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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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NAD + supplements, NR or NMN (and caretaker's guilt)
Has anyone had any experience with these supplements? I did what research I could find but there is very little and the results were mixed. My kids are pressuring me to add them to DH's meds, which i might, but they are convinced that this is going to stop the ALZ or even reverse it. Second question: how to deal with these…
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Any experience with mental state improving after correcting fecal impaction?
My mother (86) has steadily declined this year. A couple months ago she didn't know who my sister & I were, didn't remember being pregnant or living as a family unit with us & our father, etc. We've been begging her to go into AL but she's refused. A month ago she locked herself out of her house all night long, had…
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NYT Vaccines associated with reduce incidence of dementia
very very interesting information https://www.nytimes.com/2026/01/03/health/vaccines-dementia-heart-elderly.html?unlocked_article_code=1.BlA._5TY.m7ZpIEBHONeq&smid=url-share
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Coping
I'm a caregiver for my Mom long distance. I don't have any support and I'm not sure how to cope anymore. She is declining and I feel she needs different meds because she is starting to show side effects. Not sure how to straighten this out. I've asked for help from docs but nothing changes or they are very vague on the…
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Facing a Diagnosis this Week
I am meeting with our neurologist this Thursday along with my husband. I have already heard from this doctor that my husband's recent scan is positive and is consistent with Alzheimers. It indicates frequent amyloid neuritic plaques. I am alternating between depression, fright and a will to rise up and be strong. Can any…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Device to turn off your gas or electric stove if left on
https://fireavert.com/
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Inappropriate Behavior
How do ytou deal with inappropriate behavior such as: Coming to dinner with no pants on —NO PANTS, peeing in the garbage can, eating with his fingers, alcoholism, I don't know how much longer I can put up with this. What can I do?
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Taking it away
Mom is in an amazing Alf. Over the last 4 months, I notice a "progression " in her memory, which before we had half hour before she would forget conversation, now it's immediate. She used to come to my house every Sunday to spend the day, now after 30 45 min she wants to ho home. Even on holidays. Beyond that she has been…
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Bible Verse to Lift You Up 1/1/2026
THE LORD'S GOOD PLANS FOR YOU AND ME Jeremiah 29:11 NIV For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. 1 Thessalonians 5:16-18 NIV16 Rejoice always, 17 pray continually, 18 give thanks in all circumstances; for this is God’s will for…
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End of Year Musings
I want to wish all the caregivers a Happy New Year. I began reading these message boards seventeen years ago this week, in 2008. I had a diagnosis of cognitive impairment not otherwise specified and I feared that I might have Alzheimer's Disease. I read every thread on the two patient boards and on the one caregiver board.…
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Neurologist
How can I get an appointment for my sister before October of next year? UAB has no openings till then and no wait list to get on. The needs of the patient come first and it is a shame appointments are too far off when a train wreck is about to happen.
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New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
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Where to start?
Hello- new to this virtual support group and relieved since it looks like caregiver support options are limited where we live (central Kentucky). My main questions is how do caregivers orient where they (and the LO) are in this journey? And when to gage on the next step. Our story: I'm 38 and sandwiched between my 9 & 4…
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When you can no longer provide care
I came across this helpful post on another forum so I decided to share it. It's a response to a person in CA, so medi Cal is mentioned, but I feel like this is universally helpful. It was written by David Halpern, author of "Overwhelmed With Family Caregiving-Now take Control." It is very courageous for you to post your…
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Valuable resources from Michael Ellenbogen
Michael recently sent me this valuable information: https://mybrainguide.org/clinical-trials/ https://mybrainguide.org/?gad_source=1&gad_campaignid=23068332846&gbraid=0AAAABBAIqH7frDwN-d8NcMo_n74usOgPt&gclid=EAIaIQobChMIsNSssuzKkQMVoSvUAR0n_wuOEAAYAiAAEgLdy
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Scientists catching up to the value of rosemary
I first began using rosemary essential oil with my mother in 2007 (she passed away from a heart attack in 2012). She became more alert, could recognize objects, could remember her name again, became somewhat more lucid, had a little bit of short-term memory, and was calmer. I have been advocating for the use of essential…
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Lawyer appointment - successful
I met with a lawyer this morning regarding my sister's mismanagement of our mother's money. She is guilty of embezzlement and conversion. The remedy has to occur in stages. First the lawyer is going to send her a letter and suggest a payment plan, if she resists then we move in another direction. Also we, the other…
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My beloved is declining
Jacob (pseudonym) has been declining in the past few weeks. We are not married; I use the term "beloved" because we were destined for each other, and I will be with him until the end. I am so scared. he forgets conversations and events almost as soon as they happen; He is deeply traumatized by this and cries easily. Jacob…
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Freezing Credit with Experian
Does anyone have a guide or experience with freezing credit for Spouse with AD with Experian? I have checked their site, called their number, but can't find specific instructions for protected consumers. Number is automated, chat doesn't have any information for incapacitation. AI generated answer says to follow Experian's…
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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Bible Verse to Lift You Up 12/1/25
"FOR WHEN I AM WEAK, THEN I AM STRONG” 2 Corinthians 12:6-10 New Living Translation Paul's Words “If I wanted to boast, I would be no fool in doing so, because I would be telling the truth. But I won’t do it, because I don’t want anyone to give me credit beyond what they can see in my life or hear in my message, even…
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Bible Verse to Lift You Up 12/20/25
SET APART FOR GOD Psalm 4:3 NLT You can be sure of this: The Lord set apart the godly for himself. The Lord will answer when I call to him. MEDITATION How wonderful it is to be included in the people God has chosen for Himself. How hopeful and joyful to know He will answer us when we call Him. His answers are always best…
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Security system
Hello I’m new to the community. My father was diagnosed 2 years ago with ALZ. This past he has had a rapid decline in cognition and I need to set up door alarms and locks. Does anyone have a recommendation? I am pretty tech inclined. Was looking at Simplisafe VS. creating a piecemeal system. Any suggestions welcomed!…
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From NYT: Study Linked Cheese to Lower Dementia Risk
If you like high fat cheese, you may have a lower risk of developing dementia, but may raise risks for cardiovascular disease. Shared article: https://www.nytimes.com/2025/12/17/well/eat/cheese-dementia-study.html?unlocked_article_code=1.-E8.81Oo.E1xhBSaBlICz&smid=url-share
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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Medicaid Cuts, Inside Info or Tea Leaf Readers?
Spoke to a Medicaid attorney about father's remaining $ and an irrevocable trust. You lose 1 month of Medicaid eligibility for every $10k you set aside (in CO). Problem is, $1 trillion cuts are set to go in effect 1/1/27 so the attorney said he can't guarantee any outcomes at this point. If those stay in effect, the care…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Husband recently diagnosed with Alzheimer's.
I would love to hear from others who have been a caregiver for your loved one with what I need to do, be aware of, or what was the biggest help for you as you began your journey.
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Behavior/cognitive changes after discontinuing donepezil and memantine
My DH just entered hospice. He was on maximum dosage of both donepezil and memantine but the hospice doctor immediately wanted to discontinue donepezil and lower memantine with the goal of stopping it as well. First, let me say, it was obvious my DH’s physical ability was declining when he was screened for hospice, but…