-
Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
-
Moved: ALZConnected Q&A Thread
This discussion has been moved.
-
Nighttime toilet issues
Looking for some creative ideas cause I am at my wits end. My mil has been living with us for a year. Diagnosed with FTD about 5 years ago. Still does well during the day, no longer remembers/understands she has dementia. About 6 months ago I started finding wads of wet tissue stuffed under furniture. When asked she…
-
92 Year Old Grandmother (Dementia due to aging) & 63 Year Old Uncle (Frontotemporal Dementia)
My wife and I were recently appointed guardianship of her grandmother as her son whom has lived with her his entire life , he had epilepsy and had a right frontal lobotomy 20 years ago, she is suffering with extreme anosognosia of nothing being wrong with her (CHF,Fibroids, had 1 minor stroke and 2 heart attacks) and that…
-
Medical alert watch band
My dad has Stage 5 ALZ and it is time to make sure he has a medical alert band - problem is he won’t wear a bracelet or necklace but he wears a watch - daily. Any ideas for a new watch band or add-on that acts as a medical alert? Thx.
-
Angery Mother
I’m having major problems with my mom. Within the last four weeks if she doesn’t get her way, she will call me names not the nice ones either. I also moved in with her two years ago when she was first diagnosed with dementia she will also tell me that I need to move out. If she’s not getting her way. We have an appointment…
-
Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
-
Medicare Question
Hi everyone, My mom was just diagnosed with Alzheimer's (mild) state. She currently has Medicare under an Advantage Plan - United Healthcare. Because of her new diagnosis, we are considering moving her back to Original Medicare in order to have more options for care. Does anyone have advice about this (i.e. having Original…
-
Getting support from family members
My DH is at the beginning to mid part of his diagnosis. Does anyone have any advice on getting children involved in caretaking and better understanding the disease? I am a stepmother to my DH’s kids and they have not been very engaged. Any suggestions would be helpful.
-
Got the Job. Now What?
I was offered the job in Manhattan. Start date 10/20. 3 weeks from now. I should be celebrating, but it just complicates my situation. I have three options, none of which seem very good: 1. Take the job, and move both me and my mom up there, somehow, in 3 weeks. Find new apartments in NY, break leases, hire moving company,…
-
What did the techs just do here?
@ALZConnected Moderator I couldn’t get to posts for a few minutes. Now that I can member’s profile are randomly showing up next to their screen name on their comments including mine. So I have edited my profile to say ‘removed’. Which didn’t help because my profile info showed up on this comment
-
Urge to pee but no pee
Been dealing with toileting issues at night the last couple months with the last few weeks increasing in frequency but this is a new one. MIL has been up and down multiple times during the night feeling like she has to pee but is not able to pee. She had two urine tests last week. First was inconclusive. Second was done…
-
Rushing into caregiver arrangements
Although being with my DH with Alz 24/7 is driving me crazy, the nuances and limitations of working with a caregiver have begun to reveal themselves. I finally reached out to some people on Care.com and found myself rushing into an arrangement set to begin in a week with the first caregiver I met. The arrangement is based…
-
What made you decide to place your LO in a SNF?
Hi, We don’t have money for MC or help at home. In fact, I stopped working early, depleted my savings and retirement, and my oldest son has been living with us and paying the bills for two years. Those might be enough reasons to place my partner in SNF—so I can work and my son can move on with his life. What brought me to…
-
Which ID cards need to be with PWD
Which ID cards (like medical insurance card, state issued ID) ought to be in the PWD's residence for easy access? Likewise to be with person when going outside. Today, prior to a medical appointment, they were all gone, along with wallet. I asked, and PWD denied owning a wallet, cash or any ID. Fortunately, the medical…
-
Cannabis and Senior Living Facilities
Hi, I care for my 77 year old mom that has Alzheimers. She is in the early stages and still lives alone at home with help from me for errands, bill paying, groceries etc. It is progressing and we have started looking at senior living with all stages of care as she would like to start out independent with help from me at…
-
From the NYT: How Older People Are Reaping Brain Benefits From New Tech
A gifted link to the article— https://www.nytimes.com/2025/08/09/health/technology-cognition-older-people.html?unlocked_article_code=1.nk8.Wxst.AdgH546VpONN&smid=url-share
-
US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
-
In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
-
Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
-
Cymbalta
my wife was always on 30mg a day Nurologist up to 60mg twice a day for depression, anyone have good results
-
GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
-
Mental illness and memory care
Hi all! I'm facing a decision about increasing my mother's level of care, and I'm getting very different messages from professionals. I'd appreciate any advice or input you have about what questions to ask or factors to consider. My mother has longstanding mental illness with various diagnoses that features an explosive…
-
NYS CONSUMER DIRECTED PERSONAL ASSISTANCE PROGRAM (CDPAP)
Anyone live in New York and get the CONSUMER DIRECTED PERSONAL ASSISTANCE PROGRAM (CDPAP)? I am thinking of moving back to NYC with my PWD because I suspect rates and services through Medicaid there might be greater than what we hav ein rural Mass. Please share what you know. Thanks. PS we have a place to live so no…
-
New to this. DH with MCI due to AD
Hello. I'm so glad I found this support. My DH, 66 yo, was diagnosed with MCI due to AD in July 2025. I noticed ST memory loss for about 5 months prior, had his PCP do a MOCA where he scored 24/30 which led to Neurologist, PET (significant beta-amyloid plaque), pTau .33. He failed Aricept due to GI issues; is now on…
-
Support Groups for DH
Hello Again - I have found so much support for me, as a spouse of a DH, but not so much for my husband, or for the both of us to attend. He is still at a stage where he might benefit from others' perspectives. Mostly, I'm looking for outside validation for things like driving… Warmly, —CydS
-
Newly diagnosed? Free Zoom workshop tonight 9-23-25 for newly diagnosed.
https://www.facebook.com/share/r/17L5XA7FCc/?mibextid=wwXIfr saw this on Facebook. Newly diagnosed? Don’t know how to prepare for the future? FREE Zoom workshop tonight, Tuesday Sept 23, 2005. Link tells what time.
-
Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
Hi! I was on the boards here 7+ years ago for my dad, and now I'm back for my cousin. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth.…
-
Baby Monitor, LifeAlert type necklace, or other option best for Mom with Alzheimer’s?
Short version of our situation: my sister, brother and I are caregivers for my Mom. She’s 7 years in now (4 years since official diagnosis). We live split across a duplex, and there’s usually at least one of us on call. We had been able to leave her by herself for a couple hours if necessary, but that may be changing. I…
-
MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
-
Suggestions about what to ask of a home health aid?
We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…
-
We need a Plan B
I lost a favorite neighbor this week. She was caring for a husband with Parkinson's but was diagnosed with pancreatic cancer three months ago. He is now in a nursing home with hospice, and her funeral was yesterday. We may intend to care for our LOs to the end, but God may have other plans. It is important to have a plan…