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Welcome! New Forum for Caregivers
This is a new discussion forum for caregivers supporting someone living with Alzheimer's or dementia from a distance. Perhaps you live in a different city or state.
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How to decide if family member with cognitive decline can be allowed to stay in home, living alone.
I am writing for advice about my sister who has been diagnosed with dementia that is vascular related, not Alzheimers. For the last five years, her declining decision making and ability to engage in executive functions, such as managing medications or finances, has become evident to me, her health care provider, and her…
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Ways to be in touch in later stages
Hi all, new to these forums and am my mother's primary (long-distance) caregiver since she moved into a very good MC facility in 2023. My mother is in a good way, quite positive and at peace thankfully, if alot of tiredness and some moments of frustration. As I am based in Europe and she's in the Washington, DC area, I…
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After Years of Caregiving, Uncle w/Dementia Needs Remote Support - Affordable Tech/Dev Suggestions
I'm at a major crossroads and feeling a huge mix of relief, guilt, and stress. I'm hoping for some practical advice, especially from those who've managed long-distance care for someone with dementia. For the past few years, my life has been completely dedicated to caring for my uncle. He got divorced about 10 years ago and…
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How to handle transition to memory care
My sister has been living in an assisted living residence for about 3 years, but her cognitive abilities are quickly slipping into a need for more care. She's falling, wandering into other apartments, needing more assistance with hygiene, even having very strong delusions. She's openly expressed a fearful dread of being…
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My mother won't see a doctor and she is not okay
My mom has always been incredibly independent and strong. She is 82 now and the last couple years she has steadily declined and has every last symptom of dementia or Alzheimer's. I live 4 hours away and my sister is close to her and keeps me updated ( I'm in the process of trying to move closer). Mom refuses to see a…
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Desperate for Help
My mom has been recently diagnosed with rapidly progressive Alzheimer’s. She lives in Louisiana with my brother and SIL and I live in Maryland. Any tips or suggestions on caring for her from afar? Because I’m really close to having her come to meet me up here.
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New Role as Conservator and Guardian after Theft by POA
After a difficult effort to force my sister's POA (her son) to resign when we discovered he had taken more than half of her wealth, I am stepping into the role of her conservator and guardian which I am doing from across the country. My sister, who is in a moderate stage of dementia, is safe in an assisted living residence…
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New here, young adult child looking for connection and support
Hi, I’m 33 years old and my 74 year old mom was recently diagnosed, although we’ve seen it for the last couple years. I live in California and she lives in Ohio with my dad. I also have an older sister that lives a few hours away from my parents. Mom and I have been really close and talk on the phone every day on my drive…
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Nurse daughter long distance to mom with moderate Alzheimer’s
Mom is 78 and lives with dad 4 hours away. Sisters in town but I’m supposed to help with the medical stuff. Problem is mom still drives ( I know) she has always been dads caretaker although he is only with slight memory loss and gets around but distant with diagnosis. Mom says she’s fine. We want to get her a neurologist…
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What type of longterm facility/community takes LO with Suicidal Ideations & Alzheimer’s?
null Dad is 87 diagnosed with mild-moderate Alzheimer’s a year ago and has been taken twice (to two different) Geri-psych units, went willingly with paramedics, for suicide ideations but refuses medication. He even wrote a goodbye letter. He sees no future, no purpose in living, at times. The Geri-psych unit did not…
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New here
My older brother has recently been diagnosed with Alzheimer’s, and I’m trying to understand what to expect and how best to support her. What are some things you wish you had known earlier in your journey caring for a loved one with Alzheimer’s?
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What is a "good" day for someone with dementia/alzheimers?
I've been told that my brother was diagnosed with Alzheimer's. However, when visiting him, I am not seeing any indication at all. Does having a good day mean the complete absence of symptoms? I am very concerned that his wife is exaggerating. I don't live in the same state, so I don't seem him all the time. However, my…
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Mother rejected from two memory care facilities
My mother was rejected from two memory care facilities.Because she did not want to stay there and wanted to go home. We're running out of options and we're not able to get her the care she needs. She is staying in a mental health facility, and they're wanting to discharge her. We are unable to care for her. We don't know…
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Long distance care
My dad is in the advanced stages of dementia. My parents live in Germany, while I’m in Texas with my own family and young kids. My sister lives close to my parents and helps as much as she can, and my brother is a few hours away. But my mom is the primary caregiver—she’s with my dad 24/7, with only a few hours of outside…
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both parents recently admitted into MC facility and they keep falling constantly
Dear Community, My sister and I recently moved both my parents into the same facility and they share a small apartment. In the past 3 days, they have both fallen a combined 6 times. My father has experienced pain but my mother fractured the same shoulder she fell on a couple of months ago. In the past year, my mother has…
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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Cousin may have Alzheimer's but her local family in denial
I'll try to keep this brief but it's hard: I think my younger cousin, 56, has Alzheimer's. Last January she had an MRI that (i think) showed some shrinkage in lobes of her brain (she reported this to me at the time, with the fear that she had Alzheimer's). She had a PET scan in April that showed elevated amyloid protein in…
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Sister w Alzheimer's wanting to take control of everything
My sister who has been diagnosed with Alzheimer's is determined to re-take control of her finances, among other things. Neuro-psychological testing has shown she is incapable of doing so. She can't even write a check. Prior to diagnosis and testing, she had a year of not paying bills, having power or phone shut off…
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Where to go if Long-Term Memory Care will not accept my sister's combative behavior?
My sister with EOAD has been in a Geriatric Psych unit for a month now. She was removed from her Assisted Living Memory Care facility after only a week for aggressive and combative behavior. During an incident she was sent to the ER where after that she was admitted to the Geriatric Psych unit to develop a medication and…
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New Here & Just Trying To Keep Up
I’ve been feeling really overwhelmed and alone, and I’m so thankful to have found this group. I’m 29 and live in Georgia. My mom is 65, lives alone in Florida, and was recently diagnosed with Alzheimer’s. My parents are divorced, and my sister isn’t able to help due to her own challenges. My mom’s brother offered support…
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My brother
I'm new here. My brother has early onset dementia. He lives a few states away from me. He is married to a wonderful person. He is very angry at her. He claims there is too much clutter in the house and wants it all removed by a certain date or he is leaving and moving up by me. I love my brother and we are very close. I am…
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New here, aging parent with vascular dementia and mom not capable of caregiving, where do I start?
Hi! I have never been on here before. My dad was diagnosed with vascular dementia years ago after insisting my mom bring him in. I have a fractured relationship with my mom and she is his primary caregiver. Lately my dad seems to be declining. He is disoriented at night, getting up and spilling things, having toileting…
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Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
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Walking Through Dementia With My Brother
These past few months have been some of the hardest of my life. My brother’s dementia symptoms keeps increasing, and it’s heartbreaking watching someone I love so deeply change in ways I never imagined. The last time I saw him, I watch pieces of him slowly slip away his memory, his spark, the conversations we used to…
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New here, adding introduction
Hello all! Guess it's my turn to introduce myself here. I'm Catherine, eldest daughter of a mother with Alzheimer's (among other issues). I've "known" for years something was up with her, but living 400 miles away made it hard to put my finger on what. After your standard "fall & break a hip" scenario, she's now in an ALF,…
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New Member, First Post - Power of Attorney
I have three siblings and one lives fifteen minutes away from my mom. I live in another state but manage all her finances and anything else I can to take the load off our sibling who lives locally. When I agreed to be my mom's power of attorney, I naively thought it would only come into play for her finances. However, this…
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Official diagnosis & Medications
Is a official diagnosis needed to start taking medication (Aricept) to slow down memory loss? Mri showed brain atrophy more accelerated for age than should be & chronic vessel ischemic changes. Memory loss & behaviors are declining also Neurologist prescribed Aricept but can't be started without official diagnosis which…
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How long is it safe to leave someone with Stage 6 Moderately Severe Dementia alone?
Hi all, new to the forum, been supporting my mother diagnosed 5 years ago with Alzheimer's. Most of my support has been to help my father, the sole caregiver, take some breaks and figure out next steps, and to increase the contentedness my mother has and decrease her anxiety. I spent half of the last two years off and on…
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Therapist for father who is primary caregiver
Looking for an organization that specializes in virtual therapy/psychology services for caregivers.
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Long distance has separated us
Being long distant from a loved one has taken a toll. This has been a heartbreaking journey for all involved. Feeling hopeless and helpless and just want him here with us like he was planning on doing before Alzheimer's overtook him. Everyday is a struggle, everyday that goes by is a huge loss without him.I want to save…