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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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Delusions stop in MC?
We moved my mother to an MC facility approximately four weeks ago. From the chart she is in stage five of Alzheimer’s. One of the main reasons we finally made this decision was because she was having delusions and fixations. Every night for weeks leading up to the change she believed she was having a baby and if we didn’t…
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primary support person, not direct care-giver
Hi, I'm new to the group and looking for support. I don't know this is the right place for me. My mother is in assisted living with mild-to-moderate dementia. She lives 1/2 mile down the road from me. I’m her primary care partner and decision-maker, but I’m not providing hands-on care. I'm mentally and emotionally…
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Anger is grief speaking up
As someone walking through dementia and Alzheimer's with my own family, I keep thinking about a line I recently heard: "Anger is grief speaking up." If we want something to change in the next 20 years, we have to speak up…now. Alzheimer's is often approached as, "See a neurologist and wait." But Alzheimer's is not just a…
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Dealing with my mom and driving
Hi. I am new here. My mom who is considered to have Stage 4 Mild Alzheimer's diagnosed about a year ago. She does not believe she has this disease. They told her to not drive and she could take the test through DMV to see if she could continue. We didn't do it at the time. Now a year later she is pushing to drive but I…
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As POA how do we protect loved one from large purchases they don't understand
My dad has Alzheimer's & can no longer drive. He wound up purchasing a car that he cannot drive when we were navigating his illness last year. (Note: Due to his 3-5 min memory the attorney general is currently investigating that purchase). He forgets that he cannot drive and has made his way to another dealership and…
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Another step in progression
Mom's MC had an event for residents and families tonight. They had dinner out on the courtyard, grilled hibachi style meat and veggies, nice music in the background. It was well planned and most residents seemed to enjoy it. It was suddenly evident to me that my mom is now one of the more advanced dementia residents there.…
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Change in behavior
My mom was diagnosed with Alzheimer’s two years ago. Recently, we have observed some extreme changes in behavior with delusions, anger and agitation. Since her Dr consulted AI for medication suggestions, I thought I would check here. Her doctor prescribed Rexaulti but we are having some issues getting Medicare to cover it.…
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Any guys have have the HHA lady hit on them - How did you handle?
Hello, I am a single man in his late 40s who is caring for his mom with dementia. My mom is now bed-bound and I need help to assist with her. I've had different home health agencies over the years and I live in a very pricey area. We're not moving, not feasible nor can we afford it. So, I'm stuck with what I can get as far…
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Pursue diagnosis?
My 75 yo father is showing signs of dementia. His mother and paternal grandfather both had Alzheimer’s and that’s what to presents like to me—repeating himself, struggling with directions and finding things, mood swings, poor judgement, indecision, a lost look in his eyes—but he hasn’t seen a neurologist. His greatest fear…
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lack of empathy with my mother
My mother was diagnosed with Alzheimer's in September 2025. At the moment it is a medium/mild disorder, she still lives alone with my support. She is not able to take her medicine independently, she does not know how to do the shopping, she has difficulty preparing meals. She is not yet a danger to herself even if more and…
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Family member's death
My mother has dementia. Her brother died recently (he had Alzheimer's and died of natural causes). My mom is confused and upset by his death and has been believing her brother committed suicide (which is absolutely not true). We are comforting her but does anyone have advice for disabusing her of the suicide notion.
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Exelon patch
went to the neurologist today finally! Mom scored 19 out of 30 on the memory test. 6 months ago she was 21 out of 30. Is that fast decline? Dr mentioned possibly doing an exelon patch. Anyone have any experience with this?
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Mother very angry - need help
My mother was diagnosed about 2 years ago, and she's steadily declining. She has haunting memories come every week or so of when my father had an affair over 20 years ago. They got back together and had a whole life after the affair, but she is reliving the experience of when she first found out about it all those years…
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Brand new and Mom doesn't want to admit dementia.
I moved in with my Mom a year ago and have been taking care of the finances and keeping things going. Mom is 82 and her Dr. diagnosed her with Alzheimer's. She won't talk about it and is now refusing to see the Dr. because he won't listen to her. I think she is fine 90% of the time but is now forgetting the names of family…
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both parents have dementia
Hi My mom has a diagnosis of Alzheimer's (early stage but noticeably progressing), my dad, while he doesn't have a formal diagnosis, has some form of dementia. They live together in their home. My mom has anosognosia, thus denying anything is wrong with her. It took us 2 years to get her a diagnosis and she refuses to take…
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Mom and assisted living
We recently moved my Mom to an assisted living facility where she has her own apartment and was able to bring her dog with her. She was diagnose with alzheimers. She is calling us constantly, as many as 20 times in a day. She crys and says she wants to go home. It's not possible for her to live in her home any longer…
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Guilt Trips
I've always been susceptible to my mom's guilt trips, which is something I've been exploring with my therapist. But it's especially hard for me to brush them off now, because I feel responsible for moving her into AL near me, and boy does she like to complain about it! The bed is uncomfortable, the vent in the bathroom is…
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Awakes during the night to urinate
I care for my 94 year old mother who lives with me. She is in moderate stage I believe and has days and nights mixed up. She needs assistance with everything but feeding and is in a wheelchair since breaking her hip and having surgery 2 years ago. She urinates a lot at night about every 2 to 3 hours and she calls me to…
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Caring for FIL after death of MIL
My FIL was DX'd 2 years ago, at the time my MIL was his caregiver and after the DX, he stopped driving, she took away his cellphone and computer and basically directed everything he did. As with a lot of octogenarians they are very private about their health/finances, so other than being told he had dementia nothing else…
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Struggle with clothing
Are any of you dealing with the struggles of clothing with your LO? When my mom moved to AL near me 3 years ago, she got rid of most of what was in her closet. Not sure why, maybe fit? She constantly tells me she needs to go shopping to buy clothes and she is correct, so my daughters and I have taken her several times. She…
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Looking for activities for my dad who has advanced dimension
Hi- My dad’s hobbies before Parkinson’s and procrastinating, dementia, or photography, reading, classical music., and the TV show Doc Martin At this point, Doc Martin is too confusing for him and doesn’t want to watch it. I was able to find some simple books for dementia patients which he seems to enjoy. But perhaps for an…
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Mom is Scared dad is going to hurt her
currently mom and dad still live together. Mom has not been officially diagnosed but we are sure she has dentists or Alzheimer’s. Neurologist appt is this week. Mom is so paranoid and untrusting of dad. Through out the day she will get scared he is going to hurt her or push her down . We try to tell her he isn’t and that…
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Long Distance Dilema
I posted the following earlier in the week in a different discussion; the person who replied suggested this would be a more appropriate discussion topic as he/she was the only reply to the original post. I hope someone maybe has suggestions or has had a similar experience and let me know how they navigated the challenge. A…
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Use of "Buy Nothing" Facebook groups
Regarding my mom's constant requests (and demands) for things, I have found my local community Buy Nothing group has been great! Mom mom has set up a miniature "office" in her bedroom in her AL apartment. She had a large home office throughout her life and she always had it stocked (over stocked) with office stuff. So she…
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Recent Diagnosis
I am really glad a community like this exists. I recently moved back to live with my family since my mom's dementia diagnosis earlier this year. I was working and living a few states away and am a few years out of college. It has been a lot of big changes for my family recently and I am never sure I am making the right…
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Long Slow Good-bye
My mother is living with dementia, and I wanted to honor her while she is still here. What started as a simple poem, about the last half of her life, somehow turned into a song. I poured my words onto paper, then worked with AI to add the music and vocals. The process was long, emotional, and honestly one of the most…
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camera monitoring
Funny (or not) story: When my mom lived alone, 4 hours from me, and no one checking on her, she gave me permission to install a camera that could show her kitchen and livingroom area. It gave me peace of mind that I could check she was okay or at least moving into areas of her home. I was able to see she was eating dinner…
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Use Assisted Living physicians?
My MIL is moving into an assisted living community that contracts with a service that provides primary care through their own physicians and nurse practitioners. I'm wondering if it's best to switch her records over to them, with the obvious benefit that most of her health care visits won't require her to leave the…
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Delivering Bad News
Looking for some advice on how to have difficult conversations with someone with dementia. My mom was diagnosed with frontotemporal dementia in January. We recently moved her into an assisted living facility as she is not able to live alone safely anymore. She is relatively young, 63, and while she definitely has some…
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FTD
I’m very new to all of this. So my dad and I just found out this week that my mom has Middle stage of Alzheimer’s. We knew something was going on with her mind but we found out how bad her memory really is. I have read a few things on trying to deal with the anger issues and it is so hard to. How does the caregivers keep…