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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting a parent living with Alzheimer's or other dementia.
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I don’t think I can do this
My mother and stepfather had both been in decline for several years and I have tried multiple types of interventions and been spending about half of my time with them at their house 2 ½ hrs from me for about a year. Two months ago my stepfather became ill and he died a week ago yesterday. I had been at their house pretty…
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The move from Al to a SNF
We moved mom yesterday. We told her about a week before the move (my brother insisted). When we got there she had packed up everything in the room. My brother insisted we bring whatever she wants, that there is room for. When I asked mom what boxes go she points to a pile. I bring them to my car and they have sewing…
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Bathing why it’s a struggle
I’m new to all this and the group. Yesterday was a bad day for me I have never reached out before but mum for the first time ever got so angry and nasty to me it was a shock never has she done this before in my whole life and I’m 52. All because I’m trying to get her to bathe. I hope and pray she doesn’t start to associate…
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Here's a new one I wasn't ready for
Dad was diagnosed with VD and onsight AZ almost 4 years ago. He has been in AL for the past 6 months awaiting "home renovations" and plans to move into the home when finished (depending on the day and time of course as it changes daily for him). He's doing really well and 99% of the time he absolutely loves it and the…
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How to answer questions about going home.
My lo is in assisted living for past 3 weeks, she constantly cries that she wants to go home. She has moderate dementia and is 95 years old
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Directions
My lo has moderate dementia and cannot follow simple directions such as locking her door. How do I handle that?
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Where to Start???
I have hundreds of questions… Where do I start? My mom lives with me and has dementia. She needs assisted living and help with finances. Where do I start? She owns a home in South Carolina that I don’t want to sell, but may be my only option. Is there a way to protect the house? I believe she would qualify for Medicaid.…
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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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Rexulti , insurance wont cover it
hi there, have a prescription for Rexulti for my mom w dementia & Alzheimer’s, however the pharmacy says Humana will not pay for it, & it’s $1,400.00 if I pay out of pocket. Does anybody know a Canadian pharmacy they trust? Thank you M
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Equipment for dementia or ALZ patients
Dad is a fall risk due to frequent UTI issues. Having ALZ adds to the difficulty. We have part-time caregivers and my sister and I are there often but there are times he is alone and is generally ok. When he suddenly get a UTI he falls and is weak. We have went through a few devices with fall detection to no avail:…
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Saw Mom after three weeks
Hello, I basically write updates on here so I remember when I saw my Mom at the nursing home. I need to also vent somewhere that other people understand. I hope I can help others here as well. Mom has lost a lot of weight, I am afraid to feed her because she can choke from food. And I believe I am not qualified to feed…
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Favored daughter of three
I’m the middle daughter of three sisters, and I’m struggling with the challenges of caring for our aging mother. I’m a licensed mental health therapist, and I can see signs that my mom may already be in the mid-to-late stages of dementia, but my sisters won’t acknowledge it or pursue a diagnosis. The youngest, who is the…
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Medications
So we started my Aunt on Aricept and we are waiting for approval from insurance company to start Kisunla Infusions. She had a very bad day today and Im not sure if it is due to overload from family being in this past week or because we started the medication. She is having hallucinations and paranoia. Has anyone else…
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Meds - dumb question?
we finally got my mom to go to a Dr for a “well” checkup. Before the appt we were able to give the Dr a heads up about the memory issues, paranoia and anger towards my dad. The Dr was great. Never mentioned us contacting her and tried to be as comprehensive as she could while dancing around the memory/dimentia concerns so…
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It's obvious I'm not alone...
Though I feel very alone. I have been helping my 83-year-old mother who has had symptoms of dementia for at least 2 years. She had lived alone for 10 years after my dad passed. I kept trying to get her to move closer to me. In February she had some sort of psychotic event and I had her transferred to a memory care near me…
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Mom's New Diagnosis
Hello All! I can't tell you how happy I am to find this discussion board! My mom (76) was diagnosed with dementia a few weeks ago following an episode that involved her wandering the neighborhood at 3am and a horrific fall that landed us in the ER with a head injury. She told me that someone had stolen our furniture and…
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Am I out of line?
Hi, community. I'm currently unable to sleep. My Mom (75 years old) came to our house after an unidentified cognitive episode in February. She was diagnosed with Alzheimer's a few weeks later. As her identified POA, I, along with my brother, got to asking our mom her wishes and taking action to find a place for her to…
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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Help with moving unwilling mom to senior living
Hi, I'm new here. My 82 yo mom has mid stage alz, and is currently living with my dad in the home they've been in for 45 years. My dad 83 yo is very ready to move to a senior living community and is finally reaching the top of the wait list for his desired community that has assisted living and memory care available when…
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Looking for a support group
Hello, all. Just signed up today. My mother is 83 and has had dementia and now Alzheimer's for probably 15 years by now, though the diagnosis of Alzheimer's came about a year ago. I have her in my home two days a week during the day, and have had increasing difficulty managing the stress of her forgetfulness. So now I'm…
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Mom and Stepdad diagnosed with dementia, Mom and 1 sibling in Denial
This is my first post. I feel overwhelmed. My mom has always been very selfish, conniving, and manipulative. There are 4 kids; sibling R is the golden child (we know it, she knows it). Several months ago mom and her husband were involved in several scams that they carefully hid from us. According to their bank records they…
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Not Sure What Is Happening to Mom
Hi everyone - I’m new here and I’m kind of just looking for info and maybe some small emotional support. My mom is 73 and for the last 3-4 years she has been having random mood swings and changes in personality. Most of the time when I speak to her, she has a circular conversation and repeats the same story over and over.…
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First visit to Mom in MC - I survived!
I was dreading my first visit to Mom in MC, since I was the one who actually walked her in there. It's been just under 2 weeks. When I first arrived, I could see that she was in the activity room, so I first stopped by the office where the activity director and nurse manager were. I talked to them to see how things had…
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Stage 6, fading, thoughts on visits?
My mom’s declined since a very serious fall a month ago. Her care team called me last week to confirm end of life care (DNR etc.). She’s very much still in stage 6 - walks with walker, talks (although mostly random words, and a lot fewer), she still knows who I am but I can tell her recognition is fading. She’s lost a lot…
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undiagnosed parent
Hi there - This is my first time at any board or group. I've joined because neither me or my sister know what to do or how to move forward. My mother is 72 and physically very healthy, but I think that she has dementia, some form of Alzheimer's, or paranoia, or a combination. For the past two years or so she has been very…
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28 and my mom just got diagnosed
Hi, My name is Julie. I'm 28 and my mom just got diagnosed with Alzheimer's. It wasn't really a surprise. My Nana (her mom) had it and it was pretty severe by the end. My mom has aged pretty rapidly in the last 5 years. When Covid was going on she got lyme disease and some other blood borne disease (I don't remember what…
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Mom has Covid
A few days ago, Mom had a headache all day. That was all that was going on. But by the following morning, she was nauseated and throwing up and had a slight fever of 100.1 and was also having high blood pressure, well pretty high for her and also coughing a lot. So we made a doctors appointment and got her tested yesterday…
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Please help -having issue with Assisted Living facility LO is in
My LO is currently living in an assisted living facility. Her Alzheimers has progressed throughout the last year of living here and we have had many issues with this facility adapting to her changing needs. The biggest issue we are facing right now is she is having a lot of bowel issues which is causing clothes and sheets…
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Continuous Bathroom Visits
So, I'd like to find out why my Mom has to continously use the restroom. She will ask to go several times before we get ready to leave somewhere and she does the same thing constantly when we're just at home. I've heard that it's anxiety/fear or boredom and sitting on the toilet is "comforting" to her. I don't believe she…
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Moving Mom
Hello all. We are in the process of moving my mom in with my niece; however she doesn't want to go because she can't take her 2 cats and 3 dogs with her. The critters will be staying with my dad and will be cared for, but my mom has to move (and I would rather not go into the backstory of why she can't stay with my dad)…