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What does Ptau 712 mean for Lecanemab?
Hello. My mother was diagnosed earlier this year with MCI and we just got to a neurologist last week. Her Ptau 712 came out at 1.7. I am having a hard time understanding this except that it is an "abnormal" score — but from what I can tell online it seems quite high. Can anyone offer any perspective here? Do people stop…
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Warning: Avoid Brain Injury in mAb Clinical Trials.
In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted into the study in January. After taking 5 doses, one injection each week for five weeks, I started getting side effects. I…
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CBD to help manage symptoms
Any one have experience with CBD to help manage anxiety and agitation in your loved ones?
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Donepezil
My mom was diagnosed with dementia over a year ago and has been on donepezil since. I would like any info people could give me with they're experience with the drug. My mom takes hers at night but I notice some take it in the morning, any suggestions on which works best? Thank you in advance.
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New, Scared and Confused...
I'm obviously a newbie to this site, as well as the amazing and mysterious world of Alzheimer’s. I began seeing a neurologist last summer because of an inability to think as clearly as I once did. Memory didn't seem like much of a problem since as far as I can remember, I always had a bad memory. Other issues that I…
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Donepezil
Unfortunately I have not seen any improvement in my mom‘s short term memory with this medication. Only the side effects like nightmares and things like that. I’m wondering if anybody has experience with their loved one getting off of this medication and if there is any side effects. I read one article that said if someone…
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Seroquel too strong?
The doc recently prescribed it. My DW is small framed, which is perhaps a factor. But the first day she took it at breakfast - wham! - she fell asleep 2 hours later, woke up for 2 hours, then out (hard) again. I called the physician, said cut the pill in half tomorrow. I will try it but am still worried this will be too…
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Lecanemab
Has anyone started or familiar with the latest drug approved last July 2023 - Lecanemab -- What would be the benefit?
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Tips on Water Intake
Hi everyone! Happy (almost) fall :) I'm writing to ask if anyone has had any experience with their loved one not remembering to drink water. My mom has recently started on Lexapro to deal with her anxiety and depression, and I know from my own experience with Lexapro how dehydrating it is and therefore causes awful…
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Automated pill dispensers
hi. Does anyone know of a good automated pill dispenser? I was on the alzstore.com and I ordered an automated pill dispenser made by med ready and it doesn’t work. For some reason I thought this store was connected with the Alzheimer’s Association, even though it doesn’t say so, and it turns out the return policy is really…
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New controversy with Donanemab (marketed in the US as Kisunla)
Donanemab: Conflicts of interest found in FDA committee that approved new Alzheimer’s drug
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Doctor ordered MRI but she probably can't stay still. Is it worth it to try?
Hello, This is in Pennsylvania. My mother-in-law is 83, living with us, certainly has some kind of dementia, but we don't have a specific diagnosis. Her primary care doctor ordered an MRI to help us get a diagnosis. I told the doctor that MIL has a habit or tic of snorting and sniffling. It is almost constant. I am sure…
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Zunveyl new med on the horizon
I came across some info about this medication today. It just received FDA approval in July 2024 and is predicted to be on the market in early 2025. I'm very curious about it because my wife has been taking rivastigmine and has been having a horrible time with the nausea side effect. I also read this study that was posted…
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Seroquel too strong?
First time DW took it, she conked out (sleeping) just 2 hours afterward. Woke up for 2 hours, kinda spacey, then went down again. I called medical office to tell them. Was told cut the pill in half tomorrow. But I am still concerned — she is small-framed, which could be a factor. Prescribed b/c, although she's been…
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Medication Help
A few years ago before my mom had a confirmed diagnosis of ALZ, she was started on Lexapro 20mg, then namenda and aricept. She’s been in AL for 3 months. Geriatric Psych at the facility added on Wellbutrin 8 weeks ago bc of depression/apathy. 2 weeks ago she started Xanax .25mg 3/day bc of her aggression/anxiety. She…
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Medication Difficulties
Hello everyone. I can’t say I’m very new here, but this is my first post. I’ve been (what my husband would say is “lurking”) in the background - reading and learning from all of you who have travelled this path before me. Thank you so much for your comments and candor, it’s already made my life better by knowing you’re…
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Rivastigmine impact on bundle branch blockage
Yesterday my DH's doctor evaluated three successive EKG's (done in under 18 months) that indicate my husband has developed blockage in the conductivity of the heart in all but one branch. Dr. says it is likely due to rivastigmine. Dr. still believes the usefulness of the drug outweighs the risks. Does anyone have any…
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antipsychotic meds and dementia
Others are likely very aware of this, but I just saw an article on a new study from the United Kingdom about adverse reactions in people with dementia from antipsychotic drugs. If anyone is interested, the article I saw was in "Worst Pills, Best Pills News" June 2024 issue. Perhaps someone more tech savvy than I can post a…
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Calming meds for anxiety?
Hi, when music, diversion, soft textures, fresh air•••golf kart ride etc won't comfort Mom's agitation, sundowners type intense anxiety. Are there any prescribed medications that work well in anyone out there's situations Thank you
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Incontenence
My 96 year old father refuses to wear pull-ups but he can't make it to the bathroom fast enough with his walker. He wets himself all day. And he makes a mess when using the bathroom for #2. Also, he refuses to bathe or let anyone wash him. He's very defiant. We were thinking of giving him an anxiety medication to help him…
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Ending Medication
My mom was taking 5mg of donepezil- a very small dose. 10mg gave her terrible hallucinations and 5 mg just gave her various stages of bad dreams. (That's why she was in 5mg) She absolutely hates taking medicine and I hated her taking it unnecessarily. The doctor, actually 2 doctors, suggested that 5 mg probably wasn't…
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Administering my moms meds by a non-medical caregiver
My mom has been dealing with Alzheimer’s/Dementia for the last 6 years. She is now end stage and has 24/7 care. I have her medication made up in little pouches and the caregiver were crushing and mixing with apple sauce. I just learned that the agency does not allow the caregivers to crush or mix with food. I do t know…
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Safe Decongestants/pain relievers
New guy here. My dad and I have been taking care of my mom for about six years now. She has dementia, not Alzheimers specifically. I'm looking for recommendations for over the counter meds that are safe for her to take for runny noses and aches and pains. Google has given me unhelpful and contradictory info. Any help…
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Aricept
My husband has just started Aricept , it is 10 mg. at night.he was recently diagnosed with Parkinsonism/Lewy Body dementia. Have you had good results? Any bad side effects..the neurologist did say it could cause nausea or stomach issues. This is all new ...learning as we go.
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From Vox: A new era for Alzheimer’s treatment begins
Another perspective on Leqembi.
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antipsychotic meds question (Seroquel and Zyprexa)
Advice requested: My dad is entering 7th week of Memory Care. In the last two weeks he has had 3 physical outbursts that have threatened his roommate and caregivers. Because of the last one, he was taken to ER and given Seroquel (without our permission). The facility took him back the next day (yesterday) after one dose;…
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Getting mom with dementia to a doctor; what other options might we have?
My 69-year old mom has been increasingly showing signs of dementia for the last decade. She never saw a doctor for this (did not even discuss it with her PCP), until the situation exploded: about 18 months ago, she was basically having psychotic episodes in the middle of the night. It got so bad, she ended up in the…
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Calming meds for mom since recent transfer to Board & Care y care
We just transferred my mom from a really good, 80 person memory care to a 6 resident Board & Care for both for financial reasons (it was very expensive) and because we thought she'd get better one on one. She's 95 and has moderate vascular dementia, no short term memory, recognizes her loved ones, can hold an ok…