End stage - mom

hiker88 · January 20

Hi. My mom has been non verbal for the last year or so. She is end stage. Puréed food, bed/chair bound, help with everything. The past few visits she’s been trying to say something. It’s just weird. Anyone have this happen? I am not sure what to do, if anything. TIA

SusanB-dil · January 20

It is not at all unusual for a PWD to have trouble communicating, regardless of what stage. If you see that there is really no other issue, I would just 'agree' with her, maybe tell her you're on it, and that you are watching out for her.

mpang123 · January 24

My dad can only mutter some words. Mostly incoherent but once awhile he says something with clarity and meaningful. He is heavily medicated with pain meds and I think that affects his speech. However, we still try to bring up conversation even though we don't know what he is trying to say. So sad 😢

Anonymousjpl123 · January 27

This is so heart wrenching to read because my mom is still able to speak, but starting to not make sense with her words. She seldom finishes a full sentence. I’m enraged, scared, and enormously sad. I hate it all. I know she will lose her speech eventually.

All of that said, she is not unhappy. This is the crazy part. I think it’s partly because I - and her MC staff - still treat her like a person. It’s hard to do. But doable. And the irony is we were mostly estranged before I became responsible for her after my dad’s death.

Let her know you are there and listening. I am so sorry you are having to witness this - all of you. It’s really gut wrenching: we just gotta stay present. Sending supportive vibes to all of you.

End stage - mom

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