This is my first post since I joined this group months ago after DH was diagnosed and I’d really like input from others who have had similar experiences. Over the last 4-5 months he’s had a rapid decline physically. For a month or so, the decline was both cognitive and physical, but he had some improvement cognitively after some medications changes. However, he is now totally dependent in all self-care areas except eating, but needs some assistance with that. He’s developed a very severe lean to the side when in his chair, making transfer to bed/toilet, etc. very difficult He still has fairly good long-term memory, but is beginning to have more issues with knowing where he is. He has become wheelchair dependent, lost 15 pounds in 3 months, and despite medication to stimulate appetite, he is barely maintaining his weight. Neurologist has done diagnostic lumbar puncture for normal pressure hydrocephalus but his symptoms have not changed as one would hope if the diagnosis was positive. So, I’m wondering at what point hospice might come into play. I know every case is different, but am curious if anyone has experienced something similar and been approved for hospice.
