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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting someone living with Alzheimer's or dementia from a distance. Perhaps you live in a different city or state.
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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both parents recently admitted into MC facility and they keep falling constantly
Dear Community, My sister and I recently moved both my parents into the same facility and they share a small apartment. In the past 3 days, they have both fallen a combined 6 times. My father has experienced pain but my mother fractured the same shoulder she fell on a couple of months ago. In the past year, my mother has…
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New here, young adult child looking for connection and support
Hi, I’m 33 years old and my 74 year old mom was recently diagnosed, although we’ve seen it for the last couple years. I live in California and she lives in Ohio with my dad. I also have an older sister that lives a few hours away from my parents. Mom and I have been really close and talk on the phone every day on my drive…
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Mother rejected from two memory care facilities
My mother was rejected from two memory care facilities.Because she did not want to stay there and wanted to go home. We're running out of options and we're not able to get her the care she needs. She is staying in a mental health facility, and they're wanting to discharge her. We are unable to care for her. We don't know…
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Cousin may have Alzheimer's but her local family in denial
I'll try to keep this brief but it's hard: I think my younger cousin, 56, has Alzheimer's. Last January she had an MRI that (i think) showed some shrinkage in lobes of her brain (she reported this to me at the time, with the fear that she had Alzheimer's). She had a PET scan in April that showed elevated amyloid protein in…
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Sister w Alzheimer's wanting to take control of everything
My sister who has been diagnosed with Alzheimer's is determined to re-take control of her finances, among other things. Neuro-psychological testing has shown she is incapable of doing so. She can't even write a check. Prior to diagnosis and testing, she had a year of not paying bills, having power or phone shut off…
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Where to go if Long-Term Memory Care will not accept my sister's combative behavior?
My sister with EOAD has been in a Geriatric Psych unit for a month now. She was removed from her Assisted Living Memory Care facility after only a week for aggressive and combative behavior. During an incident she was sent to the ER where after that she was admitted to the Geriatric Psych unit to develop a medication and…
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New Here & Just Trying To Keep Up
I’ve been feeling really overwhelmed and alone, and I’m so thankful to have found this group. I’m 29 and live in Georgia. My mom is 65, lives alone in Florida, and was recently diagnosed with Alzheimer’s. My parents are divorced, and my sister isn’t able to help due to her own challenges. My mom’s brother offered support…
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My brother
I'm new here. My brother has early onset dementia. He lives a few states away from me. He is married to a wonderful person. He is very angry at her. He claims there is too much clutter in the house and wants it all removed by a certain date or he is leaving and moving up by me. I love my brother and we are very close. I am…
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New here, aging parent with vascular dementia and mom not capable of caregiving, where do I start?
Hi! I have never been on here before. My dad was diagnosed with vascular dementia years ago after insisting my mom bring him in. I have a fractured relationship with my mom and she is his primary caregiver. Lately my dad seems to be declining. He is disoriented at night, getting up and spilling things, having toileting…
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Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
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What is a "good" day for someone with dementia/alzheimers?
I've been told that my brother was diagnosed with Alzheimer's. However, when visiting him, I am not seeing any indication at all. Does having a good day mean the complete absence of symptoms? I am very concerned that his wife is exaggerating. I don't live in the same state, so I don't seem him all the time. However, my…
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Walking Through Dementia With My Brother
These past few months have been some of the hardest of my life. My brother’s dementia symptoms keeps increasing, and it’s heartbreaking watching someone I love so deeply change in ways I never imagined. The last time I saw him, I watch pieces of him slowly slip away his memory, his spark, the conversations we used to…
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New here, adding introduction
Hello all! Guess it's my turn to introduce myself here. I'm Catherine, eldest daughter of a mother with Alzheimer's (among other issues). I've "known" for years something was up with her, but living 400 miles away made it hard to put my finger on what. After your standard "fall & break a hip" scenario, she's now in an ALF,…
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New Member, First Post - Power of Attorney
I have three siblings and one lives fifteen minutes away from my mom. I live in another state but manage all her finances and anything else I can to take the load off our sibling who lives locally. When I agreed to be my mom's power of attorney, I naively thought it would only come into play for her finances. However, this…
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Official diagnosis & Medications
Is a official diagnosis needed to start taking medication (Aricept) to slow down memory loss? Mri showed brain atrophy more accelerated for age than should be & chronic vessel ischemic changes. Memory loss & behaviors are declining also Neurologist prescribed Aricept but can't be started without official diagnosis which…
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How long is it safe to leave someone with Stage 6 Moderately Severe Dementia alone?
Hi all, new to the forum, been supporting my mother diagnosed 5 years ago with Alzheimer's. Most of my support has been to help my father, the sole caregiver, take some breaks and figure out next steps, and to increase the contentedness my mother has and decrease her anxiety. I spent half of the last two years off and on…
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Therapist for father who is primary caregiver
Looking for an organization that specializes in virtual therapy/psychology services for caregivers.
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Long distance has separated us
Being long distant from a loved one has taken a toll. This has been a heartbreaking journey for all involved. Feeling hopeless and helpless and just want him here with us like he was planning on doing before Alzheimer's overtook him. Everyday is a struggle, everyday that goes by is a huge loss without him.I want to save…
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New here
My older brother has recently been diagnosed with Alzheimer’s, and I’m trying to understand what to expect and how best to support her. What are some things you wish you had known earlier in your journey caring for a loved one with Alzheimer’s?
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Long-distance Caregiver for mother with AZ
Hello, my 80-year-old mother seems to be declining more rapidly this year (she was diagnosed in 2020 wit AZ). She lives in NYC and I moved to Boston,MA, in July from Los Angeles, CA, partly to be closer to her to make caregiving easier. She is very challenging, however, and I often feel lost as to what she needs because…
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Dad very likely has dementia, but Mom terrified to "tell on him"
My sister and I live in Washington, with our parents in Arizona. We don't see them often. Recently, my mom has told us some troubling stories of his memory lapses, weird ideas, not understanding distance and time, etc. She is trying to get him diagnosed, but he gets angry very easily and she is terrified of upsetting him.…
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Automated pill dispensers
hi. Does anyone know of a good automated pill dispenser? I was on the alzstore.com and I ordered an automated pill dispenser made by med ready and it doesn’t work. For some reason I thought this store was connected with the Alzheimer’s Association, even though it doesn’t say so, and it turns out the return policy is really…
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Long distance caregiver
I am trying to care for my eldest brother who was diagnosed with dementia and June of 2024. And right now it's May 5th of 2025. And it has escalated so quickly I mean the progression of it has really taken off like a wildfire. I live in Tennessee he lives in Ohio and I'm constantly racing to Ohio check on him to make sure…
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Mom is constantly angry with my sister
My Mom was diagnosed with Alzheimers in the fall of 2022. She is understandably having a very hard time with the loss of her financial independence and is constantly accusing my sister of controlling her. We have POA and I tell her we're making the decisions together, but her anger is focused on my sister, who is the…
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Out of state sister with early Alzheimer's is stubborn, petulant and resistant to help.
I am her HCPOA and DPOA. Neurologist explained her diagnosis to her, and told her she needs 24/7 aides if she wants to remain in her home, that she may not drive or be responsible for her medication, and must use a walker (many falls.) But she states she does not have Alzheimer's, is rude to and fires every aide we hire,…
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Should we move our loved one
My ex has no diagnosis but has many symptoms of memory decline. She wants to move several states over to live close to hers and my son. But she can only afford an apartment 30 minutes away from my son. Does anyone know of similar situations and how they turned out? Thanks
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New here and looking for advice
Hi, I am the 58 year old son of a 89 y/o father who is entering mid-stage Alzheimer’s. I live in California, and my parents live in Southwest Florida. I had recently taken FMLA to fly out for 3 weeks to help my 85 year old Mom find an assisted living facility for him(she is unable to care for him any longer). We did find…
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My mom forgot my name today
It's been two years in my mom has early onset and it's accelerating quickly. I'm 33 my mom is in her 60s my husband is in the military so I'm taking care of her at a distance. Until medicaid takes overy husband I have been paying out of our own pockets. My mom was my best friend we were close. I call her everyday and I…
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She’s forgetting me.😢
My mom lives in Delaware. Near my sister and her extended family. I live in Georgia. We lost our oldest sister 2 yrs ago and an older brother 7 yrs ago. That leaves the two of us. I’m 62. My sister is 66. The other day my mom told her Dr that she had 4 children but only has one surviving child. (my sister) My sister…