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Tonight the sides close in

I struggle

One footfall then the next

Got to move forward as there is no choice


Yes, I guess there is 

But that choice is not who I am

But as I walk this path I will no longer be who I am


When I was 14, Sister Mary Neri caught me reading Catch 22.

She did not approve.

So I read it twice and understood it as much as I was able


I am there now

Unable to complete anything as the rules change daily

And I love this man with all my heart


I am told to not let the disease control me.

But it controls him and I am his path

His hope


His hope will kill me as I know me

I struggle to survive

On a path love will not let me leave.

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Comments

  • psg712
    psg712 Member Posts: 468
    100 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    That is painfully real. IThank you for sharing.

  • midge333
    midge333 Member Posts: 425
    250 Likes 100 Insightfuls Reactions 100 Care Reactions 100 Comments
    Member

    Thank you!

  • Karen711
    Karen711 Member Posts: 118
    100 Comments 25 Likes 25 Care Reactions First Anniversary
    Member

    …with you sister, well said! Hang in there! You are heard!

  • trottingalong
    trottingalong Member Posts: 538
    Eighth Anniversary 500 Comments 250 Care Reactions 250 Likes
    Member

    well said. Sad but true

  • ImMaggieMae
    ImMaggieMae Member Posts: 1,079
    1000 Comments 250 Likes Third Anniversary 100 Insightfuls Reactions
    Member

    You said it all, and perfectly. We understand and are right here with you.

  • June45
    June45 Member Posts: 368
    Fourth Anniversary 100 Comments 5 Insightfuls Reactions 5 Care Reactions
    Member

    Wow! Well said!!

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Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more