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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting someone living with Alzheimer's or dementia from a distance. Perhaps you live in a different city or state.
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Should we move our loved one
My ex has no diagnosis but has many symptoms of memory decline. She wants to move several states over to live close to hers and my son. But she can only afford an apartment 30 minutes away from my son. Does anyone know of similar situations and how they turned out? Thanks
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New here and looking for advice
Hi, I am the 58 year old son of a 89 y/o father who is entering mid-stage Alzheimer’s. I live in California, and my parents live in Southwest Florida. I had recently taken FMLA to fly out for 3 weeks to help my 85 year old Mom find an assisted living facility for him(she is unable to care for him any longer). We did find…
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Long distance caregiver
I am trying to care for my eldest brother who was diagnosed with dementia and June of 2024. And right now it's May 5th of 2025. And it has escalated so quickly I mean the progression of it has really taken off like a wildfire. I live in Tennessee he lives in Ohio and I'm constantly racing to Ohio check on him to make sure…
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New Member, First Post - Power of Attorney
I have three siblings and one lives fifteen minutes away from my mom. I live in another state but manage all her finances and anything else I can to take the load off our sibling who lives locally. When I agreed to be my mom's power of attorney, I naively thought it would only come into play for her finances. However, this…
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My mom forgot my name today
It's been two years in my mom has early onset and it's accelerating quickly. I'm 33 my mom is in her 60s my husband is in the military so I'm taking care of her at a distance. Until medicaid takes overy husband I have been paying out of our own pockets. My mom was my best friend we were close. I call her everyday and I…
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New Here & Just Trying To Keep Up
I’ve been feeling really overwhelmed and alone, and I’m so thankful to have found this group. I’m 29 and live in Georgia. My mom is 65, lives alone in Florida, and was recently diagnosed with Alzheimer’s. My parents are divorced, and my sister isn’t able to help due to her own challenges. My mom’s brother offered support…
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New here, young adult child looking for connection and support
Hi, I’m 33 years old and my 74 year old mom was recently diagnosed, although we’ve seen it for the last couple years. I live in California and she lives in Ohio with my dad. I also have an older sister that lives a few hours away from my parents. Mom and I have been really close and talk on the phone every day on my drive…
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She’s forgetting me.😢
My mom lives in Delaware. Near my sister and her extended family. I live in Georgia. We lost our oldest sister 2 yrs ago and an older brother 7 yrs ago. That leaves the two of us. I’m 62. My sister is 66. The other day my mom told her Dr that she had 4 children but only has one surviving child. (my sister) My sister…
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New to group - brother closing in on his dx
It’s been a tough few weeks as I’ve watch my 64 yr old brother (I’m 62) get the dx work up for Alzheimer’s. He had a neuro consult today to review blood and he’s definitely starting treatment for Alzheimer’s asap. He’s like a twin to me and I’ve just felt so sad all day. I haven’t had this sense of grief since our dad…
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Delusional talking
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Sad and scared
I am new here, and I's prefer to exist in denial but I know it's better to connect here. So here I go... My 75y.o. mother was diagnosed with Alzheimer's (early stage) January 2nd, 2025. I live 4 hours away which is close enough to be available and far enough away to make it complicated and difficult. My maternal…
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Official diagnosis & Medications
Is a official diagnosis needed to start taking medication (Aricept) to slow down memory loss? Mri showed brain atrophy more accelerated for age than should be & chronic vessel ischemic changes. Memory loss & behaviors are declining also Neurologist prescribed Aricept but can't be started without official diagnosis which…
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Long distance has separated us
Being long distant from a loved one has taken a toll. This has been a heartbreaking journey for all involved. Feeling hopeless and helpless and just want him here with us like he was planning on doing before Alzheimer's overtook him. Everyday is a struggle, everyday that goes by is a huge loss without him.I want to save…
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Delusions
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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New to group and majorly overwhelmed
I'm trying to care for my grandmother from about 5 hours away. Her memory is declining quickly. I'm the only family to help her. I do have an aunt that lives 20 minutes away from her but my grandmother only trusts her so much and my aunt actually makes things worse. She lives alone and are working to get her into assisted…
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Haven't spoken to aunt in months with dementia
I live out of state. Aunt has dementia and incontinence. She has family who live closer. My cousin was good about giving me updates on my aunt when she wanted me to come and take over. Since I drilled that that was impossible, I rarely hear from her. I sent cousin a text asking how she was doing. She hasn't responded. Aunt…
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Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
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My grandfather sudden change
Hello, my grandfather,87, has been slowly losing his memory and in more recent months it’s progressed to not remembering what’s happened that day or who visited. I go over to my grandparents house for a couple of hours once a week to stay connected to them. But today as I was visiting, I noticed a change in his behavior.…
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Bible Verse to Lift You Up 2/8/25
THE LORD IS MY SHEPHERD Psalm 23 Amplified Bible A Psalm of David. 23 The Lord is my Shepherd [to feed, to guide and to shield me], I shall not want. 2 He lets me lie down in green pastures; He leads me beside the still and quiet waters. 3 He refreshes and restores my soul (life); He leads me in the paths of righteousness…
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Long distance support options
Hi everyone. I'm new here. My 77 year old father was just diagnosed with Alzheimer's and I'm just starting this journey with him and my wonderful stepmom. But I live a plane flight away (or two day car drive). I'm looking for tips to support from afar. Scheduled phone calls? I want to keep my father engaged but it is hard…
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Long-distance Caregiver for mother with AZ
Hello, my 80-year-old mother seems to be declining more rapidly this year (she was diagnosed in 2020 wit AZ). She lives in NYC and I moved to Boston,MA, in July from Los Angeles, CA, partly to be closer to her to make caregiving easier. She is very challenging, however, and I often feel lost as to what she needs because…
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New to the group. Need a listener pls
Hi. My dad has dementia and in MC in a dif state. I’m his guardian and take care of things for him but haven’t talked to him in few months as I suffer from ptsd and he’s my trigger. He mailed me a letter of sorts - various scraps of paper, misspellings and incoherent sentences. I can’t stop crying. It’s so hard to see his…
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New Here: Dad still driving, working, making treatment decisions, but also raging....
Hi Everyone, I am new here and just looking for support to help my brain from melting. My dad a 78, in good general health. An Engineer/Scientist who is still working in his field. Lives with wife, drives, manages finances, invests, travels, etc. He has been diagnosed with either early dementia or Alzeheimer's (depending…
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Helping caregiver long distance
Hi. I’m new to this group. My niece takes care of my sister who has been diagnosed with Alzheimer’s. They live in the same home together. Please advise how I can support them, especially my niece, an only child who’s raising a teenage daughter. Thank you.
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Long distance sister
I am new to this site. I have a sister in a care facility far away. She was diagnosed with Alzheimer about nine years ago and I had to put her in Memory care in 2018. I have traveled back many times to visit and oversee her care. She is a widow with no children and all our siblings have passed away so I am her soul…
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How to handle long distance Mother
First time poster here. My Mom lives in NV I live in MO. For the last 3 years it seems my Mom has signs and symptoms of dementia. No diagnosis and my Mom will not go to a doctor for anything. She is fit, healthy, active but it is clear her cognitive abilities are intermittently affected by “dementia?” She takes no…
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Depression since FIL diagnosed
My father in law was recently diagnosed with Alzheimer's and I was doing okay with it until I had a really bad nightmare about it the other night. I dreamed that I went to visit him and found him in his car in someone else's driveway. He had gotten lost on the way home and couldn't figure out how to turn the car off. (In…
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Helping parents
My mom most likely has Alzheimer's. She is 81. My dad is 83 and caring for her but not doing well ..alot of anger about her losing things. He is frustrated and says things he probably doesn't mean. He's upset because she's not cooking, and she constantly hides things. She then calls me (I'm 59 and out of state) crying…
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My brother
I'm new here. My brother has early onset dementia. He lives a few states away from me. He is married to a wonderful person. He is very angry at her. He claims there is too much clutter in the house and wants it all removed by a certain date or he is leaving and moving up by me. I love my brother and we are very close. I am…