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My friend just got diagnosed
My last post disappeared, so I'll try to keep this one brief. Betty is a sweet friend of mine. An ex-school teacher, she is very smart, very kind and upbeat. I've been providing paid "companion care" for her this past year or so, 2 to 4 days a week. Her memory has been getting progressively worse for the last year or two,…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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New Here! Mum diagnosed 6 weeks ago. Struggling with evening sundowning/looping—any advice?
Hi everyone, This is my first post. Recently, my mum was diagnosed with early-to-mid-stage Alzheimer's. She is 67. This has hit our family pretty hard, especially my dad, who has taken on the mantle of primary caregiver. I still live at home, so I am exposed to the daily realities of the condition. Lately, she has been…
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DW beginning Lecanemab in about 2 weeks
My DW has mild symptoms and will begin infusions soon. We are both anxious and would appreciate any information from others who may be able to tell us about their experiences with this treatment or where we may be able to find personal stories. Many thanks!
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What to do… Help!
Hello! I have been on here for about a month or so now and have found everyone so very helpful. I have some thoughts I’d like to share and hopefully someone can give some insight into whether or not it would help my situation. So my dad has VD, or so we have been told. He is in a NH that he hates and he “WANTS TO GO HOME”.…
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Switching from daughter to caregiver… resources, advice, anything?
As the title states, I’m wanting to know the wheres, whats, whens, whos, hows, and whys do you utilize the most? Not getting much help from my dad’s (newly diagnosed early onset Alzheimer’s) doctor. When I asked for some recommendations (medicine management, in home care, support groups, etc.), all I got was checkout the…
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My Husband Just Diagnosed with Early Onset Alzheimer's
Hello everyone, this is my first message, and I can use any advice you can spare. My 59-year-old husband was just diagnosed with EOA. We're both devastated. He was told he had ADHD a few years ago, plus he wears hearing aids (he's lost 90% of hearing due to being a former construction worker) so we thought his…
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Dad...
My Dad was a narcissistic man my entire life so far and now he is in the nursing home for PT from a back surgery he had at the end of April. Since his surgery, we have discovered he has had multiple strokes, he has been delirious and he has vascular dementia. The surgery took 8 hours and with all of his other issues such…
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P Tau 217 Score Variability
I had a P Tau 217 test score of .2 in November 2025. Anything over .18 was considered positive. I then had a PET scan with a centiloid score of 46. In late May 2026 I participated in a research trial with Care Access and received a P Tau 217 score of .47, with anything over .18 considered positive. I am very concerned…
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Stressed Rambling Because I'm new to This
Hi everyone, my mother was diagnosed with early onset Alzheimer's and I started living with her about a month ago because she requires full time care. She was able to hide her mental decline for a long time because she has always been very independent, and we didn't have the best relationship. She is already in stage 5 or…
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Diagnosis restarts, conflicting medpro views, I'm burning out
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…
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Kisunla Infusions
Hi everyone. I’m new here. My wife and I are trying to get my mother in law moved from LA out to PHX but it seems impossible to re-establish care in a new state while trying to create as smooth of a transition as possible. Hoping to get her started on Kisunla asap but insurance just denied it and now it feels like we are…
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Newly diagnosed father with Alzheimer's
Hi all - so glad I found this site. My dad is 66 years old, and I am 27. He is still living on his own. We only recently got the diagnosis (within the past two weeks), and he is in the mild/moderate range of dementia. I live two states away, but my brother is within an hour. I am having a hard time figuring out what to do,…
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First post, DW with EOAD
Hello everyone, this is my first post. My DW was diagnosed with EOAD in the spring of 2025 at the age of 59. Symptoms started at least 5 years prior, but we really saw changes in late 2024. We went through a whirlwind of changes last year getting a diagnosis, retiring, ST & LT disability, SSDI approval, selling cars,…
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New here
Hi All, I’m 59 and my DH is 63. He has just been diagnosed with Alzheimer’s/Dementia. He is moderate to severe. I knew something was wrong and tried to get him to seek help earlier, but he refused. He isn’t accepting the diagnosis, he just says he’s going to die. We have been married for 31 years and have had a wonderful…
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Brand new and Mom doesn't want to admit dementia.
I moved in with my Mom a year ago and have been taking care of the finances and keeping things going. Mom is 82 and her Dr. diagnosed her with Alzheimer's. She won't talk about it and is now refusing to see the Dr. because he won't listen to her. I think she is fine 90% of the time but is now forgetting the names of family…
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Recent Diagnosis
I am really glad a community like this exists. I recently moved back to live with my family since my mom's dementia diagnosis earlier this year. I was working and living a few states away and am a few years out of college. It has been a lot of big changes for my family recently and I am never sure I am making the right…
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How fast does Zoloft work?
My mom is 83yo, in mild to moderate Alzheimers. I don't know which stage exactly, just that she has plaque on several parts of her brain. The neurologist says her stage is dependent on her behavior and abilities. She's been taking donepezil for about 2 months now. Took 6 weeks to get her to 10mg. She has been getting…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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Mom Might Get Evicted from Memory Care
This may sound harsh, but it's our reality right now. We moved our 84-y.o. mother with dementia into a lovely memory care facility last week. The dementia symptoms advanced quickly - she was driving and socializing mid-February, and a month later she's getting lost in her own neighborhood, forgetting where she is, and…
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Working Through This New Diagnosis
I am now 57 and was diagnosed officially earlier this year. The doctors had an idea a few years ago, but after suffering the first Covid in 2020, they were unable to tell what cognitive impairment from the virus compared to dementia due to Alzheimer's disease. I had a 3-hour cognitive eval, the doctors agreed to wait to…
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Mom Diagnosed with Early Onset at 60
Hello, I am new here and looking for advice. My mom had been experiencing some forgetfulness the past couple years. She lost her job about a year ago because she couldn't handle the tasks required of her. My brother and I tried to get her to go to the doctor multiple times for diagnosis but she refused until… she was a…
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PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
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Having trouble with Mom
Hi, I'm new to the Alzheimer's world, as my mom was just diagnosed. The doctor wants her to have a brain MRI and she is giving me a hard time about scheduling the appointment. My dad and I took my mom to the doctor last week to be diagnosed and at that time, both of my parents were fine with the idea of the MRI. Now my mom…
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New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
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Looking to connect in or near Houston Tx area
Hello friends- I am newly diagnosed Early Onset. I'm looking for support groups, counselors or therapists/social workers who can offer support in this stage. I am in my early 50s, still working, kids in college, mortgage, mom with Alz. I need help and a place to be able to talk about what this means for my life. Like,…
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New to this and in need of guidance
Hi. Just signed up. My first time on here. Mom was just diagnosed with Alzheimers. I am not sure what my steps are to get her everything she needs and where I can obtain from a financial point and medical care (medicaid??, walker, assistance) She lives alone and is in early to mid stage. Any suggestions? We live in NY. Are…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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Treatment Options and Initial Questions
My sister was diagnosed today and she is 66. She is already on Donepezil 5mg. I see discussion around infusions. Can someone enlighten me on this? Also wondering what some good initial questions are to ask the doctor when we have our first in person visit.