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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Looking for Girl Friday help in the Pittsburgh area
My father is caring for my mother who has dementia. She is recently in Memory Care and my father has to spend a lot of time with her in Memory Care b/c she doesn't like it. Spending all this time with mother has left a lot of things undone. He is looking for someone who can run errands for him, light housework, maybe work…
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97.5 year old with Dementia/AZ
Hello, new to the group. My father's dementia started after a brain bleed at age 95. His other health is great for someone his age. He can walk, talk, feed himself and use bathroom on his own. Unfortunately, he experiences sun downers or agitation bordering on violent behavior almost every other day. He is still at home…
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First appointment - what should I ask?
Looking back on what you now know, what should I - the caretaker - ask the neurologist at the first appointment? What do you wish you had asked? My wife is 61 with a father and grandmother who had AD. She had a blood test last week with a positive for tau (whatever?) and a ct scan that was “not terrible” (upon brief review…
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Partner to a Caregiver
I am new here and looking for support for myself. I am caregiving my partner who is and has been caring for his wife, diagnosed with FTD in 2016. I have been with him for over 4 years. I would never have chosen this path for myself, except I have known him for 16 years and know the beautiful soul he is. I worked with this…
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New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
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Beginning to Resent My Mom
Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I…
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Memory care / Medicaid / quality of care in New Jersey VS New York
Hello everyone, I’m in the process of attempting to move my dad who is in the early to mid stages of Alzheimer’s from a retirement community in Arizona to the east coast where i am. There’s no other family around and we both want to be closer to each other. This process is beyond overwhelming. I began my search a few…
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No more intervention
So my father is a type 2 diabetic, stage 7 c or d(per hospice), possibly in heart failure and on Hospice for 4 weeks. He is in a memory care facility and eats well(too well, big boy:). They have to work hard to get him up and to breakfast or at least get some OJ in him every morning because of low blood sugar. Hospice…
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Early Onset
Hello. I am new here and came searching for support and connection. My sister, age 55, was Dx with MCI several months ago as the doctors continued all the testing. We just received confirmation that the petscan was positive. Reading the reports before seeing the doctor is so challenging. We have reached out to get an…
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Therapist offering free workshop on caring for caregivers this Friday 11-1pm
hey everyone, I have a friend, psychotherapist, Lia Avellino who is offering a virtual workshop, Caregiving for the Caregiver. It's for anyone supporting others whether at home, at work, or in your community, definitely those with Alzehimer's. It's a 2-hour live workshop as an opportunity to slow down, reflect, and explore…
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Early in the process
My husband was advised by neurology dept that he probably has Alzheimer’s Doctor can’t see him for 4 months to confirm. What am I r do?
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Fibbing about dead people
PWD asks about dead people daily, many times a day. I know that some people oppose fibbnig, but I'd rather not tell the truth that these people are dead, since it brings grief. If PWD wants to see them, I usually say they are traveling, and that answer is usually forgotten and I get the same question later. Or I distract…
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Aunt's caregiver guilt
My aunt has no children, no spouse, no partner, ever. She is the kindest human, but a loner. I am her caregiver; she was diagnosed with moderate dementia. I know it is not safe for her to live alone and I took her keys away months ago. She wasn't caring for herself, eating appropriately, taking her meds, and I watched her…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags and signs (there are many people at this very moment who have a family member with dementia and still do not realize it), and especially to help people navigate through…
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Treatment Options and Initial Questions
My sister was diagnosed today and she is 66. She is already on Donepezil 5mg. I see discussion around infusions. Can someone enlighten me on this? Also wondering what some good initial questions are to ask the doctor when we have our first in person visit.
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Excellent information on Alzheimer’s infusion drugs
unsafe:blob:https://alzconnected.org/1c785df9-dbad-4d22-9a7f-434619322d6e
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Facing a Diagnosis this Week
I am meeting with our neurologist this Thursday along with my husband. I have already heard from this doctor that my husband's recent scan is positive and is consistent with Alzheimers. It indicates frequent amyloid neuritic plaques. I am alternating between depression, fright and a will to rise up and be strong. Can any…
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Bible Verse to Lift You Up 12/1/25
"FOR WHEN I AM WEAK, THEN I AM STRONG” 2 Corinthians 12:6-10 New Living Translation Paul's Words “If I wanted to boast, I would be no fool in doing so, because I would be telling the truth. But I won’t do it, because I don’t want anyone to give me credit beyond what they can see in my life or hear in my message, even…
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New diagnosis
Hi all, my DW was recently diagnosed with Alzheimer’s at 68 y.o. We are both in disbelief due to the way this has been handled. The APRN who has been the contact for this has only been out of school for 2 years. Yes, she had a PET scan showing the presence of amyloid plaques. No Tau tangles. Some slight decline such as…
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Suspect nobody is following up on discharge instructions for mom in MC, what to do?
My 87-year-old mother is in Memory Care. She was diagnosed with COPD 15 years ago and she controlled it well with an inhaler and occasional use of a nebulizer at home before moving into the ALF. Other than COPD and dementia, she is in relatively decent health. Her facility left me a message three days ago saying "your…
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Depakote added with Seroquel
Has anyone had a loved one that takes both Depakote and Seroquel? If so, I am wondering what reaction you see in the person you care for that takes both medications, and was it also for agitation and aggression? DH is already on Seroquel but the Neurologist suggested adding Depakote along with Seroquel for DH anxiety and…
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Caregivers network!
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Mid-stage Dementia : Agitation and Aggression
My father has dementia. He lives with my mom in their home, and my mom is his primary caregiver- I am his secondary caregiver. About a year ago he started having issues with incontinence. A few months ago he was determined to be mid- stage dementia. After many months of urging my mom, she agreed to hire a part time…
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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From the NYT: A Different Type of Dementia Is Changing What’s Known About Cognitive Decline
https://www.nytimes.com/2025/11/28/health/late-dementia-alzheimers.html?unlocked_article_code=1.5E8.jeiC.EuBZiHfxb5a8&smid=url-share An article about LATE, a recently recognized form of dementia.
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Scientists catching up to the value of rosemary
I first began using rosemary essential oil with my mother in 2007 (she passed away from a heart attack in 2012). She became more alert, could recognize objects, could remember her name again, became somewhat more lucid, had a little bit of short-term memory, and was calmer. I have been advocating for the use of essential…
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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with LBD
Hi. I'm new here. I'm a granddaughter caring for a grandfather with lewy body dementia. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the last 2 years has started having symptoms of LBD. He accuses almost…
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Being "failure free" when PWD wants to do hard things
I understand the idea of failure free activities and that there are books on it. My question is: If the PWD insists on doing something that is bound to fail (let's say trying to scratch off stains off a dirty napkin or a couch cushion), all I can try is to distract with something else. But PWD wants to be left alone to do…
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A discreet wandering safety idea: AirTag insoles (easy to check location if someone gets lost)
Hi everyone, I’m in this community as a fellow caregiver / supporter, and I wanted to share something I recently came across that could help with wandering risk. The Alzheimer’s Association notes that 6 in 10 people living with dementia will wander at least once (often more than once). I have attached the link to the…
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93 yo Mom that has Late Stage Dementia ALZ I am at Caregiver Burnout Stage
I have a 93 year to be Mom that is in the middle late stages of ALZ Dementia I have two businesses that I cannot run and must fulfill my broadcast schedule on the road broadcasting high school games. I have no to little help and neighbors and friends ask but advise or critique me on how to care for my mom but not lending a…