Saddened by signs of progression and feelings of inadequacy
We had a nice Christmas but it was evident that DH's disease is progressing. He can usually do a good job of hiding his confusion when the kids/grandkids are present, but that wasn't the case yesterday. And he's really tired today from the effort that it took. Although he's still in the early stages of the disease and I have much to be thankful for, I'm saddened as I see him failing.
And then another case of something that he usually took care of that I missed. We had ordered dinner for Christmas Eve, but the car wouldn't start because the battery did not have enough charge. A kind neighbor took us to get our dinner and we've had AAA here today to replace the battery. But I didn't know that was something I needed to check in addition to the regular service appointments for the car. And I know that I can't expect him to remind me. Makes me feel inadequate.
So even in these early stages, life is not what I expected. I just need to remember that I'm doing the best I can - but will it be enough as the disease progresses???
Comments
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Yes you are doing the best you can. We all are! We usually have a live tree at Christmas but jumped in DH's truck to go and get the tree and it would not start. My fault, I did not think to start it everyone now and then. Dh no longer drives. Had no way to jump it. Dropped AAA last year - big mistake. Fortunately, adult son was able to come over and take care of it a few days later. But too late for the Christmas tree. I just gave up and put up a small artificial tree.
I am not able to keep up with the maintenance of his truck and my car too! Our adult son agreed to take over the maintenacne of his truck as long as I start it once a week or so. But I felt awful because I totally forgot to take care of the maintenance of his truck. It might be time to sell it. But I am not sure I could handle the look on my husband's face as it is driven away by the new owner.😔
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Please be gentle with yourself. You will learn to handle all of these things and more and you will feel more than adequate again - you will feel strong! Yes, this disease is going to toss you around and try to break you, but do not let it. I have been in this process for 6 years. My son came to live with us and he marvels at what I do on my own and without a thought. If your husband still has enough cognitive ability (or ask your son), take them around the house to the water heater, to the shut off for water coming into the house, for turning off hoses, for emergency shut off of the furnace - anything you can think of. Take notes, ask questions and even take pictures. File this again until you need it. Put heating system and water system filters on your calendar to change every 3 months or as recommended. You can do this. If I can, you certainly can. Be well and strong. You are a warrior!
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"But I am not sure I could handle the look on my husband's face as it is driven away by the new owner."
If you get rid of the truck , and with insurance costs that could be a nice budget bonus , have it removed from the property when your husband isn't around to see it . Then if he asks about the truck, it's in the shop, your son borrowed it , etc.
You can probably rejoin AAA pretty easy , and since they lost members during COVID - look for /ask for reinstate discounts , or a longer term at a discount . I saw a few reinstatement deals on line for a few membership areas . Doesn't hurt to ask.
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You are doing the best you can! My DH is moderate stage VD and I'm learning as I go. Give yourself compassion and patience. There's no inadequacy for any of us. We navigate through with support from this group. Best wishes.
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You will learn all of these things, as needed, as you go along. You’ll hire someone to do the things you cannot do.
"But I am not sure I could handle the look on my husband's face as it is driven away by the new owner."
I sold my husband’s truck a couple years ago because it hadn’t been driven in years. It was about 12 years old and in pristine condition because he always took great care of his vehicles. There was never a scratch or smudge on them. He loved cars and trucks. He was able to sign the title and I explained that we were selling it, but he didn’t understand at all and showed no remorse. I was the one who went in the other room and cried after they left because I knew how much he loved that truck before all of this. I cried because I want to protect him and make him better and all I can do is try to make his day to day life as good as I can.
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Thanks I will look into the AAA. I dread the day I have a flat tire……
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You are doing a marvellous job, hang in there remember how great you are and don't give up. Other people, friends, relatives etc don't have to find the compassion, tolerance, love and face the challenges that this group does. We are all doing what we can to keep things in order. It's so very distressing and tiring learning all this stuff, cars and car maintenance, swimming pools and the cleaning process, hot water systems, garden maintenance, fencing, buying a new car and trading one in, yikes it goes on and on, dealing with contractors, changing lightbulbs. I bought a new TV online which took a bit of courage, only to have it delivered with a broken screen, not seen until the delivery chaps left, then had to deal with the delivery company and prove I didn't cause it, the outcome was good but oh so very exhausting. Hearing of everyone coping with the same rotten stuff for the same rotten reason helps enormously and I take strength from the way everyone copes. Chin up!
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FYI Every year I fail to renew AAA and Every year I call them anyway in an emergency. They take my credit card over the phone and send the tow truck. But it's good to know you have such great neighbors.
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Ah, the flat tire. I’ve had two recently. We do have a compressor. I figured out how to put the attachment on and fill my flat tire and drive it to the shop. I purchased a small hand held jumper for my car battery that I always have with me, size of a cell phone. I recently had to call a tow truck to take our truck to the shop. Couldn’t keep it running, I bought a contraption that reads the computer to tell me what’s wrong with the vehicle. I’ve learned to change windshield wipers and fix a garage door opener, start a generator when our power is out. It happens where I live. I can hook a battery charger to a vehicle and charge it on my own. I didn’t used to do any of this. YouTube videos are my friend. Even bought myself a small chainsaw because my husbands is too big for me. We have had pretty bad storms and I have had to go cut more than a few 20 foot redwood tree branches. One step at a time. It can be overwhelming doing everything, but it can also be empowering.
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i’m suggesting this, just in case it will work for you.
i’m an older, single female and I have a car mechanic I’ve used for years and really trust. Every fall I take my car to him for what I call it’s physical. He just does all the routine maintenance. He checks all my hoses, belts, filters, windshield wipers, battery, brakes and tread on my tires, etc. this has really worked well for me. Hope maybe it’ll help one of you guys. You definitely would have to have a mechanic though that you trust.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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