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Hope we can make this board more active
Hello, fellow travelers. DH left this world one month ago, and I am struggling. Both the speed of his departure (seven weeks from first hospital admission to death) and the unexpectedness of it (just over three years since diagnosis) have really leveled me. I have heard from other members of speedy departures after…
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Advice on moving.
My DH passed about a month ago.He had been in high level AL/MC for over 2 ½ years. He had severely disabling Parkinson’s disease and dementia, diagnosed about six years ago, but it went back further than that. I am in the midst of grieving, and overwhelmed with unhappy memories of the last years. Everywhere I go, I see…
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Advice request
Hi everyone - this is my first visit to this board. I seem to recognize more names here than I do on the spouse board. It's nice to see all your familiar names. I'm having a problem that all of you would be best to ask for advice. DH is getting closer to finally moving on. It could be weeks, it could be months. Maybe even…
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ho perso mia moglie a causa della sindrome Alzheimer/Corpi di Lewy.
Salve sono stato il marito di Margherita, la mia bellissima moglie, giovane intraprendente e amatissima compagna. Dopo alcuni anni di questa malattia incredibile lei se ne è andata lasciandomi solo con due figlie, Alice e Valentina, già grandi. Ma la sua assenza è incolmabile, per me e per loro anche se stanno reagendo…
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It's been almost 17 months since I lost Jan
I was reading last night in bed which I do every night for an hour or more til I get sleepy or can't see the darn print anymore. I started to get the coffee shakes so I got up and got a cup. At the kitchen sink I have a window and on both sides of it she has a big cat she made and painted. It was if I had never seen them…
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How I feel one year after DH's death
DH died 1 year ago yesterday. It feels odd. One year is a fairly standard metric for measuring time, but it does not feel real. I remember his death as if it were yesterday. I feel the loss and despair of multiple life times. My heart ache is acute. The brain fog remains. I move forward with sadness that he is gone and…
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My Stage 8
My DH passed on 4/17 at 73 after a 12-year journey with AD. The last five were tough years. He was in memory care for 6 mo. After being in a psych unit for a month, due to behavior. He went to a second MC at mid stage 6, developed aspiration pneumonia and was gone in 5 weeks. This week I finished the required paperwork for…
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I'm angry and sad
Hello, I'm new to this site and this is my first post. I lost my Mom almost 2 years ago. She had AD and Cancer. I keep thinking that I will feel less sad and angry any day now but I seem to find myself stuck between these two emotions. There were some unresolved issues when my Mom passed and I never could have a…
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Coping with grief
My wife passed 8 days ago. I was her full time caregiver for 3.5 years. I read a lot about the grief process and what to expect after a spouses passing. There are 2 things that happen to someone in my situation. A tremendous euphoria comes over you after your spouse passes because the weight of care giving is relieved.…
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Gabapentin mimics dementia symptoms
Just wanted to let everyone know if you take Gabapentin for nerve pain, etc. it causes symptoms that mimics Alzheimer's. So much so, that I was 99% sure I had it (also have family history with the disease). Been off Gabapentin for three months now and am feeling much better. If you need help with nerve pain, maybe your…
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A Circle of Care
My wife of 57 years passed away three months ago after several years of progressing through the Alzheimer's disease. I thank the members of this website for providing invaluable support and ideas on how to cope. I know what many of you are feeling. Early on I started developing what I called a Circle of Care—people that I…
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My great grandmother passed away
My great grandmother passed away due to dementia. Since she was very old, we didn't take her symptoms seriously, which I believe prevented us from detecting dementia early. Looking back, early diagnosis of dementia seems to be the most important thing. She had symptoms of delirium, but we didn't think much of it. It wasn't…
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Questionnaire d'enquête
Bonjour à tous, J'effectue une enquête dans le cadre de ma formation qui porte sur "La nutrition peut-elle améliorer les troubles cognitifs dans la maladie d'Alzheimer et les maladies apparentées ?" et j'aurai besoin du témoignage de personnes touchées par cette maladie neurodégénérative ou les aidants d'une personne…
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New to alz. just lost a close family member last week; if someone can help with a few questions
Hello, I'm new to the alz.connected I've been in contact with the Alzheimer's Association for 3 years now since I found out our now late cousin had a mild case of dementia. He passed away just a little over a week ago and I took off last Monday for his wake and his funeral was on Tuesday & I took off on Thursday to myself.…
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Making sense of where I am now - stage 8
It's been 5 1/2 years since my sister was diagnosed with early onset Alzheimer's and FTD, and a little over a month since she passed away from it (yeah, early onset does move fast). It's still easy for me to think that she's off somewhere on vacation with no cell service, although we're getting to the outer edges of that…
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Battle Buddy -Stage 8
Well I have finally come to Stage 8. It was 7 years of caregiving , with two of those years on Hospice. I kept my husband home the entire time . It’s been 2 weeks since he passed. The funeral was 10 days ago. I have done so much in those 10 days, including painting the room his hospital bed was in. I don’t know how I got…
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60falcon, over a year now
Hi. I just felt like I needed to give an update. I lost Pat at the end of August last year. She had EOAD and in her last month of life she went from late stage 6 to passing away. Looking back, it happened too suddenly and I was unprepared for how it would effect me. My devastation and grief was probably normal and…
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Guilt
My DH passed a little less than 3 weeks ago. I find myself often overwhelmed with guilt. Were the choices I made for him the right ones? Did I contribute to his fast decline? Did I contribute to his suffering? I didn’t know I would miss him so as I often thought his death would be a relief for both of us. But now, I’d give…
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Children of parent's who have died from Alzheimer's
I have been the caregiver for my mother for the last 16 years. This August she died from the disease. I have not been able to find a single book or group about this and find it very frustrating. I thought since I grieved the loss of my mother for the 16 years that her death would be easier. Stupid I know....this is hard as…
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Guilt and Regret
My wife passed away 8 months ago, and I was taking care of her 24/7. It was getting difficult, sometimes I lost patience and was abusive to her - other than the grief that I'm still going through for someone who I loved so much, how do I handle the guilt and regret that I feel at times? It was getting really tough at the…
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I read this at my dads funeral yesterday.
its been a full week since he passed away now. The funeral is over now all that’s left is to pick up the pieces and start our new normal.
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Lost Parent
Hi everyone, I am new on here. I recently lost my Mom to Mixed Dementia (AD/VD). I have been fluctuating between anger and crying. I find satisfaction in expressing anger to the particular individuals in the medical system (mainly doctors and nurses) who I feel failed my Mom and me. I understand systems are currently…
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My Memories
I’m struggling with remembering my late DH. It seems all my memories are of him with Alzheimer’s. I can barely remember the times before. Anyone else have same problem?
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Bible Verse to Lift You Up 1/15/24
Hello friends, for nine years, I took care of my mother with dementia and my stepdad who had kidney and heart failure. After they both passed, I felt lost for a while. I felt like I had PTSD. Taking care of them was the hardest thing I have ever done, and I had 2 people helping me. While taking care of my parents, I often…
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Lost a spouse
Is there a discussion group specifically for spouses who lost their partner to Alz? I can't locate one. - Jon
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Awaiting the ultimate
Hello, My grandmother is finally in the stage where we had to put her in hospice. She is my heart and i know that I can't be selfish and keep her here. Not like i could any way. I am trying to prepare myself as best I can. I can't eat or sleep, she is all i think about i kept trying to imagine life without her and i…
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Grief is so heavy but it lets me carry you...
I’m leaving you here. For one night I want to forget. And maybe smile. Grief: You can’t leave me behind. I’m tired. You are heavy. Sometimes you are just too much to bear. Grief: I am a part of you now. I can shut the door. Forget you for a few hours. Grief. That is not how this works. I will always catch up to you. Why…
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I wish…
…that those who have lost their LOs would come here more often.
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How do I move forward?
I lost my husband on September 30th. He fought long and hard, but he couldn't anymore. For 21 years I have shared my life with him and over the last 10 years I was his caretaker helping him face so many medical issues. The last 3 years I was with him 24 hours a day (3 times I had to leave for a few) which is the care he…
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Dad died last night
I’m grieving hard today after four days of seeing my dad actively dying from vascular dementia. His decline came on suddenly after a series of mini strokes and a fall. It was rough. I’m exhausted from crying and staying up with him. I miss him so much and trying to adjust to this new reality. I told him I loved him several…