors to the outside actually do open if one presses on them for 30 seconds. She refused to come back inside. As I understand it she went outside to both…
-
How to file complaints with memory care
I'm super angry about a decision made by the head administrator of the memory care my mom is at. I think it was a terrible decision but probably doubtful that it was legally negligent. In any case when the whole crisis of the situation resolves I want you to file complaints with the board of health as well as corporate.…
-
MCF/Hospice Care - Standard Comfort Pack Medications
Hello, Mom has been in a MCF for almost 3 yrs now. I consider her cognitive decline has her in late stages of dementia. She is up and around with a walker, speaks with lots of word salad and eats generally well. She has been on hospice, a partnered hospice connected with the facility, since 10/2024 at a time when mom's…
-
Sleep too much?
My mother’s sleep patterns have changed over the month. She previously would sleep 9-10 and nap once during the day. Now, she goes to bed as early as 5pm and sleeps until 11am AND naps from about 1-4pm. It can change day by day, but she is just constantly sleeping. She’ll eat breakfast but that’s the only meal. No…
-
Please read my story and thank you
Hello. My father passed away in July 2023. Before my father passed, we had discussed that my mom would have to come live with me. She was not to live alone. Mom had mild dementia at the time.The night my father passed, Mom came with me and stayed with me for 2.5 years. During the first year, she was no longer able to cook…
-
Worry about roommate
Mom is in a nursing home. She is probably stage 4 vascular dementia. Her memory isn’t too bad and she remembers family, but her logic and reasoning are not good and anosognosia is so bad. Her current roommate is very nice. She has health issues, but not dementia. They get along well and it has been good for mom. Her…
-
Bringing Dad home?
In the mild-moderate-severe way of describing stages of Alzheimer's, my dad has one foot in "severe". He is in MC and the care there is pretty good. But he is so sad not to be with family. My mom is living with my husband and me. We tried to care for both of them, but my dad is very independent and would not let me or my…
-
Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
-
Burn out
Hi, Lately, I feel so tired and burnt out physically, mentally, and emotionally. My dad was diagnosed with Alzheimers in August. He started his first treat with Leqembi on Tuesday. He was sicker than a dog. I am watching my mom struggle to take care of him. I feel like I don't know what to do. I give my mom good advice. I…