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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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Hospitalization
My mom (87YO) in MC tried to escape yesterday. She was severely agitated and combative with the staff (pushing the doctor and squaring up against nurses and people trying to help her). My sister and I were called to see if we could come by to try to de-escalate the situation. Long story short…we couldn't (In fact I think…
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Recs and encourgament
My mom is newly diagnosed with Alzheimer’s at 62. The wait to see a neurologist is 7 months so we are reliant on her PCP. My father is sadly in denial or just needs more time to accept the situation. There are three adult children, two of which live in town. Sadly it feels like symptom wise, she has stepped off a cliff and…
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On the verge of a nervous breakdown
Hi everyone I am new here and not sure what to say or even where to start I just feel like I am losing my sanity. I do not know if I am the only person this type of situation has ever happened to or if I really am going crazy. It is a complex story; 7 years ago, I moved in with my mom who had had a stroke and was in the…
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Father in hospital, begging me to set him free
This is my first post here. My dad was diagnosed with Alzheimer's disease 3 years ago, and I have been his caregiver ever since. I am his sole caregiver, and we have no family nearby. He had declined to the point recently where I began arranging a room in a nearby memory care facility for him. The weekend before his…
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Reflection on Progression
I haven’t been here in awhile. Mom is in MC. She’s 73. I have a 5 year old. Husband is away for work. Old pic popped on my phone of my daughter and mom just a year ago. She was in MC then (been there almost 2 years now). I just can’t believe how fast this all went down. In the picture she is smiling with my daughter. Now,…
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Financial Ruin
My mom has Alzheimer's and is in memory care, and we are running out of money. At the same time, my dad is quickly declining with dementia. They do not qualify for Medicaid. What does a person do when they can't afford care and nothing is available?
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Sudden Changes and transitions
My daddy has had dementia for awhile. He was walking and following directions while he was with my mother in assisted living. They actually were quite active. Unfortunately, they were not in a facility that provided good care. I received a call informed me that my dad's legs were swollen. I checked them and took him to the…
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Mom is 89=Alzheimer, Dad is 95=Pancreatic Cancer
Hello everyone~I just signed up with ALZConnected bc I am in need of experience, advise, support with my elderly "independent" parents whom I love so much! Here I go: My mother is 89 years old. May 2025 she was diagnosed with type 2 diabetes which has been challenging due to memory declining over the past several years.…
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Need to whine about moms house
Mom is a hoarder and her house is full. The house is an hour’s drive away. I have averaged one full 8 hour day a week there for the last three years. I replaced the carpet and sealed and painted the walls in the living room that had cat spray, I dug a path to the water heater and had that replaced and I got all the food…
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Vascular Dementia and hyperactivity at night
My mom has been very active at night, talking to herself, calling me, can’t settle down etc. anxious any suggestions? she is on 100 mg of Trazadone, rispiridal, buspar, visteral and nothing is helping her to sleep! She was also recently diagnosed with stage 4 kidney failure from an arthritis medication side effect. i feel…
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Feeling helpless
My Mom has entered the later stages of early onset, 68 years old. Since the time change for daylight savings things have gotten worse quickly. Recently, she has had the police called on her for wondering the neighborhood and trying to enter strangers cars. This has all culminated in a fall and a broken foot landing her in…
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Having a hard time about my dads diagnosis.
Preface: (DAD WAS VERY RECENTLY DIAGNOSED & PUT IN A HOME ABRUPTLY SO IM STILL IN SHOCK) Hey! My name is Blair and I’m 28, I have 4 beautiful boys, ages 1,3,5&7. My dad can’t remember their names or how many I have. I’m having a hard time. He was just out into a home in September. He hates it but it’s for his safety. We…
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Parent with middle stage vascular dementia hiding things and paranoid
Hello My parent 87 y.o lives in an ALF. She hides and loses items in her room and believes people are stealing, stuff like her underwear and PJs. should I take some of her clothes out of the closet so she can find stuff easier? Also she starts calling me at 1 am even while taking trazadone 100 mg. Sometimes she is…
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Plan B
I thought I had more time. I prayed I had more time.😢 I have advocated for mom to get a name for what caused her dementia. Her neurologist believes hers is multi-focal, meaning hers have many causes, vascular being one. The PA asked mom last month if she wanted to be tested specifically for Alzheimers. To which she said,…
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Alzeimers and blindness
Hi. I am new to this community. My mom has the disease but to complicated it she has about10% vision and is obsessed with going to the bathroom. She is also very restless and doesn't sleep some nights. This makes caregiving difficult because she wants to use the bathroom every 5 minutes even though nothing happens at…
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Care from out of state
Hello. I am in Atlanta and my parents are in Cincinnati. My mother has Alzheimer's and my father is her primary caregiver. I am feeling more and more that my dad needs more help than he is asking for and maybe even a respite care partner to come to the house for my mom so he can have a break. My godmother currently comes…
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Vascular dementia medication
Hi, Please share any medication that you have found that helps with vascular dementia. My mom is on Donezapil but she is have negative side effects. Thanks so much!
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memory care visits are very difficult
My 89-year-old mom was moved to memory care about 3 weeks ago after a stay in a geriatric-psych ward for medical stabilization. We cared for her for the last 5 years with more round-the-clock care over the last year due to behaviors that made her unsafe. She was very unhappy with her situation then, didn’t really enjoy…
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CA-Sacramento/Amador County Hospice
hi, Does anyone know of a Hospice company that will permit the person to stay on their medication for dementia? Thanks
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Need tips to help mom taking medicine
Hello, my mom, who has alzheimer needs to take medicine daily. She is good with most medicine except the calcium supplements. She couldn't swallow it. I crushed the pill and mixed with food. She spilled it out, thinking they are rocks. I don't want she to feel someone put rocks in her meal since she has been lately…
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Recommendations on companion services
My mom has PCA, a form of Alzheimer's. She is only 59 but we have already seen a severe cognitive decline and she is unable to live on her own. She is in assisted living right now. They do offer activities throughout the day, but usually the ones in the afternoon are either too difficult for my mom to participate in or she…
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Incessant calling
Hello all, this is a minor issue in the grand scheme of things but the past 6 months have been hellish getting my dad first to stop driving and then moving him to assisted living (with a memory care option for the future.) He has only been there 2 weeks and seems to like it. It is a relief to have him safe- I worried…
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Transistioning to Memory Care/Assisted Living
Hello - my mom was diagnosed with vascular dementia/alzheimer's last spring - but she had been having memory issues for a couple years now. We finally got my dad on board with moving them into an assisted living center in December of last year - he was older and falling quite a bit himself and we felt he needed more care…
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Mom with Parkinson’s dementia LTC guilt
Hello. This is my first time posting. My Mom is in LTC. She’s been there 6 months after a fall. She guilts me and wants me to let her go home. She cried today because she doesn’t think she belongs there. Her bf is wanting her to go back home too, though he complained when she lived in the home about how difficult it was.…
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New territory with vascular dementia
Hello! My mom just turned 96. As both my husband and I work full time (and all my siblings are out of the area), we helped mom sell her house two years ago to move to a brand new assisted living community in the same town, 8 minutes from our house. She had cognitive impairment, was forgetting her meds, not paying bills,…
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Fear and refusal of standing/transfers?
Prefacing with my mom seems to be in the later stages. She recently does not want to get up or stand up. In the morning, she will not want to sit up in bed. Once we get her in a sitting position, she is refusing to stand up. She would rather just sit there. When we get her up with a gait belt, she gets very angry and…
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Struggling to make this all work
My dad died in October and that seemed to just pressure cook the dementia into mom....She makes little to no sense when she talks, is aggressive towards my grandkids, tells me and everyone who will listen she hates my m-i-l, who also lives with us, but they chit chat all day, is snarky to my husband, refuses to pick up…
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Giving up outside appointments
How long has anyone been able to keep up routine dental care for your PWD? I have actually been taking my mom for cleanings every 3 months, on the advice of the dentist since she doesn't do a good job with brushing. Staff at her MC are supposed to assist her, but I think it happens in a hit or miss fashion depending on…
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New challenge
My dad just recently started saying that there are men in his house. He tells us where they are standing, but doesn't say he knows who they are. So far they have been in the bathroom and living room. Has anyone else experienced this with their love one?
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She’s begging me to move in
My mom received the letter from the doctor telling her not to drive anymore. At least I am no longer the bad guy. But obviously she is devastated. And I think finally seeing that she can’t live alone 2.5 hours away from me anymore. We have a spot in AL near me reserved for her. But now she is BEGGING me to move in with me…