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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting someone living with Alzheimer's or dementia from a distance. Perhaps you live in a different city or state.
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Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
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My grandfather sudden change
Hello, my grandfather,87, has been slowly losing his memory and in more recent months it’s progressed to not remembering what’s happened that day or who visited. I go over to my grandparents house for a couple of hours once a week to stay connected to them. But today as I was visiting, I noticed a change in his behavior.…
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Bible Verse to Lift You Up 2/8/25
THE LORD IS MY SHEPHERD Psalm 23 Amplified Bible A Psalm of David. 23 The Lord is my Shepherd [to feed, to guide and to shield me], I shall not want. 2 He lets me lie down in green pastures; He leads me beside the still and quiet waters. 3 He refreshes and restores my soul (life); He leads me in the paths of righteousness…
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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Long distance support options
Hi everyone. I'm new here. My 77 year old father was just diagnosed with Alzheimer's and I'm just starting this journey with him and my wonderful stepmom. But I live a plane flight away (or two day car drive). I'm looking for tips to support from afar. Scheduled phone calls? I want to keep my father engaged but it is hard…
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Haven't spoken to aunt in months with dementia
I live out of state. Aunt has dementia and incontinence. She has family who live closer. My cousin was good about giving me updates on my aunt when she wanted me to come and take over. Since I drilled that that was impossible, I rarely hear from her. I sent cousin a text asking how she was doing. She hasn't responded. Aunt…
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New to group - brother closing in on his dx
It’s been a tough few weeks as I’ve watch my 64 yr old brother (I’m 62) get the dx work up for Alzheimer’s. He had a neuro consult today to review blood and he’s definitely starting treatment for Alzheimer’s asap. He’s like a twin to me and I’ve just felt so sad all day. I haven’t had this sense of grief since our dad…
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Long-distance Caregiver for mother with AZ
Hello, my 80-year-old mother seems to be declining more rapidly this year (she was diagnosed in 2020 wit AZ). She lives in NYC and I moved to Boston,MA, in July from Los Angeles, CA, partly to be closer to her to make caregiving easier. She is very challenging, however, and I often feel lost as to what she needs because…
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New to the group. Need a listener pls
Hi. My dad has dementia and in MC in a dif state. I’m his guardian and take care of things for him but haven’t talked to him in few months as I suffer from ptsd and he’s my trigger. He mailed me a letter of sorts - various scraps of paper, misspellings and incoherent sentences. I can’t stop crying. It’s so hard to see his…
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New Here: Dad still driving, working, making treatment decisions, but also raging....
Hi Everyone, I am new here and just looking for support to help my brain from melting. My dad a 78, in good general health. An Engineer/Scientist who is still working in his field. Lives with wife, drives, manages finances, invests, travels, etc. He has been diagnosed with either early dementia or Alzeheimer's (depending…
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Helping caregiver long distance
Hi. I’m new to this group. My niece takes care of my sister who has been diagnosed with Alzheimer’s. They live in the same home together. Please advise how I can support them, especially my niece, an only child who’s raising a teenage daughter. Thank you.
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Long distance sister
I am new to this site. I have a sister in a care facility far away. She was diagnosed with Alzheimer about nine years ago and I had to put her in Memory care in 2018. I have traveled back many times to visit and oversee her care. She is a widow with no children and all our siblings have passed away so I am her soul…
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How to handle long distance Mother
First time poster here. My Mom lives in NV I live in MO. For the last 3 years it seems my Mom has signs and symptoms of dementia. No diagnosis and my Mom will not go to a doctor for anything. She is fit, healthy, active but it is clear her cognitive abilities are intermittently affected by “dementia?” She takes no…
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Depression since FIL diagnosed
My father in law was recently diagnosed with Alzheimer's and I was doing okay with it until I had a really bad nightmare about it the other night. I dreamed that I went to visit him and found him in his car in someone else's driveway. He had gotten lost on the way home and couldn't figure out how to turn the car off. (In…
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Helping parents
My mom most likely has Alzheimer's. She is 81. My dad is 83 and caring for her but not doing well ..alot of anger about her losing things. He is frustrated and says things he probably doesn't mean. He's upset because she's not cooking, and she constantly hides things. She then calls me (I'm 59 and out of state) crying…
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My brother
I'm new here. My brother has early onset dementia. He lives a few states away from me. He is married to a wonderful person. He is very angry at her. He claims there is too much clutter in the house and wants it all removed by a certain date or he is leaving and moving up by me. I love my brother and we are very close. I am…
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New here. Mom with relatively early dementia
I live a long way from my mom, a 4 day drive. She is relatively early in things. Her PCP never actually told her when she wrote dementia on her problem list a few years ago. Recently I went to ophthalmologist’s appointment with her and asked “she has Alzheimer’s, so you should add that to her problem list”. My mom said “I…
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Is Sundowning Real?
My grandmother has early stage Alzheimer's. I live a few hours away from her, but whenever I'm on the phone at night she seems much worse. I read an article about sundowning, which apparently is some sort of disorientation thing where after the sun sets, the patient becomes much more confused. Is it real? Can't tell if…
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Bible Verse to Lift You Up 12/8/24
GOD TEACHES AND LEADS YOU AND ME Isaiah 48:17 New Living Translation “This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is good for you and leads you along the paths you should follow.” I am always asking the Lord for His guidance. I suspect you do too. He…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…
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Need some word tracks
My Mom has been in MC for about 5 weeks. She’s not happy to be there but is slowly settling in. I live 6 hours away so most of my interactions with her are over the phone. I struggle with coming up with good answers to the same questions she asks me over and over again. “How long do I have to be here”? “Who do I talk to…
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My brother
I just heard from his doctor's office. The doctor doesn't believe that my brother is impaired in any way and he won't do anything to restrict his driving. He seems to think that the MMSE that he administered supercedes the more thorough neuropsychological testing that was done in August. I'm done. There isn't a blasted…
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Understanding late stage
Good morning. My mom is mid 80s and was diagnosed 7 or 8 years ago. She is definitely in late stage 7. When I read the chart she hits most of the makers. She no longer can walk and has not been able to do so for a couple of years. She needs assistance for everything. She can no longer hold her head up. She tends to lean to…
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Had to separate mom and dad between Missouri and Arizona
Has anyone here ever dealt with needing to separate spouses from each other because of the caregiver situation? My younger sister is able to start caring for my dad because my mom really cannot take care of him. They typically spent their winters in Arizona, but now mom is living back at their home in Missouri, but dad is…
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Move her closer to me
Hi, I'm seeking advice from those who have experienced this. Short back story, my wife has been in memory care in Fresno Ca. for 2 1/2 years. Her son lives seven miles from where she is and sees her twice a week. She is currently level six. I live in Boise Idaho. I moved here to be close to my daughters because of health…
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Mom
I need to get help for my brother in Las Vegas for in home care I live in San Jose ca and she is getting worse has fallen many times again today
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I’m new to this forum, and to Alzheimer’s.
My question is, have any of you seen Alzheimer’s symptoms (in particular, alertness) improve? My relative is apparently in mid-late stages and I haven’t seen this person for almost a year. She has recently been assigned a new caregiver and I just learned she is doing so well she was taken off hospice after being on it for…
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Stressed out
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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New person, first post - Trying to be the rock
To say I'm frustrated would be an understatement - my dad was finally diagnosed with dementia/alzheimers along with anxiety, depression, and OCD/fixation. We could sort of see signs of something not being quite right with him a year or so ago and I had to push my mom to get testing done. The first specialist they were…