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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Our last mile
*posting in spouse/partner forum too Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct.…
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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Journey's end
Fellow travellers on the dementia journey: for most of the last 17 years I have been a sporadic visitor here. Apologies for being out of touch so often. I have always found this place to be a great source of support on my caregiving journey and I am grateful to so many friends whose location and names I will never know.…
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What to Do When My Grandmother Brings Up Her Dead Brother
Hello all. My grandmother has undiagnosed dementia (probably stage 4 or 5). She seems almost fine in the morning, but is a major sundowner and can't hold a conversation after about 6:30 PM. Her brother died in May, but I'm not sure if she remembers. Her long-term is usually fine, but she hasn't brought it up once since the…
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Leqembi infusions
Have your persons been doing Leqembi infusions? Has it helped? What can you tell me about these infusions.
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Driving
How do I begin the conversation with my DH who is beginning to show signs of driving incompetence. He rooms over to the lane beside him and straddles the lane lines, he hits the brakes abruptly when he gets in a close situation or even when pulling out of our driveway and sends me forward without my seatbelt on yet even…
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Picking at skin
please help! My husband was diagnosed with Lewy Body dementia. He picks at his arms, face, hands, ears and legs. Today he picked at his hands from morning to night. I can’t keep him preoccupied long enough to stop. I put bandages on him but he takes them off. I’m at a loss and he’s getting more and more open areas…
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Taking the car keys
Hi - I'm new and this is my first post here. My 86 yo dad has been diagnosed with Alzheimer's and dementia and was told not to drive by his Neurologist at the time of diagnosis a couple of weeks ago. I took the key fobs but he found the backup manual keys. I am trying to avoid a confrontation when I take the remaining keys…
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Bible Verse to Lift You Up 2/15/25
BE STRONG AND COURAGEOUS! Joshua 1:9 New International Version 9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.” Joshua 1:9Amplified Bible, Classic Edition9 Have not I commanded you? Be strong, vigorous, and very…
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Easy website for answering questions about my father's condition
My father has had Alzheimer's Disease for the past 7+ years and has progressed into a later stage. I've had lots of questions along the way and I'm finding it really frustrating to search and visit lots of websites for simple answers. Just discovered pfizer has a new website that answers questions. I put in some questions…
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Try to keep control in the very early stages
Just a general comment. I've been noticing a number of folks here under 65 "retiring" due to dementia. Please if you have long term and or short term disability insurance [ sometimes through your state] jump on using that before letting job performance lead to firing - where income and benefits could cease. It's normal and…
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Incontinence
Has anyone had success using a wireless floor mat alarm? If so, where did you purchase it?
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Clogging Toilet
Good Morning! My father keeps clogging toilet - I believe he is flushing too much toilet paper down toilet. Any advice for this?
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Feeling stuck - Drugs, gambling, elder financial abuse, mental health??
Hi, this is my 1st post: My MIL was living w/her grandson, who stole $15K+ from her. Spent it on drugs & gambling. She was living on her own before he convinced her to move hundreds of miles from her home to live w/him & his husband for 3 yrs. The two had a domestic dispute this past Oct, the grandson got into a fight…
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Need help accepting caregiver
We're trying to hire a caregiver/helper for a few hours a week, but my wife is very private and gets angry at the idea of having someone else in our home. We need some advice on how to resolve this. Thanks.
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Pill frustration
My PWD is on donepezil and mematine and has been doing really well with managing the doses in morning and at dinner. We set up a system that has worked with these as well as the other Rx meds she takes. Then after some dental work the dentist Rx’d an antibiotic that is a different dosage schedule. The amount of confusion…
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Spinning headache
I meant she was diagnosed with Alzheimer this month
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Relocation
I am caring for my uncle, and we have reached a point where we feel like his living alone is not in his best interest. I have secured new housing arrangements, but we're struggling with how to break the news that we will be moving him from his home of 60 plus years. He sits alone with no interaction with anyone and little…
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Trying to understand the crying/sobing
Every time one of her kids visits her at the memory care (every 2 days ) , she is lying on her bed crying and often sobing.. It take at least 15 minutes to console her (she does not know why she is crying ) and then everything is ok , and she is in a good mood when we leave . Is she really in a turmoil or is it the brain…
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Ombudsmen, Residents, and Retaliation in Assisted Living Facilities
Michael Ellenbogen sent me this detailed report on problems in assisted living facilities. The second link is to an article on the report. https://www.mcknightsseniorliving.com/news/ombudsmen-can-be-partners-in-ensuring-resident-dignity-safety-expert-says/
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Please get rid of all the spam messages on this site
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Info on types of accounts, roles to have help managing finances
There is a good series of free downloadable guides on a US GOV website about being a trustee, court appointed. etc. Easy to understand .
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Virtual talk on -Secrets to Brain Vitality-
[I've heard Dr Sha speak and she is excellent- very positive] from event flyer: " Join brain health and memory disorders expert Dr. Sharon Sha for a mind-opening talk about what you can do now to help preserve your brain function well into your later years. Learn how to live like your brain depends on it. Tuesday | March…
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Eating and eating and eating
I know this topic can’t only be something that I’m dealing with. Some background here my fiancé and myself moved in with his grandfather a year ago whose health had deteriorated tremendously in the previous year. I thought we would be temporary until he got back on track. Well I decided to remove my blinders about 2 months…
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Not understanding
I do not understand what to think. Last summer DW had hallucinations, didn’t know me or our house, had sundowners real bad. She did know her kids and grand children We started her on mementine and donepezal along with quietinine. Now she is back to normal with some changes to her personality and lost many memories from the…
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Moving parents from home to IL/AL
Both parents have ALZ diagnosis and currently live independently with support from a 2x/week care giver and daily support from sibling living nearby. Their needs are increasing and we want to move them to an IL w/cont home health aide support. The place has AL (currently no openings) but no MC. The mom is very resistant to…
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Dementia or UTi
Hi I live with my mom and have an aide that helps me out so I can go to work. For a while now my mom would talk to any of her friends or family. The only problem was she was repeating the same conversations or stories. We just dealt with it! It is what it is! Until recently now she sees my dead father, she becomes easily…
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Can anyone recommend a simple Digital Picture Frame without WiFi?
Hi All, My mother who has stage 4 Alzheimer's which is progressing quickly loves to reminisce over pictures. We thought having a digital picture frame full of pictures in her room would be very welcome by her. It would have to be incredibly simple. Turn it on and turn it off; even an auto off function would be welcome. No…
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Need some advice
My grandfather (77) has Alzimers and early stage dementia. He has been having issues with his memory and I am trying my best to help him. But I'm having trouble getting through to him. For context, I along with my parents, are currently living with my grandfather. We try to keep the house clean, provide meals and assist…
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hijacked by spam
It is really so sad when someone wants to hijack a forum where we are actually helping each other. For what? attention? scamming? both… I try to flag most of them when I see them, but it is really just disheartening. For anyone who is not familiar with it, please do not click on links or make phone calls to anything that…