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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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Mom is at peace now
My mom has ended her journey with dementia. She became ill last week at her memory care facility and ended up in the hospital for 5 days. They did as much as they could without going to extreme measures. Probably more than she would have wanted. They made her comfortable and she passed quickly and peacefully. I didn't post…
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Overwhelmed
My mom 65 is currently in the process of getting diagnosed with dementia. Her current symptoms or confusion she doesn't know who we are ( siblings or cousin) she is also paranoid and always thinks people are in the house she believes that my dad is stealing money and is cheating on her, however in the same breath doesn't…
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Confusing Wishes
Hello, new here. I've been reading comments on this forum for awhile which have been VERY helpful, and I finally decided it's time to get on here and start asking advice/thoughts and maybe share my experiences on others' posts if I can be helpful as well. My mom is almost 84, moved in with us from her hometown of over 40…
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Feel Lost, Need Advice with Mom's Dementia/Alzheimers, Living and Depression
Mom was diagnosed 3 years ago with dementia. We believe she is about 5 - 6 years into it though. She also has severe depression, diagnosed 30 years ago. She is in an AL, but absolutely hates the place. This is her 4th home in 3 years, and the smallest so far (IL, AL, MC, AL). She is again in a severe depression, they seem…
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delusional mother being abusive towards me
I am so worn down by my mother's constant accusations, and although I know its a disease it still hurts so much! She doesnt have anyone else, so I am her main source of care- I get her groceries, do her hair and nails, take care of her finances, manage her meds, take her to all her appointments, and moved her…
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Defeated
My LO is borderline late moderate early late stage. A scan for a separate ailment shows what is most likely cancer. As upset as I've been part of me doesn't know why as the Alzheimer's is terminal in a sense. I'm alone and am crushed.
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Brands new. 1st Post! :)
Hi. So... I've suspected my mom's been dealing with far more than grief from her husband (almost 30 years) passing away for awhile now. There's SO MUCH... Well... the "doctor" she sees is AWFUL. Not just as a doctor but as a human being in general! He is FULLY AWARE that my mother is dealing with more than schizophrenia or…
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X2 now
My dad was diagnosed with Alzheimer’s the Monday after Thanksgiving in 2022. Luckily, it has been progressing very slowly. He lives with my mother and is watched by her full time. On Monday, my mom was also diagnosed with Alzheimer’s. It completely threw me for a loop and I am completely devastated. I’m their only son (I…
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Now I have time to be sad
I hope this is not inappropriate. My very, very elderly LO is safe now and in a steady decline. The analogy I use is that mentally and physically it is like a train slowly pulling away. But I tell myself that she is well looked after and treated with respect and affection at her MC. She still seems to know me and is not…
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Delusions of Persecution -- What to do?
Brand new here, so I apologize if this has been covered before elsewhere, but I'm at my wit's end. My mother has been living in the early stages of Alzheimer's for a few years now (forgetting things, no short term memory, having more and more trouble completing thoughts). Just recently my Dad had a (minor) stroke and was…
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Bible Verse to Lift You Up 2/15/25
BE STRONG AND COURAGEOUS! Joshua 1:9 New International Version 9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.” Joshua 1:9Amplified Bible, Classic Edition 9 Have not I commanded you? Be strong, vigorous, and very…
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Slow fade
Just venting some sadness to those who understand...no dramatic changes with my mom (today), but the slow fade continues. I sat with her at dinner in MC today. Had to put the spoon in her hand to get her to eat a few bites of soup. She's handling finger foods best now. Had a small sandwich but didn't pick it all up, just…
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Incontinence
My mom currently lives in an assisted living community with my dad and struggles with incontinence. She is asked on a regular basis if she has to use the bathroom, always saying no, then will have an accident 5 minutes later. I truly believe she doesn't know she has to go, but I don't know how help her and my dad. We got a…
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Leqembi/Kisunla
My dad was recently diagnosed by his neurologist with Alzheimer's. He is 63 and is still considered to be in the "normal" to mild cognitive function. His neurologist said he is a great candidate for Leqembi or Kisunla. We are having a hard time choosing between the two. Does anyone have any experience with either? Our…
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POA granted
My mom has finally agreed for me to act as POA, not "springing" like it was originally. I now am legally responsible for her and hope I can do a good job. I will ask for guidance if necessary.
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Spinning headache
mom diagnosed with Al this month. She constantly having spinning headaches, she’s feels her head is heavy, wearing a heavy helmet pressure against her head. Any suggestions? Thank you in advance
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What To Do About Mother's Changing Wishes...
Yesterday my mother (who has Alzheimer's) said she wanted to have her burial services changed from where she grew up in Hawaii, to where we live in Los Angeles. Am I correct in honoring her wishes and having it in Los Angeles?
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Clogging Toilet
Good Morning! I'm new here - My LO keeps clogging toilet with TP. Any advice?
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Losing/hiding things
Mom (87) was recently diagnosed and declining rapidly. I’ve been staying with her and dad for extended periods of time to help while she adjusts to new meds. She doesn’t recognize items around the house-cooking utensils, her own clothes, linens, food in the cabinets/refrigerator and I have many times “claimed” them as mine…
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nonstop questions
Hi, I'm new here. Mom is in midstage of Alz, living with my DH and me for 6 weeks now. Doing okay with everything so far but the questions (every minute or so for a good part of the day) are wearing on us. They don't vary much and writing down the answers for her doesn't seem to help for long. She usually finds something…
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Good hospital bed mattress for mom - foam versus innerspring?
Hello, The hospital bed mattress that my mom had for years needs to be replaced. I had made a hole in it to help with pee and it turned out to be a bad do-it-yourself-hack and the inner coils rusted when moisture got in where I cut the bed. Lesson learned, never puncture a hospital bed. I'm now debating whether to get…
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Easy website for answers questions about my father's condition
My father has had Alzheimer's Disease for the past 7+ years and has progressed into a later stage. I've had lots of questions along the way and I'm finding it really frustrating to search and visit lots of websites for simple answers. Just discovered pfizer has a new website that answers questions. I put in some questions…
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Worried about return to workplace
I don't know if I'm the only one here who is a Fed. But now with the return to the workplace my sister and I are scrambling trying to figure out the best way someone can be with mom during the day that is affordable. Everything is so stressful with the info coming from above changing daily - sometimes hourly. I don't know…
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Night time sleeplessness and pain
I am noticing a pattern of my dad being in a lot of pain at night. Is this part of sundowners, or Parkinson's or Alzheimers? He has them all on top of a collapsed hip ball. The hip would be a logical explanation for pain, but it is a pattern no matter how much pain meds he is given. He stays up most of the night shifting…
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The Finale?
So my mom has stopped eating and drinking much of anything. Been hospitalized twice within 2 months, now diagnosed with CHF. It’s been 2 weeks since the last hospitalization and she is not bouncing back. Unfortunately I had a trip to Costa Rica planned for several months now and no cancellation policy. Well of course she…
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My father doesn't think he has a problem
My father has been dealing with sun downers about 5 years and now he is on the onset of ALZ . He doesn't think he has a problem at all . My parents have taken in my brothers kids due to my brother lost them because of drinking and drugs . But he has been so irratbel and he is being so mean and it doesn't seem he cares if…
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Homeopathic Care for Dementia
Good morning all Just discussing with a coworker and he mentioned having a pretty life-altering appointment with a homeopathic practitioner for an ailment and suggested maybe reaching out for help regarding my father and dementia. Maybe something diet related, or supplement wise could help with the day to day struggles. I…
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"Help! I'm stuck with deranged people (in MC)."
what does one say to this plea? My mom is in stage 4 of Alzheimer's and went to memory care at a facility that has a program for mild to moderate dementia. She is on the younger side, early 70s. She is physically active a healthy physically. She is only moved to memory care a few weeks ago. It seems like memory care has…
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Self-care (for the caregivers)
I'm helping to care for a parent (ALZ) with my sister. Mom even lives in a retirement community (still independent living) so day to day I do have my own life. It is still so hard. I went to visit for lunch today and now feel exhausted and can't refocus on work. I can't even imagine how much more difficult if I had her in…
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Safe Cold Cough meds for Alz and LBD LO?????
Hi. There are long list of unsafe drugs formy LO with Alzheimer's and LBD, but I need to know what folks CAN use. And some experiences you may have had with otcs for these symptoms. I'm following all the "dont take"lists I can find (none of which seem to be full lists...aaaargh!). Is there anything safe to use to help with…