What do you feel you needed most during your journey that you did not get?

srivenck

Hi everyone,

My name is Sriven, and I'm an aspiring founder researching how people experience cognitive decline and neurological care. Before I build anything, I want to understand the problem from the people who have actually lived it.

This is personal for me. My grandmother developed severe memory loss and hallucinations toward the end of her life, and watching my family navigate that experience made me realize how difficult and confusing the healthcare journey can be. I've also experienced neurological issues myself in the past, which has made me care deeply about brain health.

I'm not here to recruit anyone, sell a product, or validate a predetermined idea. In fact, I don't think anyone should build healthcare technology without first listening to patients, caregivers, and clinicians. Right now, I'm trying to learn.

If you're comfortable sharing, I'd love to hear about your experience.

When did you first realize something wasn't right?
What was the hardest part of getting help?
Was there a moment when you felt the healthcare system let you or your loved one down?
What do you wish had existed to make the journey easier?

Even if you don't answer those questions directly, I'd be grateful for any story or lesson you think someone like me should understand.

If posts like this aren't appropriate for this community, please let me know and I'll happily remove it.

Thank you for reading, and thank you to everyone willing to share something so personal.

— Sriven