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Socialization with a DH with Alzheimer's

Hi.  This is the first time I've reached out to this group.  I feel like my husband  and I need more socialization with others.  I am hesitant to meet new people as my DH has Alzheimer's.  His socialization skills are still good, most of the time.  Out of fairness to others, I think it helps if they have a heads up about what is happening.  Any thoughts, suggestions or experiences to share?  Thank you and have a lovely day.

Comments

  • SusanB-dil
    SusanB-dil Member Posts: 1,149
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    Hi Hopeful75 - and welcome to 'here'.   A suggestion might be to check a meet-up group in your area?  or a senior daycare center, or activities center, that you could both engage with?
  • Kibbee
    Kibbee Member Posts: 229
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    Some public libraries offer free Memory Cafe events.  They are designed for PWD and friends or family to participate.  They offer activities appropriate for PWDs, and provide an opportunity for socialization for PWDs and their companions.  Perhaps a library or another organization in your area offers Memory Cafes or something similar.
  • MN Chickadee
    MN Chickadee Member Posts: 888
    Tenth Anniversary 500 Comments 100 Insightfuls Reactions 100 Likes
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    I would contact your local chapter of the Alz Association to see about resources in your area. Many areas also have other non-profits that specialize in things related to seniors and dementia. My area has many activities that a spouse an do with their PWD. One group puts on monthly activities designed just for caregivers to socialize with their LO. There is also a choir for PWD where the caregivers can also attend with a social hour afterwards. We also found adult day care to help with this issue. My mom would socialize with other PWD at the program and it gave my dad (the caregiver) some respite time away from her to see his friends and do what he wanted. Each got what they needed in different settings. 

    As for getting together with old friends I think a heads up about his current condition would be helpful. Many folks don't know what to say or what to do so they shy away from their friends with dementia. I would just tell them what to expect, to not dwell on anything odd or incorrect he says, any topics to avoid, and that you would really appreciate getting together. 

  • JDancer
    JDancer Member Posts: 463
    Fourth Anniversary 100 Care Reactions 100 Likes 100 Comments
    Member
    My DH and I have gone on a few short road trips to meet up with old friends. They know the situation in advance and we plan activities my DH  (at stage 5) can participate in- cornhole, jigsaw puzzles, etc. So far, the trips have gone fairly well. I find some friends are more patient with DH than I am, because they don't have to deal with him 24/7.  They can tolerate the constant repetition and forgetfulness for a few hours. Hopefully you can find some empathetic folks to spend time with

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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