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any advice on hospital bed mattress causing/contributing to migration and delirium
Hello community, My father is at home and started with hospice about a month and a half ago. they immediately provided a hospital bed,which looks to be almost a hundred years old- like something out of an asylum. I only recently tried it out myself and it made me feel so sad and angry that my dad has been sleeping in it…
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Is Cousin Larry Taking Advantage?
I am a friend and part-time paid caregiver to 80 year old Betty, who is very newly diagnosed with early stage Alzheimer's, primarily manifesting now in short-term memory losses. Betty is financially secure, but has few family members; she's outlived those closest to her, yet there are a few extended family members, most of…
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How do I pull my godmother out of constantly wanting to go to her childhood which no longer exists?
It's been happening slowly, but in the past month my godmoms keeps wanting to go to her childhood home which doesn't exist anymore. She's not remembering or recognizing her home of 40 years. She's been like this everyday at least 1-2 times a day...but the last 2 days it's been all day. I need suggestions on how to reassure…
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Angery Mother
I’m having major problems with my mom. Within the last four weeks if she doesn’t get her way, she will call me names not the nice ones either. I also moved in with her two years ago when she was first diagnosed with dementia she will also tell me that I need to move out. If she’s not getting her way. We have an appointment…
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Inappropriate (and Rough!) Touching
As I have mentioned here before, I have a friend who has alz. We are both 70. I have known him for 60 years. He was my boyfriend many years ago, but is now most definitely just a friend. His sister pays me to take him swimming at the local pool twice per week. He and I walk there, and when it gets cold this winter I will…
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New Here! Mum diagnosed 6 weeks ago. Struggling with evening sundowning/looping—any advice?
Hi everyone, This is my first post. Recently, my mum was diagnosed with early-to-mid-stage Alzheimer's. She is 67. This has hit our family pretty hard, especially my dad, who has taken on the mantle of primary caregiver. I still live at home, so I am exposed to the daily realities of the condition. Lately, she has been…
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Mom's REPETITIVE Calling on Cell Phone - HELP & SUGGESTIONS needed
Mom is calling siblings, extended family and friends a huge amount of times a day asking for assistance in moving her back to her home from care center. An example...my sister received 30 calls on Tuesday and by early afternoon yesterday had 15. My brother received 15 calls yesterday and his wife as well. Care staff…
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New here caring for 97yo Mom with severe dementia
Hi folks, I have had my 97 yo Mother living with me since March. I am SO overwhelmed - she is snappy and mean most of the time - always right no matter what and I am so demoralized. My name is Faith. We just got accepted for TN Choices group 3 - which is crazy because she needs to be in a Nursing Home - just got accepted…
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Struggling
I posted back in April about my mother and struggling then. My Dad had also had hip surgery and everything spiraled out of control. Anyway things did calm down once my Dad recovered and was able to better manage the concept of working with my mother instead of against her Alzheimer's. However things have of course…
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Behavioral ups and downs
Unfortunately my mother’s Alzheimer’s has made her generally very snappy, angry, and anxious but then she’ll dip into periods of sadness/depression/quietness. The past couple days she’s been up and talkative and active, like her old self, which I am enjoying while it lasts. I know that as things progress there can be…
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Goldilocks or The Princess and the Pea
Sometimes we just have to find the humor in some of the ridiculousness this disease causes. The saga we have gone through with my mom surrounding her bed is just so off the wall, it's funny. She has complained about her various beds for years and years, blaming her back pain on every single one of them. She got a new…
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a new home for dad - update
Hello community, Dad has been in his new care home since Wednesday, so almost a week. It is much smaller and in a home-like environment. He needed a new place after a stay at a geri psych inpatient hospital due to behavioral expressions. The entire 2 years at his previous home we struggled to address the anxiety he was…
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Lack of showering
Our father has been going for extended periods (40 days at a time) without showering or changing his clothes, which has led to skin lesions. He also has incontinence issues on top of it. We are limited in our ability to intervene due to legal restrictions making these challenges difficult to address, especially when faced…
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Struggling with providing care for my very willful Mom
I'm new here, but desperate for help with handling these difficult things, and feeling like I'm really botching this pretty badly. A little over a year ago, I moved in to look after my Mom, who was diagnosed with Alzheimer's when she was still somewhere in the middle stages. My family was never good with communication or…
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cried through MC breakfast w dad... then tears in the parking lot
Some days I just wanna read posts here and benefit from the sense of community and of understanding. As dad declines and my heart breaks, sometimes I just don't want to be around people who can't understand the things we do and see with our LOs. Maybe I could write a song called tears in the parking lot for those of us who…
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Mom plans to smuggle meds into AL
UGH. I'm so tired of dealing with this immaturity! My mom has been having lots of back pain, but she refuses any sort of medical help for it, aside from Tylenol. As is common with AL, medications, including OTC, are not allowed in her room and must be dispensed by the staff. She knows this, she understands this, and she…
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New to this group
My mom diagnosed with Alzheimer's or psychosis with dementia. And Its getting worse.
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Can Sundowning happen in the morning
My husband is in late stage dementia and the regressive changes are happening quickly. Sundowning at around 5 pm is a familiar pattern, and we have come up with some steps that reduce the effects. A new problem — In the morning, we're seeing something like sundowning. He might withdraw, he might get angry, it's a new thing…
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No purpose
I am struggling with helping my Mom feel she still has a purpose. After 2 1/2 years in AL, she was recently (3 weeks ago) moved to MC. Her anxiety was increasing and staff felt as though the smaller environment would be better for her. In between activities (she would go, but rarely actively participate) she didn't know…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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first visit to inpatient geri psych hospital to see Dad today
Hello dear community, This afternoon I get to see Dad for the 1st time at the geri psych hospital. I am glad to get to see him and much like going to MC I am wondering what might be awaiting me on the other side of that door. He went Thursday during the night by ems transport from his MC. I scheduled this appt by speaking…
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a move needed after geri psych inpatient treatment
Hello dear community, Dad seems to be doing better thankfully. Discharge back to his MC is planned for Monday. His memory care has suggested that he may need a smaller environment now. Sounds like I need to add him to some waitlists. The constantly shifting sands of Alzheimer's. I think this may mean that they think it is…
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Advice Needed After Moving My YOA Mom from AL to MC
I posted here a while back when my mom was first diagnosed with ALZ and I was trying to move her from FL to GA to be closer to me. She’s 65, I’m 30, and I’ve been her POA for about a year. She’s divorced, so this has all been pretty overwhelming at times. After a really tough few months, my sister and I were able to get…
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Sexual aggression in MC
First post here...my dad was diagnosed with vascular dementia last summer. We recently had to move him into MC. He was adjusting well, but then he began exposing himself to others and some touching between him and others. He was moved out of MC onto a regular nursing home floor. A few days ago, the night nurse found him…
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Seeking Advice: Managing Toilets with Dementia Behaviors
My father has late-stage dementia and is exhibiting challenging behaviors that are making it difficult to maintain our home. He’s been pouring food down the toilets, which has caused clogs and damage. He also removed the bolts from one toilet, breaking the wax seal, and it’s now unusable. He’s fixated on guarding the…
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Mom troublemaking at AL
I have a Care Plan Meeting coming up next week, and I want to be prepared to respond to some of the issues the staff has reported to me regarding my mom… Just in the past week alone, she has "caused a scene" (Director of Wellness's words) regarding her bedtime medication — it was late getting to her and she walked down to…
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How to manage putting a pet down
Over the past several months our beloved cat’s nasal tumor has grown larger and her quality of life and weight have deteriorated. DW is middle-stage dementia and can’t seem to remember our discussions of when to let the cat go. Last week we agreed that it was time and scheduled it with the vet for tomorrow. We’ve talked…
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Dad gets aggressive
My dad has a bandage over his wound per his dr and wound clinic. It gets changed by the wound clinic as well as my sister and I every 3 days. The dr. Said it needs to stay on to help it heal. He forgets it needs to stay on and keeps trying to take it off; gets mad at us for not taking it off when he asks. He feels he…
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Finding My Way
Hello! I recently moved my 79 y/o brother in with me from a different state after the death of his wife last November. He is wheelchair bound with multiple sclerosis and has just been diagnosed with mid stage Alzheimer's. He's had a difficult time adjusting to the new changes and has no desire to meet people in this area.…