No Support From My Kids
As expected, this was the worst Christmas ever. My DW goes to the Alzheimer’s Activity Centre 7 hrs a day 5 days a week , however , they are now closed for the Christmas Holidays… reopening on the 2nd Jan 2025 as such It has been very tough for me. Keeping her occupied is brutal . Watching TV for hours is all she does and I have to sit with her. I have put on Sound Of Music which she enjoys 4 times already . I have driven to the Mall twice as we could not take our usual 40 min walk as it has been raining here the past few days. During this Festive Season we visited ( 3 hours ) each of our 3 kids once at their respective homes . That’s it . None of them ever ask me how their mom is doing yet I know they love her very much . I feel they do not want to know .Today my son calls and I could not help telling him how tough it has been for me all these past few days ( 2 more to go ) . I got the usual response “ WE TOLD YOU TO GET MORE HELP.” I got really pissed off and hung up. I also know that behind my back the 3 of them discuss between themselves what’s happening and how their dad is not doing enough to help their mom yet they each spend only 2 hours a week with her.
BTW …I do have a PSW come in once a day every evening to give my DW a shower . Still debating if I should press the send button. Aw well …
Comments
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so sorry. Someone posted on here The Calvary Isn’t Coming” which for many caregivers is true. Maybe it’s time for memory care? Or can you hire more help? We understand what you are going through. Hugs.
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I can tell my adult kids some about their dad and what’s going on, but not much they can do and I have no expectations of them. One lives across the country and the other 7 hours away. They both have families and work. Even if they were closer, I honestly don’t know what they could do. It’s hard to see a parent go through this. They feel helpless. I helped care for my MIL with alz and now my husband. The siblings of my husband were all close to their parents, but they all worked full time and had kids in school and sports. I happened to work part time and it was easier for me to go to my MIL house after work every day. It’s a lonely disease that takes so much from us. The cavalry rarely shows up, if ever.
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Your kids and most people think they are helping with their "wisdom" but unless they have spent real time in the trenches they just don't get it. The people here have put in a lot of time to be able to give ideas that are based on real life. Sometimes it is hard to be polite to those that don't have any experience but want to tell you all they think they no.
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The reason your children don’t ask is because they feel they know the answer.
For whatever reason, 2 hours a week is all they can do. The only available answer then to give you relief is to hire more help. Normally you are getting 7 hours a day most days plus an hour at night. That’s actually quite a lot of help for at home. The next step would be MC. It sounds as if your children would be supportive if you went that route.Caregiving is hard. I knew I wasn’t suited for it 24/7 so I placed my parents in AL.
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I don't think kids really know how to help. In my opinion all that's needed is for them to call for 5mins a day to see how YOU the caregiver is doing. They don't need to do anything for the one suffering with AD as I don't think there's really anything they can do, unless they have lots of time and patience to get physically involved. I'm a newbie to this, but for the past year have seen DH short term memory deteriorate and it has pulled the rug from under my feet. Our children will ask how we are every few months via WhatsApp because they all live so far, only visit once year. But I know I would have appreciated talking on the phone for just 5 mins daily with one of them!
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I'm glad you pushed the send button. This is very common behavior. They (your kids) think they understand and have all the answers - your just not listening to them. When in reality, please do not be offended, they know nothing of what you are going through.
Let me briefly share my story. We told our DS & DIL what was happening and the diagnosis. They were supportive, going to move where they'd be able to help, be here every Friday night for family night - all their idea's. They purchased a house farther away than they were, never once offered to help and in year 13 they've yet to come for Friday family night. Matter of fact, we've not seen nor heard from them in over 8 years. And you know why? Because I gave / allowed his father to get sick with this disease. So they walked away. I don't share so you'll feel sorry for us or anything, but rather see how our DS decided to handle the diagnosis - blame me and walk away. (Yes, in that time frame I've reached out several times, he's busy, etc. Not once has he checked on us. We've had friends reach out to him, he ignores them.) At this point we've long realized he can't handle his father's diagnosis, that has absolutely nothing to do with us and is one hundred percent on him.
Be the best caregiver you can be and that's what you can control.
eagle
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Please, always press the send button. We truly understand and we really do care!
3 -
Sadly The Calvary Isn’t Coming
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As disappointed as you may be when kids don't show up to help, trying to dish out guilt just makes things worse. My DH has 4 adult children and 5 grown grandchildren in the area. I wish they gave DH more attention, but I show heartfelt gratitude for the attention they do give him. I'd rather be pleasantly surprised when they do visit or take DH out than feel resentment when they don't.
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Adult children are hard to deal with and understand especially in this situation.To be in their shoes it must be heartbreaking to see a parent deteriorating when we all know our parents are invincible. Our daughter lives 8 minutes from us, she phones every morning and every night and I am so grateful for these calls but we get no physical help, in fact I spend 2 hours every week cleaning her floors, I take my DH and our puppy, it’s somewhere familiar to go, I make a cup of tea and a sandwich and she pays me. I think it’s a win win situation. Our son lives 1500kls away we talk on the phone once or twice a week, sometimes face time with the children. He just did a rushed 24 hour Christmas visit to see us, which we both loved, but no physical help, no time and I didn’t expect it, I just loved seeing and hugging him. Love what you can, appreciate what you can, don’t expect anything is my motto. Keep venting.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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