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A rare positive report :)
We successfully took my mom on a mini-vacation to the beach this weekend! I certainly had my concerns about taking her out of her AL for that long and bringing her into a completely unfamiliar environment, but overall she did GREAT, and I'm so glad we were able to do this. She definitely had times of great confusion and…
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Hoping to Start an Ongoing Conversation Space for Those Living with Dementia
Hi everyone ,My name is Kerry. I’m living with dementia, and like many of you, I’m navigating a lot of feelings and emotions. I’ve reached a point where I’m really craving connection with others who understand this from the inside, not as caregivers, not as observers, but as people living it every day. I’ve noticed that…
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Long Distance Care for Parent with Dementia
I am struggling trying to keep up with my step-mother, who has been diagnosed with Dementia. In 2024 she went in for knee surgery and had a cardiac arrest. Since then it has been downhill. I feel like I'm living in the movie "Groundhog Day" living the same day over and over. I have three siblings who live closer to her,…
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From mci to alz
Was recently diagnosed as mci and dr put me on memantime. Further blood tests confirmed alz but I am still on memantime. Should I be getting infusions or is memantime enough???? Trying to get into a special clinic but not accepted yet.
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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I am new to all of this.
My wife has been suffering short term memory loss for a few years and though I tried she would not see a doctor. Earlier this month she had a massive delusion. Forgot who I was after 49 years of marriage or that we have lived in our home for over 20 years. We went to the ER and I am still waiting to get a neurologist…
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How much sleeping is "too much"
Hi, new to this community and have many questions, but the one that's top of mind today is that my DH, who was diagnosed with VD but also elevated levels of Alzheimer's last summer, seems to be slipping away faster all the time. He's now very weak and wants to sleep almost all the time. We've been letting him eat breakfast…
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Options for Mother with Dementia after ALF
After 2 years in ALF my mother is in need of a higher level of care - primary because of her needs at night like toileting and her inability to call for assistance when she needs it. ALF is giving me some time to decide what I will do, but I am having a hard time with the options I am considering - and would love different…
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What can I expect for my Mom
Hello All, My Mom was diagnosed with Alzheimer's a few years back and has been getting worse. She was just diagnosed with lung cancer and we are looking into treatments/options to take. So my dilemma is, what is quality of life in the up coming few years? Any thoughts on how long till she is unable to care for herself, or…
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Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
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Help for calming
In addition to the donezpril and memantine, has anyone added any cbd products for sleep and or calming? I would also like to recommend the digital publication " What About Me" that I found on womanandwell.com for wives dealing with husbands with dementia, but would also pertain to husbands with wives living with dementia.
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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Caregiving Song
When your wife is diagnosed with Alzheimer's and you dedicate your life staying with her at a nursing home. This song is written for both of us. Being a caregiver is not easy, this is my way of coping with the everyday stress. Hopefully, you enjoy the song as much as I did making it.…
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I'm back in this group again
My dad lived with Alzheimer’s for years before he passed six years ago, and it was heartbreaking to watch. This community helped me through that time. I recently lost my mom as well—she didn’t have Alzheimer’s, but caregiving and life without my dad took a heavy toll on her in her final years. Now my best friend, in her…
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Having trouble with Mom
Hi, I'm new to the Alzheimer's world, as my mom was just diagnosed. The doctor wants her to have a brain MRI and she is giving me a hard time about scheduling the appointment. My dad and I took my mom to the doctor last week to be diagnosed and at that time, both of my parents were fine with the idea of the MRI. Now my mom…
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Tips for taking care mom has alzheimer
Hello, my name is Cindy. I and my sister live with my mom who is 84 years old and has alzheimer over 14 years now. Her behavior is changing every moment especially at night time. She was happy, and talking and certainly turned strange to us like saying we steal her stuff. She made up stories that never happened. We have to…
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NEWLY DIAGNOSED VASCULAR DEMENTIA
Hi! I'm Matt, 21, 4th yr CpE student. My mother was diagnosed with Vascular Dementia literally a few minutes ago. During the doctor's assessment, I can see the massive decline in her cognitive function, which saddens me extremely. It breaks my heart to see my mother suffer from this. She is a pre-school teacher and she…
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We can't persuade her to take a shower anymore.
Hello, My 85-year-old mother-in-law with Alzheimer's lives with me and my husband. He works full-time and I am at home due to disability. We used to be able to remind her to take a shower every few days and she would grumble a little and do it. Then she started resisting more strongly. We tried asking her if there was…
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Focus on the Now, the Positive, the Moments
My name is Vickie B. I turn 50 in 4 days, and I've been living with younger onset Alzheimer’s since 2021. Have I cried? Yep- a few short times. BUT I have made it my mission to not stay/live in my sadness. I choose daily to see and find beauty and joy around me. And if I have a bad day, I give myself some grace. Honestly,…
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Finding his way around the kitchen
My parents live together in an independent living apartment that is part of a community that has multiple levels of care. My brother lives near by and helps them with urgent issues. I live about 2.5 hrs away. My father has been recently diagnosed with ALZ and is becoming stressed because he's having trouble finding things…
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Continuous Bathroom Visits
So, I'd like to find out why my Mom has to continously use the restroom. She will ask to go several times before we get ready to leave somewhere and she does the same thing constantly when we're just at home. I've heard that it's anxiety/fear or boredom and sitting on the toilet is "comforting" to her. I don't believe she…
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Memantine experiences
I'm a caregiver for my dad, who has been on Donepezil for a while now for his Alzheimer's. He is doing well for now, but it is only a matter of time before the doctor prescribes him Memantine, too, if I understood correctly. I've seen side effects, dizziness, headaches, confusion, etc. But I'm wondering, what are some…
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Mom lives in Independent Living Fac, needs to move to AL, hard 'No!'
I am new to this forum. I have found many discussions relevant to my situation. I received a lot of good information from these discussions, but I figured I'd post my question on the off chance some more information may come to light. I currently care for my Mother with the help of my wife. My mom moved from out of state…
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Anyone taking N-acetylcysteine?
Our neighbor was talking with us about n-acetylcysteine benefits for Alzheimer’s. Is anyone taking it and seeing improvements? I’m looking for a reputable product in case my wife decides to take it.
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Service dogs for people with Alzheimer’s article
https://www.nextavenue.org/canine-companions/ https://dementiaminds.org/resources/ I came across this article on the website for the National Council of Dementia Minds My wife has an interview in June with a service dog organization and we’re hoping to get one soon. We’ve been volunteering with the organization and having…
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Dementia Toolkit
although the following link is specific to SC - it contains a lot of useful info that would apply to all https://aging.sc.gov/sites/default/files/documents/DementiaCareSpecialist/Dementia%20Toolkit%202025.pdf
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Getting up and disorientated at night
My 94 year old mother was diagnosed with dementia a few years ago. Recently she has been starting to exhibit new symptoms at night and I would appreciate advice from anyone in the community would could help. She gets up in the night, strips the sheets off her bed and starts to pack her clothes as if she is about to go…
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Hello Everyone - just diagnosed with AD
I am a retired engineer, 71 years old, born and raised in Ponce, Puerto Rico, but I have been living on the mainland since 1984. I am a widower living alone and was recently diagnosed with very early stage AD based on the results of my PET Scan, even though my PTAU 217 levels showed normal. I do not have the PTOE 4 (is…