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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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UTI Test for Incontinent?
Hello. Is there any way a nursing home can test a patient who has Alzheimer's and is incontinent? My mom is 87, and recently, her agitation and combativeness have continued to escalate. She is hitting, biting, scratching, screaming, and, as they said, "speaking in tongues." She sleeps mainly all day and does not eat as…
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Daughter to Mother with Dementia, just moved from the Lebanon to Los Angeles
My mother, almost 79, was diagnosed in November 2020. We've had to move out of our home of 20+ years in order to make a new life here. The move has been really hard on both of us, especially her. My dad had to stay behind until he can get his visa to move in with us. Her body is suddenly failing to do simple things, she…
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step down symptoms of vascular dementia
Hi, my mom was diagnosed 9 years ago with vascular dementia. She is currently 92. Does anyone know the stages or steps of this disease? Just trying to better prepare myself. I am her only caregiver.
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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Excellent Handout Packet: dementia, stages, CGs, actively dying - Tam Cummings
(Sharing here as well as Spouse/Partner CG Forum) - Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours. I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging…
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They are still there
My wife was formally diagnosed with early onset ALZ in 2018 at age 61. Her symptoms had started 2-3 years earlier. She was enrolled in a research protocol in 2019. Unfortunately the disease has marched on and now she in in a memory care facility with late stage disease. It has been a difficult journey. One thing that keeps…
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Cost of Memory Care
If you have a LO in memory care or you've done some pricing please post the prices you've found/paid and whether Medicaid or Medicare cover any of the cost. I am in Massachusetts and the average cost of memory care (according to Google) is $8,500. I am sure you can pay much more. Thank you!
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Hi .. I’m new to the Discussion part
I am the caregiver for my husband. He has been diagnosed with likely Vascular Dementia and some Alzheimer’s plaques also. We did participate in a Clinical Trial for Eli Lily’s newest plaque destroying drug til it was discovered that he had more than moderate (not quite to extensive, but close) White Matter Disease. He was…
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Hospital bed time. Moving really fast
I added an Update in the comments I got a call tonight from the AL nurse. Mom rolled out of bed tonight. Since this counts as a fall ( in my opinion), it’s three falls in 9 days. The AL nurse had previously told hospice that mom didn’t need a hospital bed as her platform twin bed raises and lowers at the head and feet. I…
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In need of support
Hi all, I’m new here, and new to supporting someone with dementia. The long and short is, my aunt has dementia. We haven’t been close, and I hadn’t seen or heard from her much in 30 years. I reconnected with her about 1.5 years ago and she was mostly lucid. She was determined to move to Colorado with me and my kids as she…
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What to Do When My Grandmother Brings Up Her Dead Brother
Hello all. My grandmother has undiagnosed dementia (probably stage 4 or 5). She seems almost fine in the morning, but is a major sundowner and can't hold a conversation after about 6:30 PM. Her brother died in May, but I'm not sure if she remembers. Her long-term is usually fine, but she hasn't brought it up once since the…
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Dementia Family Dog Workshop Webinar
I started following this group that’s based in Scotland because my wife who is in the early stage of Alzheimer’s expressed interest in getting a service dog. This free webinar is an “educational workshop to guide families affected by dementia who have, or would like to get, their own pet dog”
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New Alzheimer’s treatment being studied!
https://scitechdaily.com/a-breath-away-from-a-cure-how-xenon-gas-could-transform-alzheimers-treatment/
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LO Continues to Lose Weight
I had posted earlier about when it is time to get Hospice involved. I have been busy getting my LO set up with home health three times a week, and Palliative care. My concern is still that my LO will not eat food. This weekend she aspirated twice on soup and coke. I also noticed that she is not snoring at night. This is a…
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Daily Catholic Mass Podcast
For any Catholics, lapsed Catholics, or Catholic curious here’s a link to the daily mass readings. I left the church at age 14 & became an atheist but returned this October at age 52. It’s the best thing I've ever done for myself. I hope this gift reaches others.
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How to tell your spouse she has ALZ
Do you tell your spouse she has ALZ or you let someone else, or you just don't tell her? This is all new to us.
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Sister was diagnosed 11-12 yrs ago...
I joined this forum in Sept 2022 because I was caring for my husband who was diagnosed with Alzheimer's-Posterior Cortical Atrophy in 2021. I had to place my DH in memory care in Dec 2023 due to my cancer diagnosis. My husband Lonny passed August 12. Because I was overwhelmed with caring for my DH & my cancer diagnosis, I…
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Norovirus at assisted living
My mom had norovirus but no longer has symptoms, but her whole facility is on lockdown and she is really confused and decompensating fast (being isolated). We are being told to stay away, and I have kids myself, so I'm trying to decide if it is safe enough to go over and try to at least find her remote, find her phone, put…
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A Local Nightmare
This was in the news not far from me. A woman was found wandering near 2 very busy streets in a primarily residential (mostly single-family homes) area. It's interesting that she seems dressed for the weather.
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peeing on furniture
my brother has a special spot where he likes to sit and/or nap. Recently though, I noticed that he has been sitting where I like to sit. This morning I noticed that there is a distinct wet spot between the cushions where I am sitting. I put my hand down there, and indeed, it was wet, and when i smelled my fingers, it was…
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When to tell family and friends
My DH was diagnosed with Alzheimer's 2 years ago. He is ashamed of this disease and didn't want to tell his family; including his daughters. I did tell his daughters he was experiencing symptoms and the results of his tests. They have been very supportive. He has responded to ALZ medications, but his short-term memory has…
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Aunt with dementia and POA
Hello. Lurking and new here. I saw a post about feeling guilty for giving up power of attorney. I am in the same boat. My aunt gave me POA and I live long distance from her. I never knew about it until she told me afterwards. It was a springing POA, and I never wanted it and she knew that. She moved out of state to be…
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BiPap usage as dementia progresses
My husband just got diagnosed with Alzheimer's and around the same time he finished a sleep study and found that he has central sleep apnea caused by his congestive heart failure. He has been using a BiPap since November and is doing well. My question is… what should I expect as this disease progressess. Will he most…
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I'm learning to accept this new reality
Hey I'm a 35 year old man who takes care of his mother. She lives a few blocks from me and is going through dementia. Early 2024 is when I first noticed signs. My mom is 77 years old, she is my heart, my Queen. She fights me on EVERYTHING and feels I'm taking her independence from her. I don't really get help from my…
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Christmas gifts
Mom is in AL. She hoards and we have not taken her to the store for the last 3 months because she insists on buying things she doesn’t need. She is finally just starting to tell me if she needs something vs telling me I need to take her to the store. She is mid stage and insists on independence. She loves Christmas and…
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How does one go about finding a clinical trial?
My mom was recently diagnosed with MCI/dementia. Since she is in the beginning stages, she'd like to participate in clinical trials to help with research. Her mother had Alzheimer's and participated in a trial and she would like to do the same. I don't know where to start. Thanks for your help.
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primary caregiver diagnosed with terminal cancer
I am the primary caregiver to my longtime partner who has dementia. I just got diagnosed with terminal cancer and need to decide his next options. He has an adult daughter who is not very involved in his current care. And out of town siblings who might help. Who do I talk with first and when do I bring my partner into the…
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Leqembi infusions
Have your persons been doing Leqembi infusions? Has it helped? What can you tell me about these infusions.
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Ftdcaregiver1
@FTDCaregiver1 I saw your comment (on a different discussion ) about losing your loved one this week. Just wanted to tell you I was sorry for your loss.
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LO was recently diagnosed with YOAD
My dad, who is 55 years old, was recently diagnosed with early onset Alzheimer's. I believe he is in the middle stages Alzheimer's, I'm not sure. For some reason I don't want to talk about any of it with friends or family, however, because of that I haven't really been able to come to terms with or accept it. One of the…