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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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A new inappropriate behavior
As I have mentioned before on this site, I assist an old friend (age 70) who has ALZ by taking them swimming a couple of times per week. Today, I started to enter one of individual family changing rooms because the "available" tag on the door indicated that it was unoccupied. A woman standing outside the door told me that…
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New Fear Unlocked
I have benefited so much from different posts I've read since finding this site. Until recently, I allowed my DM to hold on her debit card and credit card since moving into an IL facility. After reading horror stories of scammers, both here and in the news, mom consented to having me keep her debit card. I left her credit…
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Friend Guilt Tripping Me b/c Mom in AL
I know people sometimes mean well when they give unsolicited advice. A long time friend has been messaging me videos of cases of elder abuse in nursing homes and telling be how wrong I am to have my mom in a MC AL facility. She says my mom is unhappy (she hasn’t seen my mom in years) and that I’m doing her a disservice. I…
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Mom’s (61 w/Alzheimers) Sister Died Suddenly Due to Medical Malpractice
Hi everyone! I know the title is,,,a lot. My mom is the youngest of 4, adores her older siblings. One of them unfortunately has passed two days ago, a doctor caused more damage than repair. It was completely sudden, and I am struggling with how to tell my mama. She is extremely emotional, and I’m concerned that telling her…
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Who is responsible for following up on directives after release from hospital?
It seems I have a new concern each time I visit my mother in MC. Today's question of the day is "Who is responsible to ensure the medical staff and my mom's MC facility follows the orders given for care after someone is released from a hospital?" My sister is POA for everything with mom. (I used to have POA jointly with…
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What tips or tricks do you have to help keep up with medications?
Hello! My MIL has Mild Alzheimer's and at this time lives alone. We just started a caretaker 2x per week but she has meds she needs to take morning/evening. We are 20 minutes away with 2 kids in elementary school and sports. Any tips on what has worked? We have a regular pill organized but it isnt helping she is missing…
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Are our 'numbers' gone?
The numbers in the headings are gone. I sincerely hope this is not permanent, as I found that feature to be very helpful. It was helpful for greeting folks new to the forum, and sympathizing with those going through a rough time who may have been here longer. Just wondering - thanks.
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Traveling with a Spouse who has dementia
My spouse is in the later stages of dementia although we still do outside activities. Each winter we do down south for 3 months. I am debating what to do this year. If we stay home LO will be in the house 7 days a week being cold. If we go south, she will at least get outside. I caN'T figure out what to do. Either way I…
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I am a long distance caregiver with my siblings
My mom was diagnosed with Lewy Body Dementia about 8 years ago. My two brothers and I are her legal co-guardians. She lives with my older brother in another city and has hired caretakers to assist with her care. My younger brother lives in another city as well, but is much closer and visits once a week when he can. I try…
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helpful chart
It has been 3 years since my husband passed with this horrible disease. At the time I had a chart that say "When they say… you say. I guess I thought I would never need it again and I threw it away. Now I am in a retirement community and I have to watch a woman who is in charge of a 102 year old woman with Alzheimer's. She…
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HEARING AIDS
This is a very practical question. My wife has mid to early late stage dementia. She has delusions and hallucinations about "a man" who comes into her room and removes, moves, or takes her things. Because of this, she routinely hides her hearing aids. This usually happens before she takes a shower or before she goes to…
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My friend just got diagnosed
My last post disappeared, so I'll try to keep this one brief. Betty is a sweet friend of mine. An ex-school teacher, she is very smart, very kind and upbeat. I've been providing paid "companion care" for her this past year or so, 2 to 4 days a week. Her memory has been getting progressively worse for the last year or two,…
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Dreading the future as a caregiver is not productive?
I read that worrying too much about the future being a caregiver of a PWD is not good for one's well being. I mention this since I hear from fellow members of a caregiver's group, who have PWDs at different stages and they all progress at different rates, and we see glimpses of our future in their lives. (We see ourselves…
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beginning this journey with my mother. feeling alone
Hi, I feel really alone. I am new to all of this. This is the first time I have gotten into this website. Will have my first support group meeting next week. My mother lives far from me and I believe she has some sort of dementia, but early stage. My mother's short-term memory is not good. She has forgotten how to use the…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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Overwhelmed
My husband recently diagnosed with early onset Alzheimer's (63) and caring for aging parents. I am feeling very overwhelmed and sad and just all the feelings. I am really glad I found this group. I feel like I need somewhere to go to talk about what's happening and this seems like a safe place. I've already read some of…
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Any tips to help LO get into bed to rest on their SIDE?
Hello, My DH sleeps better if lying on his side, but he doesn't know how to get into that position, and weighs too much for me to put him into it by lifting or pulling. He suffers from apraxia, so has (cognitive) trouble with coordinated movements. If he starts by sitting on the bed (coming from the side), then lays his…
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Officially doing this again - vascular
My mom died 4 years ago after a very long battle with Alzheimers (early onset.) Now I'm going through it again with my dad, although it's vascular dementia this time. He passed out recently and the work up afterwards revealed the vascular brain changes, though I'm not surprised. His memory has been getting progressively…
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any advice on hospital bed mattress causing/contributing to migration and delirium
Hello community, My father is at home and started with hospice about a month and a half ago. they immediately provided a hospital bed,which looks to be almost a hundred years old- like something out of an asylum. I only recently tried it out myself and it made me feel so sad and angry that my dad has been sleeping in it…
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Advice on Mother's Paranoia
Hi. First time asking a question. My 93 year old Mother has Vascular Dementia. She's in the late stages. She has hallucinations and very paranoid. She told me today she wants to talk to two family members regarding, what she believes to be the family upset with her. She thinks she made them upset several years ago. She…
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Is Cousin Larry Taking Advantage?
I am a friend and part-time paid caregiver to 80 year old Betty, who is very newly diagnosed with early stage Alzheimer's, primarily manifesting now in short-term memory losses. Betty is financially secure, but has few family members; she's outlived those closest to her, yet there are a few extended family members, most of…
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Driving is risky reminder
91 year old killed one & injured folks at a Trader Joe's parking lot. Witness said driver said she pushed on the "brake" but car just sped up. https://abc7news.com/post/1-killed-4-hurt-car-hits-pedestrians-parking-lot-outside-trader-joes-los-angeless-fairfax-district-officials-say/19786314/?ex_cid=TA_KGO_FB Unknown if she…
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Should you tell a dementia patient that what they think really happened did not
my mother is in early to mid stage of dementia from vascular changes and Alzheimer’s disease. She is either hallucinating things or dreaming g them and then insisting that they really happened. She then gets very anxious and angry about what she thinks happened Should we tell her that these things did not occur? How do we…
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How do I pull my godmother out of constantly wanting to go to her childhood which no longer exists?
It's been happening slowly, but in the past month my godmoms keeps wanting to go to her childhood home which doesn't exist anymore. She's not remembering or recognizing her home of 40 years. She's been like this everyday at least 1-2 times a day...but the last 2 days it's been all day. I need suggestions on how to reassure…
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Stairs
We live in a ranch home on a hill. My husband has FTD and is getting unsteady on his feet. We have to climb a set of stairs no matter which way we enter the home. The most gradual incline is from the driveway to the back porch and in through the kitchen. However the patio is made of large stones, two levels, uneven and…
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Caregiver Guilt - Desperate for Support
Hi. Not even really sure what I’m asking for. I guess someone to tell me everything will be okay. I’ve been taking care of my mom part time for years. As of 3 weeks ago, I have had to work with her spouse around the clock since my last time at work. It’d take a year to write everything that is going on but she is past the…
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Only Mean to Caregiver
My 89-year-old father was diagnosed with Alzheimer's 6 months ago. He reserves all his anger, paranoia and hurtful words for my mother (caregiver). No one else sees/hears it. I am learning that he did this on a smaller scale for a lot of years but mom never told me until now because it has been amplified due to the…
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Approval for Leqembi Infusions
My 62 YO brother was just diagnosed with EOA. The neuro's office said they must apply for a clinical trial to get Leqembi treatment because he is <65. Has anyone else <65 started Leqembi outside of clinical trials?
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Eating habits
My mother in law was recently diagnosed with dementia, although she has had symptoms for awhile. We got her out of a bad living situation and have her living in our apartment complex so we can come over and help her with dinner and caring for her dog. She hasn’t progressed to a point where she isn’t able to take care of…
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Organizing home care
Hi everybody! I have learned much from this forum (thanks!), but now I face a new problem and need your kind advice again. My DW (82) has late-stage dementia. So far, I have been able to take full care of her (besides a bit of respite care from an aide), but all my current arrangements depend on my wife's ability to walk…