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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Mom in hospice care and seeing and talking to people
I hear this is common. Is it? My mom is in hospice care at her MC facility. I was with for a couple hours today. I would talk to her and she would answer back. She was more alert than she has been in a couple of days. I felt like it was a gift to be able once again to say something to her and she responded. It was mumbled,…
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Husband won't or can't ask for help.
I'm new to the group. Husband recenyly diagnosed with Vascular Dementia. I get anxiety & frustrated when my spouse is wet / lays on urine soaked bedpad & won't tell me. I'm completely new to this diagnosis. Suggestions/ recommendations welcomed.
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Obsession, Agitation, Anger
I need help and suggestions on what to do with my sister. I live with her and her husband. She is constantly getting angry over beliefs she has of her past that are not true! She's obsessed with a life that she believes was taken from her without any input from her. Not true. We can't correct her to guide her to the truth.…
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CPAP advice
Our 82-year-old LO used a CPAP for years but as rapid onset dementia developed he stopped. He still seems able to sleep OK and the MC people say residents generally don’t have them (unless they know how to use them). Is that just the way it is?
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Cashing US Savings Bonds
Another post about banking and the DPOA reminded me of a different financial topic. When I was clearing out my dad’s safe deposit box before a cross-country move, I found a stash of paper US series EE savings bonds that were well past their maturity date. I was able to arrange to get these cashed by taking him to a bank…
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Bank Doesn't Recognize POA
Hi, What to do when credit union won't allow me to use the POA? I haven't contacted the atty who drafted it yet, full, durable $$ and medical/general POAs. So far my PWD can still come with me or talk to reps on phone but that could change anytime. USA SSA won't accept either- wondering what other agencies don't and how…
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Keppra anecdotal study
I just saw an article stating that researchers have noticed anecdotal ‘evidence’ that Keppra may prevent dementia or slowdown decline in those already have it. Keppra is an anti seizure drug. I know some members here have loved ones taking Keppra for dementia related seizures. Have you noticed that the dementia progression…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
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Sitters
My husband is wandering outside during the day. I would like to find a sitter to stay with him once a week so that I can run errands. Has anyone used Care.com, Visiting Angels, etc? What was your experience with them? Can you tell me the hourly cost? Just looking for someone who can keep him company while I am gone. I live…
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Who watches the watchers?
Long article about how things can get "interesting" in probate court. https://calmatters.org/investigation/2026/03/california-conservatorship-conflicts/ One thing that jumped out at me was that court transcripts stopped being ordered. I've had to obtain the court reporters transcripts from probate hearings and the quality…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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Rationales for PT for late stage in MC?
My dad in MC is sleeping most of the time. I recently had a care meeting with the facility director. When I mentioned in passing that he is seeming weaker, she said that maybe PT would help. I said, “Huh, maybe,” and we went on to other things. Fast forward a week, and I am getting email from a PT agency affiliated with…
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South Florida “Board and Care” Small Memory Care Facility
Hi, I was wondering if anyone has resources about “board and care” small group facilities in South Florida, particularly in the Delray Beach and Boca Raton area. Thank you so much.
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Unsure of how to proceed
i am my 76 year old grandmother’s only family and caregiver. She lost her husband (my pop) 5 years and and her son (my dad) 30 years ago. She has always been hyper independent and very successful. Last year she noticed some changes in her memory and sought treatment from a neurologist. In September she scored a 21/30 on…
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After 10+ years on this message board, I wanted to share my Mom's obituary.
February 18, 2026 My Mom died this afternoon in the bedroom of the old family home where she has lived for the past 62 years. It was peaceful and all four of her children were with her. My Mom has navigated the complex maze of Alzheimer's dementia for the past 12 years. After her diagnosis we put together a team to help…
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GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
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Long term Care Insurance
I’m looking for info on long term care insurance. Will I be able to purchase it for my husband if he has been diagnosed with dementia? How much does Medicare cover for in home assistance? How much does it cover if he needs to be in a memory care facility at some point? Is this kind of insurance worth the expense? Thanks…
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I was Angry and then tears (Venting)
Last night was terrible for me. My DW was agitated and confrontational all night. She kept me up until 1am. I was angry but I kept it to myself. In the morning, my DW was loving just like the person I married. I hate this disease! On our way to lunch today she was so affectionate. I couldn't hold back my tears because I…
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Psych Exam for exit behavior
Our LO, likely with FTD, has been at MC for close to 3 weeks but after an initial period of apparently positive acclimation they report he has started to attempt exiting the facility more often, wanting his car, resisting redirection. They will have a psych consult via state mental health services. My questions are what…
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Possible AZ prevention from anti virals + shingles vaccine
I have not read anything about this before:…
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Adjusting to MC
After bringing our 82 yo LO to MC for the first time (with no difficulty, thank God) one week later I had to take him to an outside doctor appt and he pretty quickly thought I was going to “bring him home.” When we returned to the MC he seemed mad about that (though thankfully did not refuse to go in). Staff says he is…
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No more intervention
So my father is a type 2 diabetic, stage 7 c or d(per hospice), possibly in heart failure and on Hospice for 4 weeks. He is in a memory care facility and eats well(too well, big boy:). They have to work hard to get him up and to breakfast or at least get some OJ in him every morning because of low blood sugar. Hospice…
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Venting - In Law refuse to move into Memory Care
Three years ago, we added a 600 sq ft apartment to the back of our house for my in-laws. My MIL had started wandering and going to neighbors’ houses saying there was a strange man in her house. (It was my FIL). They sold their house to help pay for the addition to our home. My MIL has advanced AD and is now giving the…
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Bible Verse to Lift You Up 2/17/26
THANK YOU, LORD! Psalm 34:9-10 New International Version 9 Fear the Lord, you his holy people, for those who fear him lack nothing. 10 The lions may grow weak and hungry, but those who seek the Lord lack no good thing. me: Life can be the pits; it can be confusing and hurting. Yet The Holy Spirit whispers encouragement and…
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My patient is diagnosed with Dementia
Hi, I am a licensed Practical Nurse, the business owner for a caregiving service called ' Divine Home Care Services in Jamaica 🇯🇲. One of my patient has short term memory loss and Sundown Syndrome. She loves to eat snacks and not cook food but she's calm and kind. She gets confused when the sun sets. Time confusion & where…
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I'm confused (again)
My Dad has Alzheimer's/vascular dementia. He was diagnosed three or four years ago, has been in memory care for two years, and on hospice for 8 months. He sleeps a lot. Probably 20 hours a day on average - he's awake from about 7:30 to 11:30 in the mornings. He gets out of bed about half of the mornings. He has lost a lot…
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donate adaptive clothing?
I have multiple sweatpants/t-shirt zip up the back clothing items from Buck and Buck. Where can I donate them to get them to someone else in need? They are such a specialty item I do not want to just drop off at Goodwill, but I may resort to that if I can't find other takers. Any suggestions?
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Safety app that performs a daily check-in
I came across a free smartphone app called Snug Safety that helps people who live alone do a quick daily check-in to confirm they’re okay, and if they miss their check-in it notifies chosen emergency contacts so someone can check on them. [P.S. on Feb. 19… This app is a good option for caregivers. If something happens to…