New/old member back again
Quite a few years ago I was a member of this forum to get support helping care for an elderly family member. Unfortunately I'm back again because my DH has now been diagnosed with Neurocognitive Disorder. His issues are caused by encephalopathy caused by an autoimmune disease he's had for decades and we have been told it is not Alzheimers. About 10 years ago he had a series of cryptogenic strokes and showed some white matter changes on MRI's. Fast forward to today and his latest neurocognitive tests showed as much as a 50% decrease in functioning in some areas. This week I'm meeting with a geriatric case manager to help me form a care plan. He can no longer be left alone and needs reminders to eat, shower, and change clothing. He cannot manage finances, well, he hasn't been able to handle finances for 5 years. And I forgot to mention that he's in his 50's and this started in his 40's.
As for me I'm tired. Just really tired after managing DH's more than two decades of chronic illness issues, medical emergencies, and hospitalizations plus 5 years managing the other family member we had with Alzheimer's. Also, tired of fighting the VA trying to get respite and AId and Attendance. If anyone has any tips on that it would be helpful. He is 100% P&T disabled vet and is entitled to that help. They even refused to put him on palliative care this year. This intro is a bit all over the place but I wanted to introduce myself because it has finally sunk in that DH isn't going to get better and that I am going to need help.