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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Angels Of Mercy...
As a recent spouse of my DW diagnosed with Alzheimer's I struggle with depression, sadness and loneliness. Once joining this site and reading posts I see that I need to shed the "woe is me" thoughts. So very many folks have situations far worse than she and I at the moment. I sincerely applaud all of you for what you are…
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What I did today...another form of venting
Here is what I did today at the multi-thousand dollar MC where my DH lives: Woke him from a nap at 11:15 AM Brushed his hair Cleaned his smudged glasses Shaved him Took a short walk with him Requested the aide change his soiled briefs (yes, I checked them first) Walked to lunch (he didn't eat the overcooked broccoli -I…
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Dementia and gardening
My SO has severe dementia, communicating with them is extremely difficult as 5 minutes after you think he understands he does the complete opposite. Throughout winter he decided everything in the garden needed pruning as a consequence several plant collections have been destroyed. Now with spring he believes everything…
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Early Onset In Person Groups
My brother was diagnosed 6 months ago with Alzheimer’s after a very long 2 year period of many appointments and tests. He is 61. I’m trying to find him an in-person group in the Los Angeles area with others with early onset. He currently does a virtual program but I think in-person with others closer to his age would be…
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Question related to effect of repetition on memory.
I help a friend go to the gym a couple of times per week. At first, friend could not remember that they had a membership card and that they needed to scan it to gain entry. After several trips, they now always remember. At first, for many trips, friend could not remember how to use the built-in combination locks at the gym…
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Hope I am doing the right thinng
I am taking my wife to a memory care center in a couple of days. I really don't want to but Cathy is not improving. She is very inconsistent. Some days I can change her clothes with little issues yet other days it's liking herding cats. The PACE (Program of All-Inclusive Care for the Elderly) facility she is a member of…
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Hi new here…
My name is Dana, and my husband is in the process of his diagnosis, although we are pretty sure it’s early onset Alzheimer’s as that is an issue on his father’s side of the family. He is upset with a family member right now, unfairly, but there is no way to reason with him. My question is, do any of you have suggestions…
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Grandmother living with dementia REFUSES TO BATHE/SHOWER
I am a 33 yr old granddaughter, taking care of my 86 yr old grandmother living with dementia. I’ve been living with her for the past almost three years providing care to her and my uncle. Recently she has refused to shower. It's been getting harder and harder to convince her, and she instantly switches to anger and puts…
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How do you find help
I am new here. My mother was dx Alzheimers/Dementia. I believe it is early stages, but we do not know yet. We have a more in depth eval on 5/20 w Loma Linda in Cali. My question is, how do we get help? I was told by her insurance to just call around and talk w/ nursing homes to see if they will accept her and if they offer…
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New Here - Suggestions for Getting Spouse To Give Up Driving?
To be clear - I have joined this group on behalf of my niece who is the caregiver of her 62 year old husband with ALZ. She still works full time (so has little time to do this kind of online research herself) and he is home alone all day. He is now at the point where he shouldn't drive anymore, both because of his current…
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Stages - emotions and functions
I came across this video, yes it promotes a service but I found the video independently did a good job of explaining the Stages in terms of functions and emotions. Also, why PWD "showboat" with Doctors and people they rarely see .
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How to we get Mom to leave for a nursing home (against her will!)?
I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. So many mentioned she could just be tricked- no it's just not possible and despite having a diagnosis of severe, she IS aware enough to know what is going on. drs have classified as severe…
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How or if to tell my parents they are moving to memory care
I am about to move my parents into memory care in a few weeks. They are both 95 with stage 4/5 dementia. They have been living in assisted living for the past 4 years so the move would just be across the courtyard to a more secure facility with more support. My question for this group is when, how, or if to tell them they…
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Moving wife to memory care
I'll be moving my stage 4 or 5 dementia wife to memory care soon. Any advice on moving her would be appreciated. Should I try to explain to her that she is moving ahead of time? Should I take her there and wait until she is asleep before going home? Should I bring all of the stuffed animals she likes the most all at once…
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overnight pullups advice for incontinence
Hello wonderful people, I was wondering if anyone has advice for a brand of overnight pull-ups that is the most absorbent. Lately my LO often soaks through even the brands that say they hold the most liquid. He does sleep over 12 hours sometimes, so i know that would be a challenge for any product. Our family has tried…
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My DW's mom was going to visit, and then couldn't.
My DW's mom has Alzheimer's also. She is 88 but she is not as advanced as my DW. My DW's stepdad attempted to drive my DW's mom from Florida to visit my DW here in Indiana. They got as far as Tennessee and had to turn around. My DW's mom got confused and agitated and insisted on going home. I have read that it's nearly…
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New controversy with Donanemab (marketed in the US as Kisunla)
Donanemab: Conflicts of interest found in FDA committee that approved new Alzheimer’s drug https://www.bmj.com/content/386/bmj.q2010
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When shouting is necessary to avoid harm?
I realize it's best to redirect, distract, avoid any actions to lead to failure, but if a PWD is about to cause harm or an accident, it may be necessary to forcefully pull their body or hand away from harm, or shout to stop it. For example, if I look away for a moment, PWD walks inand a) put hands on a hot stove or b)…
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Witness of My Mother’s Passing
This piece is a witness to my mother’s final days with Alzheimer’s. I wrote it some time ago, but I wasn’t ready to share it until now. For privacy, I’ve changed names and identifying details, including her last name and the town where we lived. This piece includes honest descriptions of the dying process, including…
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Exhausted and angry--venting
Please forgive my ridiculously long post. It's a character flaw. Background: My mom (91) was fully independent til last October. In hindsight, there were signs that she was deteriorating--she was suddenly unable to navigate the remote control and the phone, for example, and I made quite a few drives to her house to assist…
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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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Sex
my elderly husband was recently diagnosed with dementia/Alzheimers. He has always looked at porn but lately he has started interacting. He asked one if they could meet up for sex. He sent a picture of his genitals to another. And he has said negative comments about me. We were having sex 2-3 times a week. We’re both 72. I…
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Scary and depressing delusions - how to respond?
My mother is in stage 4 of dementia. She's been anxious for over a year. Since she hates meds, I haven't felt it's severe enough to push for anxiety medication. I've been increasingly aware she is having delusions that cause more anxiety. I know the general advice is to accept their reality and not argue with how they are…
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Severe dementia- yet Mom refuses to move out
Edit- I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. drs have classified as severe dementia and highly recd she not live alone. They state there is nothing we can do other than wait for a crisis here (Kaiser-California). Mom will not…
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Camera advice
Hi I am caring for my aunt who has Alzheimer's and vascular dementia. I have one family member who is trying to go against everything that we are trying to do for my aunt. I had place cameras in her apt ( common areas only) as well as sensors on her doors to obviously keep her safe. WELL her brother told her about the…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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Durable POA
My mom and stepdad have a document titled durable power of attorney. However, in the document itself, it says that one of them have to die for the other to have the power. Both parents have dementia. Does the fact that it’s a durable pile attorney give the secondary power of attorney’s access
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After 10 long years mom has died, now what?
It was 10 years ago that I realized my mother's forgetfulness was more than just normal aging. The reality hit me like a ton of bricks, and nobody else in the immediate family wanted to face it or do any future planning. I had a general dread of what the future could hold but maintained hope that we could still find a way…
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Patient care
Hey guys im new here but j have been working with dementia patients for almost while now. However last year i took a full time caregiving shift and would like to know if anyone else has or is experiencing this. So its two caregivers, when the morning caregiver leaves and i come in my patient starts asking for sweets and…
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Has anyone used out-of-pocket AD biomarker blood tests (p-tau217, amyloid blood test)
Posting on behalf of a family in Virginia dealing with a frustrating situation. My friend's father is showing clear functional decline in daily life — the family has noticed definite changes — but his screaning test(maybe MoCA?) came back normal. Because of that result, his doctor is refusing to order further workup like…