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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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Dad with zero short term memory in nursing home
My dad has zero short term memory and just got put in a nursing home. He is desparate to get out and see family members visiting every day. Bottom line is I get 10-15 phone calls every day stating he is miserable and needs to see a family member. I can't visit every day because I am over an hour away. I just feel guilty…
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The money is gone!
Mom has been in Al for a year and a half. When we moved her in they said they accepted Medicaid waiver. I was never told family would need to pay the remaining. Partly my fault, I should have asked better questions. The facility is not what I had hoped it would be and I’m not sure how much longer she could safely stay…
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How can I utilize the medical system to physically move mom to a facility
I am an unable to sleep regarding my mom's dementia and steady decline. It has been deemed by the neurologist provider, that she needs a higher level of care which I have known for sometime now. I am a nurse, but, am the daughter in this situation. My brother has been staying nights with her for over 2 months now but still…
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Another dementia milestone - Mom is moving to memory care
It was just 2 years ago that my mother was officially diagnosed with dementia at age 94. I'd estimate she was early stage 4 at the time. A few months later, in October, I made my first post on this forum feeling guilty for "pulling one over" on my mom by conspiring to have the doctor tell her to stop driving. She's been…
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Hospice care
MC just called. Long story short, reviewing progression, they want to put her on hospice care. It’s hard for me to not feel this is it. They explained it just means she’ll get. A lot more care. Thoughts?
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Taking care of my Mom
My Mom has Dementia, still living home with my dad, and I go to their home every day to help them. She accuses my dad that he is having sex with a 13 year old girl along with me and my 2 other sisters. Some days she is good then other days really off the wall. I get very upset because I protect my dad. I know I shouldn’t…
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Am I out of line?
Hi, community. I'm currently unable to sleep. My Mom (75 years old) came to our house after an unidentified cognitive episode in February. She was diagnosed with Alzheimer's a few weeks later. As her identified POA, I, along with my brother, got to asking our mom her wishes and taking action to find a place for her to…
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Medication Dispensers
Hi friends. I’m looking for guidance on locked and timed medication dispensers. My Dad was diagnosed with Alzheimer’s a year and a half ago. He’s still living independently, and fortunately we live in the house right next door. He takes medication three times a day and I’ve been delivering his medication to him for…
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Mom refusing to be active
I am struggling to get my mom up and around more. She has never been really active honestly but she would work out about 3 to 4 times a week. Since my Dad was sick about 4 years ago, she has had a hard time taking care of herself. He passed 2 years ago after being sick for 2 years. She was out of practice while he was ill…
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Bad fall
Just as things were finally settling in to normal my mom had a bad fall. A very serious and deep cut/head injury requiring staples and stitches. Fortunately great health care near her MC. The doctor even discussed pros and cons of keeping her overnight while waiting for test results (we opted to bring her back to the MC…
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Leqembi/Kisunla
My dad was recently diagnosed by his neurologist with Alzheimer's. He is 63 and is still considered to be in the "normal" to mild cognitive function. His neurologist said he is a great candidate for Leqembi or Kisunla. We are having a hard time choosing between the two. Does anyone have any experience with either? Our…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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Dementia and cancer
I need major advice. My mom has dementia and was just diagnosed with stage 1 lung cancer. Very treatable, if not curable. All she has to do is go through some radiation. She is probably in stage 5 or 6 with dementia... very very paranoid about everything and anything medical all but traumatizes her. She is also a recent…
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When both parents need support!
Hi everyone, This is my first post. My parents are both almost 79 and live in a 55+ community. My mom has moderate dementia, and my dad, who has Parkinson’s (and possibly some early cognitive issues himself), is her primary caregiver. One of the biggest challenges is helping him understand that my mom needs simple, clear…
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Spending time with mom with Alzheimers
We are getting ready to put my mom in a MC facility. Physically, she is in great shape. She loves to go for walks if the weather is nice. I was planning on picking her up often from MC and taking her on walks to enjoy the beauty of Colorado. I was recently told from a friend that that was a bad idea. When we go to visit…
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Going crazy
Taking care of my mother in law and we are so lost is anyone available to talk
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Caregiver who is a nurse
Hi, This is my first post. My mom has dementia that has progressed to moderate. She is very stubborn and becomes belligerent if she does not get her way. She does not realize that she has memory issues and doesn’t understand why we are not allowing her to be alone. She is refusing to shower because she thinks she showers…
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Moving mom with alzheimers to a different state
My dad passed in 2020 and once he passed, my mom mentally checked out. My brother has lived with her since then and the Alzheimers has gotten worse. I live in a different state and come out every other month for a month at a time. It's straining my relationship with my family and my brother is mentally/emotionally done. We…
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Questions to ask Memory Care Facility
My brother and I are wanting to move my mom to a MCF. My dad, thankfully, bought long-term care insurance and after 5 years, we just mentally can't do it anymore. I have made note of the obvious questions to ask on my visit, but wondering if there's some questions that I may not have thought of. Also, has anyone else had…
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Seeing Two of Things
My mom has advanced dementia, about stage 5. She is constantly saying we have two dogs or two cats (we only have one). Sometimes she will double a person and say ‘Dan and Dan went there etc.’ Has anyone else encountered this doubling? Is she really seeing two of things?
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Going on nine years
I am outside of my church that I go to every time I see my mom at the nursing home. It's the only way I can see her and not want to escape into my old ways of addiction. She has a rash now on her face and head. I know when I kissed her, hugged her and prayed with her she opened her eyes. She used to hum when I saw her,at…
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Won’t stay asleep
My dad won’t stay asleep the whole night, we have tried different kinds of melatonin. Any suggestions?
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Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
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Caring for mom with a/s of dementia
my mom clearly has signs of dementia. Have taken her to her Kaiser PCP to confirm and get HELP as I have no idea on what I need to do. Unfortunately after four visits, still no diagnosis or referrals or assistance/advice except deal with symptoms as they come! It’s really hard dealing with this. I want the best for her but…
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Caregiver
I want to be my dad’s caregiver and get paid for it. He only has Medicare. Any suggestions?
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I’m new
hi I’m new to this. I care for my dad who Alzheimer’s and I live with him. He’s 71
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Diagnosed. Total confusion. Down then up?
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Help! Dealing with Agitation, Alligators and threats of dying
My mom, 80 (living at home w/my 80yr stepdad) She has been on multiple painkillers, trazadone, Valium for years (I believe clearly over medicated)...who is been diagnosed by some drs with dementia/alzheimers ...and other not...clearly is suffering from dementia and delusions. Been in and out of MC for last 2yrs. But at…
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Dads journey
my dad is 89 got diagnosed in 2018 with Alzheimer’s my wife and I moved in with him so he could stay in his home he hasn’t gotten to a violent or non verbal stage yet but his incontinence has become more prevalent because of the Alzheimer’s no it’s 4or 5 accidents he’s a veteran was in the Air Force for 20 years working on…
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LGBTQ Eldery Father community
Hello my father was just recently diagnosed with Alzheimer’s via MRI Amyloid scan. Its still early stages but as we know the eventual progression as he decided, which my sisters are aligned on, to not test the brain infusion treatments which only recently have been approved, we want to try as best we can to speak now about…