-
Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting someone living with Alzheimer's or dementia from a distance. Perhaps you live in a different city or state.
-
Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…
-
Understanding late stage
Good morning. My mom is mid 80s and was diagnosed 7 or 8 years ago. She is definitely in late stage 7. When I read the chart she hits most of the makers. She no longer can walk and has not been able to do so for a couple of years. She needs assistance for everything. She can no longer hold her head up. She tends to lean to…
-
Had to separate mom and dad between Missouri and Arizona
Has anyone here ever dealt with needing to separate spouses from each other because of the caregiver situation? My younger sister is able to start caring for my dad because my mom really cannot take care of him. They typically spent their winters in Arizona, but now mom is living back at their home in Missouri, but dad is…
-
Move her closer to me
Hi, I'm seeking advice from those who have experienced this. Short back story, my wife has been in memory care in Fresno Ca. for 2 1/2 years. Her son lives seven miles from where she is and sees her twice a week. She is currently level six. I live in Boise Idaho. I moved here to be close to my daughters because of health…
-
Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
-
My brother
I just heard from his doctor's office. The doctor doesn't believe that my brother is impaired in any way and he won't do anything to restrict his driving. He seems to think that the MMSE that he administered supercedes the more thorough neuropsychological testing that was done in August. I'm done. There isn't a blasted…
-
New to the group. Need a listener pls
Hi. My dad has dementia and in MC in a dif state. I’m his guardian and take care of things for him but haven’t talked to him in few months as I suffer from ptsd and he’s my trigger. He mailed me a letter of sorts - various scraps of paper, misspellings and incoherent sentences. I can’t stop crying. It’s so hard to see his…
-
Mom
I need to get help for my brother in Las Vegas for in home care I live in San Jose ca and she is getting worse has fallen many times again today
-
I’m new to this forum, and to Alzheimer’s.
My question is, have any of you seen Alzheimer’s symptoms (in particular, alertness) improve? My relative is apparently in mid-late stages and I haven’t seen this person for almost a year. She has recently been assigned a new caregiver and I just learned she is doing so well she was taken off hospice after being on it for…
-
Stressed out
-
Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
-
New person, first post - Trying to be the rock
To say I'm frustrated would be an understatement - my dad was finally diagnosed with dementia/alzheimers along with anxiety, depression, and OCD/fixation. We could sort of see signs of something not being quite right with him a year or so ago and I had to push my mom to get testing done. The first specialist they were…
-
Daughter of dementia patient: The inevitable?
After my dad’s diagnosis, I’m terrified of getting dementia myself. I grew up with difficulty learning and remembering things effectively while also dealing with anxiety and depression. So I’ve always been kind of like my dad, I found ways around the problem , never actually taking the time to learn…how to learn…until I…
-
Bible Verse to Lift You Up 10/20/24
WORKING FOR PEACE Psalm 4:8 NLT "In peace I will lie down and sleep, for you alone, O Lord, will keep me safe." Matthew 5:9 NLT Jesus' Words "God blesses those who work for peace, for they will be called the children of God." THINK ABOUT THIS Do you lose peace often? If so... What tends to make you lose peace? Have you…
-
BIBLE VERSE TO LIFT YOU UP 10/11/24
GOOD WORKS/MUCH FRUIT John 15:5 NIV JESUS’ WORDS “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit...” Ephesians 2:8-10 NIV “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast. For…
-
She wants her car
79 yr old sister-in-law recently admitted to a MC Unit after a fall and broker her arm. We knew she was declining and this accident made us realize she can no longer live alone. We immediately got DPOA & POA Healthcare. She thinks she is in a hotel “that serves meals” and wants us to bring her car so she can go home.…
-
Dreadful fear and the "Dark Thoughts"
My father died Jan 2nd (1 day before his 86th birthday). He had end stage Alzheimer's and a very aggressive form of cancer which was discovered just 2 weeks before his death. My Mom is seriously struggling with reality. She calls me at LEAST once a day and tells me people are trying to get into the house and that the "dark…
-
Sometimes you just can't win
So...my brother. He just sent me an email telling me that I was using an old email address for him. I checked. The last two emails that he sent me was from that old address. Now, I have to be certain that I'm using his preferred email address (no matter which one he used) or he'll think I'M confused. Sigh.
-
Automated pill dispensers
hi. Does anyone know of a good automated pill dispenser? I was on the alzstore.com and I ordered an automated pill dispenser made by med ready and it doesn’t work. For some reason I thought this store was connected with the Alzheimer’s Association, even though it doesn’t say so, and it turns out the return policy is really…
-
I'm making a little progress with my brother
Today, his doctor's office actually called me back for the first time. They're going to send me a copy of the neuropsych report. They're calling it "mild" dementia. As we all know, it doesn't stay mild. It always progresses. I asked them to put me down as an emergency contact. They'll probably have to confirm that with…
-
Buying things
My Dad still lives at home with my Mom, he had a stroke 9 years ago and developed dementia pretty quickly. We are in the process of getting him in a long term care facility because my Mom can no longer care for him. We need help though, he still has a golf cart and he goes for the store everyday and they let him get stuff…
-
Another update about my brother
I went with my older brother this morning to see the neuropsychologist who tested him three weeks ago. She diagnosed him with mild cognitive impairment. She wants to see him again in a year to repeat the testing. If he has declined in that time, she will likely diagnose Alzheimer's. His short-term memory is so poor, I'm…
-
Memory care in New Jersey
Hi all, my uncle (who raised me and is practically my father) was recently diagnosed with dementia. I live in NYC and he lives in Virginia, I’m hoping to move him to a memory care facility in New Jersey in a few months. Are there any memory care facilities in NJ that people can recommend? Thanks so much!
-
New here. Mom with relatively early dementia
I live a long way from my mom, a 4 day drive. She is relatively early in things. Her PCP never actually told her when she wrote dementia on her problem list a few years ago. Recently I went to ophthalmologist’s appointment with her and asked “she has Alzheimer’s, so you should add that to her problem list”. My mom said “I…
-
Started a home health aide for my mom. I'm doing the right thing, right?
Hi - my mom is 87 and living with dementia. I arranged to have a home health aide come 4x/week. Today is day 2. I know it's the right thing to do and wow, it feels really hard. I guess I'm coming here for reassurance. My mom is about 6.5 hours away, single, and I'm her only child. We have no other family nearby. I work…
-
Update on long distance mother
I posted once earlier this year and have struggled ever since. This year has been very strained with her continuing to be angry and blaming that we have taken everything from her. She continues to hang up on me if I call. My 89 yo mother was dx 11/2 years ago we think she progressed to moderate stage but hasn’t been back…
-
Things for mom to do
My mom lives 5 hours away. She refuses to take part in any of the “activities” that are available at her ALF. She does not like games of any kind, puzzles, etc. She has a piano in her room which she plays periodically but otherwise she just sits there and watches TV. She has asked me “what am I supposed to do here?” And…
-
Mom is 275 miles away
Hi everyone, I am the eldest daughter of four, I share POA and Advanced Healthcare with my brother, the youngest, who lives about an hour and a half from mom. Two sisters in between, one is in FL, lives within an hour but had a brain tumor and is dealing with her own health issues. I live about 275 miles, about a 7 hr…
-
Caretaking the Caregiver
DH and I live about 50 miles from his mother who has mid-stage Alzheimer’s. She still recognizes all of us, but STM is rapidly failing. Her husband (DH’s step-father) has done a wonderful job taking care of her. Up until the past two weeks, DH’s nephew was living in the house, so there was someone to give some…
-
My brother had his neuropsych testing done today
We won't get the results until the 19th. It didn't take nearly as long as my hubby's testing did in 2013. I don't have any idea what the doctor thinks. I'll find out later. I did tell her that I want to know if he is still safe living alone and driving. He's driven me around a good bit the last two days. I never felt…