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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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Maintaining independence during early stages
Hi, my mom (58 years old) was recently diagnosed with mild dementia. My siblings and I are trying to navigate this new reality and find a balance between keeping her safe and allowing her some independence. She’s on medical leave from her job because her performance had been declining. This means she’s home 24/7. Seeing…
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New to group
My mom is 80 years old and is in her second year of diagnosis. She is the church organist at our church but needs my brother or I to prompt her when to play. She can no longer do they planning or get up in time to make it to church so the church says she has to retire which I understand. However, some days she remembers…
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Book for Caregivers of Neglectful/Abusive Parents
Happy Holiday season to everyone celebrating everything. My therapist recommended this book and I found it super useful: Doing the Right Thing: Taking Care of Your Elderly Parents, Even If They Didn't Take Care of You:
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My mother doesn't remember my brother died; suggestions for path ahead?
Hi all, I am a new member here. My mom, who is 95 and lives with my family, has significant cognitive decline and has trouble making new memories. Several weeks ago, my brother died of cancer after having been ill since last summer. Mom knew he'd had cancer and she visited him a number of times in his last days. She also…
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This journey
It’s been 3.5 years since my dad passed and I became my mom’s caretaker and her dementia took a fast slide. She moved out of state to be close to me 2 years ago. Many of you have been right there with me on this journey. Staging: she was probably stage 3-4 before dad passed, 5 when she moved here. Now she’s in stage 6 in a…
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New here Caregiver for my Mom
Hello all! I have really been struggling and looking for support and I am very happy to have found this community! My Mom is 77 diagnosed in December 2024. She lives with me and my husband in an in-law that we put on for her. I have so many questions but the biggest issue right now is she has been online shopping,…
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Dealing with Burnout
Hi, all. Haven't been here in a while. I'm dealing with severe burnout. The last few years were incredibly stressful, having my mom live with me as her dementia progressed. I placed her in an MCF last fall, which turned out to be a nightmare, and now she's in a lovely ACH where she's cared for very lovingly and with…
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New to this group .
Hi I am new to this group . I am really haven a hard time dealing with my dad have dementia and stage 5 kidney failure . He has been in hospice for almost 2 months now. I am feeling extremely guilty for placing him into a nursing facility . I truly tried to take care of him but it took a mental & physical toll on me . All…
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Dad with necrosis
My dad, 89, VD, has started getting necrosis in his feet. How serious is that? He is bed bound and his feet are wrapped up with foam to prevent them from rubbing against each other. Is this terminal? What should I expect? Anybody here have any experience with this?
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My Mom Keeps Misplacing Things & Thinking My Late Dad Is Still Alive
My mom has a UTI (urinary tract infection) that is causing dementia symptoms. For the past month and a half, she's been misplacing things and then blaming it on my late Dad and insisting he is alive and messing with her. He's been dead for more than a decade, but she never came to terms with it. She was taking meds for the…
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I don’t know what I’m doing
Hello, I am 25 years old. My mom (58) was diagnosed with early onset alzheimer’s recently. She was originally diagnosed with FTD last year, but due to genetic testing that discovered she has 2 copies of the APOE4 gene, her neurologist changed her diagnosis to EOA. Both her parents passed in the last few years from…
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Personal Care Tips
Hi all - my mother is in the later stages of dementia and has all but stopped her personal hygiene. I obviously try to get her into the shower. She resists say she has already showered earlier, or that she will shower later that evening, or a lot of other excuses. When in the shower, I am not sure she is doing a very good…
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Covid vaccines/boosters
Has anyone had parents that took the Covid 19 vaccines that contained mRNA be diagnosed with Alzheimers or Dementia? Both my parents did and we have no previous history of Alzheimers on either sides of the family.
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How to talk to Parent about moving to Independent Living when they don't want to leave their home
Any advice on how to talk to parent with mild dementia who does not want to move out of their house into a care facility? For reference, my mom got diagnosed last Fall and is now having issues with remembering to take her medicine and eat, also can't keep track of days and is forgetting how to use her oven. My sister and I…
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Bible Verse for Caregivers 4/13/2025
DEAR CAREGIVER, DON’T WORRY Matthew 6:34 New Living Translation * JESUS’ WORDS “So don’t worry about tomorrow, for tomorrow will bring its own worries. Today’s trouble is enough for today.” JESUS IS OUR LORD AND SAVOR. When He says, “Don’t worry,” He knows whatever trouble, whatever danger, He can take care of us and those…
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Behavior changes
looking for tips on how to redirect aggressive behavior, agitation and combativeness in my mother with moderate/severe Alzheimer’s. This behavior tends to flare in late afternoon/early evening.
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A Reluctant Caregiver for Both My Parents for Nine Years
Hello friends here, Yes, I had help when I took care of both my elderly invalid parents, but it still was difficult. For those of you who don't know me, my mother progressed into severe dementia and could no longer do anything for herself. My stepdad, George, was legally blind, and eventually progressed into heart failure…
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Hallucinations and Delusional Thoughts
Our father has been suffering from hallucinations and delusional thoughts for several years. Now, it has reached its peak, with him talking to someone he claims is "Alice." He has been having full conversations with her, waking up with remarks like, "Wow! That's weird," "Hello?!?, who's there?," and "Wow, wow, wow." He…
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My Mom has Dementia and now hates my Father
Hello! I'm new here. My Mom has dementia and directs all her anger at my father. He is a wonderful, patient man that takes care of her everyday (we are currently trying to get her into assisted living). She calls me everyday bashing him about how he takes all her clothes, pushes her around and throws out all her important…
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I’m new
hey guys as you can see I’m new here. My dad was diagnosed with Alzheimer’s a couple of years ago but has had it a while before that. My step mom just placed him on a memory care facility and it was honestly the hardest thing I’ve had to go through and am still trying to accept. I go up there everyday to help him but…
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When to enact POA?
Hi everyone, I am new here. Both of my parents have dementia diagnoses but it's my mother who my siblings and I have the most concerns about. In a nutshell- both parents are 86, living in the same home for 50+ years 2 miles away from me, in-home caregiver for 30 hrs a week, Dad has moderate physical care needs (uses a…
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"Going home"
Hi - I'm new. I'm caring for my mom long distance. We had her at home with in-home care, but she just doesn't understand that she has any problems at all and wasn't cooperating with the help and just couldn't be left alone safely. So we moved her against her will into assisted living. She is essentially on the…
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Trying to do the right thing.
My mom is in memory care about 1.5 hours from me. Unfortunately because I have young kids, and do not live close, my visits are not as frequent as they should be. Next weekend I planned to bring the family to visit but now I’m not sure. My sister lives close to mom and visits often. She let me know today that the last few…
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Could a moca test be wrong? Or I am in denial?
hi everyone I am new to the forum. This is my first post. I am a caregiver right now to my 86-year-old dad who has moderate dementia and I am struggling with processing and handling everything going on over the last few weeks. He was in the hospital then a rehab (foot infection) now back at home and the wheels have come…
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Looking for advice
Hi Everyone, this is my first post. My mother, age 75, has dementia. She and my dad live in their own home. My mom hasn't been feeling well for the last few weeks which led to a hospital trip this week for tests. All were negative except for a UTI which is her second one in the last few weeks. During this time I found out…
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Reappearance of distanced siblings
My Father was diagnosed with VD with onset AL 4 years ago. I took over as POA due to a broken unrepairable bridge between my Sister the former POA, and Dad. I've learned so much about their former relationship in the last 4 years and frankly, I wish I woud have found out sooner in order to rescue Dad. She kept him in the…
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Mom is losing weight
Hello, some people say when they stop eating that's when the end is near. I don't know,I believe it's up to God. My mom will be 89 this year God willing. The best part of visiting my mom today was that I saw her with my sister. And we really bonded today. It was very nice today. God bless.
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Dad with Early Dementia
My mum has alzheimers and late on now but with Dad im experiencing far more of the i dont live here or getting taxi home and not sleeping at all. He gets up in night with clothes on occasionally and i stop him going but now i am wondering if thats the right approach as there is no "other" place/home. Really exhausted with…
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Coconut oil?
Been doing some research on diet changes and the effects it has on Alzheimer’s. Has anyone ever heard about/or tried coconut oil to slow the Alzheimer’s process? I know omega 3s are important. Just trying to see if there is anything else I should be doing for my mom besides the standard drug treatment.
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New to caring for a parent with ALZ (and to this forum)
Hi all. I am new to this board/ website. I just found it today and figured I would dive in. I am not sure I know what I'm doing writing here other than sharing my story and letting it out in a safe place. It's ok if I don't get any responses, I just need to let it out. My dad turns 80 next month and has ALZ. He was…