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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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Alzheimer's and Finances
My 84-YO dad has Alzheimer's and is living independently still. He lives close to me, so I see him every day. As most of our loved ones, my dad does not recognize he has a memory problem. I am his POA, Guardian, etc., but he honestly doesn't remember us putting all that in place years ago. How did everyone take over the…
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Rehoming
How do I help my mother understand she is living with me now and can no longer go home?
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Losing patience
My brother who has power of attorney just brought documents for my mother to sign to receive some payouts from life insurance and the military. Since yesterday afternoon she believes that she got a deposit and has been pestering me about paperwork. I suffer chronic illness. I provided care for my stepdad as he died of…
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Anger Issues with mom and losing caregivers
My mom is 89 years old with moderate Alzheimer's and Binswanger disease. She lives with my step-dad (they have been married over 50 years) who also was just diagnosed. I live 250 miles away and have been staying with my parents first for one week out of every month and now two weeks out of every month for over two years…
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Rexulti , insurance wont cover it
hi there, have a prescription for Rexulti for my mom w dementia & Alzheimer’s, however the pharmacy says Humana will not pay for it, & it’s $1,400.00 if I pay out of pocket. Does anybody know a Canadian pharmacy they trust? Thank you M
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My Mother's Siblings
I have a question, what should I do about my mother's siblings who are coming from out of state and want to spend all day at our house? I think that it's too long and offered a 3-4 hour visit yet they complain. Any thoughts?
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Dad, strained relationship
My dad has just been diagnosed with dementia. He and I have a strained relationship, but my sister and I are helping him as much as we can or as much as we can handle. our mom died November 20 22 and within the last year we’ve both noticed a decline in our Dad so we’ve had him tested. His memory is OK but his impulse…
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LO Needs External Help But Won’t Accept It
Our 88 year Mom, who lives alone and, was recently diagnosed with moderate Alzheimer’s. Mom’s drivers license was revoked following her diagnosis, and her children moved her car out of her home so she would not attempt to drive. The social worker assigned to help us, following Mom’s diagnosis, advised us that Mom should…
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Medication administration
Hi ! my mother has been getting very confused with taking her medication despite me setting up the pill organizer each week . It is clear I need to get some help because I can’t get there each day and night. What are your experiences ? Is this something Medicare covers ? Are there agencies that will just come in for this ?…
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When siblings do not help
Hi, I have a mother who was just recently diagnosed with Alzheimer's. I have 2 other siblings, but they do not move unless I remind them. I am annoyed and frustrated. What can I say or do for them to help out?
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Not there then right there
I’ve noticed that when I arrive for a visit, my mom is usually a little confused until I acclimate her. She recognizes me, but is not exactly sure who I am. Occasionally, especially if we talk a bit (meaning I talk about normal stuff in my life and she listens attentively), she says REALLY lucid things! Like today, I asked…
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Favored daughter of three
I’m the middle daughter of three sisters, and I’m struggling with the challenges of caring for our aging mother. I’m a licensed mental health therapist, and I can see signs that my mom may already be in the mid-to-late stages of dementia, but my sisters won’t acknowledge it or pursue a diagnosis. The youngest, who is the…
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Brand new here; question about ptau217 test
My mom (68) was evaluated by a neurologist last month for suspected cognitive impairment. She performed poorly on the cognitive tests that were administered. The doctor ordered bloodwork, and today we learned that (a) she is an ApoE3/4 carrier and (b) her Quest PTAU217 level was 0.19. The note on her e-chart stated that…
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Geriatric Psychologist
Hi, My mom was recently diagnosed with Alzheimer's. She is still in stage 1 and can be independent. Has anyone gone to a geriatric psychologist and did it help?? I appreciate all the help I can get. Thank you!!
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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Maintaining my marriage
My MIL has not been diagnosed that we know of but she is extremely forgetful, paranoid, and just plain cruel. She swears the doctors have told her she does not have dementia but refuses to let any family or her husband go into the doctor's office with her so we seriously doubt that is true. My husband (her son) and I are…
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New Job Offer & Whether To Move
I’m from NY and moved me and mom to Florida four years ago. I applied to a nationwide job and the NY office interviewed me During interview they said: we have offices in Manhattan, Suffolk, and Newburgh. Which do you prefer. They also asked if I preferred to be transferred to recruiting for the Miami office. I said…
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Moving Mom
My sister and I are getting things ready in my mom's new room in Memory care. She will be moving in on the 2nd. Any advice from those that have already moved their parent? What things did you find helpful? What didn't go so great? Necessary items for the room? Any advice would be helpful!
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At home caregiver help
Hello All! I am looking into hiring a helper for the weekdays for my Mom. I feel like she needs more attention than we can give her. What kind of questions should I ask a potential helper? I am meeting with a facility that hires out helpers this Saturday. I have vetted the company itself as much as I can online. I am…
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I don’t think I can do this
My mother and stepfather had both been in decline for several years and I have tried multiple types of interventions and been spending about half of my time with them at their house 2 ½ hrs from me for about a year. Two months ago my stepfather became ill and he died a week ago yesterday. I had been at their house pretty…
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How to answer questions about going home.
My lo is in assisted living for past 3 weeks, she constantly cries that she wants to go home. She has moderate dementia and is 95 years old
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How to Respond to Family/ Friends who mean well but their comments are a bit much at Times
A family friend says tell your mother Hello, even though she may not remember me. Or I heard she is really bad off.
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Should you tell mom that her brother has passed away?
New to the group here. Mom has late stage dementia, is 93 and her brother who lives in another state passed away. My dad who is 94 insists on telling her. I don’t think we should. I’ve gotten advice from medical professionals explaining the risks (and lean towards not telling her). I have to respect my dad‘s decision, but…
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Bathing why it’s a struggle
I’m new to all this and the group. Yesterday was a bad day for me I have never reached out before but mum for the first time ever got so angry and nasty to me it was a shock never has she done this before in my whole life and I’m 52. All because I’m trying to get her to bathe. I hope and pray she doesn’t start to associate…
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The move from Al to a SNF
We moved mom yesterday. We told her about a week before the move (my brother insisted). When we got there she had packed up everything in the room. My brother insisted we bring whatever she wants, that there is room for. When I asked mom what boxes go she points to a pile. I bring them to my car and they have sewing…
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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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Here's a new one I wasn't ready for
Dad was diagnosed with VD and onsight AZ almost 4 years ago. He has been in AL for the past 6 months awaiting "home renovations" and plans to move into the home when finished (depending on the day and time of course as it changes daily for him). He's doing really well and 99% of the time he absolutely loves it and the…
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Directions
My lo has moderate dementia and cannot follow simple directions such as locking her door. How do I handle that?
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Where to Start???
I have hundreds of questions… Where do I start? My mom lives with me and has dementia. She needs assisted living and help with finances. Where do I start? She owns a home in South Carolina that I don’t want to sell, but may be my only option. Is there a way to protect the house? I believe she would qualify for Medicaid.…