-
Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
-
Moved: ALZConnected Q&A Thread
This discussion has been moved.
-
From Kerrville, I Thank You ALL for your Thoughts and Prayers
Greetings everyone. My family and I are safe and accounted for. I'm sure you are aware of the tremendous damage in Central Texas. The loss of life is unimaginable and heartbreaking. I am grateful to everyone who has reached out. Your thoughts and prayers lift me up and keep me going. The community and I sincerely feel the…
-
Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
-
HEARING AIDS
This is a very practical question. My wife has mid to early late stage dementia. She has delusions and hallucinations about "a man" who comes into her room and removes, moves, or takes her things. Because of this, she routinely hides her hearing aids. This usually happens before she takes a shower or before she goes to…
-
Not sure the MC facility has my mother's ADLs addressed
About three months ago I noticed a few things lacking in my mother's room regarding her personal care. One was that she did not have any toothpaste, shower soap or washcloths. I wondered how they were properly bathing or brushing her teeth. I also noticed the toilet paper roll was down to the last few squares and there was…
-
Sister care giver♥️
I am 16 years younger then my sis who is now living with me and my Husband and grown children and my granddaughter . She is forgetting who we are earlier each day. And constantly wants to go home. I my sister has been my rock my whole life and I’m not sure I can keep doing this it’s making me sick , high blood pressure…
-
Hallucinations
I am the 24/7 caregiver for my wife who suffers from mid to early late term dementia. She has had various hallucinations, usually after wakening in the AM, but recently has had one that repeats itself, and she bring it up all day long. She repeated insists that "a man" comes to her bedroom and disrupts her things by either…
-
Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
-
What tests did they use to diagnose your loved on with Alzheimer's Disease?
My mother is currently in the processed of being diagnosed. The doctor is doing a few blood tests to rule out reversable causes for the cognitive difficulties but otherwise says no tests are needed besides a brief cognitive measure (MOCA) to diagnose Alzheimer's. What was your experience like? Did they do more testing or…
-
Only Mean to Caregiver
My 89-year-old father was diagnosed with Alzheimer's 6 months ago. He reserves all his anger, paranoia and hurtful words for my mother (caregiver). No one else sees/hears it. I am learning that he did this on a smaller scale for a lot of years but mom never told me until now because it has been amplified due to the…
-
10 Absolutes in Dementia Care list
Recently shared by another member here. Thanks @Chug
-
Links to helpful videos
Hello all! I was looking through posts recently and found one that was from a woman who has a PhD in Dementia care. It was very informative and helpful for the stages of Alzheimers. But I cant remember where I saw it. If you know what I am talking about, please post the link here. Also, I would love any and all videos that…
-
Clinical trial Buntanetap
Is anyone participating in a clinical trial for Alzheimer’s treatment, specifically Buntanetap? We’re going in at the end of the month for a screening to see if DH qualifies. Please share your experiences.
-
Any tips to help LO get into bed to rest on their SIDE?
Hello, My DH sleeps better if lying on his side, but he doesn't know how to get into that position, and weighs too much for me to put him into it by lifting or pulling. He suffers from apraxia, so has (cognitive) trouble with coordinated movements. If he starts by sitting on the bed (coming from the side), then lays his…
-
Recommendations of Videos to watch
We are bracing ourself for a long haul ;) would love recommendations on Videos my family and I could watch to help us understand this incredibly destabilizing disease so far I watched a few videos from Teepa Snow , good but not very well filmed ..
-
She walked out
Tonight she packed a bag and went to stay at her daughters. I am hoping this is the beginning of our “official separation” and that she will go into assisted living. I’ve known for sometime that this is what I’ve wanted, but did not have the courage to have the necessary conversation or take the necessary action.…
-
MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
-
Ivermectin for dementia
Has anyone heard about ivermectin for treating dementia? My sister told me about reading that it was very helpful but my searches only show that ivermectin does not help dementia. Thanks
-
Bathing Assistance Issue
My 91 year old mother-in-law has lived in an apartment under my house for 8 years. She has always been very easy going and still often is for the most part. She has been experiencing memory issues for a couple years, but her memory has declined significantly since January. She was diagnosed with early stage Alzheimer's in…
-
Brief & informative
This is a short piece written for nurses which I thought was very helpful for caregivers. When you look at your face in the mirror, you recognize your skin, your eyes, your imperfections, and your smile, because it’s you. But could you imagine looking at your reflection one day and having no idea who you were? It’s one of…
-
Just needing support
Hello everyone I'm new here, and figured it is time to build a community of support with people who are or who have been where I am. My dad was diagnosed with dementia this past year, although I am sure he has had it longer than that. I left my job for a more flexible one since he is getting combative with my mom. I am…
-
New Fear Unlocked
I have benefited so much from different posts I've read since finding this site. Until recently, I allowed my DM to hold on her debit card and credit card since moving into an IL facility. After reading horror stories of scammers, both here and in the news, mom consented to having me keep her debit card. I left her credit…
-
From the NYT: What to Do When a Loved One was Diagnosed with Dementia
https://www.nytimes.com/2025/06/25/well/family/dementia-diagnosis-advice.html?unlocked_article_code=1.Rk8.WazS.hyIqt9FeloJq&smid=url-share This talks about next steps and how to prepare for them. It's pretty basic, but might be good for someone new to the disease. HB
-
Thank you Alz Connected and All of you
I just wanted to say THANK YOU to each of you. Thank you for this association and for this page. My mama passed away at home on Thursday, June 19th at 2:30am. She was taken to the doctor on June 6th for what ended up being shingles and a UTI. At that visit, the doctor suggested that we may want to look into In home hospice…
-
Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
-
I'm at then end of my rope as a caregiver.
my 93 year old mother was diagnosed with ALZ dementia 11 years ago (2014). she's required 24-7 care for the past 8 years. her illness has been advanced since 2017. i am the primary caregiver at her home. the past few months have been awful. her occasional threats and refusal to co-operate have become almost routine.…
-
Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
-
More seizures
5 seizures in 3 months. EOAD. DW is on Keppra now. I can’t imagine this is not affecting her progression of this disease. Any thoughts!!
-
When to stop Donepezil and Memantine?
My mom's hospice care suggested I let them stop Donepezil and Memantine because her FTD is very progressed. I always second guess what is the right decision with anything related to Mom's care. I asked the benefit to taking her off the meds, and they said (1) she's progressed so much that they don't help and (2) it's hard…
-
PBS Cargiving Documentary
-
Won't drink enough!
How do you get your LO to drink fluids? I am tired of harping on mom to drink. She will ignore the water,juice, or tea in front of her face and keeps getting UTIs.