-
Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
-
Moved: ALZConnected Q&A Thread
This discussion has been moved.
-
Home health care
I'm 70 and in reasonably good health, some issues that are well managed. DW is 67, about 3 years or so in. I would say moderate stages. A fair amount of urinary incontinence, needs assistance with bathing and dressing. We have an adult daughter who's doing all she can to help us. I cook breakfast every day, and either our…
-
Supporting a supporter
Hi there, community. Alzheimer’s and dementia gallop in my family. Currently, my grandfather is advancing and it’s very different from other family members. I think he’s facing a lot of fear as a man who is used to being very in control. My mom and uncle are caring for him though he is still living alone (and driving, god…
-
I have a question about Parkinson's Disease
I have a friend who has Parkinson's Disease. Her voice is very soft and I have to ask her to repeat two or three times before I can understand what she is saying. She wears hearing aids and probably doesn't hear her own voice well. I would like to suggest that she receive speech therapy to improve her voice and speech. Can…
-
Loss of sense of smell?
The other day our dog had a “conversation” with a skunk. Naturally, he reeked. And my DH, Stage 4, could not smell it. All of a sudden I realized he had lost his sense of smell. Has anyone else had this experience? I have not seen it mentioned anywhere, except as a symptom of Parkinson’s disease. DH does have some…
-
Husband recently diagnosed with Alzheimer's.
I would love to hear from others who have been a caregiver for your loved one with what I need to do, be aware of, or what was the biggest help for you as you began your journey.
-
Questions About Deceased Mother
My Mom, who has Alzheimer's, asks about her deceased mother a lot. Her mother died over 20 years ago. Some days Mom believes that her mother is alive, and we go along with that belief. More often, Mom knows that her mother is deceased but thinks that it happened more recently, and that no one told her or took her to the…
-
Sundowning and Frontal Temporal Dementia.
Nan is 93 and has had Dementia for about 14 years now. Has slowly gotten worse rather than sharp declines. We are now starting to get sundowning creeping in. Its a run of 7 days of it so far, I'm literally so exhausted i have no idea how i am functioning. She gets up about 1am thinking its 8am, and insists she needs to be…
-
Beginning to Resent My Mom
Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I…
-
Knitting saved my life
Last summer I was stuck at home caring for my DH who has mixed dementia. It was just about impossible to do anything except take care of him. Some days he stayed awake all day with no naps. Last August I found some knitting needles. I was taught how to knit as a child and stopped knitting more than 50 years ago. I…
-
After hospice respite
My spouse returned home from a 5 day respite stay at a local hospice house severely deconditioned. Was using a walker with stand by assist and now he can barely stand. I left them a note with our daily schedule at home, but I wish I had made it clear how many feet he ambulated daily. I needed the break, but now I wonder if…
-
Plan to Improve Care for Dementia Patients in Hospitals
Michael Ellenbogen, who is a strong advocate for people with dementia and who has dementia himself, has worked with dementia experts to develop a plan to improve the care of dementia patients in hospitals. You can read more about it in the following link.…
-
Mom is getting bored in Memory Supported AL
Hello to everyone here, I am appreciative of this board and those who participate in it! I am out of town but I talk to my mom and hear her complaints that there is nothing to do in MSAL. My sister has talked to the Activities Coordinator who allegedly has tried to do some actitivities one on one with my mom. I think the…
-
Anger/Suspicion/Halucinations/Paranoia
My DW has recently (6 mos) been diagnosed with ES Alzheimers. She has been tested for LBD, PDD and had all the psychological testing. This included the blood tests and MRI. The result was Alzheimers Dementia with some underlying psychological issues. She is on Donepezil at a low dose. We have been married for 59 years , so…
-
Greetings and question about stove safety
The short version: Has anyone tried "smart" knobs for a stove such as the TochTech SmartTurns, or other stove safety products? The long version: Some of you may remember I was a contributor here for years while caring for my mom with Alz. This forum was such a blessing when I was starting out. She's been gone since 2022…
-
Song Lyrics
I stumbled upon this song just now as my body once again refuses to sleep. It expresses my heart. I am sure I am not alone when I say, "I Am Not Okay." I hate this disease! I hate what it is doing to my darling mommy, diminishing her bit by bit by bit. I hate also that it leaves me begging/praying/wishing for some family…
-
Need help with discreet hearing aids
My grandmother’s husband is going deaf, is showing signs of Alzheimer’s, and is refusing to go to the doctor for either issue or to buy hearing aids. My grandmother has never been great on the caregiving front, and her health taking a turn for the worse hasn’t helped things. They also live in the middle of nowhere England…
-
After 10 long years mom has died, now what?
It was 10 years ago that I realized my mother's forgetfulness was more than just normal aging. The reality hit me like a ton of bricks, and nobody else in the immediate family wanted to face it or do any future planning. I had a general dread of what the future could hold but maintained hope that we could still find a way…
-
Latest news from International Alzheimer’s Conference
https://www.brightfocus.org/news/breaking-news-dispatch-diversifying-the-alzheimers-disease-treatment-portfolio/?lb=off&_hsenc=p2ANqtz-9RcHE4tcCXAihdlU1GsYo2oRgY1H54AcUgUjNJBgEkWl6C-QjUof2VsDazG6nAH-Yr9mXtlM7Cxff2mB5YFJTIbSxPFofcN6MDETaioD3pkgXAGqk&_hsmi=428947283&utm_term=donor&utm_campaign=fy27_adr_2607_adpd_ea1&utm_mediu…
-
Early Onset
Hello. I am new here and came searching for support and connection. My sister, age 55, was Dx with MCI several months ago as the doctors continued all the testing. We just received confirmation that the petscan was positive. Reading the reports before seeing the doctor is so challenging. We have reached out to get an…
-
Incidence of AZ fallen by about 1/3rd over past 40 years
https://www.alzforum.org/news/research-news/dementia-incidence-still-dropping-birth-cohort-data-say-yes This is encouraging. Maintaining good overall health has really helped.
-
comfy chair recommendations?
Hello everyone! Not sure if this question is overly specific, but wanted to see if anyone had thoughts to share! A goal that my Mom and I have is to get a new armchair for my Dad (83, diagnosed with general dementia) to sit in in the living room. Before he fell, he was sitting and sleeping in a big, deep, cushy La-Z-Boy…
-
Alzheimers\Dementia loss of movement
My 83 year old Mom has been having symptoms for a couple of years but they began to escalate about a year ago at a rapid rate. She absolutely refuses to admit she has a problem and has refused all diagnosis. Her primary care physician thinks it is one of the rapidly progressing types of alzheimers but we can't be sure. He…
-
Partner to a Caregiver
I am new here and looking for support for myself. I am caregiving my partner who is and has been caring for his wife, diagnosed with FTD in 2016. I have been with him for over 4 years. I would never have chosen this path for myself, except I have known him for 16 years and know the beautiful soul he is. I worked with this…
-
Credit card useage
Thanks in advance for your thoughts! My DW is in the early stages. Age 73. She is still mostly independent, drives, shops, attends social gatherings and the such. My stress is that she is now seeing all the Facebook fixes and cures for Alzheimers/Dementia. Of course believes they can cure. She has started ordering meds…
-
Looking for Some Advice
My DW is 65 years (6 years my junior) and I'm afraid she is having real difficulties with her memories. I need to get her to agree to an exam, but she won't even discuss it. How do I convince her that getting her help now will make things easier later? BTW: I am the poorest kinda caregiver but I love her too much to not…
-
Temporary home visit
I would like to take my wife home for about an hour so she can play with our cats. Our home is about 5 minutes from the memory care center. Cathy is in the upper levels of dementia. She can walk okay. The apartment is on the second floor (no elevator). She can walk okay. Please let me know if this is a good idea. On the…
-
Need guidance
My 83 year old mom has all the symptoms of Alzheimers and her general practioner agrees but she gets so upset about going to see a doctor that she hasn't had any formal testing. My 84 year old father just finished radiation treatments for early stage lung cancer and we will know those results at the end of this month. He…
-
Can Sundowning happen in the morning
My husband is in late stage dementia and the regressive changes are happening quickly. Sundowning at around 5 pm is a familiar pattern, and we have come up with some steps that reduce the effects. A new problem — In the morning, we're seeing something like sundowning. He might withdraw, he might get angry, it's a new thing…
-
Lock bedroom doors in MC?
About three weeks ago, we moved my mom from Assisted Living to memory care because she was going outside on her own and we were afraid she would wander off. She absolutely hates it memory care and always tells us she wants to go home, which I hear should be expected. To my when he got to her room there was a lady in there…
-
Dental Care Options/ Ideas
My 81 yo mom lives in memory care two blocks from me. I go over every day and bring the necessary amount of overnight and daytime diapers for a 24 hour period because otherwise some staff will take her supplies and use them for other residents. I have gone through long stretches where I was cleaning, changing and putting…