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New Here - 33 looking for support for mother diagnosed with AD
I am not normally one to reach out for support in this format but I feel very isolated in my mother’s recent Alzheimer’s diagnosis. We have seen her condition worsen over the last few years and last year there was a huge red flag for us when she couldn’t remember opening gifts at Christmas. I was 2 weeks postpartum and…
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Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
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I need advice or someone to talk to. How did/do you manage what helps?
Earlier this year my father who is a 64 year old veteran was diagnosed with early onset dementia. It’s been very difficult for me. I feel so alone and kinda almost ready to give up but I know I can’t do that. We have been in the hospital for over a month. waiting for a memory care unit at the va to let us know when he can…
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Conflicting Neuroquant MRI and Petscan
I am have started Kisunla infusions, and after my first treatment I had a “ neuroquant MRI” in order to detect if there has been any brain hemorrhages due to the medication. The results fortunately came back negative and the report also mentioned that I do not have brain atrophy. Other MRIs have said I have more brain…
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Newly diagnosed with early onset Alzheimer's I'm 59
Im single and work fulltime. I live paycheck to paycheck. I'm in early/mild , kinda crossing over. I have no idea what to expect. Or any kind of timeline. I have debts and need some direction. There is no long/short term disability where I work. I expect a 2 week severance when they find out. How long will i be able to…
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Just got pet results
I’m freaking out because it appears to me that it’s saying I have ad. Now to wait for my appointment to go over my bloodwork and pet results in two weeks. Unfortunately my family has a strong history of early onset dementia, but still, 42 is the youngest in my family if it’s true. I’m hoping doing some research will help…
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Mother with AD has Anxiety
I am new here. My mother was just diagnosed with Alzheimer's in August; but I think she has been struggling for longer than that. She is on Aricept and says that it helps her feel less in a fog. She is still living alone; but I am doing her bills for her. However, she is worrying about EVERYTHING. She makes lists in her…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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New research on the timeline of Alzheimer's
Research is being called "ground breaking" Alzheimer’s May Progress in Two Phases, Transforming Understanding of Brain Damage - CogniFit Blog: Brain Health News
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What Do I Need to Learn?
Hello all, Thank you for your collective wisdom. I've been reading posts and learning. My DH was diagnosed with ALZ a month ago. We're early in the process with MCI right now. He works, drives, cooks, etc. (but is slowing down cognitively and short term memory is poor). I'm taking some time off of work to get some things…
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New person, first post - Trying to be the rock
To say I'm frustrated would be an understatement - my dad was finally diagnosed with dementia/alzheimers along with anxiety, depression, and OCD/fixation. We could sort of see signs of something not being quite right with him a year or so ago and I had to push my mom to get testing done. The first specialist they were…
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It Begins
After my fathers inital diagnosis little while ago without a tear; today it hit me hard. A distant friend that my parents visited (with prior warning of the situation), spoke of how different my dad was generally and how in ~5yrs since last seeing both my parents the changes in my dad. Denial - for the longest time we've…
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New diagnosis, new to group. Having a rough ugly cry day.
I have been very emotional, ugly crying today. Today is hard, others are not- those days I am "numb". I am 41, married for 19 years, I have 5 kids ages 8, 10, 17, 18, 20. I have tested positive for PSEN1 which is one of 3 variants known to cause young onset Alzheimer’s. I have had cognitive symptoms since August 2023. I…
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My Mom and Lifelong best friend Dx with Alzheimer’s
My mom was recently diagnosed with Alzheimer’s. She has been my best friend and person my whole life. This disease has changed her personality, morals and values. I am only 50 and I miss my Mom and my person every day. I am so angry at her for having this disease, which I recognize is ridiculous. But I’m already grieving…
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Recent Diagnosis
I was just diagnosed yesterday with early stage Alzheimer’s. I am overwhelmed with fear. I go from being hopeful to having very little hope at all. I’m afraid of who I will become and what my illness will do to my partner. I came here for emotional support and guidance regarding how to move forward.
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Support for LGBT spouses
hello, my wife has recently been diagnosed with EO. Anyone know of any support sites for LGBT spouses? Thank you.
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Recent dementia diagnosis
Hi all, I am a young nearly 67 yr old female. Last week I was diagnosed with dementia. Both of my parents passed from the diseasse -my mom at age 84 passed December of last year and my dad passed one week to the day of my diagnosis, July 30, 2024. I was my mom's full time caregiver while she lived with me the last 4 years…
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Uncomfortable question
My DH watched his parents both go through Alzheimer's/Dementia and it terrified him. He always said "if I ever get like that please let me take my life". He was serious. Now he is at the beginning of this awful disease and on numerous occasions he has said to please let him take his life and "please don't let me live like…
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Alternatives to Driving
Hi Everyone, this is my first post here. I read a lot of the past conversations on driving, but have what I think is a twist on the question. My best friend's husband was just diagnosed with Early-Onset Alzheimers in his 50's, and like many is having problems accepting that he can no longer drive. My question is about the…
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Delusions
My LO when he gets angry with me he accuses me of having affairs. Today I caught him sneaking food to our overweight dog in which I have had him on a diet for the past couple of months. I got angry with my LO for doing so. I tried to apologize for getting angry and told him i don't like being lied to. When he gets angry…
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Lumbar Puncture?
Good evening everyone. My mom was diagnosed today with Alzheimer's. But she doesn't fit the diagnosis 100%. The part of her brain that should be damaged/shrinking seems to be fine on the MRI. So the doctor suggested a lumbar puncture to 100% confirm the diagnosis. I know the procedure is painful and causes issues, so I'm…
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Grandmothers recent diagnosis - guidance
Hi everyone! My grandmother, and very best friend, was formally diagnosed with Alzheimer’s yesterday. We knew this was coming, as her mother had it and she began showing signs about a year ago. However, I feel so completely lost and heartbroken. I was hoping for a bit of guidance on how to handle the utter darkness I feel.…
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DH is still very capable, but I am focusing on the diagnosis which frustrates him
My DH and I have been to a few doctor appointments and have been told he has some form of dementia. We're waiting on a couple more tests (hearing & sleep) before a follow-up appointment with the geriatric dementia specialist. DH says he just wants to live life and enjoy it as best he can. He admits he has memory issues -…
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Employment
Does anyone have any suggestions for employment for my husband who has early onset of dementia/mild cognitive impairment? He recently retired from teaching and still would like to do some type of work. Technology is not a strength of his. Does anyone have a loved one that is working with early onset? Any information would…
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Caring for a spouse AND a parent
Ten months after we moved to our retirement home, which is five hours from friends and even farther from family, DH was diagnosed with AD (early stage, and possible candidate for new treatment - we'll know more next month). I am also the sole caregiver for my 93yo mother, who has moderate, age-related dementia, but is…
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Never Dealt With Alzheimer's Before and Need Some Guidance
Hello. I have never been close to someone who had Alzheimer's before (I'm 54) and I need some guidance, please. My father (Jamie) passed away in 1988 at age 50 from brain cancer. His best friend, Charlie, has been close to me ever since. He gave me away at our wedding. He's now 87 and has been in good health his entire…
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Help! To move or not to move a parent diagnosed with dememtia
Mom was diagnosed in January 2024. She mechanically very functionally. Sister and I can’t agree about moving her from where she has lived for 24 years to where sister and I live. Mom started showing signs of memory lose two years prior to diagnosis. How does one determine if moving is right or not as I have heard horror…