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Not Recognizing Family Members

Momx3
Momx3 Member Posts: 50
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Any advice would be appreciated. We are only 1 1/2 yrs into this (I think] still no diagnosis. My DH has been suffering with memory loss, trouble finding foods and difficulty recognizing objects. It come and goes, some days better than others. Yesterday at our grandson’s high school graduation party he didn’t know ho our niece was. He came up to her and said hello but then later came back to her and apologized for not knowing who she was when he did that. All this time I assumed we were in the earl stages f this but know I don’t know what to think.

Comments

  • Denise1847
    Denise1847 Member Posts: 923
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    Wow! I would wonder if there is another problem. Did they do an MRI or CAT scan. I would contact your doctor and ask him/her to conduct further studies.

  • Momx3
    Momx3 Member Posts: 50
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    He’s had 2 MRI’S one last year that showed some volume loss and then again in April of this year that showed more loss.

  • elainechem
    elainechem Member Posts: 212
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    It sounds like it may be posterior cortical atrophy. This type of Alzheimer's often starts as difficulty with vision.

  • tgeno
    tgeno Member Posts: 34
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    It's not unusual for someone with AZ to have lucid moments. My DW started having a lot of memory issues a year and a half ago. Her doctor ordered both an MRI and CAT which revealed nothing. However, a thorough neuropsychological exam concluded that she had early stage AZ.

  • White Crane
    White Crane Member Posts: 1,140
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    My DH no longer recognizes our children (except our daughter) and grandchildren or any of our friends. It's painful for him and for them. One thing I have done is to "introduce" him to them and tell him who they are. He still may not recognize them but it seems to calm him and ease his anxiety. I'm so sorry you are having to go through this.

  • michiganpat
    michiganpat Member Posts: 146
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    We are 5 years into this and my DH is undiagnosed as he refuses testing. His doctor is aware and we are pretty sure it's FTD of some sort. He still seems in the early stages but has had difficulty recognizing people since the beginning. If there was anything different about them he would not know them. In the past year it has gotten worse. Lately it has happened a hand full of times with the worst not recognizing our 17 year old granddaughter. It has to do with where he sees them. If it's an unfamiliar place it throws him off. We were at a softball game and he asked this girl if we were on the visitors side. She said yes to him. I got there and asked if he had seen our granddaughter. He asked where she was and I pointed her out. He was very upset and went to apologize to her. She lives near us and used to visit us weekly but over the past year she has been busy with work and school so it's been a few months, but still he certainly should have recognized her. I can't explain it except new places or a change in the person looks throws him off. It makes me wonder if he's still in the early stage but in other ways he is. I hope this helps you, knowing you are not alone.

  • housefinch
    housefinch Member Posts: 479
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    Can he see to read? Apparently vision for reading can be affected in posterior cortical atrophy early in the disease. I know PWD eventually stop reading because they don’t remember the information. This is different. They can’t see words properly. They also have specific visual problems where they can see details of objects but can’t put details together to identify the actual object itself. Their vision can look normal on a regular ophthalmologist exam & apparently has to be tested by a Neuro-ophthalmologist (subspecialist). MRI can show volume loss in the posterior cortex (back of the brain). I read an article about PCA after someone suggested it and wanted to pass this along. Maybe helpful?

  • Momx3
    Momx3 Member Posts: 50
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    Thank you all for your posts and your advice.

  • jfkoc
    jfkoc Member Posts: 4,885
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    Please get lab work etc to rule out treatable causes.......You can tell him it is for insurance or medicare.......no reason to tell him he may have a form of untreatable dementia.

  • Momx3
    Momx3 Member Posts: 50
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    edited May 2023

    We are going 05/31/23 to a new neurologist for a 2nd opinion. He has had 2 MRI's, a spinal tap, psych evaluation, and has been taking an antidepressant since April of last year. Both MRI's (one last year in March and then one this year about a month ago) which both show volume loss in right temporal horn and hippocampus, with the MRI this year being worse than last years. Spinal tap, and psych evaluation were normal. Dr. thinks this is all due to depression and not sleeping well. I don't know what to think anymore. His depression seems under control now and he is sleeping better now than he was last year, but his symptoms seems to be getting worse. Also, he will be 62 in August.

  • jaycey
    jaycey Member Posts: 18
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    I have posterior cortex atrophy (PCA) a rare form of early AZ. that initially affects only the visual system. I no longer can read handwriting, or find my way around unfamiliar places, or find information on a website, and I no longer recognize anybody. It's extremely embarassing, and I don't know how to manage it. People take it personally when I don't recognize them and, since my diagnosis is not public knowledge I don't know how to handle it. I was at a party recently and people kept coming up and saying hello, and I just didn't know what to do. i was thinking of having a necklace made that says "I have prospagnosia" then perhaps at least people would ask what that is!

    Any suggestions?

  • sandwichone123
    sandwichone123 Member Posts: 1,175
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    edited December 2025

    Hi @jaycey . I don't have PCA, but I do have face blindness, and I am very familiar with the problem of not recognizing people that are familiar to me. I love name tags. My sister has given up going to church due to this, and she attends church on Second Life (online) where everyone has their name above their head.

    If you come up with a terrific solution, let me know. I'm still working, and people I've worked with for years but rarely see will come into my office. Sometimes I can carry on a conversation just knowing what their role is, but sometimes I have to ask their name and it's embarrassing for both of us.

  • H1235
    H1235 Member Posts: 1,597
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    My mom has vascular dementia. I have found her symptoms to be slightly different/altered than those with Alzheimer’s. It’s my understanding that a stroke or even multiple very small strokes can affect different parts of of the brain. Symptoms vary depending on the part of the brain the stroke occurs in. My mom’s symptoms seem to indicate damage to the frontal lobe. This type of dementia also progresses in a stair step type fashion vs the gradual decline of Alzheimer’s. If he is suffering from vascular dementia this may explain a progression that doesn’t seem to line up with typical Alzheimer’s. I hope his doctors can help with a more specific diagnosis. That might help you to better gage where he is at. I assume you have seen the dbat staging tool, but I’m going to add a link for it just in case.

  • SDianeL
    SDianeL Member Posts: 3,005
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    I found this online.

    • Communicate your needs Before attending, be open with the host or close friends about your condition and the support you might need.
    • Use voice recognition and talking devices Rely on apps, talking watches, or other devices for reminders and telling time, as traditional watches and written information can be difficult to read.
    • Focus on touch and other senses If an object is hard to recognize visually, use touch to identify it. Fidget toys with different textures can also help reduce anxiety and keep hands busy.
    • Have a designated area Identify a quiet, well-lit area where you can retreat if you feel overwhelmed or overstimulated. Anxiety and feeling flustered can exacerbate visual problems.
    • Carry a cane (optional) Some people carry a cane to let others know they have vision issues, which can help others understand why they might bump into things or misjudge distances.
    • Limit alcohol Alcohol can further impair an already challenged visual and cognitive system.
    • Go with a trusted person Having a friend or family member who understands your condition can provide support, help navigate social interactions, and ensure safety. Hope it helps.
  • jaycey
    jaycey Member Posts: 18
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    Thank you for your input - this is helpful. Last week as I was peeling a beet, I peeled the top of my finger off, including the fingernail. Ouch. Really do have to be careful about estimating where things are . . .

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more