Needing support from my online "friends" who walk a similar journey.
I'm strong most of the time but feeling very vulnerable tonight. MCI diagnosis after neuro/psych testing many yrs ago. 2 strokes and 2 vascular surgeries later dr says likely VD. DH refuses further testing or medical evaluation. He's done. Don't blame him, its been a lot of tests that ruled out lots of things. He wants no more medical intervention and just wants to be left alone to live whatever life he has left. I get it. From his perspective why endure more stress, testing, evaluation when the end result is the same?
So how as a loving spouse and caregiver do I give up trying to make it better? I KNOW I CANT CHANGE THE ULTIMATE OUTCOME AND I DO NOT WANT TO EXTEND THE TIME HE HAS TO SUFFER FROM THIS DREADED DISEASE?? I figure he's late stage 5 going in to 6. I still struggle with my own inner demons that want a neurologist or geriatric psych evaluation to get additional info on stage of disease. I'm not looking for meds or trying to slow disease. This is TERRIBLE and no caring spouse wants their loved one to have to suffer longer than necessary. I guess I just needed to vent and hear a supportive voice. Anybody out there in a similar situation??? Just rolling along....