Hopeless
Happy New Year. This actually is my first post. My DH just turned 60 and seems to be in moderate point in his battle (been dealing for 4 yrs). Someone said how guilty they feel having happiness while their DH is going through this. I also feel guilty. I have a full time job and am exhausted. I hate to say this but I feel so alone and all our future plans are down the drain. I feel selfish in saying this but I have absolutely nothing to ever look forward to. I used to love having days off and now I don't even look forward to that. Anyone else feeling this way?
Comments
-
yes I feel this way everyday
4 -
Yes. I feel that way. I’ve had the last two weeks off of work and rejuvenated some, but can already feel the creeping dread of returning on Monday. I struggle nearly every day, the life we knew and planned for is over, and there’s no option to plan for any real future until this is done.
This much seems clear. We’re depressed, hours, with damn good reason. This is a terribly sad and exhausting journey.
I still feel a little fight in me though, so I’m gearing up to make some changes. More caregivers to let me work in the office with focus on my job. I bought cameras for the house too, to have an eye on things. I’m committing myself to daily gratitude this year. I so often forget how lucky I am in so many ways, somehow still. And, I’m pulling in my old athlete stuff; every mistake or loss is a growth opportunity. I wish God or the universe had less faith in me to grow to meet this terrible challenge, but here we are. I just can’t let myself down now, after all of these years fighting to smooth my DW’s path to the next stage.
I honestly don’t know how successful I’ll be in any of this, but if I go down, I’m going down swinging.17 -
I can totally relate. All I want is for this horrible, exhausting, unfolding emotional and financial disaster to be over.
7 -
You are in good company here. My DH has had signs of Alzheimers for over 10 years now and went into memory care 10 months ago. I still cry most days, missing him so much and grieving for the future I thought we would have. I too can't picture what life will be like when this part is over. There are better and worse times and what I thought was unbearable really isn't. Please keep coming back to this group. No one can understand and accept you as well as people that have the same experience.
8 -
Yes. I feel that way. Thank Gd for this site - the people here been a huge help to me (and many others).
2 -
Ditto!
0 -
Every single day. I’m finally starting an antidepressant (which I fought against) because the bleakness of my situation and the world at hand, has me feeling full of anxiety as well as depression. This is not a normal feeling for me. Keep coming back, we are all in this boat together, helping each other weather the storm.
3 -
My opinion is you shouldn't feel any guilt in feeling this way, we all go through it and require more support than anyone could ever know. A New Year is bound to have some of the usual cheer and celebration removed, especially as this is your 4th year with slowly seeing parts of your other half leaving.
Enjoy the small things, and remember you do also have a life away from this, it's important to remember that. I mean you're on here which is a good start :) wishing you my best!0 -
You have expressed many of the same feelings we all have. This forum is a great place to validate those feelings and realize we’re not alone. Keep coming back for your own sanity!
0 -
yes. We know exactly how you feel. No need to feel guilty. You are grieving many losses: your DH, your freedom, the loss of your future plans and so much more. Hugs.
2 -
I feel this way every day. I used to be one of the most positive, cheerful people you would ever meet…now I don't want to get up and face another day…my first thought is always that I have to make it through 12 hrs of god knows what and I just look forward to going to bed. I think if it wasn't for my little dog who is totally dependent on me I wouldn't make it or even want to try. This site is really what gets me through…
4 -
Good luck Cindybum keep trying never give up, snatch bits of sleep, bits of things that you are interested in, remember the good times while listening to music that you like, make jam and donate it to a charity, get a budgie or cat or dog that you can talk to or a fish! Find a joke book and tell yourself some jokes. It’s such an alone and sad time but don’t give in to it and don’t think about the future or not the moment.
0
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more
Categories
- All Categories
- 482 Living With Alzheimer's or Dementia
- 241 I Am Living With Alzheimer's or Other Dementia
- 241 I Am Living With Younger Onset Alzheimer's
- 14.4K Supporting Someone Living with Dementia
- 5.2K I Am a Caregiver (General Topics)
- 6.9K Caring For a Spouse or Partner
- 1.9K Caring for a Parent
- 162 Caring Long Distance
- 110 Supporting Those Who Have Lost Someone
- 11 Discusiones en Español
- 2 Vivir con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer de Inicio Más Joven
- 9 Prestación de Cuidado
- 2 Soy Cuidador (Temas Generales)
- 6 Cuidar de un Padre
- 22 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 6 Account Assistance
- 16 Help