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I’m new to this forum, and to Alzheimer’s.
My question is, have any of you seen Alzheimer’s symptoms (in particular, alertness) improve? My relative is apparently in mid-late stages and I haven’t seen this person for almost a year. She has recently been assigned a new caregiver and I just learned she is doing so well she was taken off hospice after being on it for…
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Needing to find a home
First off, why is there no comprehensive place to help caregivers / family when it comes time to find a home for someone with ALZ? Every resource I've found tells me different and conflicting information. It's insane. Anyway, my mother is now MS, nearing LS faster than we thought. As much as I would prefer to not put her…
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have covid can’t visit MC
We had to move my dad who is 82 to memory care about three weeks ago because we couldn’t lift him to change him anymore. He’s in hospice with heart failure and the dementia. In the process my mom (80) and I (51) caught covid and it’s been a week but we are both still symptomatic and testing positive. We are brokenhearted…
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Father with early-onset now in late stages
Hello, I was made aware of these discussion boards through resources at my university and thought I'd give it a shot. I live in Orange Country, CA. I'm a 26 year old Female and my father got diagnosed with early-onset Alzheimer's when I was 13. He was in his early 50's. He has progressed extensively in the last six years.…
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She is the Love of My Life, will she come back for a moment?
My DW, first showed signs of mild cog impairment during covid, July of 2020. Sill very mild what everyone thought was stress related. Then in 2/2022 we both were infected with a severe. Case of covid with brain fog, that I have been able to recover from. Not so luck has been my DW, although I have made many efforts since…
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Questions about end of life
Hey everybody. This is my first post. I’m curious to get an idea if my mom’s sudden crying, lack of communication ability, not being able to walk, is truly a sign of the beginning of End of Life. She still eats well, has no ailments(besides the obvious), and the memory care unit is saying she’s sleeping well. Any advice or…
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How do we know what is right?
Mom lives with me full time now, she was going back and forth between myself and my sister until about 4 months ago. We have caregivers coming to the house while we work, and she is on a waiting list for memory care. I just wonder… when a place becomes available, will it be right to say yes we are ready? Mom is generally…
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What rights do other siblings have that aren’t in charge of guardianship
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Alzheimer's/Alcohol Dementia, Alcoholism, Hoarding and Medication Refusal - what to do?
Hello, My mom has been a lifelong alcoholic who has refused most medical care in her life. She lost her home, was asked to leave her independent living situation due to hoarding, and she is in assisted living now for the last week but seems to have declined. She is physically weak, uses a walker, and is essentially blind…
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ALSP support group
My mom was DX with ALSP it’s a rare/genetic for of Alzheimer.. I was wondering if there was any type of support groups even virtual support groups that anybody has or has gone through that could help me. I love to join a support group, but I don’t know where to start, Can guide me?
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End Stage Alzheimers disease
Im new to this forum and am hoping to get some advice on how to proceed with my mother's care. She is currently in a MC unit near my home using a hoyer lift. She's totally bedridden and has pressure sores on her back. The Dr's are giving her pain meds but I think it's time for hospice care. She can no longer speak…
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Praying for this to end
My DH is stage 7, still ambulatory, good appetite, vitals all okay...counting my blessings....is it wrong to wish he will pass before "it gets worse" I am so done with these stages, wondering what I will wake up to each day, crossing off each day on the calendar only to look at a new month with no end in sight...I'm so…
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Getting my LO into bed
My LO is in late stage dementia. She can no longer stand without a walker and assistance. Getting her into bed requires lifting her off her commode chair and, while holding her up, pulling on her pull-up. I then lift her onto the bed. She often resists or slumps in my arms. There must be a better way. The pull-up is a real…
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LO Refuses Care
Hi Everyone, My parent is in late stage dementia and we cannot find proper care for him. He can still physically speak, but nothing he says makes sense and he cannot respond in a logical way to even the simplest questions. We recently made the hard decision to move him to a memory care facility, but he was promptly removed…
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Late stage/seventh stage care
I'm fairly sure mom's completely in the last stage now, no longer straddling six and seven. I'm trying to find resources on what exactly her care needs are for this stage in life because it's vastly different than anything I've been through before. I have tried some web searches but they all seem rather vague and general…
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Don't Know what to do
My mom has had Dementia for a few years now and it is overwhelming at times especially when she says things like I (her daughter) or my aunt (her sister) are trying to harm her when that is not true. She doesn't even remember my name or that I am her daughter but I know it is just the disease but it still affects me at…
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Trying to support an aggressive grandfather
I’ve been taking care of my great grandfather for almost two years, the rest of the household is too harsh to him and it causes problems. I cannot convince them to get him help. I am 20, cannot drive and have put everything aside to take care of a three person household. How can I help my grandfather who has gotten worse,…
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How to Cope with Guilt
Background - I am a remote caregiver. I live short plane ride away but on a different island than my parents. My mom was diagnosed with vascular dementia in 2016 (7 years) ago and she is in stage 6. She lives with my dad and they're both in their 80's. I am married with two kids. I have my onw business and volunteer on two…
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Need simple companion for someone in nursing home
I need some advice on finding the right companion situation. I can usually find answers to my questions by searching the other posts, but I couldn't find exactly what I needed this time. My mom has late-stage Alzheimer's & went into a nursing home about a year ago. It's a lovely facility with wonderful staff, especially in…
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Brain donation / autopsy
My dad is in the final stages of Alzheimer’s. My siblings and I would like to get an autopsy done to learn more about his specific diagnosis. The Brain Donor Project rejected us. Have others gotten private autopsies? We’ve been quoted 4000$ for a private autopsy which seems worth it for closure/to see if there is a higher…
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How to cope with loss of grandmother.
My 93 yr old grandmother passed away on 6/10/23. She lived with us for around 7yrs and was in hospice care for 6 months before she was moved into a facility right after Easter. Her dementia had gotten worse and she needed 24hr care, which we couldnt provide any longer. I know what we had to do what was in her best interest…
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How do I make the decision to move my Mom?
We just moved my 82yr. old Mother in with my husband and I knowing that she has stage 4-5 dementia. I should have done my research prior to the move because I am just beside myself and have started having small emotional breakdowns myself. She has been here for only 2.5 months but I may have taken on more than I can…
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Swallowing Problems/ Late Stage ALZ
I have a feeding tip for those caring for someone with late stage Alzheimers that have swallowing problems. This strategy helped my mom tremendously. I'm thinking it might not work for everyone, but it is worth trying and I hope it could benefit some of you. My mom was diagnosed with Alzheimer's August 2020. The disease…