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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Reliving the past
Caring for my auntie who has been diagnosed with Alzheimer’s/ Dementia. She continues to relive the past and often refers to my mother and grandmother (who is deceased) as being among us! She calls out to them and talks to them as if they right there! My grandmother also passed from complications of Alzheimer’s! My mom…
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A delusion is about to be smacked by reality. What do I do?
My mother is in an assisted living and has moderate dementia. About once every month or two, she'll have a new delusion. They are quite persistent. The same story will come up for more than a week, sometimes the story will slowly shift over time. They often feature themes of rejection and loss. She recently has been…
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Does anyone have someone their caring for have any interest in what they have
just curious if anyone taking care of loved ones if they ever ask about this illness and what it’s all about and out come
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Eating habits
My mother in law was recently diagnosed with dementia, although she has had symptoms for awhile. We got her out of a bad living situation and have her living in our apartment complex so we can come over and help her with dinner and caring for her dog. She hasn’t progressed to a point where she isn’t able to take care of…
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She thinks she's "done something bad"
My mother has later stage Alzheimers dementia. She sometimes recognizes her children but doesn't know our names and requires assistance with all of her ADLs. We care for her in the home she has lived in for over 60 years. She has recently been perseverating on "I've done something bad" We can't find any pattern or…
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First AL/MC tour was today
I didn’t tell my Mom that we were going until about 15 minutes before. I expected some kind of reaction from her. I didn’t get one. Tried to talk with her about it afterword. She didn’t have much to say about it then either. She seemed off today though. A friend wanted her phone number. She told her that she didn’t know…
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GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
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Moving things out of my sister's apt.
My sister with Alzheimer's has been in assisted living now for 3 months. It was rough going getting her in. For weeks she wanted to return to her apartment where she lived alone. She now seems happy and settled and is willing to give up her apartment. We plan to move her things out next month. My question, should I let her…
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Repetitive behavior
My DH was diagnosed with Alzheimer’s 6 years ago. He constantly rubs his eyes and now he has big knots on his tear ducts. We’ve been to an ophthalmologist and was told there is nothing physically wrong. Whenever my DH doesn’t have anything to distract him, or when I’m not holding his hands he rubs. I’m afraid that he’s…
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Caregiver Log Book
I have a dear cousin who has been suffering from dementia for some time. Whenever I visit I’m always struck by the level of care and compassion exemplified by his caregivers and it makes me think…are there resources out there to help caregivers? I came across this caregiver log book and wanted to share it because it’s a…
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Grief counseling for folks with dementia
I’m mom’s caregiver. Dad died in June and he was her caregiver until he got sick in Feb. Mom had one grief counseling session and wants more. The hospice facility dad was with offers 3 free sessions. I want mom to have more. They don’t do private pay. We have another session coming up in a couple of weeks, but Mom is in…
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Getting support from family members
My DH is at the beginning to mid part of his diagnosis. Does anyone have any advice on getting children involved in caretaking and better understanding the disease? I am a stepmother to my DH’s kids and they have not been very engaged. Any suggestions would be helpful.
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Song Lyrics
I stumbled upon this song just now as my body once again refuses to sleep. It expresses my heart. I am sure I am not alone when I say, "I Am Not Okay." I hate this disease! I hate what it is doing to my darling mommy, diminishing her bit by bit by bit. I hate also that it leaves me begging/praying/wishing for some family…
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National Do Not Call Registry
My DW has been receiving an ever increasing amount of spam calls on her cell phone lately. She is currently stage 4 and I while I don't want to discourage her from using the phone, I want to make sure that she is safe. While looking for solutions, I came across the National Do Not Call Registry (donotcall.gov) Not sure if…
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Suggestions about what to ask of a home health aid?
We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…
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How to decide its time for memory care?
My LO has dementia. My mother is the primary caregiver but we live close. My LO is still at home with no outside help. LO is becoming increasingly paranoid about who his wife is. He is antipsychotics. How do you decide ifits time to have live in help or memory care of just a Rxadjustment
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Humana
Hi fam! What a hell of a ride this caregiving journey has been. Having had my DM move in with me 2.5 months ago has been a great eye-opener. Mom has been showtiming like a pro and boy was I fooled. Anyhoo, I wanted to share what I just found out. My mom's PCP has a case manager. She has called me a few times since mom's…
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Medical alert watch band
My dad has Stage 5 ALZ and it is time to make sure he has a medical alert band - problem is he won’t wear a bracelet or necklace but he wears a watch - daily. Any ideas for a new watch band or add-on that acts as a medical alert? Thx.
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Looking for resources
I am grateful for finding this site and group. My 92 year old mother has dementia, she is living independently in a lovely retirement community. She is no longer driving and I help her with errands and I take her to church every week. I am hoping to get recommendations for books, podcasts, useful sites... etc on how the…
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Parkinson's Dementia really accellerating fast - alarmingly fast
Hi. So my mom was first diagnosed with Parkinson's over 20 years ago. She's 85. Around 2018-2019 my dad began talking to me about it more. But he didn't let on how hard he was working. In August 2019 dad died very suddenly and everyone was completely shocked. We quickly moved mom to an assisted living with her sister sort…
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Brilliant Analogy
This really resonated with me. https://www.facebook.com/reel/1101251472572052 HB
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New and looking for resources
Hi. I just joined this group today, I'm not sure if I'm the intended demographic as I'm not the primary caregiver for my loved ones with Alzheimer's and dementia but I have been struggling with the grief and looking for support. If anyone knows a better group please let me know! My grandfather has late stage Alzheimer's…
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Rushing into caregiver arrangements
Although being with my DH with Alz 24/7 is driving me crazy, the nuances and limitations of working with a caregiver have begun to reveal themselves. I finally reached out to some people on Care.com and found myself rushing into an arrangement set to begin in a week with the first caregiver I met. The arrangement is based…
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Guide does not provide respite care benefits for patients with mild dementia
My husband has mild dementia, and I am his caregiver. Recently, I applied for the Guide program because I was interested in the respite care benefit. I was approved, but it was only in the onboarding meeting that I learned that the respite care benefit is only available for patients with moderate dementia. I was pretty…
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In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
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Adult day care
My father needs a break from continuous full time care giving of my mother. Any suggestions on where to find adult day care for at least one day a week. I believe she is late mid stage.
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Medications
If your LO has cognitive issues, it is time to look at how they are taking their medications. They could easily be taking too many or not taking them at all. One of the people in the ALZ support group that I attend told us about his wife. One day, he came in and she was asleep and he had a difficult time waking her up. He…
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Partner to a Caregiver
I am new here and looking for support for myself. I am caregiving my partner who is and has been caring for his wife, diagnosed with FTD in 2016. I have been with him for over 4 years. I would never have chosen this path for myself, except I have known him for 16 years and know the beautiful soul he is. I worked with this…
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splash guard for pee accidents?
Hello. My DH with moderate dementia is having daily accidents that require cleanup. When he sits down to defecate, he pees over the top / through the gap between the toilet seat and the bowl, wetting the floor and his pants. He lacks awareness when he's doing this and won't remember a reminder to try to hold himself…
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Tranquil watch
Is there a market for used tranquil watches for resale or donation?