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Building diet resources after my father's early-onset diagnosis - seeking your experiences
Hello everyone, My father was diagnosed with early-onset Alzheimer's earlier this year, and through our journey, we've found it challenging to find good dietary resources and support. I'm working on building an online resource to help others facing similar challenges. Before building it, I'd really value hearing about your…
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Support group
My 76 year old wife was diagnosed in September with moderate Alzheimer's just 10 months after an initial MCI diagnosis. Luckily I have lots of local family support. I've just registered for an in-person support group. What can I expect from the meeting?
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Respite care services Denver, CO?
Hi- new to this space. My mother was recently diagnosed with beginning stage Alzheimer's and capgras. My father is the primary care partner at the moment and he needs respite. Does anyone know of an assisted living facility in the area that will do short term respite care? Thanks!
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I am a caregiver for my mother and brother I also have Alzheimer's
I took care of my Mother, Brother and myself . At time I was in a stage 2 of Alzheimer's My mother recently died , and I have my brother still to care for though it is getting harder and harder. As I am in stage 3 .I would like to see if I am eligible for trial but I have not heard any thing yet .Or perhaps I got lost in…
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Doctor ordered MRI but she probably can't stay still. Is it worth it to try?
Hello, This is in Pennsylvania. My mother-in-law is 83, living with us, certainly has some kind of dementia, but we don't have a specific diagnosis. Her primary care doctor ordered an MRI to help us get a diagnosis. I told the doctor that MIL has a habit or tic of snorting and sniffling. It is almost constant. I am sure…
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Support for LGBT spouses
hello, my wife has recently been diagnosed with EO. Anyone know of any support sites for LGBT spouses? Thank you.
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FIRST TIME PARTICIPANT: My AAIC code did not work.
All last week I tried to log into ALZ.org online to view sessions, but the staff wasn’t answering emails during the conference and is now in vacation until the 12th of August. Can anyone explain to me how to use the code I was provided to log in online? I learned today from a YouTube presentation that the videos only…
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Early onset VD/Alzhiemer’s
Hi all, glad I found this community. I haven’t met anyone I can relate to about my situation and it would be nice to have someone to talk to that understands. I brought my mother to the hospital the day before her 59th birthday because she was barely able to walk, could only move one eye, stroke-like symptoms. When she…
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Recently Diagnosed MCI - Questions Posed
Invite your thoughts on my take on MCI diagnosis: having been diagnosed with MCI and experiencing what seems to be a downward progression, having researched pretty thoroughly it seems to me that the best thing(s) I can do are: (a) exercise daily; (b) stay engaged with others - i.e. don't isolate; (c) pursue natural…
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what does this mean & what are next steps
Hello, my LO is starting to exhibit physical challenges that I think are related to her ALZ diagnosis. I noticed maybe a month or 6 weeks ago that every now and then I would see that she would shake. So we bought plastic plates and cups for the house but she refuses to use them. Well this morning she couldn't manage a…
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New to this forum and wanting advice
Hi all. My dad has has been suffering from Parkinson’s Dementia about 5 years now. From my understanding (and anyone can correct me if you have better knowledge than me) it is a little bit different from regular Dementia in the sense that it won’t cause him to pass but his mind has deteriorated in much the same way. Over…
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Anyone have experience with BOTH parents at once?
My folks are 83 and 80, living together in their home. Dad was formally dx'd in 2022, after periodic hallucinations that there were 3 versions of my mother; he also had some aphasia but was sharp in other ways. Neurologist prescribed Aricept and it has helped a little. Mom has had mild cognitive decline for years, but it…
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good options for in home care
My mom is in the advanced stages of vascular dementia and needs full time care. My sister was living with her as her daily care giver but she is now in the hospital with cancer. I’m staying with mom now but need help caring for her so I have time to work and take care of my own home. Facilities are too expensive and she…
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Resources for Early-Onset Dementia
Hi all, I am looking on behalf of a friend for resources/support groups/etc for people with early-onset dementia, and caring for someone with early-onset dementia. She is located in the NYC area so anywhere within a 1 hour radius there or any online resources would be amazing. Looking for things like support groups,…
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Any Online Support Groups
Hello. I am the primary person in charge of my mom’s care (long distance). She’s in a nursing home. I live out of the country and am wondering if there are any online support groups for those who provide lingo-distance care.
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Develop a live support group for people living with dementia
I live in senior housing and have discovered that many folks here, like myself, are victims of early or moderate-stage dementia. Many don’t have relatives, so we are our only support. Does anyone have a manual on developing a live support group for people with dementia, or do you know of one? There are groups in this area…
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Children of parent's who have died from Alzheimer's
I have been the caregiver for my mother for the last 16 years. This August she died from the disease. I have not been able to find a single book or group about this and find it very frustrating. I thought since I grieved the loss of my mother for the 16 years that her death would be easier. Stupid I know....this is hard as…
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the first steps in the journey
Hi there, I'm caring for my MIL and while our family is aware and in agreement about our concerns with her possible diagnosis, I'm feeling stuck with how to put in place the necessary things like POA and medical POA. Mom has started becoming aggressive and is absolutely in denial about our concerns. I don't know how to get…
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Nanny Cam vs. Security Cam
Hi all, so the topic of installing cameras has come up many times as a means to keep an eye on my folks and the certified aides. Dad vocalized not wanting them on grounds of his privacy being invaded which I understand. However, it’s just getting more & more concerning with aides being lazy, falling asleep, and mom growing…
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Newly diagnosed DH
I'm not sure what resources are available to me. I know that there is so much that I need to do, but don't know where to begin.
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We Need Referral for Genetic Testing
@ Va Beach area willing to travel if telehealth not available. Waited 8 months to see Neurologist then he refuses to refer for (online) Genetic testing. Insurance not an issue. Says it "won't help him treat DH with MCI". Want answers not drugs. Dementia Panel logical next step. Should be OUR choice. Any ideas?? Need…
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Searching for a at home caregiver (6 hrs a week) for Denver
Hi-My mother has early ALZ and is presently being taking care of my by my competent brother and father, but they need support! I am a long-distance helper trying to find a great caregiver to come support 3-6 hrs a week but having trouble navigating the millions of options and would love a referral. Does anyone have someone…
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Skilled Nursing Facilities
Many of us could write a book! I have been a caregiver for my brother for the past year when he 'crashed' with Dementia. He's been diagnosed with Frontotemporal Dementia. He was repeating himself for years but 1500 miles between us made me quite in denial I guess of how he was progressing. In september '22 I flew to him…
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Mom doesn't want to be cared for
Hi, My name is Stephanie and live near Albuquerque, NM. I'm new to this forum and dealing with dementia in general. I recently brought my 81-year-old German mom to the US as she cannot care for herself anymore (middle? stage of Alzheimer/Dementia). Back in Germany, she was hospitalized twice in Aug and Oct 23 and the…
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Visiting my dear friend in Florence, AL35630 next week: How to adress the topic?
Hello, I am Kerstin from Germany. About 35 years ago I stayed with a family near Chicago for while to take care of their disabled son. I returned to Germany but we stayed in contact ever since, we are like family. The mother (age 76) has now been diagnosed with dementia, but is in denial. At present she lives at her…
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Feeling Overwhelmed
Hello, I am here to learn about this diagnosis and to get support in making choices in the best interest of my aunt as well as those of us who are caring for her. My aunt has been diagnosed with dementia with psychosis in November. She is 83. She has no spouse or children and she has been living alone in her home since my…
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New to Forum: Introduction 👋🏻
Hi all, My partner was about 26-27 when she started to realize her mother was having difficulties recalling basic things. We are 31 now. Her mother lives independently (alone) and does not know what is happening. My partner is more or less her mother's only family. My partner's sister, her mother's other daughter, lives on…
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Nursing Support for Hospital Visits
Hi All! I'm new to this group. My sister has dementia we believe due to vascular system issues. She lives in a Memory Care facility. Recently, she's had some health issues with declined responsiveness. The facility sends her to the ER via ambulance. The issue is I'm in FL and she is in MO. It frightens me that she is going…
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Institute of Aging's Companioa program
Has anyone used Companioa, a program where the goal is to stay at home (as opposed to AL or MC), by using a combination of "care coaching" for caregivers, some home care, adult day care, and care management (medication, medical appointments, etc.). It seems to be a middle ground between 1) doing caregiving totally on your…
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Webinar from AFTD
Sharing in case it's useful to others. The Association for Frontotemporal Degeneration is holding a webinar with their helpline staff on October 2.…