-
Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting someone living with Alzheimer's or dementia from a distance. Perhaps you live in a different city or state.
-
What do you do when they push you away?
Dementia has really hurt my family tremendously. I live long distance from the rest of the family. My aunt has dementia. She's pretty upset with me for setting boundaries for myself. Long story short, I was expected to be her caregiver without any consent from me. So, when I would call my aunt, she would yell and cry…
-
Mom lives across the country & has early stage of dementia
Mother lives across the country and insist she is taking her medications regularly, but her BP says something different. She tells her doctor that she is taking her meds and feels that the doctor is calling her a liar. I know she is not taking them regularly and she meets the criteria of loss memory for the early stage.…
-
New member, helping my parents
My mom has Alzheimer's - stage 4 or possibly stage 5 (somewhere in between?) - clearly at the stage where she needs extra help but is incredibly resistant to accepting any help outside of family. She will basically scream about how accepting help will make her decline faster… etc (she was an RN for years and has experience…
-
How do I take away responsibilities?
I am the person responsible for my sister who has frontal temporal dementia. She has 24/7 care in her home and has been paying her own bills and everyday items. I have been overseeing her accounts to make sure that she doesn't overspend, but now we are at the point where we she can no longer be responsible. This has been a…
-
Looking for ways to help mom whose in denial and thinks I steal from her
Mom is not diagnosed, in denial she has any problems, accuses only me of stealing from her- things I didn’t even know she had, and I live 5 hours away, verbally and emotionally abuses me, I am the only person in her life willing and wanting to help her. What have others done in this situation?
-
My Bestie
My best friend has developed delusions and very confused/rambling speech. No stroke or neurological issues. Her mom had Alzheimers. I'm at a loss as to how to support her through this journey. Her husband, who has dementia says she is "just fine". Any wisdom out there for an outsider?
-
Sibling Disagreement on Care
My 85-year-old mother was diagnosed with dementia 7 years ago. My older father insisted on caring for her and hiding how bad things were from my sister and me. We started 4 years ago to try to get him to consider in-home care or assisted living. He finally agreed and they moved into a lovely community in October. However,…
-
New here, young adult child looking for connection and support
Hi, I’m 33 years old and my 74 year old mom was recently diagnosed, although we’ve seen it for the last couple years. I live in California and she lives in Ohio with my dad. I also have an older sister that lives a few hours away from my parents. Mom and I have been really close and talk on the phone every day on my drive…
-
Mom was just screened for dementia
Hello I am very new to all of this and am reaching out for support. My mom who is 83 was just screened for dementia in the doctors office. She failed the test - was not able to draw the clock or remember the words. My dad is her caregiver and now cooks all meals and is starting to manage her medications and doctor apts. on…
-
Long Story
Hi all, I am new to the online support group. My husband has both vascular and FTD. I was wondering if any other spouses abruptly left their family home during an illness that presented as psychiatric, but was later diagnosed with dementia after many unfortunate events, say 2 years. We finally had to place my husband in a…
-
Memory Care and Home Visits
Is it always the case that someone in a Memory Care environment should not visit their old home for fear of triggering confusion or a desire to stay there again? Or are there examples where it can be a positive temporary experience? (In our case no one else is currently living in that home. It is located about 20 minutes…
-
Mom
My mom is 68, struggled with alcohol, has it in her head her thyroid meds are too low. She started dubbling up her meds abt a month ago, and started back to drinking. She hears voices and does not believe some family members have died. Alzheimers runs on her mother's side of the family. She went to jail for coming at my…
-
Over medicating ? chemical restraint ?
I need some advice .. My step father who is only 61 years old has been battling frontal lobe dementia for 2 years now but recently his behaviors have increased to being up at night wandering from room to room , pacing and moderate confusing and anger, with possible treats of wanting to end his life , but he was not…
-
Travel documents for parent with dementia?
(Apologies, but I feel like I have to redact this post and the follow-ups at this point to keep some details private. Thank you all, especially H1235 and Victoriaredux.)
-
My mother won't see a doctor and she is not okay
My mom has always been incredibly independent and strong. She is 82 now and the last couple years she has steadily declined and has every last symptom of dementia or Alzheimer's. I live 4 hours away and my sister is close to her and keeps me updated ( I'm in the process of trying to move closer). Mom refuses to see a…
-
Best friend
I understand what you’re going 33-year-old I am 52 and 1/2 to 3 hours away. My mom and I all the time on the phone and for like the last two years my husband and I have decline in conversation then she fell and was in the hospital and I went up to visit her and stayed at her house and saw the disarray of the house and that…
-
Proper bed for home
Hello - I am new to the community and working to arrange 24 hour care in home for an older brother who likely has dementia (evaluations are underway and he just moved to a rehab setting from a hospital). We need to have him live on the first floor when he returns and wondered if a hospital type bed is necessary. He is able…
-
Long distance
I am 52 years old and got my mom diagnosed with dementia and she 2 1/2 hours to three hours away and I am struggling with her declining. She was my best friend my rock and just looking for support and whoever else is out there that we can discuss this.
-
How to decide if family member with cognitive decline can be allowed to stay in home, living alone.
I am writing for advice about my sister who has been diagnosed with dementia that is vascular related, not Alzheimers. For the last five years, her declining decision making and ability to engage in executive functions, such as managing medications or finances, has become evident to me, her health care provider, and her…
-
Early onset Alzehiers
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
-
Early onsite alzeheirs
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
-
Ways to be in touch in later stages
Hi all, new to these forums and am my mother's primary (long-distance) caregiver since she moved into a very good MC facility in 2023. My mother is in a good way, quite positive and at peace thankfully, if alot of tiredness and some moments of frustration. As I am based in Europe and she's in the Washington, DC area, I…
-
After Years of Caregiving, Uncle w/Dementia Needs Remote Support - Affordable Tech/Dev Suggestions
I'm at a major crossroads and feeling a huge mix of relief, guilt, and stress. I'm hoping for some practical advice, especially from those who've managed long-distance care for someone with dementia. For the past few years, my life has been completely dedicated to caring for my uncle. He got divorced about 10 years ago and…
-
How to handle transition to memory care
My sister has been living in an assisted living residence for about 3 years, but her cognitive abilities are quickly slipping into a need for more care. She's falling, wandering into other apartments, needing more assistance with hygiene, even having very strong delusions. She's openly expressed a fearful dread of being…
-
Desperate for Help
My mom has been recently diagnosed with rapidly progressive Alzheimer’s. She lives in Louisiana with my brother and SIL and I live in Maryland. Any tips or suggestions on caring for her from afar? Because I’m really close to having her come to meet me up here.
-
New Role as Conservator and Guardian after Theft by POA
After a difficult effort to force my sister's POA (her son) to resign when we discovered he had taken more than half of her wealth, I am stepping into the role of her conservator and guardian which I am doing from across the country. My sister, who is in a moderate stage of dementia, is safe in an assisted living residence…
-
Nurse daughter long distance to mom with moderate Alzheimer’s
Mom is 78 and lives with dad 4 hours away. Sisters in town but I’m supposed to help with the medical stuff. Problem is mom still drives ( I know) she has always been dads caretaker although he is only with slight memory loss and gets around but distant with diagnosis. Mom says she’s fine. We want to get her a neurologist…
-
What type of longterm facility/community takes LO with Suicidal Ideations & Alzheimer’s?
null Dad is 87 diagnosed with mild-moderate Alzheimer’s a year ago and has been taken twice (to two different) Geri-psych units, went willingly with paramedics, for suicide ideations but refuses medication. He even wrote a goodbye letter. He sees no future, no purpose in living, at times. The Geri-psych unit did not…
-
New here
We still have hope as we breath
-
What is a "good" day for someone with dementia/alzheimers?
I've been told that my brother was diagnosed with Alzheimer's. However, when visiting him, I am not seeing any indication at all. Does having a good day mean the complete absence of symptoms? I am very concerned that his wife is exaggerating. I don't live in the same state, so I don't seem him all the time. However, my…