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Difficulty finding ltc for mom with openings in my area.
Hello. New to the discussion board. I have been reading lots of post and so happy to have found a tribe. My mom lives with me and my husband. She was diagnosed with alz and lbd a year ago. It's heartbreaking, frustrating, difficult, and exhausting. I'm pretty much on my own caring for her as my brother passed away several…
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Mom's REPETITIVE Calling on Cell Phone - HELP & SUGGESTIONS needed
Mom is calling siblings, extended family and friends a huge amount of times a day asking for assistance in moving her back to her home from care center. An example...my sister received 30 calls on Tuesday and by early afternoon yesterday had 15. My brother received 15 calls yesterday and his wife as well. Care staff…
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NEW HERE! Need advice for POA “overrides”
Hello all! I will try to keep this brief. My mom was taken out of one nursing home without my consent back in 2021, and is now in a rehabilitation center as of April ‘26. I have POA since June 2020, but somehow non-family members allegedly have POA for 2026. I am my moms only blood family here and I need advice on how to…
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new: just venting
Hi all, This is my first post. Just sharing. Dad (83) was diagnosed with dementia in 2024. At the time of diagnosis, he was already in hospital due to having a TIA. The doctor cautioned he had probably had dementia "for a while" which led to a rather intense conversation and mom (73) running out of the room. When dad was…
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So unsure what I’m supposed to do to help. It’s MCI right now, but what exactly does that mean?
My husband is 70 and was recently diagnosed with “MCI due to Alzheimer’s” after going to the doctor after experiencing memory issues. He had an MRI, then PET scan, which led the neurologist to his diagnosis and starting Aricept. (This is our first week on it.) (The dr also suggested he think about infusion therapy, which…
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Help
I need some advice regarding my parents and how I can best support them. My mom has Alzheimer’s, and as a result, my dad has had to pick up much of the slack around the house. He is 92 and I can see that he is wearing out. I have offered to help as much as I can by grocery shopping, preparing meals, running errands, and…
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Partner not handling my deterioration well
I'm in Early Stage Alzheimer's and receiving Leqembi infusions. My friends say I don't exhibit much in the way of symptoms. My partner is not one to discuss the situation other than for passing on medical information and does not discuss feelings. He notices every slip and gets angry when I forget, make a mistake, get…
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shaky departure on a low staff day for dad's memory care plus recent "unwitnessed" injuries
Hello all, Dad really wanted to come with me today as I was leaving. He hasn't done that for a while, so I was out of practice. It was also a very low staff day today. For instance, I had to ring the doorbell three times (with long wait periods in between) for someone to come let me in. So I know there's a pretty good…
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Struggling to find balance
Hi, dad lives with me and has moderate stage Alzheimer's. Despite lots of other health concerns, his progression has been very slow- I've been giving him care (first IADLs like paying bills, now progressing to physical, Hands-On hygiene and such) for a little more than a decade. In addition to this stressor, last summer I…
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Long Distance Care for Parent with Dementia
I am struggling trying to keep up with my step-mother, who has been diagnosed with Dementia. In 2024 she went in for knee surgery and had a cardiac arrest. Since then it has been downhill. I feel like I'm living in the movie "Groundhog Day" living the same day over and over. I have three siblings who live closer to her,…
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Struggling
I posted back in April about my mother and struggling then. My Dad had also had hip surgery and everything spiraled out of control. Anyway things did calm down once my Dad recovered and was able to better manage the concept of working with my mother instead of against her Alzheimer's. However things have of course…
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Moving my mom in
My mom was starting to show signs of Alzheimer’s but she refused to admit it. I was doing all the work when she needed help or forgot things and finally had to step back for a few months so my brothers would step up. Now they see how bad it is and after a 2 am phone call they see she should not be living alone. The only…
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Suggestions about what to ask of a home health aid?
We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…
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Compassion Fatigue
Compassion fatigue TED Talk [https://youtu.be/ZsaorjIo1Yc?si=L07hszirRcCX-mXP]
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Anger and depression
My father has been declining rapidly mentally. His depression hasn't been able to be controlled with meds and he keeps getting meaner. He's in denial but sometimes I think what I say actually makes it to his thinking process sometimes but is often turned around on me and it's my fault or something I did or didn't do. I'm…
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Stress, guilt, confusion
My oldest sister told me she was diagnosed with Alzheimer's a month ago. I know she's had mild memory loss for years, but she hid it well. It still seems mild to me, but I've never known anyone with this disease. She calls me to tell me that I never call her, although we speak frequently. When the conversation starts, she…
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Another Surgery?!?
Today dad goes in for surgery. He has severely unmanaged type 2 diabetes and his last surgery advanced his dementia so much that he has gone from stage 3 to stage 5 quickly. He is having yet another digit removed from his foot and the hospital is acting like it is no big deal… I feel it is a bigger deal than they are…
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Dad...
My Dad was a narcissistic man my entire life so far and now he is in the nursing home for PT from a back surgery he had at the end of April. Since his surgery, we have discovered he has had multiple strokes, he has been delirious and he has vascular dementia. The surgery took 8 hours and with all of his other issues such…
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Regaining Sense of Self
Hi, all I found the video below just yesterday; and in my case it was quite timely. The video is a little over 10 minutes, but I think it is worthwhile for those of you who feel like you’ve lost who you used to be through all this physical, emotional and mental stress of caregiving. And if you feel like sharing with others…
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Forgot who I was dealing with :(
Just a vent… I made the tragic error today of forgetting that my mom is not really the same person anymore, the mom I used to be able to have meaningful talks and heart-to-hearts with. … We were having such a nice visit today. I took her my old baby book and we had such a fun time reading it together. Things took a turn…
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Stressed Rambling Because I'm new to This
Hi everyone, my mother was diagnosed with early onset Alzheimer's and I started living with her about a month ago because she requires full time care. She was able to hide her mental decline for a long time because she has always been very independent, and we didn't have the best relationship. She is already in stage 5 or…
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New here...
Only child caring for 90 YO Mom. Started with neuro last year, and he diagnosed dementia. Didn't really tell much info. She'd had several episodes of people spying on her, trying to break in, etc. We put up cameras, etc and that seemed to stop that kind of thing. That let us know there were things indicative of something…
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From the NYT: The Pain of Caring for a Parent Who Abused You
Gifted link. C&P into your browser. https://www.nytimes.com/2026/06/15/magazine/elder-care-parent-abuse.html?unlocked_article_code=1.qVA.g6x3.dCf7rxwmWlbP&smid=url-share
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CARE AT HOME UNSUSTAINABLE
My DW’s psychiatrist and non-residential memory care activities director have recommended residency, telling me that my caring for her at home is “unsustainable” and that I’m harming myself by trying to be her sole caregiver. What form could/will that “harm” take? What could happen to me? I’m stressed, sure, but feel that…
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Navigating mom's move to MC from six hours away
Hello, I'm really glad I found this resource and hope I can get some support from online. Brief history: I live about 6 hours from my family. About 10 years ago my mom had a TIA and was fine until about March last year, when she fell and hit her head--either another stroke or balance problems; no idea. My dad covered for…
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questions
My grandma has dementia and needs help doing things. She has been wanting moved every 5 mins to her chair and bed. She keep saying she don’t no what’s wrong and can’t see her dog in front of her everything is on repeat for her. How do I confront her or help her? Trying to not get upset but it’s hard
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Guilt Trips
I've always been susceptible to my mom's guilt trips, which is something I've been exploring with my therapist. But it's especially hard for me to brush them off now, because I feel responsible for moving her into AL near me, and boy does she like to complain about it! The bed is uncomfortable, the vent in the bathroom is…
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Wants me near always
My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…
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I needed an outlet to rant sorry I rambled
I am 25 and I quit my job about a year ago to help my parents take care of my grandmother with Alzheimer's. She lives with my parents but I do not live with them. I take care of my grandmother during the day and anytime my parents need help on the weekends, which isn't too much. Lately she's become very combative and…
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Need emotional support
Hi everyone, I'm caring for my aunt who raised me when I was a child. She has early-stage Alzheimer’s and is currently living alone. Her son has been out of contact with the family for about 10 years, and we haven’t been able to find him. She misses him deeply and talks about him every day. My aunt has memory loss. Because…