We are just waiting for the paperwork to be processed, then DH will start treatment. He’s not worried, but I will be on pins and needles, at least til we’re past several treatments.

I'm trying to get my husband signed up. Hope we can get him going soon.

Yesterday was his 4th infusion and then a meeting with the Neurologist. It does not appear that he is any worse from beginning the infusions, which could mean that it is working along with the Rx he is currently taking. He is not better, per se, but not worse. The Doctor did not recommend any changes to medication. This morning he had the first MRI after beginning treatment. If we don't hear anything in a couple of days, then we can assume that he does not have brain bleed or any other irregularities. He is still not suffering from any visible side effects other than being more tired than usual on infusion day. He is still primarily independent (stays at home during day while I am at work) but still needs my help (reminders, nudges, prompts, etc) with things that are not routine for him.

I was on pins and needles before my DH's first infusion. He has now had two infusions and so far so good. I hope you will find the process to be pretty smooth.

Thanks for that encouraging response. I’m hoping more and more people will choose to try Lequembi. I’m going to try to advocate locally about the infusions.

Elizabeth607, thank you for sharing your experiences. It is interesting to note your DH seems more fatigued on infusion day. My DH seems energized following infusions, but he’s only had two. Perhaps he is just excited to have the process in place.

LOL, PJ52, I know what you mean. My DH definitely has more energy than I most of the time. I think I spend more time and energy wondering about the future than he does. But I’m grateful he seems to be just living each day as it comes.

I’m sorry your husband has some micro bleeds. My DH had his 5th infusion last week. Again he felt fine and had no reactions. Just the week before he had an MRI. We met with his neurologist today who said the MRI showed some brain swelling. Since my DH is his first patient getting Lequembi the doc is going to study protocols to see how we proceed. He is scheduled for two more infusions and we will see the doc in July to see whether we continue infusions. I am seeing some increasing cognitive issues.

My husband had his first infusion this week. He was tired the following day, and has had a headache for two days (so far). He did not have the tylonol, steroid, benedryl premeds, as the infusion nurse practicioner said it was optional. He'll try them next time.

One side affect of my first infusion of Leqembi was a raised temperature (100) and 1 small episode of vomiting. Other than that all went well. I will see how it goes on the 2nd dose this Friday.

Sandi Barkan