Home care hopefully will help ?


After struggling with the thought of bringing in help only because so far my DW has made it clear that no one but no one was going to come in and help . She has stuck to she just wants me and her . Well I can't keep watching her get weaker because of not eating hardly, and if course I have not been able to get her bathed. So here we go , I've asked the agency to please send someone who has dealt with a non cooperative patient. My wife a retired nurse is tough and stubborn . I know this disease plays a big part in her disposition and I've had to accept that . Hoping that this decision will ease the situation at some point.
Comments
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Yes! Hold firm. I cannot even express how much help it has been to me.
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Thank you Cindy !
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I'm struggling with the same issue. I need a break and DW just doesn't want anyone else in the house. I hope you got the help you need!2
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I will add for both of you. My DW hates the idea of in-home care and gets upset whenever the caregiver is coming. I keep telling her, like I did when I first proposed it, that the caregiver is for me, not her. The woman coming in is helping me with household chores like cooking, laundry and buying groceries, which this caregiver does. My DW will accept it, however reluctantly, because she doesn't realize the caregiver is there to help her. And honestly, the caregiver is my respite and so I wan't even telling a fib.
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@Sophietucker
It's hard when your PWD is so resistant to assistance.
Given your wife's nursing background, I wonder if you could make this more palatable by selling the aide as a student who needs clinical practice with her providing an opportunity to practice rather than needing help.
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I, too, called this a helper for me. When we finally found a good match, it was a woman who is near my husband's age and grew up in the area. They connected over cars, music, and the things that were happening around here when they were younger. If your DW had hobbies, perhaps someone who shares that or can at least keep up a conversation about it. DH finally understood that I needed to run errands without worrying about him needing something while I was gone. I started out with quick trips to store or pharmacy and increased my time away over time. It's been about 2 months and I no longer get calls every few minutes wondering when I'll be home. I was very disheartened the first 3-4 months when we couldn't find the right person but I encourage you to keep at it.
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I wish it was that simple . But thanks for the suggestion. This has to work for us .
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I will keep it up , I just don't want to fail . Thank u !
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I also told my DH that the person was coming to help me and I had to go to doctor appointments. After the 2nd visit he asked if “his lady” was coming that day. I stayed home the first time she came and just did things around the house. The first time I left I only stayed away 2 hours. If you ask they will say no. Just do it. If your LO is not on medication for anxiety that might help.
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Hi SophieTucker- my wife has adamantly rejected the idea of help in the house and has become very angry about it so, while I had several options ready to have someone in I opted to avoid the conflict. Just trying to have secret conversations with agencies was causing me uber stress. But, 2 1/2 weeks ago I came down with a severe ongoing case of dizziness (virus affecting inner ear nerve/ worn out caregiver stress response on top of 25 years of lupus) and so I had a breakdown (understatement) with DW and said we had to have someone no matter what she had to say about it. It was finally was obvious to her that IN FACT, I absolutely needed someone there for ME. Within a couple of days the caregiver shows up and DW within one day instantly BONDS with Teresa from El Salvador. I can’t say enough about the magnitude of relief it is to have another human being in the house who is learning our routine, shopping, cooking, cleaning, AND entertaining DW with walks, games etc. I don’t recommend waiting as long as I did, but to keep peace in the house and agitation down- we’ll, we all know how hard it is to get someone in. I hope your DW will surprise you and end up liking who you get. The “story” that you need it for YOU, IS actually true and can possibly appeal to some vestige of feeling our dear ones still have for us. I wish you luck with it, let us know!!!
Karen
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I’m sorry it took you getting sick to get the much needed help (sounds like what I would do), but happy to hear you found a wonderful Teresa.
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My DW refused to let me get outside help. This is what finally pushed me to place her in memory care. I could have kept her at home much longer if I had help.
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Thank u. S Daniel !
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Will do . Thank u !
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Thank you! It was a gift and a bit surprise to me that my wife took to her so quickly. Made me realize I could’ve demanded this sooner- rather than wait ‘til I REALLY needed it! 💕
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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