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Saddened by signs of progression and feelings of inadequacy

We had a nice Christmas but it was evident that DH's disease is progressing. He can usually do a good job of hiding his confusion when the kids/grandkids are present, but that wasn't the case yesterday. And he's really tired today from the effort that it took. Although he's still in the early stages of the disease and I have much to be thankful for, I'm saddened as I see him failing.

And then another case of something that he usually took care of that I missed. We had ordered dinner for Christmas Eve, but the car wouldn't start because the battery did not have enough charge. A kind neighbor took us to get our dinner and we've had AAA here today to replace the battery. But I didn't know that was something I needed to check in addition to the regular service appointments for the car. And I know that I can't expect him to remind me. Makes me feel inadequate.

So even in these early stages, life is not what I expected. I just need to remember that I'm doing the best I can - but will it be enough as the disease progresses???

Comments

  • Belle60
    Belle60 Member Posts: 60
    25 Care Reactions 10 Comments 5 Insightfuls Reactions 5 Likes
    Member

    Yes you are doing the best you can. We all are! We usually have a live tree at Christmas but jumped in DH's truck to go and get the tree and it would not start. My fault, I did not think to start it everyone now and then. Dh no longer drives. Had no way to jump it. Dropped AAA last year - big mistake. Fortunately, adult son was able to come over and take care of it a few days later. But too late for the Christmas tree. I just gave up and put up a small artificial tree.

    I am not able to keep up with the maintenance of his truck and my car too! Our adult son agreed to take over the maintenacne of his truck as long as I start it once a week or so. But I felt awful because I totally forgot to take care of the maintenance of his truck. It might be time to sell it. But I am not sure I could handle the look on my husband's face as it is driven away by the new owner.😔

  • Victoriaredux
    Victoriaredux Member Posts: 148
    100 Likes 100 Insightfuls Reactions 100 Comments 25 Care Reactions
    Member

    "But I am not sure I could handle the look on my husband's face as it is driven away by the new owner."

    If you get rid of the truck , and with insurance costs that could be a nice budget bonus , have it removed from the property when your husband isn't around to see it . Then if he asks about the truck, it's in the shop, your son borrowed it , etc.

    You can probably rejoin AAA pretty easy , and since they lost members during COVID - look for /ask for reinstate discounts , or a longer term at a discount . I saw a few reinstatement deals on line for a few membership areas . Doesn't hurt to ask.

  • Cheryl11
    Cheryl11 Member Posts: 14
    10 Comments 5 Likes 5 Care Reactions
    Member

    You are doing the best you can! My DH is moderate stage VD and I'm learning as I go. Give yourself compassion and patience. There's no inadequacy for any of us. We navigate through with support from this group. Best wishes.

  • Belle60
    Belle60 Member Posts: 60
    25 Care Reactions 10 Comments 5 Insightfuls Reactions 5 Likes
    Member

    Thanks I will look into the AAA. I dread the day I have a flat tire……

  • jehjeh
    jehjeh Member Posts: 22
    25 Care Reactions 10 Comments 5 Likes
    Member

    FYI Every year I fail to renew AAA and Every year I call them anyway in an emergency. They take my credit card over the phone and send the tow truck. But it's good to know you have such great neighbors.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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