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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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donate adaptive clothing?
I have multiple sweatpants/t-shirt zip up the back clothing items from Buck and Buck. Where can I donate them to get them to someone else in need? They are such a specialty item I do not want to just drop off at Goodwill, but I may resort to that if I can't find other takers. Any suggestions?
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I'm confused (again)
My Dad has Alzheimer's/vascular dementia. He was diagnosed three or four years ago, has been in memory care for two years, and on hospice for 8 months. He sleeps a lot. Probably 20 hours a day on average - he's awake from about 7:30 to 11:30 in the mornings. He gets out of bed about half of the mornings. He has lost a lot…
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Venting - In Law refuse to move into Memory Care
Three years ago, we added a 600 sq ft apartment to the back of our house for my in-laws. My MIL had started wandering and going to neighbors’ houses saying there was a strange man in her house. (It was my FIL). They sold their house to help pay for the addition to our home. My MIL has advanced AD and is now giving the…
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PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
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Safety app that performs a daily check-in
I came across a free smartphone app called Snug Safety that helps people who live alone do a quick daily check-in to confirm they’re okay, and if they miss their check-in it notifies chosen emergency contacts so someone can check on them. [P.S. on Feb. 19… This app is a good option for caregivers. If something happens to…
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My patient is diagnosed with Dementia
Hi, I am a licensed Practical Nurse, the business owner for a caregiving service called ' Divine Home Care Services in Jamaica 🇯🇲. One of my patient has short term memory loss and Sundown Syndrome. She loves to eat snacks and not cook food but she's calm and kind. She gets confused when the sun sets. Time confusion & where…
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My patient is diagnosed with Dementia
Sundown Syndrome can be very frustrating, she gets very confused as to where she is, what time of day it is but she always knows when its supper time.
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My patient is diagnosed with Dementia
Hi, I am a certified Practical Nurse who provides care for patients with Dementia/Alzhimer. My current patient is 96 years old and she has short term memory & Sundown Syndrome. She's not aggressive but stubborn at times and loves th eat snacks a lot.
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First time posting
My husband (74) was diagnosed with MCI due to AD and Vascular Cognitive Impairment about a year and a half ago. He also exhibits signs of anosognosia. His perception of his actions are not the reality but he doesn’t see that. He’s had 2 car accidents in 2 years- totaled 2 cars. Based on his neurologist’s recommendation, he…
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Mid-stage Dementia : Agitation and Aggression
My father has dementia. He lives with my mom in their home, and my mom is his primary caregiver- I am his secondary caregiver. About a year ago he started having issues with incontinence. A few months ago he was determined to be mid- stage dementia. After many months of urging my mom, she agreed to hire a part time…
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New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
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Bible Verse to Lift You Up 2/17/26
THANK YOU, LORD! Psalm 34:9-10 New International Version 9 Fear the Lord, you his holy people, for those who fear him lack nothing. 10 The lions may grow weak and hungry, but those who seek the Lord lack no good thing. me: Life can be the pits; it can be confusing and hurting. Yet The Holy Spirit whispers encouragement and…
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Flameless kitchen
I saw a TV show on a flameless kitchen — where a gas rangetop was removed since it was a danger to a child who liked to fiddle with the knobs, and that forced the parent to keep an eye on it constantly. They instead relied on a multi-cooker (like an Instant Pot) along with a counter-top oven (a combo microwave / toaster…
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First appointment - what should I ask?
Looking back on what you now know, what should I - the caretaker - ask the neurologist at the first appointment? What do you wish you had asked? My wife is 61 with a father and grandmother who had AD. She had a blood test last week with a positive for tau (whatever?) and a ct scan that was “not terrible” (upon brief review…
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My Grandma has been diagnose but family won't accept it!
Hey there... long story short, my Grandma was diagnosed with dementia back in 2023 and my mom and aunts and uncles didn't share this information with anyone! Fast forward to today, my Grandma was in the hospital due to an UTI infection, and while I was there, the doctor mentioned her vascular dementia diagnosis and said he…
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Valentines Day
I just want to wish all caregivers a Happy Valentines Day. Although for me, as I am sure it is for most of us, it is not quite the same as in the past.
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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End-of-Life care and Hospice
Hi everyone, I’m Jayla 🤍 I’m a mama to 5—2 of my own and 3 bonus babies—and I’m new here. I’ve worked in home health and end-of-life care for the last 12 years, and I’m currently pursuing nursing school. Even with all that experience, nothing fully prepares you for doing this for someone you love. I don’t share my story…
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Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
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I was Angry and then tears (Venting)
Last night was terrible for me. My DW was agitated and confrontational all night. She kept me up until 1am. I was angry but I kept it to myself. In the morning, my DW was loving just like the person I married. I hate this disease! On our way to lunch today she was so affectionate. I couldn't hold back my tears because I…
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How do you tell them ?
My DW just had a brain MRI. I got the results online and the stand out impression was disproportionately prominent volume loss in the mesial lobes, especially on the left ,as may be seen with Alzheimer's disease and other dementias. I haven't told her yet and not sure how to or if I should. Please share any discussions you…
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Long term Care Insurance
I’m looking for info on long term care insurance. Will I be able to purchase it for my husband if he has been diagnosed with dementia? How much does Medicare cover for in home assistance? How much does it cover if he needs to be in a memory care facility at some point? Is this kind of insurance worth the expense? Thanks…
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Is there any benefit of getting mom to a specialist for her COPD at this point?
Mom is 87 and in MC for over one year. She has dementia, COPD and newly diagnosed early-stage heart failure. She also recently is on oxygen for her COPD. In addition to all of that, she has limited mobility from a recent fall in memory care where she broke a hip and is now getting around in a wheelchair and shuffling her…
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Mom Won’t Stop Staring Out the Door
This is kind of a funny one, but I don’t know what to do about it. My mom has Alzheimer’s disease (moderate stage), and she loves looking outside through our windows and door. The problem is is that we have a shared driveway, so there’s usually people walking past our door. To be honest I personally would feel kinda…
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Jury Duty in Iowa
Hi all and thanks in advance for any help you may be able to provide. I am new to this forum but not new to caregiving. I have been caring for my Father who has been diagnosed with Alzheimer for the last 5 years. He was diagnosed 8 years ago and is reaching the late stage in the diseases progression. I live in Iowa and…
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New here
My husband hasn't been diagnosed with dementia yet but he has many of the symptoms he went from just minor memory issues to Second stage dementia in 4 months we still haven't seen a neurologist it wil…Started byTraceeIvyMost recent byharshedbuzzCaring For a Spouse or Partner3 new807:12 am3
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Mother with late stage alzheimers and hostile stepdad caregiver
My stepdad is caring for my mother in another state. Though he is wonderful to her, he has been hostile to everyone around her, resulting in isolating my mother. He is not an active listener, super hard of hearing, and bipolar. Therefore I have not been able to get any specific details of her progression. I have read…
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Alcohol Related Dementia Wernicke–Korsakoff syndrome thread
I wanted to start a separate thread of support and venting for caregivers/family members of people with alcohol related dementias and/or who have been diagnosed with Wernicke–Korsakoff syndrome (or not diagnosed but you suspect this is their illness). This is such a complicated issue because, in addition to the dementia…
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Good research article
https://brainresilience.stanford.edu/news/aging-brains-pile-damaged-proteins Since REM sleep helps clean the brain seems like the old adage 'get a good night's sleep' is important for more than looking "youthful". Top article is latest report - below is article on sleep.…
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Mom only has Medicare A and B plan only (she has dementia)
Any recommendations on which Medicare additional insurance plan I should choose? Getting ready for the future. She's very healthy, active and not on meds. Thanks for your input. AC