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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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Not showering vent and feeling very guilty
Sunday is going to Church day for my Mother-in-Law which became my responsibility since my husband has a standing group bike ride. She has progressively not been showering. Her last shower was 1 week ago before church (I was able to convince her that day). Today I couldn't. She smells of urine and also had bowel…
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Dementia & General anesthesia
My 78 y/o Dad had general anesthesia for the very first time in his life last December 2025. I noticed his cognition was worse post surgery. . I had requested a PETSCAN AFTER HIS SURGERY but we wereDENIED). In Feb/March 26 he develops an earache that has never gone away. 6 months worth of different tests/treatments from…
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Venting, again
This is my therapy, I come just to vent a lot. People here can relate. I am in my second year with my mother's dementia. Hers came on very suddenly so we didn't deal with the denial. She is sometimes very cognizant that something is very wrong. Currently she is miserable. She has osteoarthritis and neuralgia. There is…
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Mom needs more help than assisted living memory care
My mom was living in an assisted living memory care facility up until she broke her hip and had surgery. The hospital she was at lied and told the rehab facility that my mom has ‘a little confusion’, so the rehab facility accepted her to be transferred there. The hospital did not tell the rehab facility the severity of her…
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Hospice - an unexpected save
Last summer both of my parents were diagnosed with dementia. My mother’s is clearer (slowly progressing Alzheimers), my father’s seemed to come out of nowhere - and with a vengeance. Though my dad was diagnosed with moderate dementia, he refused additional testing. What turned out to be a lifesaver is that prior to the…
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Moving my mom in
My mom was starting to show signs of Alzheimer’s but she refused to admit it. I was doing all the work when she needed help or forgot things and finally had to step back for a few months so my brothers would step up. Now they see how bad it is and after a 2 am phone call they see she should not be living alone. The only…
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Is this Alzheimer's or Personality?
My mom is extemely mean to me at times. She has Alzheimer's and I have been taking care of her for 8 years. When I suggest something like for example, "You can put on your pajamas since its night time" She'll respond, "Yeah I'm not stupid, I know what I'm doing" I try to give her as much autonomy as I can, but she is in…
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Ever Moved LO From One MC to Another & Regretted It?
New to realizing no care team in the world can care for LO like I did in my home, emotionally/general attention/wants & needs, although clinically I could never keep up! Tell me of times where you felt similar and moved a LO to a different MC only to find that the previous team (although imperfect) was actually doing well,…
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Dental Checkups & Dementia Milestones
I hit another milestone today, and the guilt is real even though intellectually I know the culprit is dementia… Since moving my dad to MC two years ago, I have taken him out to my dentist for 6-month routine care. An appointment was scheduled for tomorrow, already rescheduled from a canceled appt in May. After thinking…
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Parents and husband
My mother lives with me and has early stage Alzheimer's. My dad lives close by on his own and is getting testing for dementia. My mom has been really depressed for the last few months. It's hard on everyone but my husband does not understand how to talk with and have patience for my mom. I am not sure what to do. Does…
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Excessive need to grocery shop??
My mom has EO and she insists that we need to go grocery shopping every single day. Not in the sense that she is aware it is daily and believes it to be a daily task, but that she asks constantly, for hours at a time. Daily. It doesn't matter how much food we have she just wants to go. She will open the fridge and say "we…
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What to do… Help!
Hello! I have been on here for about a month or so now and have found everyone so very helpful. I have some thoughts I’d like to share and hopefully someone can give some insight into whether or not it would help my situation. So my dad has VD, or so we have been told. He is in a NH that he hates and he “WANTS TO GO HOME”.…
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How to help MIL who has moved into memory but doesn't want to be there
First time posting . . . interested in advice on how to handle a situation with my MIL who is 85 and has early to mid-stage dementia. She moved into personal care/assisted living about 2 months ago and never quite adjusted to that before she started to wonder (about 2 weeks ago) into dangerous situations which caused the…
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Decision to Move Dad into Nursing Home?
I'm brand new here and could really use some support from people who have been through something similar. I'm an only child, and my 73-year-old dad has several serious medical conditions, including end-stage renal failure and a previous stroke that left him with speech aphasia. My mom died five years ago, so I'm the only…
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Emotionally draining
For the last 4.5 years I’ve tried convincing my mom to see a doctor because I was concerned. She is unable to see her symptoms. It took behind the scenes convincing my stepdad that she was a getting worse for over a year and him finally noticing to get us to the point that we had an appointment with a geriatric doctor this…
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My mother - Monitoring her and also finding part-time support
Hi everyone. Thank you to anyone who has time to read my long introduction: Four years ago my husband, young-adult child, and I moved in next door to my mother, who had been diagnosed with MCI around 2016, I think. She has not been diagnosed yet with AD, because she won't get the PET scan. However, she seems to be…
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Moving Caregivers Around in MC?
The MCF where my father lives has several discrete areas (“neighborhoods”), with a set of rooms, laundry, and dining room. These areas are not arranged by level of care; rooms are luck of the draw when moving in (whatever is open). Caregivers are assigned to one of the areas during a shift; nurses supervise two areas…
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Experiences with Seroquel to curb delusions
Hi! I've written many times about the step we took to move my mother into a MC in April and her struggles to adjust to the environment. My initial worries were that it was too early as she had times when things were manageable, the problem was that the delusions ramped up very quickly and were extreme (e.g. felt she was…
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Caring for a parent
My Mom move to an assisted living in May for mild cognitive impairment. She was forgetting her meds and was finding it difficult to balance her check book. I really wanted her to move in with me, but she insisted on her independence which I respect. She was worried she’d be forced to move off campus when the time came to…
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Anger and depression
My father has been declining rapidly mentally. His depression hasn't been able to be controlled with meds and he keeps getting meaner. He's in denial but sometimes I think what I say actually makes it to his thinking process sometimes but is often turned around on me and it's my fault or something I did or didn't do. I'm…
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Dad is newly diagnosed
My dad has been newly diagnosed with Alzheimer’s, vascular dementia. I’m all to familiar with this disease, my grandmother, several aunts and uncles, and my cousin have had it. Some starting with early onset. I have been so emotional and had such anxiety since hearing the actual diagnosis about my dad. I know how this…
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Both my parents have alzheimers
for the last two years I have been trying to care for both of my parents with Alzheimer’s. I only lasted 5 months with both of them and had to place mom in memory care facility., dad lived with me for an additional year and I just had to place him as well. I am devastated beyond belief. My brother has autism and wasn’t…
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Visits causing stress?
Hello all, once again I may be just venting and processing my thoughts, but I always get helpful feedback here. Dad, 88 has vascular dementia and moved to Assisted Living near me (facility has MC as well) about 6 months ago. After a lot of work to get him to agree the transition as gone well. But I am very conflicted about…
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a new home for dad - update
Hello community, Dad has been in his new care home since Wednesday, so almost a week. It is much smaller and in a home-like environment. He needed a new place after a stay at a geri psych inpatient hospital due to behavioral expressions. The entire 2 years at his previous home we struggled to address the anxiety he was…
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I'm new here, my first post - how can I best help my mom?
My mother is 77 years old, living independently, and diagnosed with dementia/mild cognitive impairment, along with anxiety and depression. My father passed 3 years ago, after they were married 50 years. This was followed by the passing of my brother (my mom's youngest son) at 32 just last August. She has lived in the same…
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Lacanemab experience + Patient Experience
Hello valued forum -- we are looking for existing lecanemab users and families - who can share their experience. my mother is approved and considering treatment. we have plenty of medical input and data - but looking for human stories and lifestyle comments. welcome a discussion here or offline too! tx, jennifer
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I'm New Here
I've been a part-time caregiver for my dad for almost two months. My brother and I split our time staying with him. My mom, who had been his full-time caregiver, passed away in June. They were married for 60 years. My mom kept the extent of his condition somewhat hidden from us. Over the past couple of months, my brother…
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New Here! Mum diagnosed 6 weeks ago. Struggling with evening sundowning/looping—any advice?
Hi everyone, This is my first post. Recently, my mum was diagnosed with early-to-mid-stage Alzheimer's. She is 67. This has hit our family pretty hard, especially my dad, who has taken on the mantle of primary caregiver. I still live at home, so I am exposed to the daily realities of the condition. Lately, she has been…
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Feeling Hopeless
My mom has Alzheimer’s and in is in an Assisted Living place. She has done okay up until recently when we discovered she will only take a shower on Friday evenings and she hasn’t been using soap or shampoo. We also noticed late last year she loses control of her bowels and doesn’t realize it. We have tried to get her to…