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I CANT DO IT!!!

I'm 39yo female caring for the kindest, all giving to anyone in need 45yo EOA bf. I hate this f**cing disease so bad. Tomorrow i have an assessment with the facility i plan to put my loved one in. The fast track to get him into MC is via hospice. We had that intake on friday. My anxiety is at a high right now and I'm thinking I can keep doing and taking care of him right. This disease progresses so fast when he was first diagnosed August of 2023 the dr said he was stage 4/5. Now he is stage 7b. Fully incontinent, however can still tell me when he has to pee. He still eats food which his eating part has slowed down. I lost my sh*t tonight and just held him and hugged him and kissed him and reminisced of our first dates, walks down our downtown streets, dancing. He was agreeing with me and then was hugging me telling me "its okay, calm down" I told him i love him and that i am so sorry. I have done my best and to never forget how much I love him. I wish he could cuddle me and hold me. I haven't felt his cuddles in … I don't know how long. He would always rub my back till I fell asleep. I feel like a horrible person.

Help!!!!!

We are all in this together 💜

Comments

  • Carl46
    Carl46 Member Posts: 697
    250 Care Reactions 500 Comments 250 Likes 100 Insightfuls Reactions
    Member

    You're not a terrible person. You said you did your best! What more is there?

  • Pat6177
    Pat6177 Member Posts: 465
    100 Likes Third Anniversary 100 Comments 25 Care Reactions
    Member

    Your feelings are real but might not be reality.

    I placed my DH in Feb. I have felt so guilty ever since. I regularly think of bringing him home. That’s not the right solution either. I’m trying to accept that there just isn’t a good option. The options available all hurt so bad.

    You’re not a horrible person. It’s a horrible disease.

  • Quilting brings calm
    Quilting brings calm Member Posts: 2,748
    2500 Comments 500 Insightfuls Reactions 500 Care Reactions 500 Likes
    Member

    You are not a horrible person. As the saying goes- You are doing this FOR him, not TO him. You didn’t give him dementia. You are doing what you can to give him around the clock care by people who can go home and rest after their shift.
    You will still be his advocate and his friend. There will still be things that you will be the one doing for him. You however will now get to rest and look out for your own needs.

  • harshedbuzz
    harshedbuzz Member Posts: 5,000
    Eighth Anniversary 1,000 Likes 2500 Comments 500 Care Reactions
    Member

    @MarDel0917

    The weeks leading up to placement were the worst part of the entire dementia experience for me. The discomfort and anxiety were almost unbearable. Drop-off was horrible as well. I'd suggest having a friend meet you after, perhaps in the parking lot even.

    Dad took a couple weeks to settle in, but once he did mom and I were able to resume our roles as doting wife and entertainer which was beneficial for all.

    HB

  • WIGO23
    WIGO23 Member Posts: 163
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    Member
    edited April 14

    You are definitely not a horrible person. The fact that you have stood by him and are feeling so conflicted in recognizing his needs are more than you can handle shows your love. I hope you will find peace and that his adjustment goes as well as it can for you both.

    Please reach out here as often as your need to. We all understand your pain.

  • midge333
    midge333 Member Posts: 459
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    Member

    I will echo what has already been said. You are a great caregiver. It is time to place him and you should not feel guilty. You have done your best. I agree that the weeks leading up to placement have been the worst for me thus far. There is a sense of finality to placement. It is a one way ticket. It makes me cry just thinking about it…

  • upstateAnn
    upstateAnn Member Posts: 123
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    Member

    you are grieving. That not guilt is what you dealing with. You have nothing to feel guilty about.

  • Jgirl57
    Jgirl57 Member Posts: 589
    500 Comments Fourth Anniversary 100 Likes 25 Insightfuls Reactions
    Member

    (((Hugs))) (((Hugs))) (((Hugs)))

  • SDianeL
    SDianeL Member Posts: 1,399
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    Member

    he’s lucky to have you. You did all you could and more. You are placing him so he can get the best 24-7 care he needs. When you drop him off don’t say goodbye. Just quietly leave. Hope you have someone to go with you. Visit him often and keep talking to him. Hugs. 💜

  • Karen711
    Karen711 Member Posts: 129
    100 Comments 25 Insightfuls Reactions 25 Likes 25 Care Reactions
    Member

    You sound amazing to me, and he is lucky to have you. Sending you (((hugs)))💕

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more