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Hello Everyone, Introduction

Ossom
Ossom Member Posts: 42
10 Comments 5 Care Reactions
Member

We've quickly realized the importance of connecting with others who understand what we're going through. We're currently caring for our father, who has been suffering from untreated Neurosyphilis, GPI, Tabes Dorsalis, and dementia for several years now.

 

Despite our best efforts to convince him to seek treatment, he has refused, citing his "right" to do so. The state of California has been largely unhelpful in this matter, leaving us to shoulder the burden of his care as his condition deteriorates.

 

It's been a challenging and emotionally taxing journey, but we've also learned a great deal about this devastating infection and how to best support our father during this difficult time. We've read numerous books on the subject and feel somewhat like experts in navigating the unique challenges that come with caring for someone with these conditions.

 

We're excited to connect with others in our situation and share our experiences, as well as learn from those who have been through similar struggles. We look forward to finding solidarity and support within this community.

 

Take care, and we'll see you in the forums!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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