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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Ivermectin for dementia
Has anyone heard about ivermectin for treating dementia? My sister told me about reading that it was very helpful but my searches only show that ivermectin does not help dementia. Thanks
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I'm at then end of my rope as a caregiver.
my 93 year old mother was diagnosed with ALZ dementia 11 years ago (2014). she's required 24-7 care for the past 8 years. her illness has been advanced since 2017. i am the primary caregiver at her home. the past few months have been awful. her occasional threats and refusal to co-operate have become almost routine.…
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Thank you Alz Connected and All of you
I just wanted to say THANK YOU to each of you. Thank you for this association and for this page. My mama passed away at home on Thursday, June 19th at 2:30am. She was taken to the doctor on June 6th for what ended up being shingles and a UTI. At that visit, the doctor suggested that we may want to look into In home hospice…
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
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Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
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More seizures
5 seizures in 3 months. EOAD. DW is on Keppra now. I can’t imagine this is not affecting her progression of this disease. Any thoughts!!
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When to stop Donepezil and Memantine?
My mom's hospice care suggested I let them stop Donepezil and Memantine because her FTD is very progressed. I always second guess what is the right decision with anything related to Mom's care. I asked the benefit to taking her off the meds, and they said (1) she's progressed so much that they don't help and (2) it's hard…
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PBS Cargiving Documentary
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Won't drink enough!
How do you get your LO to drink fluids? I am tired of harping on mom to drink. She will ignore the water,juice, or tea in front of her face and keeps getting UTIs.
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National Alzheimer's Summit: A Virtual Experience
Michael Ellenbogen sent me this valuable information: This year’s theme, “From Personal Stories to Powerful Action: Making a Difference in Alzheimer’s,” will elevate the voices of patients and caregivers while driving impactful change through collaboration with government leaders, scientists, the private sector, and…
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National Alzheimer's Virtual Summit
Michael Ellenbogen sent me this. UsAgainstAlzheimer's is a good organization. This year’s theme, “ From Personal Stories to Powerful Action: Making a Difference in Alzheimer’s," will elevate the voices of patients and caregivers while driving impactful change through collaboration with government leaders, scientists, the…
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Psychosomatic pain?
Wondering if anyone has experience with pain complaints? My DW had a mastectomy 10 years ago. Early stage cancer, no chemotherapy or radiation. She’s now complaining constantly about pain in the other breast. Saying, “I want this one removed too.” Recent mammogram (1 month ago) was clear. There’s no fever, redness, or…
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Montelukast for AD
Has anyone's doctor mentioned Montelukast as treatment for AD. I have read some studies showing it has a positive effect on the inflammation reaction in the brain?
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Slow motion in Stage 8 (repost)
Posting from Spouse's forum also.
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Not sure the MC facility has my mother's ADLs addressed
About three months ago I noticed a few things lacking in my mother's room regarding her personal care. One was that she did not have any toothpaste, shower soap or washcloths. I wondered how they were properly bathing or brushing her teeth. I also noticed the toilet paper roll was down to the last few squares and there was…
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How to respond when DH does this
We have been married 33 years. DH has anger attacks. There has been never any talk about leaving. We have been through even his helicopter accident. Saying this there has been some recent anger episodes where it is late at night or early morning, he comes in yelling “If you are so unhappy then leave. Just go! Do you want…
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So, this happened...
This article doesn't come right out and state the driver had dementia, but I suspect the son is going to be having the conversation about the car keys HB
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Need Your Input Please
My name is Denise. I am posting this because I really need input for what I am experiencing. My husband is doing what I understand is vocal verbalizing. It has become increasingly loud and more frequent. We often go out with friends as he enjoys that. Unfortunately, it has become almost unbearable for my friends to deal…
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Who is responsible for following up on directives after release from hospital?
It seems I have a new concern each time I visit my mother in MC. Today's question of the day is "Who is responsible to ensure the medical staff and my mom's MC facility follows the orders given for care after someone is released from a hospital?" My sister is POA for everything with mom. (I used to have POA jointly with…
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Opinion - What I Learned From a Support Group for ADRD - Cost and Fit Are Key
Choosing the Right Group Therapy for ADRD Caregivers: Why Cost and Fit Matter Caring for a loved one with Alzheimer’s disease or related dementias (ADRD) is an emotional and demanding journey. Many caregivers seek support through group therapy, hoping to find understanding, practical advice, and emotional relief. But…
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Preparing LO For Death of a Friend
Hello everybody! I hope everyone is enjoying their summers so far. I am writing to try and gain some insight on how to handle this situation, for me and my mom. My mom is 61 and in the moderate stage of her Alzheimer’s. We live in an apartment building and have been very close friends with the woman that lives above us for…
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Help Me.
my name is Denise. I am a care partner to my husband who is diagnosed with Alzheimer’s disease recently. I find myself getting very impatient with him with his Tourette’s type syndrome weird sounds. I don’t know if anybody else is experiencing this. Would or assistance with how to stay calm. Once again, it’s 2:30 in the…
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In home help
Tomorrow I will be talking with an agency that will provide in home help for my DH so I can do so many needed things that I have been putting on hold since his diagnosis in January. I have been utilizing family and friends to spend time with him when i have appts or do something socially, but some of his needs are more…
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Help and insight
Hi. I apologize if this seems off or redundant, I’m new to a lot of this. My grandfather has Alzheimer’s. It’s pretty bad. My mom lives with him to help and I’m over as much as I can. But lately he’s aggressive and wants to go home. Stating this is not his home. It’s definitely in the sundowners range because it’s usually…
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Caregiver Respite
My mom has alzheimers and my dad is her primary caregiver, I am with her every saturday. It is to the point that my mom cannot be left alone and I am worried about my dad. I am looking for adult day services or in home companion care in my area to give my Dad a break- Beaverton, Hillsboro, Aloha, OR, I am completely…
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Research - Brain stress & resilience after surgery
interesting article
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Need help with some little things
Hello. My grandma was diagnosed with the early stages of Alzheimer's and dementia about a year ago and is rapidly progressing. Her long-term memory is still okay so far but her short-term memory is definitely suffering and she is becoming more agitated and ornery. She has always been a very strong, independent woman so I…
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Depakote added with Seroquel
Has anyone had a loved one that takes both Depakote and Seroquel? If so, I am wondering what reaction you see in the person you care for that takes both medications, and was it also for agitation and aggression? DH is already on Seroquel but the Neurologist suggested adding Depakote along with Seroquel for DH anxiety and…
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Gene therapy shows promise for Alzheimer’s disease
Gene therapy shows promise for Alzheimer’s disease San Diego VA researchers demonstrated in mouse models that targeting specific brain neurons through gene therapy in early-stage Alzheimer’s disease may help preserve memory and stimulate neuron growth. The researchers focused on the protein Cav-1, which promotes the growth…