Have any questions about how to use the community? Check out the Help Discussion.

Long overdue update

JoseyWales
JoseyWales Member Posts: 634
Eighth Anniversary 500 Comments 100 Care Reactions 25 Likes
Member

We hit the 3 year mark in MC a couple of months ago. It's been a 15 year trip with dementia so far. I know I posted here before about how I feel so "old" because this is typically a disease that hits older people. Managing end of life decisions and all that planning at 50 makes you feel old. Currently DH is 61, I'm 57. The trip started when I was 42. Life has been all about him since then.

DH is stable in MC. They should probably have transferred him out of MC to skilled nursing two years ago, but haven't. I have great relationships with staff in MC, so I'm glad he's still where he is. He can't walk, talk, move. He needs total care. He's been on hospice 2 1/2 years. They say he could continue like this for maybe another 5 years. Or not.

Until 2 months ago I felt stuck. I visited DH every other day, because I felt guilt if I didn't. It's a 40 minute drive from home, and I work full time (elementary special ed teacher). On a Saturday night I was sitting home - again - and said to my son who was also sitting home with me (he's 24), "We're pretty boring people." And I didn't mean it in a good way.

That next Monday, I was told about 3 elementary students (ages 5-11) who needed emergency foster care. Impulsively I said I'd do it short term. They arrived at my house a few hours later. Last week I agreed to keep them long term.

I've now had these 3 wonderful, wild and needy children living in my home for the last 2 months. It's been good for me. I feel like I'm coming out of a fog. I'm still able to visit DH 1-2 times a week, and he hasn't deteriorated without my constant watching. I always thought I'd have to wait until he died (I know that sounds absolutely horrible) to get on with my life. But it seems I've found a way back.

There were days when I was so beat down by dementia that I couldn't see what kind of future would even be possible. I'm still not sure what my future holds, but I'm good with my present.

Comments

  • M5M
    M5M Member Posts: 154
    100 Comments 25 Insightfuls Reactions Second Anniversary 25 Likes
    Member

    JoseyWales, That is excellent news! I am proud of you for taking a step outside of the dementia world. Best wishes as you explore fostering. Let us hear about your experiences!

  • Lills
    Lills Member Posts: 164
    Seventh Anniversary 100 Comments 5 Likes 5 Care Reactions
    Member

    Wonderful news! Great for the kids and you!

  • White Crane
    White Crane Member Posts: 995
    Eighth Anniversary 500 Care Reactions 250 Likes 500 Comments
    Member

    Josey, it’s so good to hear from you! How wonderful that these three little ones came into your life. Good for them and good for you. This journey can beat the best of us down to the dust. It’s wonderful to hear you are finding a way back. Sending big hugs.

    Brenda

  • ladyzetta
    ladyzetta Member Posts: 1,151
    Eighth Anniversary 1000 Comments 25 Care Reactions 25 Likes
    Member

    HI Josey. It has been awhile since we have heard from you. You are wonderful to take on these 3 special children, they need you as much as you need them. We are sent confort in many different ways. I look forward to hearing from you again. Hugs Zetta

  • Quilting brings calm
    Quilting brings calm Member Posts: 2,769
    2500 Comments 500 Insightfuls Reactions 500 Care Reactions 500 Likes
    Member

    I’m so glad for you. There’s no one like a child to make you feel needed- in a good way for a change.

  • RetaMeta55
    RetaMeta55 Member Posts: 22
    10 Comments 25 Care Reactions 5 Likes
    Member

    I am so happy for you! You are a good person and to find joy in helping those children is special in itself. Take care!

  • JeriLynn66
    JeriLynn66 Member Posts: 1,042
    1000 Comments 250 Likes 100 Care Reactions 25 Insightfuls Reactions
    Member

    What joyful news!

  • Jgirl57
    Jgirl57 Member Posts: 602
    500 Comments Fourth Anniversary 100 Likes 25 Insightfuls Reactions
    Member

    Thank you for the update ! Sorry the dementia road has been so very long . It sounds like you now have a joyful caregiving opportunity. Children can definitely bring new adventures!

  • Buggytoo
    Buggytoo Member Posts: 121
    100 Comments 100 Care Reactions 25 Likes First Anniversary
    Member

    I send my prayers for your strength and comfort as you welcome these children into your life. They are very fortunate to have you as their lifeline!

  • SDianeL
    SDianeL Member Posts: 1,460
    500 Likes 1000 Comments 500 Care Reactions 250 Insightfuls Reactions
    Member

    thanks for the update. Wonderful news for you and the children. 🙏💜

  • Beachfan
    Beachfan Member Posts: 810
    Seventh Anniversary 250 Care Reactions 500 Comments 100 Likes
    Member

    You are a saint and a blessing to those children! I think about you often. You, your DH, your son and your incredibly fortunate fosters are in my prayers. Such an inspiration! 💕💕

  • marier
    marier Member Posts: 86
    Sixth Anniversary 25 Likes 25 Care Reactions 10 Comments
    Member

    What a great post! Thank you so much for sharing. It has inspired me to be more open to new experiences. I will keep you, your DH, your son and fosters in my prayers. I admire your courage and fortitude.

  • Dio
    Dio Member Posts: 786
    250 Likes 250 Care Reactions 500 Comments 100 Insightfuls Reactions
    Member

    Josey, so good to hear from you! You are truly an inspiration that we can do good in the midst of our wretched journey. I often while the time away feeling sorry for myself. Your post is reminding me to get up off my ass and do something…anything.

  • Joe C.
    Joe C. Member Posts: 1,012
    Fifth Anniversary 500 Comments 100 Insightfuls Reactions 100 Care Reactions
    Member

    Josey, Good to see your post. It has certainly been a long journey for you and I know the toll it can take. I admire you courage taking in these children in need and wish you the best going forward.

  • Mint
    Mint Member Posts: 3,038
    Eighth Anniversary 2500 Comments 250 Likes 100 Care Reactions
    Member

    Joisey I wish you and the children all the best. May all of you be special to each other for a long time

  • JoseyWales
    JoseyWales Member Posts: 634
    Eighth Anniversary 500 Comments 100 Care Reactions 25 Likes
    Member

    Thank everyone, for your kind comments.
    I've spent so much of the last 10 years being totally overwhelmed by everything dementia. It permeated every aspect of my life. On the surface, foster care for 3 kids seems like it would add to that stress. Somehow it hasn't.

    You can't come back from dementia. You just make the best you can out of the horrible journey. There can be happiness, but knowing what the ending will be is always there.
    Foster care is different - I have hope for their future and want to give them the best I can. It's a journey filled with much sadness, but also an uncertain ending. I'm hoping for a happy one for them, whatever that may be. And let me tell you how sweet those moments are when I get all 3 of them giggling together.

    Getting out of my rut has helped in ways I never thought possible. I thought I knew the ending of my story. Now I know I have no clue. A decision made in a moment has changed my entire outlook.

    Blessings to all of you on this dementia journey, wherever you may be.

  • extex
    extex Member Posts: 63
    Tenth Anniversary 10 Comments
    Member

    I haven’t been on here in a couple of years. My wife was a dementia victim for over 16 years and went to stage 8 May 5 2024. Tomorrow will be her first Heavenly Birthday. She was in MC for her last three years here and I only missed seeing her for three days during that time. Near the end, when she refused both food and water, I knew she was near death. After about 10 days, while I was holding her hand, she suddenly turned to me, gave me a huge smile, gave a little chuckle, and was gone. I will visit her grave tomorrow with a bouquet of roses. It will be a sad but joyful day for me.

    Extex

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more