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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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Caring For Parent
Both my Maternal Great Grandmother and Grandmother had Alzheimer's. And now, I am seeing more obvious changes in my own Mother who is now in her 70s. I live out of state. I am in CT and my Mother is in FL. The most challenging part is dealing with my Father, her spouse, who is in denial. He has been trying to shield my…
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Morally Conflicted about Nursing Home
My 75-year-old grandmother was diagnosed a year ago with moderate dementia, which has now later turned into an Alzheimer's diagnosis. She is starting to slowly have "out-of-mind" episodes, confusing a very close family member with their parent (her son), etc. while these are infrequent as of now, they are suddenly onset…
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Taking away her car
Help! I am having trouble taking away car from my mother . She started swerving in lanes, and ignored the driving rules constantly . She recently crashed into a parked car and that was enough for us to say no more driving for her :( tried hiding keys, she went crazy. Tried taking away the car, but she keeps asking every…
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New Caregiver Advice Needed
Hello - I'm new to this caregiving role and am navigating these responsibilities on top of raising 2 young kids, looking for a new job, and all the other things. Where are the best places to start in seeking help and locating resources? My mother currently has a pseudodementia diagnosis and I'm wondering if anyone else has…
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Sudden issue with weakness & walking
I am caring for my mom who has memory loss due to dementia/alzheimers. Her memory loss became noticeable about 7-8 years ago. In the past several weeks she has suddenly become very weak when walking. She used to walk a lap or two at the track every other day and now struggles to walk a short distance around the house. I'm…
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Transistioning to Memory Care/Assisted Living
Hello - my mom was diagnosed with vascular dementia/alzheimer's last spring - but she had been having memory issues for a couple years now. We finally got my dad on board with moving them into an assisted living center in December of last year - he was older and falling quite a bit himself and we felt he needed more care…
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SOS/Aggression
I’m sending up the white flag and in need of some direction please My father currently had MS dementia. He’s been exceedingly agitated and angry lately and lately and he acted out against my mother tonight and I’m panicked I don’t know what our next steps are ; I obviously do not want this to occur again - nursing home or…
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New here. Overwhelmed
I’m caring for my dad, 84. He’s at home. Still able to walk, bathe, use the bathroom and dress by himself. He gets so depressed, though. Just hangs his head almost to his chest. He often thinks we are at a home that looks like his, but it isn’t. He is getting more and more assertive when talking to me. I just needed to…
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parent telling me mean things about sibling
Hi all, first time poster, I've had this come up recently and wondered if I'm the only one. My sibling and I each equally care for our parent, several times, my parent with dementia will say to me they prefer me to my sibling, this really breaks my heart because my sibling does so much for my parent and always, our whole…
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Permanent catheter with dementia
I’m a caregiver for my mother. She has early onset dementia that she’s had for about 10 years. She does fairly but has a lot of other health issues. One of those being she has issues with her bladder. Her urologist is wanting to put in a catheter that would stay in all the time. I’ve never had any experience with a…
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Stages of Alzheimer's
My mother is 82 years old and was officially diagnosed in December of 2023. My sister and I had noticed cognitive impairment for at least 4 years before we managed to get her tested, due to her being in denial. As she progressed, we were "Google Doctor's" trying to get all the information we could. Her neurologist has said…
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Cataract surgery
Mom is probably to the end of stage 4. She was diagnosed with vascular dementia 2 years ago. I was told average life expectancy is 5 years. I know that’s just a rough number. She has diabetes with edema in her legs. I don’t think she could follow a storyline to read a book. She is able to choose her meals off the menu at…
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My MIL is getting worse
My MIL has dementia and is now starting to forget to eat, and isn't really taking care of herself. My SIL lives with them, but it's more like lives "off" them and she is NO help! I've noticed my MIL losing weight and not looking as put together as normal. When do I know when the time has come to get her more care. She…
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My Mom has Dementia and now hates my Father
Hello! I'm new here. My Mom has dementia and directs all her anger at my father. He is a wonderful, patient man that takes care of her everyday (we are currently trying to get her into assisted living). She calls me everyday bashing him about how he takes all her clothes, pushes her around and throws out all her important…
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Moving mom from AL to MC
this day is going to be so hard. We need to move mom up to MC. She has been wandering and walked out of the building. It is now a safety issue and we need to do this but it is breaking my heart. I don’t know how to navigate it all and how often I should visit after. I currently go twice a week and sibling goes twice a…
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How to help with dementia and sundowners
I am new to all this. I worked in a dementia care unit as a companion but it is nothing compared to feeling so helpless when it comes to my grandma. My dad wants to put her in a home and I gave her my word I would not let that happen. It breaks my heart seeing her decline and not know who I am. I had never even heard of…
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New to Group
Good morning community, I just connected to this support group. My 86 yo dad is struggling more each day with memory loss. He has always had some sort of learning disability and suffers from profound hearing loss. The increasing level of dementia is complicating daily interactions. I have a sister who lives 5 minutes from…
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How do I tell my mom we are where we are because of her illness?
First, my mom refuses to come to terms with the fact that she is mentally declining and that we need to address the fact that she is not just forgetful, but that she has severe memory loss, had a small stroke, and is starting to experience delusions. Of course, she denies and becomes enraged when these things are brought…
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My Mom Finally Got An Official Diagnosis
So after almost three months, my mom has officially been diagnoised with major cognitive disorder, aka dementia by a geriactic care provider. According to her, silent strokes from a while back (which affected her brain) and my mom's unresolved grief with my Dad were major contributing factors. It has been recommended that…
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So I guess this how it goes? One day your are fine and the next you are not
I realized I cant take care of 2 dementia patients on my own. So now I need to get agreement from my Dad to go into the nursing home. I spent 8 hours today dealing with them, doc appoints, falls, ambulances, hospitals - all in one day. I can't take all this stress. Its destroying me.
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Mom girgals after eating
Hello, has anyone noticed this with their LO? It looks like she is choking and is in pain.?
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Father should be in nursing home but I can't do it
Hi - I have a father who keeps falling and going to the hospital. I think he would be better off in a nursing home. He also has dementia and no short term memory. My dilemma is he is absolutely 100% against going to a nursing home. He literally cried in front of me saying it is not what he wants to do. I have requested…
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MCF after stay in psych hospital
It has been a long while since I last posted an update here (I did last week yet found my answer) and am truly thankful for this site. My MIL finally got moved to a MCF this afternoon after a week plus stay in a psych hospital after she had a catastrophic event at my BIL and SIL’s house. My DH and I live in another State…
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When you just have to say NO
My mom is stage 5/6 she has hallucinations (even medicated) her big one is a dog. She is constantly looking for this Shepard (she has never had a Shepard) we do have a beagle and she enjoys him but is obsessed with this shepherd. I’ve played along for a long time, distracting her changing the subject but she has become…
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Time for Depends?
I am caring for my 94 year old mom who has dementia bordering on stage 4/5. Lately she has had accidents at home and out and of course does not remember them. I have tried to get her to wear Depends when we go out but she refuses. My dad, 95 years old, wears them when we go out as his cancer medicine can sometimes cause…
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Dealing with anger and frustration
I am an only child caring for my 77 year old mom with Alzheimer’s. Not exactly sure what stage she’s in but it’s estimated she’s had it for over 5 years. My mom and I have always had a difficult relationship and I have no patience when because of her short term memory loss she argues with me over things that she says…
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Clarity VS deep sleep or unresponsiveness
My 91 year old mother has vascular dementia and shows a pattern of two days of clarity and sleeps for 3 days nonstop and back at clarity again. This has been a pattern since Jan 2025. She was diagnosed in 2020 and lives in a Care Center Facility. Is any of your love ones with vascular dementia going through this cycle?
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Walking difficulties
My mom has been telling us that when she walks she feels like she is running. I experienced it firsthand this weekend. We went out for a walk and started out slow, she then started going faster where it was almost hard to keep up. When walking she is leaning forward. If I was not holding on to her, she would have fallen.…
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Seeking Advice on Initial Steps
My mother is 80 years old and lives with my father who is also 80 years old. Since the beginning of the year, she is starting to show the initial signs of memory loss. She often repeats herself and is unable to retain very much information in her short term memory. I am reaching out for advice on any initial steps I should…
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Incontinence
My mom currently lives in an assisted living community with my dad and struggles with incontinence. She is asked on a regular basis if she has to use the bathroom, always saying no, then will have an accident 5 minutes later. I truly believe she doesn't know she has to go, but I don't know how help her and my dad. We got a…